You are not alone in this fight! We have been dealing with it a long time. Some new here picking up tips and then those who have mastered the fight to move forward in their lives a bit. It is an awful annoyance to the day, I will say! Don't let it win and always move, do things you like to do. Sitting only makes it worse.
I went from not being able to carrying water to the sink to cook and walking in the morning meant walking on glass as a sensation for my feet. Feeling like 90 y/o
Oh man, I was ready to throw it all in....an leave
But as I fought, learned and did all the right things for me I triumphed. Much better now.
Look to the right in resources for the Members Toolbox for assistance with tools to make you better. A trick someone learned may work for you but it may also not. We are all different. Our bodies are out of alignment just a bit different from each other. So it is a process of trial and error. We are never painfree we just lower it to be able to have a life.
A journal is a good idea in the beginning to see what you do for triggers and what helps you feel better. Things don't fix overnight either...you need to asses over time. Say give it a week for each tool you try.
Heat is always our friend so many heating pads are owned by all. I always feel you are at your lowest when you find us and then it is always going to get better.
Be sure you are on Vit D and have gotten a level done. Vit B for the nervous system and Magnesium for the muscles. I also take CoQ10 for the cellular activity.
Drink plenty of water to rid yourself of wastes from metabolism. Your body doesn't need coke or chemicals it needs H2O! lol. (who knew? it is so simple a statement) It was my biggest fault: I never drank water!
I also mention to newbies to look into the book: FM and Chronic Myofascial Pain, a Survival Manual by Dr Devin Starlanyl. I got mine on Amazon. Second edition is the one I speak of. SO USEFUL.
OK go luck, you found a great group of people sharing a tough situation. No one will understand you like us.
OH I am in love with the weather right now. I got a tremendous amount of work done yesterday with no sweat involved. I had a tough moment trying to raise a shelf by myself as the pins to place in the unit are bent. Arrrgh... All I could say why am I alone in this project? Always alone. they are at the store...feeding the masses! lol
Anyway a lot accomplished. I had a fair night in the recliner after DH massaged me with the sombra. I showered with hot water,I took Motrin and an extra muscle relaxant and timed my quit mark at 6 hours of work then to the gravity chair in the sun with a book...ahhh (that was great)
The sun is such good medicine!
I found I have 2 hummingbirds that came to the feeder so now I have 2 feeders for the guys, maybe they will tell others! I want them at the house so bad! I have no food for the regulars, I have to run this a.m and get that. I feel so bad, poor things keep checking.
So I have more to do today but I will switch muscles. I am going to do the planting of the pots with all the trays of flowers I bought. Keeping arms in and standing at the wall, so no bending....Maybe by afternoon I can chip away in the garage.
Tomorrow's BarBQ is small just my Grands and DS and DIL. All else are busy with things. Believe me it is OK! Less is more right now, but I wanted to do something!. I have my Brothers Flag to hang, I placed hooks in the soffit that are perfect distance to just attach and hang. I always feel good putting that up.
Remembering all those who helped keep America free, fought for freedom of other nations and gave their lives to accomplish this is just overwhelming. My Nephew is the Marshall of a parade that takes place Monday and a lot of the family are going. So proud. He is Air force and works for Homeland security. Keeping us safe at JFK airport.
It takes a nation to do all that is needed in this balance of freedom, it isn't free as they say.
OK, Have a good day 54* right now and going into the 70's again. Love it!!
OH man it is cold, they warned us for frost for last night! The garden is in!.....I am on vacation now and have surgery on Wednesday but I want to get all the summer turn around done first before Wed. So busy day ahead today and tomorrow.
I am not a hoarder but we keep things for too long and maybe never get back to an area to straighten it. Time for that garage to get done! . I have to get DH's new car in there so , work I will.
The sun is shining bright and 44* right now to get to 70's perfect weather for this. I have a tree to plant and flowers to pot and then REST....
Opening the pool and washing the outside furniture too.
I will PACE and I will surely take my meds.
Slept well last night, I don't do well with this often. Surgery will help that I get up for the bathroom all night long.
OK...be back during a rest break or when I can't move! lol
Try and find a project that straightens your world, lifts you up when you are finished and you want to do it. Start slow and chip away at it and suddenly it is done and you feel so relieved and accomplished! I love straight and tidy, its just my world doesn't maintain it!! lol
I didn't start the day yesterday thinking mimi was behind me.... I will start today as I don't know.
It rained again last night, so hard at times it wakes you up. Grrrrr A soft summer rain is melodic and can sooth you, but crashing rushing water does nothing for me. lol We needed it so bad though!
Sun is out right now and looks to be a lovely day in the 80's. Mimi you are right, bouncing from hot-cold-hot...crazy stuff. Glad I work in air Conditioning so the whole day is the same.
Speaking of work, I was asked again to take that promotion and cover the other offices clinically so they are compliant with our mission. I didn't have to think too hard this time. Office drama is killing me. So now I will be in many offices and not in the drama end of it. Yippee. I did ask for a raise but didn't say the rate, I spoke with my leadership saying the area I was thinking. Hope that helps me. I am just not the one that demands this or that.....
The days are long, I don't know how to get the season change over with. Who is here to use it anyway? I don't know what to do. The pool should open and I will be in it for sure. Even grands once or twice.
I was at the sand box yesterday and the snakes took it over again....a nasty male with his female were in there. (No eggs seen) he was so ready to attack me. The female was a garter but he was different looking cross lines on his back. I thought male garter...but mouth was big and nasty. Me and my stick prevailed to toss him out. Then a bottle of cinnamon in the sand and need more to naturally keep bugs out (they say)
I was going to put in the garden but with the rain I started that garage project. Half into small sectioning out things I was feeling my buddy (FM) start bothering me so I quit.
WOW it was 3pm. The music and project took me away and time passed fast. Then I sat with my water and regrouped to a nap* lol...(I bet some of this is age as well as FM)
Today I will attempt the garden as the seed need the time...to get going to give me plants. Thank goodness I got the raised garden it is great for me and just enough reach not to trigger something.
OK, Mimi I hope you slept well and are roaring to get a day full today (roar right in that dragons face!)
Mel: You are so good, hope the weather stays in your favor there.
Cory, OMG how sad to hear of the loss of your friend. A buddy it sounds like you have had a long time. There is no replacing each one of them, but i hope you find another in the pound that needs love and YOU. We know that caring for them and walking them is medicine for us as well. My heart goes out to you and your family. I cried so bad when I put down Cooper all they ask is love of us. Hugs and Hugs from me.
OK, off to seize the day. Hoping it doesn't seize me back....lol
Good morning and welcome Sammie, Sad to have a another be diagnosed with this but glad you found the board for the support and hugs it offers.
Whenever I am given a diagnosis I get a second opinion because these doctors are just humans in lab coats and they make mistakes.
I actually saw 9 doctors while getting myself diagnosed for this. The things I was told would just get you crazy.....I just wasn't taking any of it until I knew it was right.
OK, so where are you now? You found us, the gals above me here talked about the website and the right panel for usage, now I will add:
get a good heating pad to help in sore nights and days it helps the pain so much
Pick up a cream like stop pain and use that (I use sombra from the internet qt size)
Drink plenty of water only and hydrate your tissues and help your body to flush its metabolic waste.
Try eating green (green veggies,plenty of them) they are full of antioxidants. It will help your cells.
No CRAP. Crap in...crap out!
No sugar substitutes for a while. and see how this helps.
It takes 60-90 days to change your body chemistry
Try and do more NON medical things for you than pills as this is a FOR LIFE label. We manage this. The day is never without pain, just lowered to have a good day. A flare can plant each one of us on a couch to regroup. You need to leave room for the future so staying low in meds leaves this as an avenue in the future if you need it.
Journal your day. Find your* triggers and tools that work for you. The early stage is alot of work but it is so worth it. You will figure out your line in the sand and not to cross it!
A good thing I found was a book named FM and Chronic Myofascial Pain a survival manual by Dr Devin Starlanyl. It helped me to use many non medical things to work my body and learn it.
I receive trigger point injections regularly to function and I work full time. I have been through the ringer to be here today but as we call this the "dragon" I learned to fight the crap out of him in the beginning and then was draggin him around when I was better, always knowing he was with me. Now I think I am dancing with him more then draggin him these days.
A survivor story of sorts. I still flare and sit, I know my body so well (15 years ) I wouldn't trade this for any different diagnosis as this doesn't kill you it just ruins your spirit and day.
I got to hold on to my spirit and brushed off the victim sense and made myself a champion. YOU CAN DO IT TOO.
Good luck, and you found the best place for ideas and support from those who walk this line. Don't expect anyone else in your life to understand . We get it.......post often and we will try and help.
RED FLAG.....I have had people in the ICU for teeth pain from it being CARDIAC in nature.
Chest pain is not always in the chest. The jaw and toothache pain is a positive finding as well.
Get a light turned on in a doctor's head and get a stress test.
I have NO IDEA what your age is...but this is a RED FLAG FOR ME.
Always rule out the things that can hurt you. The stories were so similar..."I kept going to the dentist and they couldn't find anything". One went for Bypass surgery the other was stents..
PLEASE GET CHECKED. Is this happening with working and moving or is it at rest?? If it is present for a long time maybe then the ER for a ECG and if you sweat with it for sure GET TO THE ER. Are you on an ASA 81mg or 325mg?
Hug from me, Nancy B
I am not an alarmist...I just see things from past and put it out there for people. nanView Thread
Oh Corri, I am sorry you need us, but a great site for support.
Look to the right in resources for the Members Toolbox and then up to the right for discussion and put in the space there Dr Pelligrino's name and see his discussions that taught us so much!
I truly believe you are at your worst when you join and it gets better as your learn about you. Your triggers and fixes (tools) to not be in trouble.
A book that is good for all to have is FM and Chronic Myofascial Pain, a survival manual (second edition) by Dr Devin Starlanyl and Copeland. 19.99 on amazon when I bought it. Priceless in its help in this.
I wish you all the best in learning and getting to a better place.
I am right there with the girls on hormonal in nature. Poor Hub to have to think about this as you don't have a clue of our hormonal swings etc........(.)
I have a couple of thoughts, I don't struggle with fog but i will add something here anyway. Our monthly issues can be adjusted by what is eaten in the month prior. example of heavy bleeding can be helped with less protein in the meals and more vegetables (this is on a holistic edge). Same as for clots and cramps, it is protein. Change her diet for a month or two.
I believe for us so much, we are dehydrated for a long period of time and don't know it. We never drank water (ice tea....soda...coffee, tea..).but not just pure water for the cells to cleanse themselves. I paid a lot of money to hear this so easy a fix.
So hydration with water, and it takes time to rehydrate, 60-90 days to see a change in her.
Now OB/GYN can help with hormonal studies to see if she is too high in oxytocin during that time for the nausea and vomiting. In fact GYN may have some answer here totally.
As others have said, for our shared FM issues we see a neuro (as I) or a rheumatologist. But we see other MDs for other issues as well.
Take a look on this page up to the right in discussions and put in Dr Pelligrino, then put in nausea and vomit or fatigue and see what he has said in the past.
Good luck, aren't you wonderful to help your wife. That was how I got my fix, my DH (dear husband) took me to that physiatrist and he rehydrated me and taught me a lot about my body.
Putting our common "dragon" that bothers all of us here. My first thought was to KEEP HER UP IN THE DAY. Like you reset a baby in the beginning. Yes it will be a bad day ahead but her clock needs resetting.
All of us have had this happen and medicating it away doesn't always help. Try doing it from half day at a time.
Work on comfort measures, the foam topper for the bed or a recliner for her to try. A warm bath just before bed. Her meds she uses for rest and no meds that are stimulators. No coffee, chocolate, TV, cell phone screen that is bright in the eye... that is active and stimulating. Use brain chemistry in your favor. Laughing and comedy are good for the feel good in us.
I wonder if you think I am a quack at this point. No I am not . I am just trying to put another natural spin on this. Soft music, music she likes that also can adjust her head. But first keeping her up more and bed later in the day will begin moving toward the night for sleep.
I am up 3 times each night and only if my brain is my enemy is why I am up. Pain can be adjusted with warmth (heating pad) my lavender lotions and soft socks. My sensations are played with. But if the mind is off...I am shot. I have had 3 hours sleep and gone to work.
Good luck. Try inching her to keep her awake like we did the babies. Use a heating pad to her back to relax her body for sleep when it is time.
And not that I am saying (her age is not said here) be sure she isn't doing anything to mess this up. I trust NO teenager. I remember taking an UP in High school and being UP all night because of it. Ughhh
Also at night TV has some racy things on it as well as the computer rooms are out there. (again I am only worried for her that I bring these up)
Self medicating could be going on. Just planting a seed here.