I fully empathize with you. While I do have many people tell me that they've heard that fm is a terrible thing to have, and that they symapthise with me,I've also heard others tell of similar situations to yours.
I'd recall reading on another fm Bbs that while we with fm don't have visible disabilities , we still, nonetheless, are disabled. Folks who have other disabilities still have normal enevery levels and don't battle fibro fog! So, perhaps a person in a wheelchair who may be paraplegic may still have lots of mental and physical energy. The thing with fm, is that we DON'T. and there's the rub, so to speak.View Thread
Well, it's now mid 20's in western mass. Little wind if any, and brilliant sun!!! Which, when I was standing in it, I was sweating under my scarf. Lol.
I'm not a fan of heat & humidity; I prefer temps 50-75, 80 if bone dry and if I'm in the shade. BUT the recent bitter cold was worse than the humidity and heat; that's say a lot for me. I generally dread summer, but have come to dread the months of dec-feb because of icy spots and petrified snow banks. Very very scary to walk to thr bus stop in icy conditions and as well, to have to climb snow banks to reach the bus itself. At least in the heat, I don't have to worry about being trapped indoors due to ice. And to think that when I was a kid, when I'd see an icy area, I'd get a running start, then slide on the ice! Lol, maybe I'll borrow some one's walker and try that some time!!View Thread
I'd received a letter from SS, which told me that SS didn't need to pursue my review further at this Â point/ that they wouldn't need to contact my doctor. Seems this bodes well. Dunno if I'll get any further reviews. Given my age, I doubt it, but I also wouldn't be surprised if I did. But the older a person gets, it's less likely they'd be kicked off ssdi benefits. Even if I were, I'll be 62 in 3 years, so I could always go on early social security. I'd keep masshealth ; it'd then become my sole health coverage. The downside to taking early SS is that my benefits would be less than on ssdi; as well, because I'd taken it early, I'd be stuck with the lower amount even when I'd reached full SS age, which for me, would be 66. I could manage on the lower amount if I was in subsided senior housing. But I still Â have a dream owning my own home, whatever that might mean, at some point. I don't want to give up on that.
However, I do appreciate the fact that I am eligible for subsidized senior housing. At least I wouldn't be homeless, something younger, low income working poor folks who aren't disabled have to often deal with, or, if not currently homeless, worry about becoming so.View Thread
Mimi, Thankyou for your reply. I'd had a review. I've been on ssdi for 7 years this month; I also am on Medicare and masshealth( I live in Massachusetts ). I'd been reviewed only for the first time. In late october '13, i was sent a letter & form to fill out which had 6 questions. This past Monday, I received a letter from SS which I'd discussed above.
Indeed,I remember being told that people 50 and above were processed differently.
Oh, I did know that when I turn 66 that I'll either recieve the same ssdi benefits or SS itself, which may even be more $$.( according to a paralegal whom i had gone to when I was applying for ssdi). What I was referring to was that IF I was kicked off ssdi, I'd have to live on my savings until I reached 62, when I'd apply for early SS.View Thread
Bloop, thank you for your reply telling me about your sister's experiences. Hopefully, my drs being sent forms and filling them out will be all that happens. I sure don't want to go to a SS doc; I haven't heard the best about them.
Indeed, hope I'm continued on benefits, too.View Thread
I do know there are milestones when it comes to SSDI. Indeed, 55 is one of them as is 50 and 60. I'll say this: I was in better shape when I first applied for SSDI.
I'm glad you'd brought up the fms drugs. From what I've seen on their tv ads, the side effects alone are enough to deter me! Too, I have GERD and stage 1 hypertension and I have heard that NSAIDS raise blood pressure as many drugs do. I take only one med... And that's for the hypertension. ( some of the fms drugs can cause suicidal ideation in many folks. Who needs that?!)
As I'm nearly 59, I would say that I'd be very surprised if I WERE kicked off SSDI. Too, as I was considered significantly disabled from the fms when I'd initially applied for SSDI, and am now worse, I am trying to feel confident that I'll be continued on it.
I filled out the form, and sent it back the same day I received it.View Thread