Sooooo true! Thanks for posting. I was just today resolving today to
go back to a different neurologist. I am not happy with the answer of "I cannot explain the buzzing/numb/pins and needles feeling in your feet. It may or may not be fibro." (Dr then shrugs). I do not consider this, in retrospect, an acceptable response. How about a little testing to rule out some possible causes? Your post was very validating, Nancy!!
You have been so supportive of many of us on this site. I am sorry to hear you had such a bad time Monday! I am glad you took time to vent bc that is what we are all here for!
I hear what you mean about choosing your attitude and choosing to get stressed about something or not. I agree we can to a large extent help ourselves by not allowing things to get to us and make us Fibomites feel emotionally and physically worse.
I find myself worrying about why you are sleeping so little. What is your body telling you and what can be done? This is intolerable and can only lead to flaring and anger (if we are anything alike!). I lovingly encourage you to do what you need to in order to sleep, even if it means taking an rx you'd rather not.
Try not to be too hard on yourself. We are only human and at times of so little sleep it can feel like barely so.
Take care of yourself. I hope you are feeling better.
I forgot to mention one important thing. When I stopped eating sugar, I felt so much better. Not just because of no longer having the irritation of infections, but my fatigue got better.
Now, if I eat sugar, I just feel gross and it just doesn't tempt me as much as it used to because I no longer enjoy the quick high/hyper feeling from sugar, followed by a crash.
I know how you feel. I drink waaaay too much diet pop. Do we have to give up EVERYTHING? That is one "vice" I really want to keep. That said, I would encourage you to at least try temporarily stopping sugared pop if that is what you drink. You can always add a food or drink back into your diet if you don't feel better off of it. And if you really feel better without it, it's not as hard to give up.
Hi MiMi and all. Cute new picture of you with the grandbaby!
I appreciated your tip of taking the path of least resistance -- with the "finder's fee" idea for the toy jeep. I have to get used to the idea of taking these type of short cuts. Feeling that it's ok. I am supposed to have people over Thursday and was going to make homemade lasagna. They are now getting takeout instead. Yes, I have the luxury of that because I am still working. I am going to take it when I can because little "luxuries" like this that keep me sane are worth it!
Stomach flu went through our house this week. So, that on top of FM, and then no FM meds because couldn't keep them down. That pushed me to make the call about the lasagna finally.
Take care everyone...temptations are to do too much this time of year. Take care of yourself first and let the rest fall in place.
I also bruise a lot. I attribute it to Ehlers-Danlos that I have which is a genetic connective tissue disorder that can result in lots of bruising. I believe this disorder is very tied into my FM pain as well. For what it's worth.View Thread
I would venture all of us with FM who are married or have partners have experienced this dynamic. I always tell my story here about how my DH told me to just "push through" (when I was really sick and struggling to work), totally not getting it. Like I hadn't already pushed through day after day after day to the point of hitting a brick wall and being near collapse. He has told me my desire to lessen my work schedule shows I don't care about the financial stability of my children...ugly stuff at times, not nice. I have learned the hard way that this is his stuff rearing its head, not mine. I would do anything for my children if I could. He is just worried about money.
I could not count on him in many ways before I got sick, and I still can't now in some ways. Though he has grown and tried to understand and stuck with me. I have to give him credit for that.
In spite of this, I am less forgiving than some of the wiser ladies above, in terms of seeing it from his perspective. I still am in the stage of blaming him in part for my sickness -- for not listening to me for years when I told him I couldn't handle all that he was placing on me alone, that I needed more help. Years of too much work travel and endless doctoral programs with 2 big jobs and 2 little children on top of depression finally kicked the FM into full gear. Even now, I sometimes feel like he values me more for what I contribute financially to the family than for me myself. Which is sad. I know if I could forgive him, my health and my outlook would improve. I am working on it. Progress is slow.
I have weighed it a lot -- whether to stay married to him. For now the answer is yes. I was just lying there last night thinking, "am I better off overall for being with him?" I tallied it all up and the answer is still yes, today. Part of it is I am afraid to be alone. Who will take care of me if I can't continue to work? I have been denied disability twice now.
Sometimes I just wish he would say to me, "I am sorry you are hurting so much. It makes me sad to see you like this." But he doesn't. I have learned over time that he expresses love more through actions than words. Even though I want words, the heating pad he brings me or the bottle of water when I am resting shows love.
Basically, it's complicated. But love is like that. Life is full of these wonderful !@##$% learning experiences. As someone once said, "marriage is a growth machine." Some days it sure feels more like a wood chipper! Or maybe that's just the FM flaring again. Ha!View Thread
I personally think if your body is battling any sort of chronic infection, that lowers your ability to feel good, period. I know I have "yeast" (candida) because I have chronic yeast infections and athlete's foot, including toenail fungus that just would not go away. Ew! (Sorry, TMI!) I will not complain though, because my brother has CFS and has excess yeast far worse than I do. He gets skin rashes all over. Very uncomfortable.
My bro advised me years ago to simply stop eating sugar because sugar is food for yeast. I know others do an entire elimination diet -- taking out all alcohol, fruit sugars, bread, etc. For me, it's enough to just avoid refined sugar. I just simply don't eat sweets. It's better for the waistline and I know when I've cheated that even 1 cookie means a yeast infection. It sucks but you get to learn your body after a while.
One of my friends with FM keeps telling me if I get infections back that quickly, I should do a deeper candida cleanse but I just don't have it in me at the moment.
Since I will be cheating over the holidays, I am packing extra Lamisil!
This is one crazy situation we got going on here with FM.
I forgot to add my sympathies to your GC comments about your weight. That hurt my heart when I heard that! Kids don't mean any harm, of course, but it does hurt all the same.
For what it's worth, depending on their ages, I think it would be ok to talk to them, and let them know that although you know they mean their comments sweetly that they should remember that "some people" are sensitive to having their weight problems pointed out, just so they know!
Or, it's ok to talk to their parents and say, "Hey, you guys, I am struggling with this, and I know the kids don't mean any harm, but it does bother me. Can we work with them on it?" Little "paper cut" comments can add up to a lot of pain over time. We don't need more any pain in our lives, thank you very much!
I was cringing when I went to the endocrinologist this week myself bc I knew I would have to weigh in and I knew it would not be good news. And he is one to lecture me about it. I know he does it bc he wants me to be healthy, but sometimes I feel like no matter what specialist I go to they are always on my case about somethign, and it gets tiresome. The endo about my weight, PT about not doing my exercises enough, the dentist about flossing, the violin teacher about my daughter not practicing enough,and on and on. Sheesh, lay off it guilt, people! Enough already.
Hello from MN where it's 7 degrees, -12 windchill, and we have about 5 inches of beautiful new white, glistening snow. Cory's end of the state got dumped on with snow -- about 4 x what we have here in the city. I hope he will check in as the roads are slippery/impassible up there.
I have really good news to share today. I continue to feel better, and I know why because I had my vit d checked again. I am up to 51 (from 27 this summer)!!!! This is so exciting. Endocrinologist said my thyroid bloodwork looked great, and I don't need to see him for 2 years my hypo is so well managed at this point! So, even with all the down days, I feel like some improvement has happened. I need to remember this when things aren't so rosy. There can always be better days ahead.
So, MiMi, I am a case example of your advice on vitamin D working!
Thanks to all of you for endless support & understanding. Soft hugs to all.