No namesakes for me...this name is going to end here! My maiden name has continued with my brother but his son had girls too....amazing. The Spanish and Italians have it right, they keep their maiden names in the name. It is just confusing for us when they have 3 last names....Ha!
Doing better from meds as I sit, but time to get up and I have to iron or no clothes for the week!!
Then out.........Good day to you as well. Nancy BView Thread
Our family's never GET IT. We have a silent issue that no one can see. Alot of us brave the isues too and then it makes it worse, each good day makes the bad days confusing.
Hell, WE don't get this disease......
I just wanted to say, as I am in trouble this morning. It is that our bodies made up of muscles all connected to eachother and I swear they all talk....." well if you are spastic today...I am increasing my tension too!" Oh yeah...then I am presssing on this nerve bed to make her numb....oh yeah..I will get a headahe from this pressure on this nerve.....
And then I take my meds and shut them up...
The neck is the central point for so much. The shoulder girdle is holding the arms at bay and keeping them stable. It is complex and intricate. I hate it.
But I am aware of the ones that create what symptom and the Travelle and Simons medical book and Dr Starlanyl's books helped to get pictures to say...."THIS and THIS to the neurologist.
If I arrive with my book, she knows I am in touble.
Good luck and I hope you feel better soon. . Nancy BView Thread
I had this with feeling like I was walking on glass in the morning. Turned out to be crystals in the feet that were from metabolism and got hung up there. Dehydration was part of the cause.
But what was the treatment??? I had foot massages by my sister and in the nail place and that is how they were broken up and I drank alot of fluids to flush them.
The massage was so painful but I was told it had to be done. Wa La it was the thing I needed.
How we get into these troubles I don't know, but it is a common finding in the spa's. I did it for my husband when he suddenly was saying his feet hurt so much. I used lotions and massaged his feet. You can feel the crystals in there. They kinda pop when you break them.
My sis says they are attached to the tendons. I have to say they are SO PAINFUL.....
Hope you get to a better place. I get my feet done often so I NEVER get that many anymore.
We did move the clocks forward last night....then I used the DVR to show the shows from the week we missed...and it was 11pm when I noticed the Kitchen clocks!
Why can't we just play with an half hour each way????
This is so apparent as you get older! When I worked the Night shift we hated the fall behind as we worked an extra hour without pay...their comment was make sure you work on the night that you spring ahead and save an hour! Or can't we just stay on daylight savings?? What harm would that do? Aren't there places that don't play with their clocks?
Well yesterday I went to Kohls and I medicated before going in...I found some amazing buys and was leaving with the baby and DIL when I couldn't find my keys......
Sitting on the front seat were my keys! I got distracted when I drank the water and took my meds. I have not locked my keys in the car in many...maybe 15 years...and I had a car then with a keypad that I could always GET IN!
CRAP...45 minutes for my DIL to get me home and 45 min to get me back to the store....I got car sick as I sat in the back withthe baby as she was crying.....so I sang and suddenly she was asleepand so beautiful. A sleeping baby is always beautiful !
She then dropped me back to the store and I went in and shopped for me and DH....
I left there and went to the grocery which is next door...and then the body said no more. I checked my med box in my bag and it was empty so I couldn't help myself......so I just got in the car, rested my head on the headrest and drove home to a heating pad.
I did have to get the bags in the house so I waited and "Paced"(mimi) and got them up.
Today I am beat. My neck is so tight I can't turn my head..I have a headache and I know I blew it...holding the baby in the store..head turned in the car to sing to her....and all the lifting and carrying. THEY ARE ALL TRIGGERS for me.
I just had shots and have to wait for 2 weeks to get this better. I'll try a massage by Wed if I am still like this.
I have to decorate for the shower today and that is absolutely over my head....not good. I would take Monday off, but I have to give report to the MA I covered whle she was away....
What is it with me, everytime I think about being off or home I am finding why I can't? Seems pathological at times !
I still await the spring, people are showing me on FB, FM pt's from the old fmily are still part of my life and I was shown those crocuses (sp?) I spoke of....purple and white ones. Ahhhhh.
If I didn't have so much snow in the yard I would walk around looking for signs of her coming. . I am needing sun and warmth.
So, out of bed today becuase the dragon was there with me biting! and I had to get meds in me. Now a shower and hoping for a turn around. I don't want to be in a bad place for the shower today, this is a big day. My neice is an N.P in Manhattan and was engaged to a Cardiologist (I did not set them up) but he left her and married someone else. It was heart breaking and damaged her deeply. She has finally found love and has everything she could want. I am so profoundly happy for my SIL and Neice that this has come into their lives. She is 42 and is looking to have a family immediately. I pray all goes well at this age. It is tough when it is the first. But what God gives we take, and love.
OK, I am jabbering here....boards are quiet. Either no issues, people are busy....or the answers were found in the resource sections or under Dr Pelligrino's writings.....a good thing.
Enjoy this Sunday...(no sun for me on this sunday) . Grey day. I a loathing the color grey right now.
What is difference to the writing of gray....or grey?? I think yesterday I wrote gray...Hmm??
I want to ask you to look in the resource section of the site here. In the Memembers Toolbox there are great ideas of how to help yourself.
So much of this, in my opinion is attitude. I am so pissed off that this is in my way and I fight it everyday. I will not take a back seat and let this eat me up. I will not sit still and not become what I need to become. Now I am older and wiser, but I still I have things to do and want to do them.
You need to hydrate...really hydrate, get on the right mix of meds to lower your discomfort to a tolerable level. I found my savella did that for me. We are all chemical in nature and changing your chemistry is what is needed. We do it with meds, foods and fluids......movement and the mind set you keep.
We call this a dragon and I will tell you that after fighting with him for 15 years I am starting to learn to dance with him a bit. It has NOT been easy, alot of tears. I changed alot in my life to accomodate this new friend. I was so against the thought of this being with me "forever"...I told the neurologist...nothing is forever...I can figure this out.
Many books and trial and error episodes...but so much better than I was. In a small way you are lucky to start fixing this when you are young. Your body is resilient machine. YOU MIGHT JUST GET IT TURNED AROUND.
It is my opinion though that you can't just sit back and let him(dragon) have you as he will continue to TAKE and TAKE. Like laying in bed on a bad day. It doesn't help your body it actually tightens you more. I say move so he can't catch you.
I have spoken of the Book" FM and Chronic myofascial Pain by Dr Devin Starlanyl. 19.99 on Amazon. It is priceless to me.
I wish we lived close and I could rally you and cheer you on to still "become". Screw the dragon and get mad......not sad.
Use that anger to win the fight against this. You can make headway...you just need to do the right thngs for your body eachday...everyday. (not easy...I know as I slipped many a time) BUT I got better than where I started.
I would carry the flag ahead of you..for you to move forward!
Stay on the site here and use it to the fullest. You can not be a bystander in this fight. but you can regain some of you back. I know a young body can bounce back and get in line faster than an older one.
Hope I said the right things and you take this as a positive to help you. I don't have the answers, none of us know them as we are all different and out of norm differently. We need Vit D and Magnesium and Calcium and Vit B Complex and detoxifying foods. Fluid (not soda) to lubricate the muscles to take away waste products....we need to be vigilant.
Good luck in this. YOU CAN MAKE A DIFFERENCE......... YOU HAVE MORE POWER THAN YOU REALISE..........
Like Dorothy in the Emerald city. "You had the power all the time, you just didn't know it" Though it is not as easy as clicking your shoes 3 times !!
get a good doctor with a good relationship that knows you are fighting for you.....I use a muscle relaxant, tramadol for pain and savella as my Rx meds. I also take trigger pointinjections at the neurologists to assist my muscles. Massage as well.
Good morning Mrs Jams, Cute name...I can see you in your red striped jams!! Ha!
OH man if I could only count the number of time I heard...excersise and PT. Physical therapy killing me the most. I am really not FM, though my symptoms are similar.
I awoke stiff and 90 y/o and felt like the muscles were out of oil. No one was moving. I had painful feet like walking on glass and hands that were numb and weak arms.
I still have some of these isses. I have CMP. Chronic Myofascial Pain syndrome which a is a problem with trigger points in the muscles. There is a dysfunction to the muscle that gets it congested and non functioning. I can be in a store and the legs won't go anymore....like running our of gas.
If I did some "exercise" or effort...the next day I was in trouble. My exam by neurology would kill me the next day. Thank God he heard me and finally referred me to a myofascial specialist in their office.
So what I am trying to say is , I have learned that FM patients may have CMP but CMP pt's don't have FM. So maybe you are dealing with trigger points. They are small areas in the tissues that are so painful when touched. NOT an all over pain. But when alot of them are active for me....I am in a flare and rest for a day or two.
and more so: YOU CANNOT STRETCH OR EXCERSISE A MUSCLE THAT HAS TRIGGER POINTS !
I have found a shower and stretching in there was best for me.
That hydrating with water OVER TIME....it takes time to hydrate back up again (for physiological reasons). I also was told at a large $$ to eat green veggies to detox my body. I did.
I am pretty well tuned, I work full time and I have found too that my little 19.99 trampoline is great for a work out. I dance to great music and keep my arms close to the body, the physiatrist felt that it moves fluids in the core of my body by defying gravity....so he was all for this. It is low impact for the knees and rest as you go with the spring of it.
Water before and after....about 4 bottle of water a day if not 5. Those are the ones with the pop up blue top.
Don't let anyone tell you what you can do, you need to figure it out yourself. I couldn't even do the stretch when they told me. I had to hydrate and warm up first. I had to detox too.
I can't tell you to my surprise after doing the hydrate and greens when the first stretch worked...I was in bed in the warm sheet when I did it and the legs felt good after......I could feel the muscles changed! WOW. A moment to remember. It has been that way since.
Good luck,. I use as a bible "FM and chronic myofascial Pain, by Dr Devin Starlanyl MD as a guide. Amazon.com has it. I have gained alot from her wisdom.
Well my three weeks acting as a Medical Assistant is over. I learned alot. (Not clinically) but in the computer system to escribe meds...to use the forward mode on the phone and how many obstacles there are in a day.
I think everyone should wear the others shoes to learn their path. Right? What an eye opener we would have.....
I now have the job of presenting ideas for change and hope it makes a difference.
It was not a job for someone in my condition, well there were challenges that I would have to have figured a way around to make it less painful (One day I was crying...so busy I didn't take my meds and the work of pulling and pushing was in my day...BAD for me). So, I said we need to train the RN's to cross over in a crisis for help. NOT ME. That is a plan too.
This weekend is going to warm a bit too, and snow is in the weeks story....YUCK It is depressing here with the grey snow, piles so high you can't see anything in the parking lots and is risky when driving. They are frozen so it is hard for the average man to cut it down and move it. I have seen bobcats taking snow from some places...chopping away. What a year!
This spring is going to be extra special......
The first crocuses(sp?).....popping their heads up fro the snow..... The sun feeling warmer through the window on your back....
The birds changing their songs and becoming so lively in the air....a blue sky. (So have had it with GREY). I plan on time off during spring to soak it all in. To get some projects done or started...fresh air in the lungs...I just need to get a guy from town who speaks english to be my hands and arms! It will be worth it.
I can't wait much longer for spring......
OK I wish you all a full day, full of good distractions. My neurologist just said on Wed when I had shots. Nancy you are always doing something.....I told her even if it is jus all in my head, it is my med "distraction" works so well for me! She shook her head and laughed... It is true. Sometimes I plan and plan and that is as far as it gets, but I used that time to displace the discomfort I am having to lower it down to a bearable level I can cover.
I wish all a better day today, and something good to happen. Maybe someone here won the power ball??? anyone??
OK, off to laundry, I got a 30% coupon to Kohl's so heading out with DIL#2 for the baby...see what we can find.....and then to food shop a bit. Tomorrow is my neices bridal shower and I am so happy for her. I crocheted an afghan as my gift (biggest I have ever made) and then went to Macy's for a vase...got a lenox with a beautiful design. I have the job of decorating the house at my SIL's....It is going to be a positive day.
Mary I am going to respong to you here. I am aware of people with underlying infections (particularly in the sinuses) which get the immune system so out of wack and hypersensitive. It produces hives and rashes, swelling and the poor person has no idea why.
So this is why things got better with drying up the sinuses and the antibiotics. A sinus infection can linger for a long time and needs to be treated aggressively. So you are right it did help to do those things as that was the true reason for the insult to the immune system.
Good Morning Anon....
You have been given some good ideas. I could live on soup everyday. I have many food issues and am gluten freee as well. I have learned to eat simple and I make all my dishes. I eat Chicken the most, pork and fish a bit. I eat green leafy veggies and really anything green. That's it. It helped straighten out of few of my issues. You might benefit from some supplement drinks though to gain weight. Dense calories. I wish you all the best in figuring this out. Maybe a search on google for gaining weight. I know we can't exercise well with weights to build muscle, but calories in should be a goal to attain. More and more in your case.
OMG I rented Gravity last night also! That is amazing!!
I was disappointed, though her performance was really good. The premise of the story was so unrealistic. I was on the edge of the seat though through alot of it.
The special effects were good and they can do anything with nothing these days. It makes fun of our old Godzilla from our time....Or MOTHRA if you ever saw that one! It was all our imagination to make it real....now it is real and you are telling your imagination it is special effects and not real!!
I had a rush day yesterday. Snow is coming back and I am looking at ticket prices to be in Florida....my sis is ready to grab me. I just have to release myself from the work I do. CRAP it is such responsibility. I can't leave in the start of a start up. No one is telling me of the Urology dept's start in Columbia's system. I have started the work but there are thousand of patients to put in..............I take 25 at a time.
OK: Chg gears....I am getting ready for St Pat's and the Easter hunt. Got quite a bit at Wallmart yesterday. I went for a skene(?) of yarn and left with a big bill...but the hunt is almost done.
I got piggy banks for the eggs( money inside them) then we can sit and put the money in the pigs. I wanted those furry bunny banks made of plastic but they are no where to be found. Killing me. You know when you have a memory and want to keep it.....why would they stop making them? CRAP.
So I did too much yesterday, Wallmart, Dress barn and then the killer Barnes and Noble for DH's Birthday gifts. I went in for a gift card and came out with 4 books. I cannot carry books in my arms...it kils my neck... I knew it as I was walking, I grabbed a *for sale bag and let it hang for carrying but CRAP it was getting me. I medicated after that. THEN I went into A&P and bought fresh veggies and other things with the snow coming. Stores were really empty. Shocked.
I got home and called for the nails to get Valentines off them and they said come now...dropped all and went there... Then home and I was beat but I baked cookies for the grands " Nana Cookies" (6 eggs) and that was for today as it is DH's birthday 64*....we are going to dinner. Then I cooked dinner and I was couched.
Today I am beat but I have the laundry to do and lamb to cook for Monday....as well as the bed need stripping. I know P A C E. Trying. With only 2 days to get it all done it is tough.
So I am aching and in hopes the shower and meds with the joy of his birthday being a good distraction to get me UP and OUT.
No sun here as Snow is on it's way. I am NOT in the BIG snow area. 4" I think, but all were saying 12-14" on Friday and were killing me......I am so done with winter. This is all good for the resevoirs of NY, but it is doing in the public. And now it is DIRTY SNOW...grey trees, blacked sides to the streets and no color to be found. I purposely walked in the flower section in wall mart for a veiw and went to the garden dept to smell the smells of spring!!
I am desperate. OK that is my weekend. I have many challenges this week, too many to share, just hoping I figure them all out so they don't hurt my body. Being on the other side of the office is an eye opener, as time flies past you in a blink. Being attentive is imperative for me though, so I am in high wired state. Using alot of energy and then sleeping like a log at home!!
A good day to all and remember to use your toolbox to get out of trouble. May take a few circles around in there...but with luck you end up in a better place.
Welcome back....I thought of Gabapentin as an additive to this right away and then when you said it. Ah ha.
The thing with Gabapentin as stated, that 1800mg is the standard dose......that dose is for use in certain things. I could only take 100mg and the loopy head I had and eye hand coordination was way off. I chose to stop using it.
They say over time you settle in with side effects though. It is good you use a cane and protect yourself. I also have walking issues if I have been , like at a restaurant and have been sitting a long time. To get the legs going and moving forward is an issue. Then they unlock and open up to walk more normal.
I still drop things as my main issue is neck, that gives headaches and hands/arms as most problematic. I changed my dishes over to Corelle as they don't break if I drop them and they are so much lighter.
Good luck with figuring this out. We tend to be our own detectives to get an answer. Is it about 45 minutes after gabapentin that you have the worst time? Is it from dormency of the muscles from sleep and sitting that gets you? Are you hydrated enough?
I used to journal myself in the begining to figure out what I was doing or what affected my symptoms. That may help too.