Hi Fran, I'm so sorry you're in so much pain and down, but I do have words of encouragement. I am so glad your church is praying for you as you too have turned to your savior. He will give you enough to grace to see you thru this flare, you will survive it. I highly recommend a pain management Doc. I started seeing one about 5 months ago after being diagnosed 3 years ago. It has been life chaanging. I now have some quality of life. My doctor is so compassionate and understanding and new right away what medications were appropriate for me. It appears you've made the right choices. Just take it 1 day at a time. I'll keep you in my prayers. God bless you, CarolView Thread
Hi Marie, My heart goes out to you. Please contact your doctor right away and make an appointment to see him. Knowledge is power so please go see him so this can be delt with and you can begin to feel better. Never assume anything, our bodies are so complicated. I will keep you in my prayers. God bless you, much love and gentle hugs, CarolView Thread
Hi, I feel for you with all my heart. There is hope and there are treatment options! I too suffer from Fibro, depression, IBS, and arthritis. First I must say that my Jesus has sustained me from one day to another. Prior to developing Fibro I was never one for pills or a complainer at all, and very active. I considered myself to have a high pain threshold but this Fibro it is truly a monster, and it knocked me down for the count. I had tried acupuncture, hot pool therapy, on and on. I tried Lyrica, Savella, Tramadol, Gabapentin, Hydrocodone, then finally Oxycodone. The Oxycodone helped to some degree however the pain was still at a level 8-9 most of the time. The fatigue was at the same level. Then I was recommended to Brigham and Womans Pain Management Department to see one of their Dr's. That suggestion was a gift. One of their fantastic doctors tried an IV Lidocaine infusion which didn't work at the time but then he perscribed a oral medication called Topiramate ! This medication has given me my life back. Oh I still have some pain but not that level of pain that brings you to the brink of despair. Please do consider being seen at a Pain Management Department. There is one at Uconn, in Mansfield Ct. and another at Brigham and Womens Hospital in Massachusettes. I'm sure there are others. Don't give up, YOU'RE worth it! I'll keep you in my prayers. with love and prayers CarolView Thread
Hi, I'm so sorry your going thru so much. The best suggestion I can give is to go to Brigham and Womans Hospital in Mass. for another oppinion. I was diagnosed with Lupus 3 years ago. It was suggested I seek a second oppinion at B & W. Upon seeing 2 specialists at that facility, Lupus was ruled out and Fibro was identified as the cuprit. It sounds like you may have more than 1 issue going on. I know how frustrated you are, but your worth whatever it takes to get you diagnosed and under treatment. My thoughts and prayers are with you. CarolView Thread
Hi, I feel for you and truly understand. I too lost my job due to Fibro and required counseling for depression. You and I have other things in common. I have found it adventagious to take my life one day at a time. I have learned that as challenging as this disease is...each day can still give blessing. I clean the house a little each day depending how I feel. If I feel up to cooking I do, if not we either eat out, or eat dinners from the freezer. You may want to re-think about what you're demanding of yourself on a daily basis. You have such an amazing husband so take your blessing (him) and relish in it. Not everyone has that support. The dust won't run away and niether will the grass. Life is so very short, and will always have it's challenges, especially with Fibro so be compassionate with yourself. My faith has been my saving grace. Coping with this disease is challenging but duable! Individually it's real tough however with family, friends, and each other we will manage it.
Hi, Yes I have more pain on my left side, always did. I too was ruled out from MS and other brain diseases 3 years ago, trigger pain equal too! Your not alone and that is not unusual. FM is a puzzling disease and there is nothing about it that is usual or the norm. I was seen at Brigham and Womans hospital who concurred with the FM diagnosis.
Hi Peter, I'm so sorry for all your going thorugh now. Please know that you're not alone. We can all sympathize with you and tell you that this is survivable and you can have a life. Take it one day at a time. Jesus has been my life saver. He gets me over each and every challenge. Perhaps there is a Pastor, or someone of faith that you can talk too. One thing is for sure, prayer has given me hope along with medical support. Take the suggestions of the others and follow through with your medical issues, and the depression. I will keep you in my prayers Peter. I would suggest if possible that you keep the door open to your family for financial and emotional assistance. Take care and please keep us up to date on how you're doing. We do care about you and are here to support you! love, CarolView Thread
Hi MiMi, thank you so much for your reply. You have many great suggestions which I will start to utilize right away. Pacing myself has been forced on me. I pushed myself too hard last week and oh my God..I learned the hard way. I am going to start to research the vitamins you mentioned. No one will do it for me so I'm going to get right on it. thank you so very much. God bless you and everyone here!View Thread
Hi Elizabeth, thank you for your reply. Congratulations on your new grandbaby. I'm starting to feel the reality that I need to accept and move on. It certainly is a challenge. I try so very hard to maintain a positive attitude, and certainly I greatly depend on Jesus. But I have to tell you It's a huge challenge because I'm sure like most of the folks here it's tough to lay low when what you really want to do is go go go! It would help if I knew just how bad this is going to get. One thing my MD told me is that I won't loose the use of my legs which was a major concern. However now I need to get this pain under control. Thank you so very much all of you for listening tonight I really needed to vent. Take care Elizabeth and my love and prayers to everyone,View Thread