Good morning to all, In early for Friday or late for Thursday according to your perspective . I am up from my knee that has an issue happening, I bent it backwards walking in the yard last week, my heel entered a chipmunk hole in the lawn....ouch. But I kept on going with the work for the party. Out side is done now and I have the inside to work on this week. It is a way to spruce up the place. Hope I get it just the way I would like.
No clutter and everything in its place! (that would be magic) Now that the boys are gone from here I have no excuse....it must be me that is the pig*.....I come hoem from work and the shoes are in the doorway...then the next day...makeup on the bathroom counter....too much crap laying around by the weekends.
I have to get or do better. The pace gets me, by end of day...it is not important. But it adds up to important by the weekend and you are buried!
Mimi, Emily has 3 teeth....(no shoes) I don't know if you go with the old wives tail, "first person to see the teeth get the child their first shoes*! I am dying...I just said "Oh come on she has 3 now...I have to get her the shoes! This Saturday I think we are going. She is a cutie, squishes her nose up to laugh...it is adorable. What blessings we have.
I have the ice bucket challenge for ALS tonight with the other grands....(using warmer water and few ice. I have been challenged twice but this is first bucket, I paid 100.00 to not use the bucket!) I step forward now. I can't afford the "not". The girls will do it at their house tonight. First i will talk about ALS with them and why we are doing this.
Cory, I hope things get better for you. It is always one step forward and 2 steps back I think in life. The office is so busy right now for me, I was being "briskly spoken with about issues in the place" and all I could say was......I have no brain left...my cells are all over the rug here in the offfice....look around for them, as they are not in the skull anymore........
Life is just too much at times. Can you get a break, get on the boat? Shake off the drama...oh that reminds me of the FB video I saw. A blonde from the south with the accent was discussing "drama" in her life and we don't need to know her drama. So her BFF gave her a miracle pill*.....called "drama...mine" (you know dramamine for sea sickness!) well the video is hysterical..I want to keep it in my desk as a difuser of stress when a staff member brings me the office drama...
Maybe it is a somethng you can use. Like also that easy button from staples...I have that on my desk. I'll do anything to turn a corner on things there is no answer for or someone just dumping the drama to you...how to pack it away. I will open my drawer and look at the dramamine and giggle inside.
OK, last day at work and a week and a half off....Ahhhhhhh Hoping the knee will setttle down. It is amazing when the sun goes down it starts and right into the night.....what another pain.
Have a good end to the week. A low pain day for all on order. Nancy B .View Thread
I was off the computer all weekend and am looking through now. OMG I am so glad you will receive trigger point injections, just remember I said it is not for the faint of heart. It hurts. BUT you will have better functionand less pain in 3 days from the first session.
I have gone every 2 weeks for years and the sessions vary from 20-60 shots. Tell the trigger point neurologist about your thumb as that trigger point is in the forearm. I have had the thumb burning and pain for quite a while, until I learned of the place for the trigger point. I massage it now if between shots.
What a life we lead. I will also mention that in the beginning I came home and took motrin and slept. After a month or so I added distraction and walked a good store after to get my mind off it all.
Have you looked throught that book I talk about. FM and chronc myofascial pain, by DrDevin Starlanyl. I saw it in there (but only after the MD shot me there and it worked)! Also the medical book for this is Dr Travell and Dr Simmons "Mypfascial Pain and Dysfunction". IN case you see it there, it is a red book. It is the doctors guide to TrP injections.
I am so sorry you have this path too. But the injections get better. The more frequent they are the less active the tirgger point and the less pain with injection.
When my MD has taken off I have gone 4 weeks for shots and then I am a mess. No other therapy for me quiets an active trigger point. But they are so festered that I actually have tendonitis at the insertion sites for the muscles (as they were pulling in tension on them for so long) I have received a bit of cortisone in those end spots. I learned so much from my first MD who cared for me. Her replacement now just giggles and say somethng simple to me. I just go with what I have learned.
I wish you well. I could never stretch before injections, it made them release so well, but with that I lost stiff to be alive and unstable and painful. This is when the savella was introduced. So Tramadol, Soma and savella are my meds, Magnesium 250mg twice a day, B Complex and Vit D with a touch of CoQ10. That's my mix. I hope you get it all straight.
Learning my line in the sand and not crossing it has been my challenge I just keep doing too much. Today is a day of rest. Took off from work.
I hope these injections benefit you like they do me. They gave me my life back. .
When I was reading you were on CYMBALTA, SAVELLA and TRAMADOL. I have to say i was scared to death. All that together can do much harm. Seratonin syndrome was the red flag I saw frst and then I worried for your heart and B/P.
I can only tolerate the little 12.5mg tablet once a day and that is OK. I do what is best for me, not what is in the literature.
I have had patients in the office needing ablation after savella, it is a problem that the med increases Norepinephrine for this to happen, but they had the tendency for it as well, so they were fixed a bit sooner than later.
So glad again that you are OK. Take it easy. Nancy B
Another thing is your pharmacist didn't question this very potent drug interaction with these??? Hmmmm.View Thread
Sorry you are here, but glad you found the site. It can only get better now. With information and understanding how to pace your new body, you should start to feel better.
I see a neurologist for my care. As I had neuropathy symptoms I stayed with them. Come to see there was a turn in the idea that this is a neuro thing "I was ahead of my time". Rheumatology as a rule cares for FM patients.
My neurologist does trigger point injections on me and it has helped me alot. Journalling in the beginning can be priceless to you. You will learn your triggers to pain and what you did to help relieve the mess you got into. I found like making the bed and doing laudry are a no no in one day (years ago) I can do it now though..
I changed my dishes in the house to corelle as they are light and I can't do things above my head. So lifting the dishes to the shelf actually was a trigger for me. See how journalling can help you.
As Cece said, look to the right for the TOOLBOX but also look all over the site on that side. I always recommend buying the book FM and Chonic Myofascail Pain, a survival manual, by Dr Devin Starlanyl. I got mine on amazon. Buy the first book as the second is about the TrP injections I get.
Good luck and come here when you are in need and no question is a stupid question. Getting the lurkers to post for the first time is a biggy........so glad you did that.
No one in your life undersatnds this as much as we do. It is silent for others but so loud in our bodies to us. Often called the dragon.....we are draggin this dragon for the rest of our lives at this point, so learning how to walk with him or even dance with him is priceless.
We can help. I am only here on the weekends as I work, but the fmily here is great and the site is open 24/7.......hope you find some answers. Nancy BView Thread
I am 60* just and loving this year the best...the 50's were tough. It was the 10 years curve of dealing with this! I have been on this site that long too. Nothing better than community to help with a question, need for a hug or an idea for a tough problem you are dealing with.
So, welcome welcome. Please use the site for its worth. Look to the right for all the information here. Also a real benefit is up to the right, put in Dr Pellegrino in the search box and read the great posts he left us before he left the site. he is MD for FM patients but he is a patient as well.......priceless time.
You have people to talk to now. First hope for you is to call the doc back and tell him the amitryptilline is not a good fit. You feel worse and are sitting and crying.
Second now, you are empowered. This site has many gems in it to learn how to feel better. Not all the symptoms will get relieved but they can be in better allignment for a life to happen again. We often shut down and crawl under a rock when in pain and feeling low from that pain (I know I did).
To the right is the panel of many things. Look in resources for the Members Toolbox and see what others have done to feel better. Then upper right in discussions, do a search for Dr Pellegrino, he was a patient and a physician for the FM pt. He stopped here for a while years ago and left us many pearls of wisdom.
Most here love heat and a stop pain cream (capsacian cream) to feel better. I ask for hydration with water to help the muscles and Mimi here talks of Vit D levels to be checked to help with pain mamagement. Mine was very low and that is fixed now.
Kinda like you are in need of a tune up. I truly feel that when a newbie comes here it can only get better than where you are now. You just need good education, a physician Champion and the right meds after trial and error period. Then hoping a bow is tied around you and you move forward.
You absolutely have the power within you to be better than now. With knowledge and pacing your activity, learning your triggers and tools of relief you can get there.
I have carved out an 8-10 hour of wellness and then I need to pay attention to me*, I have to rest my head against a high chair. Maybe nap but I have to slow it down. There is a spoon theory on the website www.butyoudontlooksick.com and it explains the energy level we have. You only have so many spoons to spend and you MUST learn to use them wisely. THIS takes time. But all is workable.
I am so glad to have you in the fmily, glad that you found the site. Tears allowed here and a pity party now and again. WE GET IT. This is a tough path and we have all been on it quite a while.
critsal, I have had alot of trouble with my feet and I used the pedicure for alot of help. The soaking and massage helped a bit, then my hydration added so much. And the shoe trick you already mentioned.
These points are ON TOP of the foot or in the bottom of the foot?
I have never had trigger points injected there and even the legs. I may have theem in there but I haven't let any one inject them yet.
Try soak and massage...even at home. The hot water will relax and soften the muscles of the feet and maybe if you can have a friend, DH, sis help and massage them...??
Good luck, hurting feet is the worst, behind an aching back!
The thing with diverticulosis, is it involves a good portion of the descending colon. But depending how many you have and how big they are, how often you get into trouble, and if you are being compliant with the diet and get in trouble anyway.
My BFF had colon surgery for this and it was because she had ruptured an inflamed diverticulum(the outpouched sac). She needed a colostomy for a while and then they finally closed it and returned the bowel to the rested portion. In the hospital I had many a "end to end anastomosis" and they did well, it is just as having an abdomenal operation.
Your perticular situation may be different talking with the surgeon, but they have a tube in their nose to decompress the abdomen and rest it. Hunger seems to pass for these people too. Pain meds for the inscision and getting out of bed to chair and begin walking is so important. We all wait for the first "fart" lol.... The risk of having this, is to not follow the diet and get so inflamed in the sac that it ruptures, in rupturing all the bowel bacteria gets in the abdomen and you get peritonitis ( a dangerous situation to be in) This complication can get real tricky.
So the answer to all of this is no seeds and the fiber etc like you have been taught. If you are good but the outpouches are so large food gets stuck anyway, then surgery is the best for this. A good plan for a defense to peritonitis.
Good luck, Its hard to not blame our dragon as the reason for the feeling you had. Your back and hips.....it is hard to know at times. We have to be so careful to not miss a change in the feeling and miss something happening to us. . Good Luck with this,
Sorry we are not found in a test tube. The job of rule out is so multifactural. I saw a naturopath and a physiartrist as well. In that I learned a bit more about my body and issues, then I did with "western medical docs"
I found that alot of my fatigue was dehydration. Living that was for years. It take a long time to get "euvolemic" get your status where it belongs. I saw with this hydration for months....my muscle suddenly stretched out when i asked. The pain and other issues still there but it was getting better.
I don't have fatigue issues, so great I can't function I just wear out during the day. My meds give me an 8-10 hour wellness window now. I am pretty productive. But there is a pace mantra and a rest mantra there. I have learned to do things differnt and ALWAYS think of my muscles when a project is to start.
I even change shoes to a different pair a day for the different muscle use and arch support. (think I am crazy right, but it is working for me)
I also was given a green diet. Meat chicken and fish with everything green (full of antioxidants) between it all, I definitely lost the glass feeling under my feet in the morning as i walked...I had a clearer head. Gluten was a problem in the IBS label I was given, I have gluten enteropathy and that was a biggy to find as well. The bathroom trips is where most of the dehydration came from.
It take time perseverence and the mantra of "I am not giving in to this, I am not losing one more thing about myself to this"....that get you here. Journal the days and learn your triggers and fixes and get your toolbox in shape to help yourself on a daily basis. Learning the most about you will help you in the end.
I changed alot in my house that *got me. So life was better and then the "spoon theory" we talk about took me farther. I learned to pace better, knowing I had say, 20 spoons for the day before I ran out and that was it.
I am going to post Dr P's writing that I held as special, he was an MD WITH the disease and treats the disease. He was here for a short window of time and it was great. You can read his post's up to the right in discussions and put in Dr. Pellegrino. Priceless info.
Many here also have more than one thing going on at the same time. I really don't care what the label you are given, once the body and brain have survived chronic pain, your brain chemistry changes and we must deal with that too.
Good luck with this path, it takes time and patience.....stay here we are open 24/7 on the board.