I went gluten free for the IBS label I was given and it was really a gluten enteropathy. I don't live in the bathroom anymore!
I feel that my gluten issues compounded this problem and could say many roads led to Rome....but being gluten free for 10 years now primarily I really can't say it made a difference in just itself.
From living in the bathroom with diarrhea I was quite dehydrated and I had to work on fixing that. The elemental loss had to be repleted as well. So many things were added to not just cutting out the gluten.
I hope you come to a better place, keep trying and remember it takes time with a change to notice a difference.
I read the post your placed in the toolbox. You are right that no one has added to it in a long time. Maybe because of its contents covering just about everything plus....
I loved your entry. I too value, distraction and laughter as strong medication with little to no side effect accept "better". I didn't think of the animals as commitment and getting you out and (up) about. I have work for that, and there were mornings I crawled there to get right into distraction and better in the end.
I will think about more of a dog than a cat in our future, as it will be good for DH as well.
Well, just saying thanks for the addition to the toolbox. It's been around quite a while now, and many have looked in it. Good that it's hinges are forever and it can't break down like a real trunk.....
There are definitely things you can do and be aware of to not trigger more trouble.
You have had this a long time now and must know what are triggers to issues but maybe you have been lucky and the main issues are just showing themselves now.
I needed a memory foam topper on the bed to help with the numbness of arms and entrapment of nerves. It helped to sleep deeper and less turning. As the arms woke me up just enough to tell me to get off them.
I slept in a recliner in the beginning but now, when I get a headache which I call "a head of glass" I use a hot pak to the back of the neck lean back and place my hands under my butt to straighten the neck. Gravity and posture help the neck to allign. Then that helps the muscles and I medicate with my muscle relaxant for relief. I don't get this now unless I really cross the line!
So, you need to see all you are doing and what is a trigger and what helps. I always recommend the book , FM and Chronic Myofascial Pain, by Dr Devin Starlanyl. Not the last book but the one before...it is a SURVIVAL MANUAL. No joke. It shows you so much. Look in the Members Toolbox to the right in Resources for help too. This is from ALL the past FMers here, sharing their tools to be better.
Never pain free as you know but better. Better enough to have a life. One thing I paid alot of money to hear was "drink water"...lots of water. OMG I had no idea I was dehydrated and that I was a Diet Coke addict....After months of water I acquired a taste for it and I actually could finally stretch out the muscles that killed me so much. I walked on feet of glass as well.....in the morning I was 90 years old.
15 years of being watchful and giving my body what I could possibly do I have a great wellness window to work with.
It take 2-3 months to change your body chemistry though, so know there is no overnight fix. Be persistant and put yourself in the front. The lead person to the day is you and you getting to a better place.
I hug you from here...I wish you well with this biggest challenge. It is defenitely the hardest thing I have been handed in my life. But I rose up and became a champion. YOU can be a champion too. That is not to say I wasn't discouraged at times and a flare knocked me under a rock to hide.....I just have on boxing gloves and do the right thing as much as possible. Don't give up, it can get better.
Morning Mimi, Why do we do that to ourselves over and over again. Like we forget the line was about 2 projects back. Rush, you can do it all today! Cripes, it is a biggy of a mistake.
I took down the ornaments and tree yesterday and put them up, with doing the laundry and had to run to the store for the Grands (they see Disney on Ice today) So magic wands and pocket books of Frozen were needed.........YIKES.
I slept in the recliner but I was up and down, muscle cramps....gas....headache and a mess. CRAP. I am old and know well what NOT to do. Got the call and ran.... I took a break between getting the things down and starting....
I medicated and extra dosing and hydrated....but there is no tricking that dang dragon at times.
I just got up now and await my meds to put me together like Humpty Dumpty. The tree looks so nice though. It is not finished I have like tinsel to put on it still (last thing) It is like irredescent Lilly of the Valley that hangs from a pick and I put it on the tips of the branches..(gives the tree the look of my youth) I love it. So one part done.
The Mother of Invention though was the exhaustion from the bring down one small part.....I called a man who has a pick up and storage company. He will take Christmas from me at the end of the season and store it for me and then bring it back in Nov next year...NO MORE ATTIC.
I told DH last night that the money for one year is worth it right now, lets try it...He wants to put it all in the garage...same thing, just down and not up. This is given to me in the living room by them...
This to me is like using the PeaPod service of Stop n Shop. They brought the food to me and I was done in minutes and I didn't lift.
I am getting older and I won't give them all the stuff but most of it. (IT IS HALF my house up in the attic!!) I want the Grands to see the magic at Nana's house....Can't lose that becuase I am now older and challenged with my buddy the dragon....
As we know repetative anything is a trigger....pacing is important but for me it is also getting help to the house to bring it all to me**. The kids all have their lives now and they are so busy, I just have to get inventful.
I think FATE brought me the flyer to use this guy and he lives in the complex where my condo is that my sons have been using and now will be empty......(need a tenant)... But fate that we met and have something shared. He is young with 2 kids and I would like to help him too. (Last night when not sleeping i thought what if he defaults on his facility...will I lose all my stuff?) Crap it is tough when you don't sleep.....dang brain!
OK, Christmas is on its way here in NY...I have the spirit and the aches we get to go with it....lol. Shopping is done and I will get the things wrapped and out next. Then next week I will have 1 son to be in the attic to help and the line is me and maybe a bit of DH (his heart is not right and I don't want him doing too much)....but then I work from Black Friday to Sunday to make the magic happen and it always does.....
May all of you have a plan to get through the holidays and heating pads ready to go. I started earlier this time as I knew I wouldn't have the energy I had last year. I was right. It seems we have to evaluate ourselves all the time and plan...
OK, a good day for all. I hope you have something special for today. For me, a quiet day is in order. Regroup for a busy week ahead. I am going to all our other offices to overlook their emergency protocols and be sure the code carts are in order. CPR etc. Tall order, but it is good to have all on the same page. No one has ICU nurses available to them. So there is alot to share.
One thing about that insulin pump I was wearing....I found that when you have diabetes and are on a pump or insulin...they too have to plan their day (like us) that they cannot do spontaneous things with food ( all is planned and calorie calculated) So the teaching is that chronic* is a getting used to things, So similar. N BView Thread
I pay someone 100.00 to do the house every 2 weeks. I have had this help for 15 years and the woman I have now is 65 y/o.
I cried when I first got the help, but I couldn't do it. The housekeeper asked me "why are you crying?" I said because you are here. She said "OMG everyone loves to have me help ! "
Well, I said it is NOT THAT I WANT YOUR HELP....I NEED YOUR HELP....
This was during the accepting of the whole mess we are in. But as you said, it wipes out everything else you could do in a day. I still do beds and laundry and food shop and some little things.
I also had HATE in my vocabulary for the family...."he left that there on purpose to get me.....He didn't put that away so now I have to do that too....How did they miss the toilet......I did this last week and now again!
Man, many a cringe when I did things I hated my whole family for torturing me, my husband got me the helper and then it wasn't me anymore and I could do and pace through other things.
So many chores for me as I am alone here so much. So the help is p r i c e l e s s.....
Taking it one big chore or a couple of small chores at a time will help. I would try to put it all in the days off from work and then I crashed each time.
MEL...You be one of the GOOD. Then that is one more in the crowd and soon another will come and the BAD will disappear.
I don't know what you are seeing but I am in the field a long time. People change as they deal with illness and age,deformity, sadness and loss. I developed a barrier to me as well to care for the critically ill and then in hospice to say goodbye all the time.
I NEVER lost my empathy, NEVER lost the vow that no one dies alone. I continue to be a light for the newbies I have under me. To build teachers out of them and "shmoozers as I call it".
I say, he is scared..."it's all in the schmooze!" Patients often just want you to listen.....we are like bartenders (many a secret was placed in my care)
I had a nurse who was burnt...done. She never read journals and was so not into the field. I got the rest doing rounds and getting excited for mock drills of events that we did even at the desk and visually saw the whole thing......
Everyone wants to go a good job, no one says...let me screw this up today...hope I get into a senario that I don't know what to do.." They all want the information and people look for a leader in the crowd. Well we started this and ALL were in but her....it was contagious...I was in heaven.
So let me say she didn't last long before she was in the game and doing well. The end of the story..."she became our Head Nurse in the years down the line!!" lol
It just takes one to light that candle and be persistant......
My neighbor that I helped through nursing school.....I fell in love with her when she told me with her Irish accent tha she was doing Nursing Home clinical and this patient asked for a dessert. She asked what would you want....."Chocolate cake" said the patient. Well her conversation with the patient and support of their wish was so valuable. As she spoke I just wanted to hug her. I KNEW she was going to be a great nurse.
Now she is at her new job in a new hospital in the ICU as I dreamed for her. 5 years down the line. So proud, still the hugger and supporter of all.
OK, I am rambling. I just wanted to hug you when I read the comment "I don't know if......."
I would take that as an abnormality found. He is speaking of the *horn* as it is called inside the spinal column. Parts of the horn are for sending out messages from the brain and others are for the return of those signals. (move my arm.....it moved)
The Ventral horn (this you can look up) Is responsible for output of signals. Dorsal horns are for sensory return, Ventral are for motor response of the body ( so signals out) The Lateral horn is for the Autonomic Nervous system function.
I believe the statement was made to say he see's something but doesn't know what it means. You can have a EMG of the upper roots at the neck to see if there are delays in nerve output and function. Maybe this is a radiculopathy. I have been told I have that.
Well I have been told alot of things, but one thing is sure, I got more than one opinion about everyone's theories* lol.
I am also a C4-5 person. Wonder how many are really on this site if everyone had studies. Wonder too is it like finding a spur on an xray in the heel. The spur is not the problem it is a finding of heel abuse. We calcify areas that get traumatized. The tendons are the cause for the pain in the fasciitis complaint that we had the xray for.
Anyway. Hope this helped. It seems like a general comment of a change in that location of the vertebrae with your cord.
The cord looks like a butterfly when you slice it and look horizontally at it. Where he could say bulge, edema, calcification etc. He generalized and said deformity. Your butterfly is irregular at that slice.
Hope you get good news like, this is a common variant to films. Like so many cysts we find on livers and kidneys....they mean little and scare the bejesus out of patients. Even a nodule on the lung is not patholagical but incidental as a finding.
I say....breathe. If your arms are working and the body moves as you wish it to, this might be incidental. Not easy to see on the report though.
I was out and about yesterday, statring with the GC and saying "dang I am so tired I could nap right here in the street!" Well it went on for most of the day , then I remembered..... I took my PREVNAR-13 injection on Friday.... This is the CDC guided injection for the elderly this year. It is lifetime for us. Better if over 65, ( 50 benefit ) but I have had pneumonia twice and I don't want it again....Glad I figured out where my 'get up and go...got up and went' Then I sat and rested for the night.
Actually watched "pretty woman' 4 times in a row on a marathon. Just love that movie as you can see*. DH went out to play with the family band and I had no energy to follow him.
Better today felling like myself. No arm soreness or anything. I hope I got a good immune response from it! lol.
I got new decorations for outside that are child-like at Home Depot. Then off to Kohls for round 2 of things for Christmas. Got the girls the snowsuits and boots they needed, so some of my gifts have a purpose!
Loving this time of year even this early!
O.T: OMG I got the bill from Columbia for DH's overnight stay...the whole thing with MD and Lab included( this was 2 cardiac stents)...50,000.00!! I have a bill in front of me for 6,000.00 ! I told my attendings "I can't afford to follow you to Columbia! I will stay here at the local Medical Center! Holy Crap!
You really pay for being with the best of the best.
I am all eyes wide open for the craziness of the healthccare of today. I guess to afford the salaries and supplies and invent the new tools and meds it has gotten this out of control, but who can afford to do this. DIL said, pay 50..00 a month. I look at the pile of bills in front of me and i am melting in the numbers right now. I am lucky too....I have connections for samples and help. I have a company who will pitch in for support of this bill. But what of those without..... I have been a thorn in the sides of the attendings talking of billing of our patients.
OK: Back to us. You know of that "change the battery in the smoke dectector" at this time of year.....
Check your heating pads and replace them if they are worn or looking DIRTY....neck oils get on them. I don't want anyone catching a skin fungus or infection or making a fire because they never thought to change to a new one....
I have a neck wrap that is amazing, I got it from QVC (my favorite shop)...it has magnets to hold itself in place and has a flap that goes up to the hairline for good coverage. Sunbeam I will say makes it. Soft and just perfect for me.
Change the RICE PACKS TOO......Mine are shot. As soon as the little Kiosk that I get them from during the holidays opens in the mall "I am there!"
OK that is enough from me this morning. Lookin like the board is slow. Please have patience with it. There are so many lurkers that don't post, feeling that they have nothing to add or give. YET...they have so much to offer, even if it is just an I am sorry this is happening.....support is a hug, a word of strength for another....you are not alone...oh man I had that too.
It doesn't take much, JUST CLICK REPLY and you are half way there....lol.
What a bond can be forged when you tend to another and help them. I remember the first posts I had and the help I got when I came over 10 years ago. Priceless help for me at that time.
OK...off to seize my day, before the dragon seizes me for the day!................(Oh no he's not, I have learned his tricks and I don't allow his overwhelming hold over me anymore)
Here's to a great Sunday...make it a family day. Not too many people are keeping that anymore .
Well so much for the " In sickness and in health".
It just gets me when I think that the guy would be there asking for you to help out if it were they who got this mess handed them.
It seems suffer in silence is the M O most are looking for.\
That is why this board is so valuable. We PUT IT HERE.... This dang disease is tough on a marriage no doubt about it, and I loved the post above me stating that "her pain was better without him in the home!!" That might just be the truth. Any negativity in your life or perseption of it can affect you.
My Sister loved being "her own person" but she chose the position...she left him. When the plan was from the hub you will have to adjust. I bet too that in a short time you will see that you are better off without him.
DONT GET SAD.....GET MAD... it's motivating.
You can do this, you were alone when you hitched up with him. You can do this. I am married 35 years, to find my own spirit alone will be tough, but I know I could do it, if it happened.
Get your bearings....find your footings....get financially solvent...if you need assistance get to the Town hall and see what is available for you. Look into any womens support in the town. There is more out there then you realize and YOU ARE NOT ALONE.
Check in on a womans shelter in the area (though not abused) you can find other resources there.
Sorry you were handed this too....hope all our hugs helped.