I have very bad bouts of IBS with my Fibro. I have also had migraines since the 6th grade. I learned about a year ago I am allergic to eggs and caused me to have severe digestive issues when I eat them. I also have digestive issues during my period each month. I am looking into having an endometrial ablation to avoid all the issues I have during my periods. Some of the things I have done to reduce my pain which became a daily occurrencefor me was going on a gluten free, dairy free diet. In addition my doctor put me on Cymbalta and gave me a break through pain med and a muscle relaxer to help with night time pain to help me sleep. I hope you start feeling better soon!!View Thread
My biggest pet peeve is more of the whole scenario that seems to always play out more often then not. I am at home or at work and start to do something I know I shouldn't be doing, realize that the whole job has been left up to me. Then I think, well they don't all know that I have FM. Then I realize, oh wait...yes they do...but they don't understand that it means, for me anyway, that right now I may be able to clean these tables and put all these clothes away or whatever, but tomorrow, I will be hurting horribly.So I have to suck it up and just bite my tongue, because I am the one who lives it day by day. Not them. I'm the one who is 29 and looks 100% capable of cleaning up after a surprise party alone, but suffers for it the next day. But today, I just sound like I'm whining about having to do all the work. When in reality, I just want to have another good day following a good day. Why is that not ok?View Thread
Are you using the one that you consume or as a topical? I am trying to find options to add to my medications. My goal is eventually to not have meds. But I know it will be years down the road. I am totally open to trying this oil though. Thanks for the Info!View Thread
After seeing my Doctor yesterday and getting the ball rolling on medication we discussed starting dietary changes. Luckily I am a Dietetic Technician with a degree in nutrition, so making necessary changes in diet isn't an issue. We discussed how a year ago I followed the Paleo diet while working towards losing weight. It was the best I have felt in the last 5 years. I lost 65 pounds and was even able to run a 5k! I of course ended up in bed with throbbing body pain the rest of the day (unaware at the time I had Fibro). But I was so proud of myself. Now being newly diagnosed and having a super supportive NEW doctor and a doctor who is very happy I am part of this community, I wanted to share the diet I am following in the event others wanted to try it out. It is EXTREMELY restrictive. I am planning to start out restrictive and slowly add items back to determine which foods my body is more sensitive to. So for now, I am going to try to follow a No dairy, No flour, No sugar, No alcohol, No caffeine. This is actually more restrictive than Paleo, but the Paleo diet recipes has a lot of recipes that can follow these guidelines. If anyone has any input please share. So far in 2 days I have already lost 3# and have reduced my pain to a reasonable level. Though we shall see what happens tomorrow when we get our next storm...arg.... View Thread
This was my first winter being diagnosed so I noticed it more this year. In past years I probably just thought I had a flu. This year I knew what it was. I was in horrible pain. I was also not yet being treated. I know exactly what you mean. We started getting rain on Sunday. Last Monday I started getting pains in my hands and wrists expecting rain as early as last week.View Thread
This is the truth Cory. I was thinking about all the things I was able to do just a little over a year ago. I used to run, hike, bike ride, carry my children, help when moving furniture. So many things that are not even an option now. Now even my kids climbing on my at the wrong time is excruciating. I don't want them to grow up remembering me that way. Even not knowing for sure if this is FM, I have learned from the FM books how to adjust my life to accommodate the way I work or handle my house hold differently than I did a year ago. I can't do those things anymore. I can't drink any alcohol because one glass makes my whole body feel like I got hit by a truck, and I didn't even get the fun if being tipsy! I can't go dancing which I LOVE to do, because I feel like I ran a marathon the next day. It sucks when you feel like your body is giving up and your not done yet. I'm only 29. I turn 30 on the 26th of this month and I have so much life left to live. I'm so not done yet!View Thread
MiMi, You are EXACTLY RIGHT!! Its so funny that you commented about my Doc because I just got off the phone with my mom, who happens to be my doc's receptionist and I told her I was tired of feeling like I was being thrown aside become I'm some crazy person. I have an appointment tomorrow with one of the old PAs that used to be at her office. She is known all over the area for her bedside manner. I have seen her for a long time and plan to discuss it all with her. I am SURE that she will believe me and support me the way a Dr should support their patients. The problem is that she is very hard to get in with because she is so well loved in the area. I have never looked forward to a Dr appointment so much before!! I think today was just the last straw when the weather here in Southern California went from Sunny to wet and stormy. I have always loved the rain...but yesterday and today were so incredibly painful, it made me wonder how anyone could have FM and live anywhere then the Keys or Bahamas!! LOL Besides the fact that I shiver from freezing down to my bones in 80 degrees much less in 50 degrees. And for anyone who works in a kitchen knows that there is not heating elements unless you climb into the oven. So with that said I had to come home early today to take a hot shower, #1 to get warm for the first time in 2 days, and #2 in order to differ the pain radiating throughout my body for at least the 20 minutes I was able to keep the hot water running...That's when I got on the phone with my mom and said THIS IS ENOUGH!!! I refuse to be treated like this from someone I am paying to take care of me...and that was that. So tomorrow hopefully I will either be in line for more testing (which means answers) or I will have those answers and she will just diagnose me then and there! We shall see. I will keep you all posted.
And thank you everyone for the support. This was such a great place to join. Truly you are all wonderful!!
Nancy, Mary, You guys are so right! I decided last week that I needed to make changes regardless of my diagnosis. So I stopped putting the order away. I had a talk with my assistant and told him what was going on with me. He was very sympathetic. I also had a long talk with my husband and he has started asking me how I am feeling before asking me to do work around the house. I also decided keeping up on minor cleaning keeps the deep cleaning at bay. So major changes are going to have to take place. Its really hard when you have a 2 year old who wants "up" all the time and my hands are so weak that like Mary said as well, I can't even hold my Kindle for a period of time. In addition my hands freeze around the steering wheel of the car when driving my 7.5 miles to work. I just need to diagnosis in order to make anything official at work.
MiMi, I am getting a full blood nutritional analysis work up. He wants to rule out any deficiencies as well. But I mentioned the pressure point thing to him. He just glared at me. I said that I read it was the most efficient way to diagnose FM. I told him that I looked up the points online and pressed on them myself just to see how it felt. Since there would be no point in even mentioning this whole idea if none of them were painful. He was like..hmm let me guess...they hurt? I said yes actually they were extremely painful areas to touch. I even noticed that some small touching from my kids or husband or the dogs is just horribly painful. He just did the mmmhmmm kind of thing and moved on. I just sat there thinking..ok so obviously YOU have NO IDEA what these areas are!! I have an appointment with another Dr who has known me for a long time on Tuesday. I plan on discussing all of this with her and seeing if she is willing to get things moving. Its not that I "want" it to be FM. Its that I just really think it is, and I feel like the longer it takes to get it diagnosed, the worse and worse I am going to feel without getting the correct medication.
Hi all! my name is Anna and I am in the processes of doing the "rule out" tests for FM. I am becoming so incredibly frustrated with the whole process. Every time I have a flare up I think to myself, when will they diagnose me already!! Why isn't is so plainly obvious?!?! But then I have a good day where I feel OK and I think, maybe it is all in my head. It is frustrating to see the answer to why every thing is happening, my full body pain, joint pain, stomach issues, pseudo bladder infections, fatigue, lack of focus, mood changes. Then if I tell anyone what is going on its like the look I get is, so you have a medical term for lazy? Although as we all know its very hard to do anything when you feel like every thing hurts.
I work as a Dietary Director for a SNF. Which means that once a week I am responsible for putting away a $2500 order of frozen, cold, and dry foods ranging from 50# of carrots to 50# of rice and boxes of #10 cans. When you hands, wrists, and fingers are hurting so bad that you can barely focus on anything, it is pretty hard to life even the smallest box.
I also recently discovered that the "genetic joint issue" my surgeons at Stanford University told me I had and did surgery on both wrists for is actually called Benign Joint Mobility Syndrome. Its even better when your told you have something and not given a name of it...had I know this I would have researched it and not thought that I was just a freak of nature, but found out that multiple people have it and end up with....wait for it....FM!! YAY....
Anyway, I guess what I need is to know I'm not alone...I am not crazy! That when I wake up in the middle of the night with my hands throbbing or my hips throbbing its real. When I get random shooting pains through my knees, thighs, and sides, its actually because its happening.
What do I do in the mean time? Does anyone have suggestions for getting through this period of grey area testing?View Thread