I take 300 mg morning and midday and 600 mg at night. I agree with previous comments that u can go way up on your dose. I find I acclimate and feel less drowsy over time. A little green tea (caffeine) takes the edge off. Different meds work on different types of pain, too. Neuron tin is good for nerve pain but I think less so for muscle/joint.View Thread
Thank, everyone for bringing up this topic. Totally with you all about the difficulties of pacing this time of yr. I myself served Thanksgiving dinner for 10 last night. Came down w a migraine in the middle but rested w my heating pad, took some xtra Neurontin (shhh !) and in the end could not avoid NSAID but finally felt better. Everything actually turned out great and we had lots of fun.
Was trying to explain to DH why so impt to me to have all these traditions continue in spite of illness. For me it has some to do w not letting go of societal expectations of women. I know my MIL will think less of me if I can't turn out a beautiful Thxgiv dinner, for example. I feel it's expected of me and I will "fail" as a wife/mom if I don't. It's hard to let go of that. We are all works in progress.View Thread
Hi, all. Haven't been on the board in a while. Life is busy. I see the usual ups and downs with FM continue for everyone, as for me.
My question today is whether others get this shortness of breath symptom like I do. My doctor put me on two types of asthma inhalers, so I don't think that is the problem. Well, I mean I do think asthma is part of the problem, but asthma medications don't completely get rid of the symptoms. The symptoms are almost always worse at night, and when I'm lying down. I also get it if I have to do a lot of speaking. Like at work, if I am giving some sort of talk, I will run out of breath. Oddly, I don't really notice it that much with exertion.
I have read elsewhere that shortness of breath can go with FM, so I'm wondering if anyone here has experienced it and, if so, whether you've been able to find anything that helps? Or am I just weird?
My acupuncturist says it is due to too much "kidney yin" and she does needles and cupping and supplements for me. These seem to take the edge off, but I still struggle.View Thread
Oh my goodness, what a tough cookie you've had to be to get through all of this. You are so brave!
I am concerned you are sleeping so much, both from a medication sedation standpoint and also this could be a sign of depression. That's not a very good quality of life, to be sleeping it away. I know it may seem less painful than being awake, but it's concerning. I would definitely talk to your doctor about this. How can we *not* be depressed dealing with all this stuff?
The ladies here all have wonderful suggestions. Fatigue is a real killer and there's no easy solution. I would add to have your Vit D and B12 monitored closely. I have had some luck with a supplement called acetyl-l-carnitine. I also take thyroid medication which seems to help.
Another thought is for you to try acupuncture/Chinese medicine. I have found this very helpful, and my insurance does cover it, with a copay.
Best of luck...rest assured that there is hope and you don't always have to feel as badly as you do today.
Actually, if you have had persistent neck to tailbone pain headaches for a year, that could be the onset of Fibro and the pain you experienced last night could be a flare. Many of us experience a baseline of pain & fatigue with periodic worsenings called flares. I am just saying I don't think you can ignore other pain that lasts almost 12 months when you are assessing the timing of the onset of Fibro. If you were worse last night, it probably means you won't always be that bad and will return to your baseline once the flare goes away, so hang in there.
I would recommend you go to the Dr. asking specifically about Fibro, and talk about possible meds to help pain relief. I take gabapetin like Mary. I also take Cymbalta which is one of 3 drugs FDA-approved for Fibro pain. I have seen others here post about Savella, one of the others, saying they've had luck with it. Not sure about Lyrica, the third.
I personally try to stay away from nsaids like ibuprofen and even aleve due to the GI problems like Mary said. I find they don't really help a whole lot with the type of pain you get with Fibro anyway.
I agree with Mary about the Vitamin D. You should supplement until you are in the 50-60 range if your levels are low. But talk to your doctor.
Hot baths and showers are the best for immediate pain relief. When all else fails, that can take the edge off.
Hang in there..stay connected with this awesomely supportive community.