Hello, my name is Kathryn. I am 45 years old, married for 26 years, mother to 3 amazing adult children. I was diagnosed with fibromyalgia in 1994. I was in my last year of college when it became unbearable and I was forced to leave school. I did end up completing my education but it was delayed for a bit. In 2002 I was also diagnosed with lupus. I still was unwilling to accept the diagnosis. I was so angry. I had spent so many years denying that there was anything wrong and it just seemed that it all just kept getting worse. I didn't want my husband or my children to see me as a burden so I refused to see the doctors for awhile and I refused all medications. Until in 2008, I woke up in the middle of the night and found that I was paralyzed from my waist down. My husband took me into the ER and I was diagnosed with Acute Transverse Myelitis. It was explained to us that lupus had attacked my spinal cord and that whatever progressed I made in the first year would be as good as it ever would get. My doctors did not think that I would walk again as it had been such a quick and thorough attack. I spent the most part of 6 months in a wheelchair and going to physical therapy after I was released from the hospital but I did walk again, However that attack was just the start of a downhill progression. I now have cognitive memory dysfunction and heart involvement. I lost my job in 2011 after it became impossible to make it through the day due to pain and fatigue. I am currently trying to get disability but it has been one rejection after another. I have more bad days than good. I get up each morning and if I manage to get dressed, brush my teeth, and let my dogs out than I am ready for a nap. I need another nap about 4 hours later and then I am in my bed again by 8 pm. I have a hard time finding clothes that don't add to my pain. I have discovered that bamboo fabric is the most comfortable fabric against my skin. My husband or my kids now brush my hair and help me to get dressed most days and I very seldom cook because I cannot function enough to keep track of a recipe. I do not exercise anymore because I do not want to deal with one hour of exercise only to spend the next 3 days just suffering miserably from the pain. I had been a fitness instructor from 2004 to 2007, prior to that I was a high school English teacher and a girl's cheerleading coach so it isn't that I don't know the benefits but for me the benefits just do not outweigh the cons. My husband put a pool in the backyard and he takes me swimming every day in the summer months just enough to move my joints around .I am also limited to driving no more than 10 miles from my front door which is enough to allow me to go to the grocery (1.3 miles) and to my rheumatologist and neurologist (6 miles) even then one of the kids usually has to go with me so they can take over the driving if I get too tired. I take Lyrica 300 mg daily, Plaquenil 50 mg daily, Namenda 50 mg daily, Aricept 20 mg daily, Trazadone 50mg daily, Vitamin D3 2000 iu daily. I have Vicodin 7.5 mg as needed but I try so hard to avoid it because I am concerned that it is a narcotic and can be addictive, I don't want to become an addict on top of everything else. ntil this past 2 years I didn't think I was depressed but now I do and I just wish I didn't feel so incapable. This pain and fatigue are killing me. With all the medications and therapies available has anyone found something that helps with fatigue?View Thread
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