YES!! GET OFF THE SWEETS!!! So happy to hear this!!
Over the past few months I have taken gluten, dairy, corn, rice, alcohol, and sugar all out of my diet. EACH ONE OF THOSE CAUSES PROBLEMS FOR US!! And SUGAR is a huge cause!!
I highly suggest reading "It Starts With Food" By the Hartwigs. Their diet is called the Whole30, which is a 30 gut cleanse essentially, but people like us need to adopt these diet changes for our every day life. There is TONS of information in there about how certain foods cause body pain. I've been learning the last few weeks that OUR GUT has EVERYTHING to do with all of our body pain...ALL OF IT!! It all starts in the gut. Getting rid of gluten, rice, and corn are the highest priority - I slowly dropped sugar, alcohol, and dairy after all of that. I cant even begin to tell you how much better I feel!! My pain used to be at a constant 8-9, NO RELIEF. Now....My pain is rarely ever above a 5, which is completely tolerable!! How did I achieve this??! By fixing my gut!!
Now, I'm sure you like the rest of us have horrible IBS issues. Most people with FM don't have any solid bowel movements - this is cause for a huge alarm! It only means one thing...that our normal body functions have begin to shut down. That is a serious problem! What is happening to us is that our digestive system is no longer able to digest ANYTHING (it will work again once you fix it!). Instead of our bodies taking in nutrients and sending them out to the rest of our body, everything is getting lost in our gut and our muscles, nerves, and joints are all becoming extremely malnourished - hence THE PAIN! So when we eat bad things, like sugar, our body is not digesting in and instead the junk then manifests itself inside of our muscles, nerves, and joints! THAT is where a HUGE amount of our pain is coming from!
Getting rid of the current inflammation in your digestive system is 100% necessary too in order to get things working properly. Now, all the diet changes sounds pretty crazy and hard for someone with FM to do since we hardly have energy to cook ever (spoiler alert, I now cook every day b/c I DO have energy). How I was able to achieve this was getting rid of the intestinal inflammation first. After a few weeks of that, I then had TONS of energy and was able to focus on eating healthy for every single meal. How do you get rid of this inflammation? PLZZZZ GO FIND A CLASSICAL CHINESE ACUPUNCTURIST!!!!!! Have them do 1 treatment on your gut and your symptoms will DISAPPEAR!!!!!!!!!! I no longer take any meds, I didn't need ANY after 1 treatment (no sleeping pills or anything anymore)!! My brain fog has cleared, I have energy, my pain is DRAMATICALLY reduced!! And each day that I eat healthy, I IMPROVE. If I eat even the tiniest bit of sugar, gluten, or any of that junk...BOOM!! FULL BLOWN FIBRO FLARE FOR DAYS!!
I'm telling you, the key to getting better is fixing your gut!!! If you need any help in doing that, PLEASE let me know! I am more than happy to help you any way I can!! Like I said, my pain has been DRAMATICALLY reduced by just fixing my gut!! It's only been 10 weeks and I've gone from having constant pain at an 8-9, severe depression, horrible insomnia, horrible IBS, horrible EVERYTHING to now...my pain has not been above a 5 in WEEKS, it is completely tolerable, I have minimal depression, I don't take ANY medication, I sleep 8 hours a night no problem, and I have NO IBS unless I eat something bad, which I usually don't risk anyways. Also, as an added bonus, I've lost 12lbs and am starting to feel SO MUCH BETTER about myself.
PLEASE GO FIND A CLASSICAL CHINESE ACUPUNCTURIST, change your diet, and start on a road to recovery!! You CAN get better and improve, I am living proof of that!! Seriously, if you need ANY help in starting this process do not hesitate to contact me on here!! I will give you all the help you need!!View Thread
Definitely find a Classical Chinese Acupuncturist!! They are not the easiest to find but they are 100% worth it!! From 1 simple gut treatment your pain will be DRAMATICALLY reduced and horrible symptoms will start to disappear!! NOTHING any doctor has for you will reduce your pain like acupuncture will. Classical Chinese Acupuncture is THE ONLY THING THAT WORKS!
If you need help finding one I will be happy to help you!! View Thread
Wonderful! Definitely look for a Classical Chinese Acupuncturist! You will be AMAZED at how much pain they can take away with one simple treatment! It has seriously blown my mind with the results I have been able to achieve - the problem with us is that issues always keep coming back, we have to be persistent about treatments. But a HUGE majority of our pain is "referred pain" from our guts. I just had my guts and spleen flushed out the other day and it reduced tenderness in my forearm (like the part of your arm where the skin is soft, close towards my elbow, I am SURE many other FM sufferers have this pain as well), the horrible soreness and weakness I have in my wrists, and the arthritis type pain in my hands. A treatment on my spleen got rid of ALL of that pain! AMAZING!!!
The spider veins I was definitely most surprised about. They tend to be in odd spots but usually close to highly painful areas. I've taken pics before and after to show what the veins look like and what the blood looks like - I'll try to post them so people can see. I cleared out all the ones on my inner elbow first and noticed a huge reduction in pain in my arms, I actually like rarely complained about them after that. Now I've noticed that I have TONS on my legs, all over the place, so I've been working to clear those out.
Either way, I am 100% confident in my Chinese treatments. I put absolutely no faith into Western doctors when it comes to FM. They literally think that we have overactive nerves and our brain is whats causing the pain....I AM LIVING PROOF THAT NONE OF THAT IS TRUE, NOT EVEN CLOSE TO BEING TRUE!! I've gotten rid of the pain by fixing my gut - THAT is where our problem is and it is effecting out blood which is causing traveling pain all over our bodies!! Look to the West for answers and you will start to find relief!!View Thread
Hello! I am here to tell you that GLUTEN FREE IS NECESSARY WITH FIBRO!! It absolutely does not matter if you have an intolerance or not (so many myths about gluten out there), our bodies CANNOT handle gluten. Don't worry, I will tell you why...
Now, there are a few reasons why a GF diet may not have worked for you yet. First, you need to be completely gluten free for 3-4 weeks to see a real effect. If you did this for 3-4 and still didn't see any results, just keep reading . It takes quite a few weeks for gluten to fully clear out of your system. It's also VERY difficult to avoid contamination of gluten. I would almost bet that you were contaminated and didn't even know it. It happens. PLZ do some research on contamination and learn what you need to do to make sure it is completely out of your food. I've been GF for 10 months and I was just contaminated 2 weeks ago (FYI, it sucked). It is hard to avoid sometimes, especially when eating out. Be extra careful!
Secondly - and most importantly - you need to recognize something very bad going on in your body. Maybe TMI but most people with FM do not have normal bowel movements. Most people have very runny/watery bowels - almost sand-like at times. Also, many people have constipation, stomach pain, and painful bowels. ALL of these things mean 1 thing and 1 thing only - YOUR NORMAL BODY FUNCTIONS ARE SHUTTING DOWN. Your body is failing you. This is a very serious problem! And believe it or not THIS is where about 80% of your pain is coming from! How do I know this?! Because I am living proof!! I've reduced my pain DRASTICALLY by taking care of my digestive system. Many don't believe this (esp not doctors, but wtf do they know anyway), but FM STARTS IN YOUR GUT. THAT is where the main problem that we have is.
Now, you mentioned bloating...what is this bloating?! Ask your doc and you'll get an answer like "fat" or "water"...UM NO, it is neither of those things. This bloat you are feeling is INFLAMMATION IN YOUR INTESTINES. What is happening in our bodies is pretty insane. Our digestive system (DS) is not working because our intestines are too inflamed. So in turn, the nutrients that we take in are not being filtered into our body - essentially malnourishing our muscles and nerves! Hence the pain, the weakness, the fatigue! And also caused by our DS not working - the junk that we take in is instead being pushed out into our muscles and nerves. SO no nutrients are being taking in and no bad stuff is getting out - it's all manifesting inside of our bodies all over. THIS is the widespread pain. Crazy huh?!
LUCKILY, you can reduce this inflammation PLZ GO FIND A CLASSICAL CHINESE ACUPUNCTURIST!! I've literally written this on a million threads. THEY ARE THE ONLY PEOPLE WHO KNOW OUR PAIN AND KNOW HOW TO GET RID OF IT! They can VERY EASILY reduce the inflammation why a simple 20 minute treatment! I'm telling you - one treatment on your large intestines will change your life! One treatment got rid of my sleep issues (I'm no longer on any medication at all, don't need it. In fact they hurts your intestines more), the pain I have in my face, head, jaw area is now GONE. Pain in my arms, my shins, ankles, wrists, arthritis pain. It's all gone from fixing the inflammation in my large intestine, small intestine, and spleen!
So gluten probably didn't work for you in the first place bc your inflammation was too bad. You need to reduce the inflammation, THEN cut gluten out and you will see much better results. Give it a few weeks and a tiny bite of gluten will bring on a full blown Fibro flare! I am living proof that this works! My pain used to be a constant 8-9 every day, for the past 10 weeks (which is when I started my treatments) my pain has been about a 2-3! I have energy, I am in a much better emotional state. EVERYTHING has improved!
GO TRY IT! If you need any help or more info please hit me up!
PLEASE!!! GO FIND A CLASSICAL CHINESE ACUPUNCTURIST!! Not korean, not japanese, CLASSICAL.CHINESEView Thread
I can absolutely relate!! I have felt this way MANY times!! How can I possibly go on?! How can I handle it if the pain gets worse?! Ohhh how i have been there!
I'm 24, my FM started at 22 when I became pregnant. After I had my son my pain was TERRIBLE, everything really escalated fast. Needless to say it was VERY DIFFICULT to take care of myself, a baby, and work full time, and keep up with ANY chores. The pain definitely consumed me for months and I saw no way out. I was so stressed, sooooooo depressed, and hurting so bad. I was very very low and saw no light at the end of the tunnel.
But now...My house is clean, my kid is taken care of, and getting through a day of work is getting MUCH easier every day. On top of that, I've lost 10lbs and I cook almost every day. I actually HAVE energy. I run errands. I don't feel completely wiped out after just putting a load of laundry in. I feel 10X better! AND YOU CAN TOO!!
I've posted on sooooo many threads here trying to help people but no one ever listens to me or takes my advice haha. But I will share it anyways!! My pain used to be consistently an 8-9 every day. Now, I live at about a 2-4, which for FMers is COMPLETELY TOLERABLE! In the past 10 weeks my pain has not been above a 6 even once. And some of my symptoms have been completely reversed! I don't take any medication anymore and I'm feeling better than ever! I sleep for 7-8 hours no problem every night. My bowels have become more normal and I don't suffer with IBS anymore. I have ENERGY and much less fatigue. Everything has IMPROVED.
Believe it or not, getting better is much easier than you think. It wasn't even that much work on my part - a little bit of money but every penny has been worth it. PLZ PLZ PLZ the first and most important thing you need to do is FIND A CLASSICAL CHINESE ACUPUNCTURIST!! Classical Chinese Acupuncturist - they're not the easiest to find, but they are THE ONLY PEOPLE WHO CAN HELP US GET BETTER!! Please promise me you will find one and visit them every week!! They KNOW our pain, and they KNOW how to fix it!! Your normal doctors dont! They don't know what FM is and they don't know how to fix us so DON'T BOTHER WITH THEM! Classical.Chinese.Acupuncturist - not japanese, not korean, not even a Modern Chinese Acupucnturist - CLASSICAL CHINESE - GO FIND ONE!
First things first, the pain of FM starts in our gut. You need Acupuncture treatments to reduce the inflammation in your gut. THIS IS KEY! The inflammation in your gut constitutes for about 80% of our overall body pain!! I'm telling you - pain/tension in my face, my jaw, my head, pain in my forearms, pain in my shins, my ankles, my wrists - GONE!! All because the inflammation in my gut has been reduced!!
PLZ go find one. If you want to learn more about how they can fix you, just hit me up!! I will tell you all about their reasonings and how our bodies are failing on us. This is the 1st step in getting better. Please go find one!!
The next step is diet - after the inflammation goes down your appetite might be a little weird. Diet will help correct any other issues you have. Look into the Whole30 program - it is a lifesaver!!! This is how people were MEANT to eat! No packaged junk, no gluten, no dairy, no rice, no sugar, no corn. YOU WILL FEEL SO MUCH BETTER!! I PROMISE!!View Thread
VERY interesting post! And I actually may have some insight to it. Now, I've had my pain reduced by about 60%, I used to live at a 8-9 everyday, now I'm like a 4, most time a 2!! (I'm only 24 BTW). I see a Classical Chinese Doctor/Acupuncturist who have TREMENDOUSLY REDUCED MY PAIN!! FYI, in China people are CURED of FM with a mix of diet and Acupuncture...THEY ARE CURED! So that is why I started seeing a Chinese doc in the first place. They KNOW the pain, they KNOW where it comes from and they KNOW how to fix it! Something that our normal doctors DONT!
Now, Eastern vs Western Medicine has MANY different beliefs. Bare with me on how I explain things here, I'm not a Chinese doctor! PLZ keep an open mind because Eastern medicine has very different views about how the body works as opposed to Western Medicine. But again, like I said...EASTERN knows how to fix our pain, Western DOES NOT. So weather you choose to believe it or not, just know PEOPLE ARE CURED OF FM IN CHINA
The Chinese believe that your blood is directly related to your emotional state. So when you hear the phrase "my blood is boiling, Im so mad" the Chinese mean it in sort of a literal sense. They believe that everything you are and everything you feel lives somewhere within your body - your emotions live in your blood. Again - not something western medicine would every recognize because you can't prove it with science, but the Chinese have been practicing this and healing people with this knowledge FOR CENTURIES!! Science is still relatively new..
So I've been working on LOTS of treatments to get my pain level down and they really have been working. Acupuncture has helped TREMENDOUSLY. But I do other Chinese practices too - one of those is blood letting. I urge you to inspect your body for small purple spider veins. Look in your inner elbows, your ankles (I have lots there), thighs, calves, I usually find some on around my knees too, and FEET! I am telling you...for a 24 year old, I have LOTS of these spider veins. I even have a few in my face! My chinese doc asked me how long they had been there. I couldn't recall, honestly as long as I could remember. Side note - I've always felt like I had an old body. I never had that great of a figure, or metabolism, or anything like that and so I thought the spider veins were just another flaw. Turns out the Chinese have a VERY different opinion on what those veins are. These veins are trapped blood, stuck in your system that is no longer circulating. For me to have SO MANY definitely worried me! The first time I pricked one and let the blood out - it was DISGUSTING! No joke, the blood was dark dark purple, almost black, and OOZED out of me! It honestly looked like oil coming out of my body, I was disgusted! I now prick as many veins as I can every other day (docs orders)! You are supposed to prick until their gone - I no longer have ANY on my arms.
So to connect this back with my first point - Chinese believe that these veins, the trapped blood, are trapped emotions inside of us. Things that we can't let go of, things that are festering inside of us, eating away at us - guilt, fear, depression, anxiety, etc, etc, etc. Releasing them helps remove the pain that they cause and mentally helps you let go of the emotions so things don't get stuck again.
To relate this to your story - going through something that could alter your emotional state drastically - ie a big trauma - it is absolutely possible (from a chinese perspective) that this could reduce your pain! In your case, it seems like you came out the better side of the emotional battle. You started your journey in MISERY and came out of the trauma with much better emotions! HOPE, COURAGE, DETERMINATION. I 100% believe that your emotions were adding to the physical pain you had and you were able to free yourself from that! For many of us who are incredibly depressed this could seem unimaginable that trauma could fix you, but I do believe it's absolutely possible!!View Thread
You don't need the Cymbalta. Actually, it's probably making things worse for you. I've been REALLY working on getting healed. My pain used to be a constant 8-9 every day, no relieve, no sleep, super depressed. BTW I'm 24, this all started for me a 22. Today, my pain is now on average about a 4-5, I haven't been worse than a 7 in almost 10 weeks. I used to take 60mg Cymbalta every day (although I never really felt it did much for me) and 900mg of Gabapentin before bed because I literally couldn't sleep a wink.
That was only a few months ago. Since then, i've been on a really great treatment path. After 1 treatment i was able to get off all medication no problem!! I now sleep 7-8 hours a night with absolutely no problem. I still have slight depression but it's much better than it was before. And my pain levels have been decreased tremendously. I like to think that Fibro really works in 2 pain levels - tolerable and intolerable. My pain has not been intolerable in weeks, seriously!!
Almost all of our chronic pain we have is caused from inflammation in our intestines. How do I know this?! Because when I get treatments done on my intestines/spleen, my pain is virtually GONE!!! I'm telling you - the fatigue, the soreness, the arthritis pain, even tension pain that I have in my head and jaw - I've gotten rid of ALL of that pain by working on my gut. First things first for taking care of your gut - getting off medication!! Cymbalta, Gabapentin, Savella - all of those DAMAGE our intestines further!
I know your doctors will tell you the opposite but they also have absolutely NO IDEA what is wrong with us or HOW to treat us so WHY EVEN LISTEN TO THEM ANYWAYS?! Believe me, they don't know what FM is and they don't know how to get rid of it. Luckily, there are still people who can help!! I am living proof of that!! PLZ PLZ PLZ go find a CLASSICAL CHINESE ACUPUNCTURIST!! They are THE ONLY people who know how to fix us!!! I have gotten Classical Chinese Acupuncture done on my large intestines, small intestines, and spleen - between the 3 of those my pain is DRAMATICALLY reduced!! And the treatments feel as though they are putting strength back into muscles that are weak. It truly has been life saving to me. I now have ENERGY to get through my work day, my brain fog isn't as bad, I sleep normally at night, my IBS is gone, AND MY PAIN IS COMPLETELY MINIMAL!! Seriously, I've been trying to tell people about this for weeks on this thread and people always run back to their doctors - THEY DO NOT HAVE THE ANSWERS, THEY CANNOT HELP US. And just FYI, people in China GET CURED of FM with a mix of dietary changes and Acupuncture. I'm telling you, I am LIVING PROOF that it works!! It hasn't been the quickest road to recovery - it doesn't happen over night. But IT WORKS!!!!!!!!!!!!!!!!!!!!!!!!!!!View Thread
I don't have this symptom normally but I have had episodes of serious itching before. My FM started when I was pregnant, so I had a lot going on with my body when this whole diseases started. It didn't start happening until the end of my pregnancy, maybe the last 3 months, where I literally would itch SO BAD all of the time! I was constantly itching, it was HORRIBLE! My neck, chest, and stomach were definitely the worst but my arms were also very itchy. As soon as i had my son the itching went away. The Fibro stayed, and got much much worse. But the itching was gone. It was absolutely horrible when I had it though so i definitely feel for you. I literally had to hold myself back every second of every day to not itch uncontrollably.
I don't know if this is related to your problem but it wouldn't surprise me if this itching is caused from a weakened immune system.View Thread
Vitamin Deficiencies is definitely huge for us. I've actually been learning a lot about the Chinese aspect of FM (considering people do get CURED there and don't suffer for a lifetime like people do here in the US). It's very interesting, they have a lot of great information about what our pain is exactly and where it is coming from.
First of all, the main issue definitely originates in our gut, if only we knew EXACTLY what was wrong with our gut then we'd have no issues at all! And I 100% believe that FM is reversible! Why?! Because I have (since having FM) been PAIN FREE. I've learned what to do to get rid of my symptoms completely...GET RID OF THE INFLAMMATION IN YOUR GUT! I've gotten rid of the inflammation and felt 100X better! Completely healed! Completely cured! The only thing is that the inflammation eventually come back. So then I have to look at the chronic nature of things - what is causing this issue to become chronic? FOOD. Food is the only thing. There is something that we are eating that is causing the inflammation. Many of us avoid gluten and dairy which is good. I think we need to. But there's more than just gluten and dairy causing the inflammation. I'm testing things out - I haven't quite found the answer yet but my thinking is that it will be either corn, sugar, or rice (but also avoiding gluten and dairy is necessary). Could be all of the above though. I don't have the answer yet but I promise you, I will. My main advice for people is to STOP EATING THINGS THAT COME IN A PACKAGE. If the ingredients aren't one word then it is not good for us. Stay away and the symptoms start to disappear like magic!!!
This all goes along with the Chinese view on FM. People get CURED there with a mix of Acupuncture (which gets rid of inflammation - in your gut or anywhere in your body), a healthy all-organic diet and yoga/tai chi.
Back to the vitamin deficiencies - this is also caused from our gut. Our body is not absorbing any of the nutrients that we put into it. This is why we are fatigue, have brain fog, and our muscles ache - because every part of our body is literally being malnourished from the inside. Our blood is completely malnourished. Our body is not accepting the nutrients that we take in, it's all getting messed up somewhere in our gut.
The Chinese do a lot of diagnosing by looking at the tongue. All people with FM show pretty much the same tongue diagnosis: (usually a very pale tongue some white coating on it, ripples on the sides of the tongue, usually with some tiny red specs in the middle or the tip of the tongue appears slightly red). What does this all mean?!?!....
In Chinese Terms: "022 Qi Deficiency (which causes fatigue, poor appetite, over-thinking and worrying) "022 Qi Stagnation (which causes severe depression) "022 Yang Deficiency (which causes feeling cold, severe back pain, pale complexion [hello vitamin D>, anxiety, and depression)
All of these things are caused by none other than.....AN INFLAMED GUT. Fixing the gut fixes all of the other problems.
How do I know?! I'm living proof!!!!!!!! I used to live EVERYDAY at an 8-9 level pain. For the past few months I've been working through the Chinese fixes and my pain hasn't been above a 4 in weeks. A few more weeks and I feel it will be COMPLETELY GONE!!!!!! And I'm telling you, the SECOND I do something to cause gut inflammation - it is a full blown FM attack right away!! This disease is reversible and I am determined to be completely healed!! If only more people would STAY AWAY FROM U.S. DOCTORS WHO KNOW NOTHING AND LEARN FROM PEOPLE WHO ACTUALLY KNOW ABOUT CURING THIS DISEASE THEN THIS WOULD NOT BE SUCH A TERRIBLE ISSUE!!!!!!View Thread
First off, stop listening to doctors. They don't know anything about this condition, they don't believe it's real, and they don't know how to help. They are pointless to keep going to especially since there are no medications that work for us anyways. Pain meds help temporarily but they don't get to the root of the problem which is key.
Please go find a Classical Chinese Acupuncturist. I've literally written this on tons of other discussions. Not korean, not Japanese, not even modern chinese acupuncture will do. You need someone who knows Classical Chinese Acupuncture. Why? Because they KNOW what our pain is and they know how to TREAT it! The muscles in constant spasm you speak of - i have had 4 acupuncture treatments called a Sinew Release (pronounced sin-you) done to help with that pain. That pain used to be a constant 8-9 for me, in the past 2 weeks that pain has not gone over a 5. A few more treatments and i think it will be completely gone!! I alao get treatments done on my intestines which eliminates about 65% of my overall body pain (arm pain, head pain, jaw pain, etc). Please go find a classical Chinese acupuncturist and ask if they know how to do a Sinew release!! If they dont, move on!! The treatments takes about 3 weeks to really start getting results but the results actually LAST. I now am off all medication (cymbalta and gabapentin), i have no need for either of them anymore soley because of the acupuncture treatments. Please go try it!!View Thread