Hi, I feel for you and truly understand. I too lost my job due to Fibro and required counseling for depression. You and I have other things in common. I have found it adventagious to take my life one day at a time. I have learned that as challenging as this disease is...each day can still give blessing. I clean the house a little each day depending how I feel. If I feel up to cooking I do, if not we either eat out, or eat dinners from the freezer. You may want to re-think about what you're demanding of yourself on a daily basis. You have such an amazing husband so take your blessing (him) and relish in it. Not everyone has that support. The dust won't run away and niether will the grass. Life is so very short, and will always have it's challenges, especially with Fibro so be compassionate with yourself. My faith has been my saving grace. Coping with this disease is challenging but duable! Individually it's real tough however with family, friends, and each other we will manage it.
Hi, Yes I have more pain on my left side, always did. I too was ruled out from MS and other brain diseases 3 years ago, trigger pain equal too! Your not alone and that is not unusual. FM is a puzzling disease and there is nothing about it that is usual or the norm. I was seen at Brigham and Womans hospital who concurred with the FM diagnosis.
Hi Peter, I'm so sorry for all your going thorugh now. Please know that you're not alone. We can all sympathize with you and tell you that this is survivable and you can have a life. Take it one day at a time. Jesus has been my life saver. He gets me over each and every challenge. Perhaps there is a Pastor, or someone of faith that you can talk too. One thing is for sure, prayer has given me hope along with medical support. Take the suggestions of the others and follow through with your medical issues, and the depression. I will keep you in my prayers Peter. I would suggest if possible that you keep the door open to your family for financial and emotional assistance. Take care and please keep us up to date on how you're doing. We do care about you and are here to support you! love, CarolView Thread
Hi MiMi, thank you so much for your reply. You have many great suggestions which I will start to utilize right away. Pacing myself has been forced on me. I pushed myself too hard last week and oh my God..I learned the hard way. I am going to start to research the vitamins you mentioned. No one will do it for me so I'm going to get right on it. thank you so very much. God bless you and everyone here!View Thread
Hi Elizabeth, thank you for your reply. Congratulations on your new grandbaby. I'm starting to feel the reality that I need to accept and move on. It certainly is a challenge. I try so very hard to maintain a positive attitude, and certainly I greatly depend on Jesus. But I have to tell you It's a huge challenge because I'm sure like most of the folks here it's tough to lay low when what you really want to do is go go go! It would help if I knew just how bad this is going to get. One thing my MD told me is that I won't loose the use of my legs which was a major concern. However now I need to get this pain under control. Thank you so very much all of you for listening tonight I really needed to vent. Take care Elizabeth and my love and prayers to everyone,View Thread
Hi Dr. P, I have had this disease for 3 years. I always had pain in my legs and feet primarily, then both arms and hands, to my back, head and neck and face. I am currently taking oxycodone10 mgm every 4 hours along with cymbalta. The pain continues to increase. I do have a high pain thresh hold, so I think. I am very limited physically with regards to walking especially. My question is how far can this disease progress. I just wonder how much worse it can go? The paIn in my lower extremities and greatly increased faster than the rate of increase in the rest of my body. But all the pain is increasing. I have water therapy twice a week and force myself to keep active. thank you and God Bless, CarolView Thread
Hi Laurie, I was diagnosed 2 years ago with FM. During that time I notice that I have to think before I speak, so that I make sense . I have difficulty expressing what I am thinking, or what I want to say. It is so frustrasting. I feel for you and what you are going thru. I cannot imagine how difficult this has been for you. This is the first time I have heard someone else discuss speech problems. Thank you so much for sharing this with us. You will be in my prayers. God bless you, CarolView Thread