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fibroornot

Joined: 07/19/2014
My Story:
mmmmm, my story,,,,,once upon a time, in the year 2001 I came down with an extremely bad virus, flu like symptoms which left me with limited walking ability.....left with possible fibromyalgia...from a dr. in a little upper New York State doctor....2006...diagnosed with Sarcoidosis, from a right orbital begnin tumor...on Methatrexate for 5 years....really helped my so called fibromyalgia symptoms.....fast forward to winter 2012 I had left leg weakness (for 2 years) but now accompanied with right foot/leg dragging for 6 months...and have been seeing a Neurologist since November 2012....all tests done...No..Lyme disease, No stroke, No tumor, age appropriate,knee, back, osteoarthritis....so for the past 2 years I have had progressive, limb weakness, using a walker now and have need a wheel chair at times....fascicualtions everywhere, tingling numbness, leg, feet, hand cramps....could not complete the evoke potentials for MS on my legs because I could not tolerate it so subsequently that diagnosis is left up in the air....soooo...
here I am a fibromyalgia lifer.....who really knows....
as of yesterday..i came off all medication, anti depressive, lyrica, gabapentin, amatrypaline...Cymbalta...and others....now just using ...
Tylenol Arthritis....and hopefully my family dr. and neurologist will refer me to a Rheumatologist for further investigation....I live in Toronto,Canada and health coverage is very very very slow.....thus I am somewhat crippled!

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Reply: Machines at the gym may kill you
just read your profile..! hi middle aged woman ! I am going to be '59' on Saturday !...More
Posted by fibroornot
Reply: Machines at the gym may kill you
you are absolutely right about the Tylenol ! my husband is a physician (not a...More
Posted by fibroornot
Reply: Machines at the gym may kill you
thanks for the encouragement Nancy ! I get mad at myself and think I am not doing...More
Posted by fibroornot
Reply: Machines at the gym may kill you
hello booch ! I just saw your post about machine and the not so graceful view while...More
Posted by fibroornot
Reply: Fibromyalgia is a made-uo disease!
are you saying you have been diagnosed with peripheral neuropathy as well ? the last two...More
Posted by fibroornot
Reply: Fibromyalgia is a made-uo disease!
in 2001 after a really bad virus and could hardly walk for 3 months....I was diagnosed...More
Posted by fibroornot
Reply: Newbie
I have tried everything under the sun....maybe I am inpatient and don't believe in all...More
Posted by fibroornot
Reply: Foot Pain
ihave been seeing a neurologist since 2012, I I am not satisfied with the diagnosis of...More
Posted by fibroornot
Reply: Where did my friends go?
Ohhhhhh Yessss! I was first diagnosed in 2001 after a sever virus left me with extremely...More
Posted by fibroornot
Reply: Machines at the gym may kill you
OMG ! my physiotherapist and I decided to start using the machines for...More
Posted by fibroornot