Morning Mimi and Fmily, 23* here. OMG...I have to admit I started just a hint of Christmas music in my world and wa-la THE SPIRIT arrived!! So excited for the holidays. I started shopping in July and I am done! Just my boys are left and I think $$ is what they really could use. Tom with the house NEEDS EVERYTHING, but better for him to buy it as I may get something he doesn't need right now and then maybe a power drill was the key for the moment.. Actually as I wrote this a Craftsman toolchest thing (those red ones) would be perfect!! See what I mean. I have not had much fun with this body this week. Rain and cold are not my friends, but the spark of Christmas has helped me change my brain chemistry. Like flipping a switch. Joyful I would say, warm and fuzzy on the inside... Yep, that's me. My arms hurt, back has active TrP's that even leaning back hurts....but warm a fuzzy on the inside is me!! Dealing with Mega bills and little money to chase them..I am sprinkling cash like salt and pepper!! lol. I have something to look forward to this year. DH turns 65 and is on his own for insurance!! Going to single in my office means I pay little...80.00 a month! Right now I pay 850.00 a month or maybe more. So a raise will happen!! lol I Have to choose the plan, would love to know what you, who are over 65 are using as your coverage. I was thinking AARP complete over the AARP supplement?? That way he has one card not 3. Wallmart for meds for him..... Learning curve for me. The complete is called "Secure Horizons" by the administrative staff and needs precert auths to get procedures done, but as far as the patient goes I think as it is all inclusive it is best for the husband who has NO CLUE..he would screw up giving this card and this card, and oh I need this one for meds.... He is not a simple man, just a man. (Sorry Cory). What are you using? Please give me feed back.... So the 23* and the Christmas music has me ready for the chores of today, despite the pain in the back and arms. I need to get in the attic and bring down the bags and bags of clothes. I will be sure to move forward the ones I have not worn in years. It is crazy how I hold on to things. So, good day for all of you. Use your tools and tricks to get the day done and keep moving...I truly believe the devil can't catch you if you are moving. A machine in motion stays in motion they say! Hydrate....sing your heart out....and poke this dragon in the eye to get away from you! YOU have a day to make. Hoping to bake later, the smell in the house is amazing then. Homey....and all love to eat the results!! Hugs, Nancy BView Thread
Flomax (2) at dinner time is the next step up from one. BUT has he been seen by MD. The Urologist needs to know size of Prostate. Uroxitral is the next step from that used. They will have anticholenergic effects though (dry mouth..eyes...) but trying is needed.
Not good to be up so much and he is not a candidate for surgery. Another approach can be Hormone ablation as if he has cancer and shrink the size of the prostate ( Casodex)if that is the reason for the issue. So many avenues and the key to the room is the Urologist.
Flexaril is no good as it is a skeletal muscle relaxant and that is not the bladder muscle. The human body is so amazing.
lol, I asked about that for me, that my SOMA is messing with me. NO a stricture of the urethra is messing with me. And I need a dilation again to the 40F if I can do it.
He needs to be seen and probably scoped (cystoscopy) (look in the bladder). Done in the office with local anesthesia. We do people in wheelchairs, see neurogenic bladders from stroke, MS and other causes.
It is only at night that he has so much trouble not in the day too ???
He might also have a UTI...is he more confused??
A stricture near the prostate at the ring area can also cause this symptom and increase risk for UTI, he needs a bladder scan (after a void residual) PVR done , this is an ultrasound of the bladder takes a minute and you SEE the urine waiting to come out.
Post void dribbling and frequency is often the stricture as the cause.
There are many meds for them to help. The stricture would need dilation under local if not too bad. A good urologist will be the man to bring this to.
Also another question, what meds is he taking with dinner, I would like to know that. It is amazing at times that something is being taken that is messing up everything.
Watch hydration in the afternoon to night as he lays down more returns to the heart and then is filtered to by the kidney.....up all night. See how this isn't so simple to fix. Give me a better picture, but again the Urologist is needed here.
He could be quite obstructed and 1000cc( 1 liter) can be sitting in his old bladder. The bladder has lost its sensors but at 1100cc it says go to the bathroom....he pees out 100cc and is OK (in his mind) and then in 2 hours or less as the filter of the kidney is about 50cc an hour or with a push of a water pill or another med....even shorter time....he is up again.
Good luck Cece you can make this better... Sorry it is you though. .
Geez I just had to reach out with a hug. I walked that line with my Mom and her smoking against all issues. She had a trach (tracheostomy: hole in the throat) from her COPD and was so hooked on her Salem's she couldn't stop.
I had just gottten her back home from a tune up in the hospital and she called me. Heard the drag on the phone....OMG...OMG I hung up on her. I ran 6 parkways all the time to get to her when in trouble.......couldn't believe it.
I had to come to terms with " she is human" people are not perfect even when it is our parents and we always thought they were. It is tough to transition to you being smarter or wiser than the parent as they age. But it is what happens. They will make their beds and then lie in them (good or bad).
Just being there as a son, an ear, a shoulder is really what happens. Don't push them away as it sounds that there is not alot of time in the future for them. Forgive. Thisis a big part of our lives I see (well at least in mine to get through some crap that happens)
I just needed to stretch out to you as I feel it was yesterday that I had that phone event. (25 years ago).....
Man when it rains it pours....You have always been a trooper here on the fmily site. Sad to read of this blackened time and the low.
Not easy taking punches. A fib is managable though and Metoprolol is a great med in so many ways. It also lowers anxiety, by toning down your catecholamines. (fight and flight chemicals) IF YOU MISS your med though you will get a rebound effect that can really bother you in the same way it helps. Heart rate so high and anxiety to follow. Becareful.
And yes the thyroid rules.....he tells all the organs to function so it is so important to have hormones followed and adjustments in meds. Specific the TSH. Tells us too much or too little. AF can come from hypothyroidism (too low) or it can be organic, that the heart chamber has changed. Most important is to be sure you are protected for stroke.
There is an ablation technique if you are a candidate to stop the AF and reset you. Just saying, there are risks but soem people don't like the way they feel in AF or the meds they take.
With all the challlenges you have had though, you are a trooper. I was happy to see the post from you as you have been here quite a while. . Not so happy to read the text though. . Keep the boxing gloves on!
I am so sorry you are having this awful senario's going on in your life at this age. 16 is the age of running around....
Are you overweight? Can you suggest a sleep study? Seeing you sleep and monitoring the stages you enter will tell alot of your brain function in the day.
Second thing I thought of until I saw your age is a thing called subclavian steal. This is a problem in the blood vessels of the arm/neck area and when you compress it or challenge it, bloodflow will stop and can create "stars" or fainting. This is a doppler (soundwave test) It is hard for a pediatrician to get all this. Maybe a second opinion at a large teaching hospital where the docs deal with "special"patients. There are things we are born with , abnormalities in our make up that are quiet for years and then present themselves suddenly.
These are the two things I thought of. BUT I also am not in pediatrics, puberty patients...this is an area all it's own. But I am Cardiovascular and who's to say that a younger person can't have the older issues. That anamolies can happen.
With sleep study you may be snoring and dropping your oxygen level way down and that just kills the next day for your body. I had a friend who was useless for months and that was her cause. It is so hard on the body. I like this test at a center though, not the home testing they are starting to do (to save money). Good luck with this, I hate reading that you are struggling.
Oh Mimi, sorry you are having trouble with the computer.
I have my court date today, of course I stepped over the line over the weekend with the kids. Holding Emily who is a worm at this age. And the other two like to climb on me. Madelyn sat on my lap almost the whole dinner.
Talk about "you don't look sick" How do you teach or explain to a little one that you are not right and can't.....do they even get the word can't..
I gave them the Toys R US wish books that came in the papers this weekend and 2 big black markers. "Let Nana know what you want for Christmas!"
LOL: Olivia circled just about everything a girl could have and Madelyn was more selective. A doll that poops out charms for a bracelet......who comes up with the ideas? Her Mom and I were saying eeeew. The charms will smell....she kept saying noooo it is pretend...well no is still the answer.
The Kitty Cat CAR was a hit. I always wanted to get the boys a car, but never had the money. One thing I will go for is the Frozen guitar. They both want it. So I quietly said " dibs" to Laurie.....
So a nice night was had. I returned and put on Hallmark for the Christmas movies and I am on my way to my holiday spirit!
Hoping things are going well for the fmily here. Kitchens done and house hunting slowed to a stop for the winter....Cece's Mom and Dad are stable and quiet for a bit. That someone she forgot about enters her life again and fills the void. I wish for all of it.
Mimi, keep safe. No hurting yourself....bubble wrap for you. I haven't read much of the Granddaughter. Things still going well and joyful. You have been busy with the other guys. Well a good Monday for you. I am hoping court is not as intimidating as it has been each time. I cringe going there.
I would have a hard time too. This is the toughest thing I have ever had to deal with. It is in my world everyday, every inch, every move. We have to plan ahead for all we do.
There are those who take only supplements to survive and have done well, like Mimi. But then there are those who struggle even though they are using every trick in the book.
We are all different. But no specialist, meds or life change....I doubt there is a correct diagnosis. What is it ..pain over 6 months despite care? Poohy....so sad to see at times they are using this as a garbage pail dx for patients to give them a label to hold on to.
Those who are here are tried and true fighters of this mess. It is not easy to live with this, but you CAN live with it and do well.
I saw you posted on a 4 year old post..It always amazes me when these pop up.
The first thing I learned here on the board over ten years ago was to put a memory foam topper on my bed. Buy the thickest you can afford , said the girls. I bought a 3" and now I have a 6" from Overstock.com.
IT is priceless for me to lay on my left side. I also started to take my soma ( muscle relaxant) before bed to aid in sleep, and the stiffness I had on awakening. Before this I was sleeping in a recliner. That is no good for a marriage....
The other trick I was taught was a warm shower or bath before bed to increase bloodflow to the muscles and relax them. I then slept so much better than ever before.
To the right in resources is the Members Toolbox try and look in there for more tips of things to help you. I am a huge advocate for massage. It is so painful at times and I had to find the right person for the right massage, but even in pain I know the muscles will be happier after.
I so wish you well. No sleep or poor sleep make this so much worse. I think that is part of how I got here, working nights for most of my career. Hoping this helped. Nancy BView Thread
I got brain buzzes from it and a lot here told me the same. A brain buzz is like your head is still but you feel your brain move and your vision kind of takes on a bzzz blurry look. ( like nystagmus when you drink too much alcohol)
Geez this was harder to put on paper than I thought.
Maybe someone has had this and can speak of it. I didn't stay on it long. I kept going even though I had those buzzes. BUT then I got seratonin syndrome and I couldn't walk so whoozy and not well at all.
I use Savella now, just a real small dose. 50mg twice a day is norm and I am 12.5 a day! See I am a sensitive one. I don't know why they try and fit everyone in the same boat...we are all different.
Good luck I hope it helps you so much. This is not easy. Nancy BView Thread
It is 38* here at my house! OUCH..the winds are so loud they woke me through the night. Something with physics when it goes through the woods and the whistling and noise vibration....man it is a racket outside!.
Yesterday I got out all the Christmas gifts I have bought to this point and I am really done..I just need some chothes for the girls from one of those specialty places (Jack and Jill type), Good to see so much done already as time is flying around me. I watched Hallmark channell for my rest time yesterday and it was all Christmassy stuff.
I am doing well with our dragon lately, I get up with low pain and stay distracted for quite a while in the day. Yesterday I just did a lot of carrying and that for me is a trigger so I quit early.
Today breakfast with the baby at the deli and then later dinner with the other girls. I brought them Dorothy dolls for halloween....trying to keep that movie in their hearts. Have to find it to give to them for Christmas.
With the family all being older there are few to buy gifts for and the Kris Kringle was stopped by someone and all agreed (not me). Giving that one gift was a good thing, eveyone likes receiving...but the act of giving something special to someone is good stuff.
I hope that everyone is ready for winter with the thermacare patches, long johns ( cuddle duds) little heaters and good robes and slippers! I can still remember back to last year and how cold my house felt all the time.... Standing in front of the little fireplace heater to have the warmth on my toes. Cold and I don't get along. It makes my muscles worse.
Well, stay warm all of you. If it warms up try to take your dragon out for a walk......Ha! I would love to see some pictures of you all draggin your dragons!