Hey GRUMP...I am going to bring this to some very smart people in the morning. I will get back to you on the weekend. I have a great group around me in the office and I will see if there is a back door for you.
Hoping for the best........................Hugs and hugs......Nancy BView Thread
May I first say, please don't think about this as forever. Though there is no cure, the best medicine is to be in the now*. To take today and using the spoon theory on www.butyoudontlooksick.com and pace your day so you are productive and feel good about yourself.
If at these schools where you work germs are rampant, wash your hands frequent and use santitizer to help too. being out with people is good stuff. It is the strongest med I take (distraction) the other strong med I take with no side effects is (Laughter.)
I struggled a long time with this mess and have come to peace with so much, though still a daily "discussion" between me and our dragon occurs. I am doing well with this. It happens in time.
Please look in the toolbox to the right in resources, for helpful hints to your care. I always suggest picking up the book FM and Chronic Myofascial Pain, a survival manual by Dr Devin Starlanyl and Copeland. It is amazing help on a daily basis.
I also highly recommend water. Hydrating your body takes time and you must flush the muscles of waste products from metabolism. Warmth in heating pads and capsacian lotions are all good too. many things to help fix a tight spot.
Best tool to own in the game here is the tool of attitude.
A good attitude toward disease ( dis-ease) is a big key. Hope you acquire one. I hope alot for you. Often saying that when you find us you are at your worst and it can only get better with the fmily caring for you and helping along the way.
Good luck, I need to get to the heating pad. I had a rough evening.
Chiming in from the North. Cold and raining here in NY. BUT the snow is gone from my yard! Yippee!!
I took a walk around on Easter Sunday and saw the work ahead.......
Yikes! But little by little it will get done (I have til Labor day right? lol)
OK this was day two of management and supervision. Friday was awful and Monday the stress was worse but today was OK. Now I just need more like today. Not much changing for me in so many respects just where I sit and what I am watching. Like the time clock (found 2 errors already....crazy stuff*)
I have caught Emily's croup. I even squeak when I cough and I cough alot. Knowing I have so many trigger points I can tell you coughing (or vomitting) is the worst for me. I started tessalon pearles and they are the cats meow for helping me in a few ways. So glad I had them here available to me.
Tonight I had a problem, driving home I was chewing on a carrot stick and suddenly I had to cough..................... Yep....right down the airway. I am sitting at a light and choking...red as fire...and the back muscles burning from the spasm of coughing. I saw the man across from me looking at me and I tried to get control. Finally the piece moved and I had ability slowly to breathe. OMG...I rubbed my back on the car seat and patted my chest saying "it's OK...it's OK... I don't know if I jumped from the car if someone would have heimliched me. Scary.
I came in and collapsed to the couch, then took my meds and plan on a heating pad in minutes from this post. Some angel flew passed me and reached in and helped, I swear!
Mimi, I am with you on the sleep, having a dang hard time lately. Cece, I am so sorry for the hustle you so often are involved with (but a busy body is something the devil can't catch) just try to pace it a bit....stay in the positive. You have control over some and then the rest give it up, and release it. Mel: I would love an 80* day here....oh man I would love it!
PS: I have 4 hyacinth plants on the dining room table....spring is in my house! I smells delicious!
Oh Happy Easter fmily! Such joy to have spring here (almost) and then the joy of this da to give you a lift in life.
Today we are all together here, but it is cold with rain expected by 1pm (my hunt time) so I am resourceful to have it in a safe spot. Over 90 eggs stuffed with money and little games, books, candy neclaces and punchballs in the mix. I love watching the running around going on. Emily gets a music box and a bunny that sings "Down in the meadow" also books for her little hands.
I have a Bunny suit I bought but at this time in life neither of us fit in it...lol. So maybe next year!
I spent the day out yesterday to get a massage and reset and nails done too. Doing well with the dragon we lead around. Knee has stopped and might be due to massage of the TrP I found in the thigh. CRAP again...they are everywhere and not always causing issue, this one though is going to cripple me if I don't win against him.
On Monday I start the Supervisor Manager spot. I am nervous as I am not clerical and if the staff come at me with clerical stuff I am going to deflect to another over and over. It will make me feel incompetant. But I am not letting go of the clinical side of me. (No raise or benefit to help out here...)just saying. Just because I care about the office practice I said yes to help.
Like I asked in the past..how do you do your personal things with a 5 day work week? Crap it is hard. I have such a list waiting that it is scary. Need to get it scheduled and do it. (teeth!)
OK, another thing that has helped me is I ordered my SOMBRA LOTION on line again. I had the other til it outdated and with massage from DH with the cream....sleep is so much better. This is my capsacian lotion I use. It is what the chiropractor used on me.
OK, Have a glorious day with your families and I hope you find peace in your body for just the day so all enjoy the moments.
Listen, Nursing is many things...so many things I can't even put it all down here. I was working 3 jobs when I got hurt and it all went south. I was doing stress tests, working in admissions and triage in Hospice (home care setting) and working in the ICU. I used to say I work at the beach....my spirit food and then the war zone...
There are many small opportunities for you to help another. In helping another you increase seratonin and help yourself. I am not saying , cross the line. I am saying dip your toe into something.
Start with B/P's at an elderly home. Volunteer at your Internists to help two days a week and see how it goes for you. I know that it will surprise you The distraction will help you and the good you do will help you. (just saying)
The other thing is with savella. It is quite costly here in the states without insurance but Canada took my insurance when I had to get meds over the internet because the USA was not making it and stock was low. It was for Ticlid for DHs stents. Now he is on Effient and will not have that issue anymore (allergic to plavix)
So your background is eldercare? There are companies here in the states that do home care for the elderly and the visits are in their homes. 2 nursing visits in 2 clients home a day and two days....can you do that? You will make a difference for that elder that is lonely, needs a hug and needs your expertise. Nurses always make a difference. A med error may be happening.....
Want a change? I wanted to be a mountain nurse (out of the question forever....what is this? The nurse who jumps out of the helicopter on the side of a mountain to help the injured or having an MI from atmospheric pressure....) I had lofty ideas when I was young.
How about an insurance job looking at reviews for authorization....YOURHOME....YOUR PHONE in your JAMMIES and No effort. Unless with Canada you don't have this position, we have hundreds of nurses in this job with each insurance agency. You follow an algorrhythm to yes or no for a test.
How about working at a camp seasonally or a flu shot clinic*** big need in the states for that.
OK, I think you get the idea. Many things to think about to put you in the world and get a positive return for you and your chemistry.
I so hope you figure this fight out. Just don't let him take more of you than he has. I struggle eachday to stay at the same foot hold. Same meds for over 10 years and actually more productive now than ever. Yes I get planted on my butt now and then but I win more than I lose.
The diet of green and fluids, plus TrP injections and savella has given me an 8-10 hour wellness window that I use every minute of, So bless you to get near the same and yes you have permission in this OPEN FORUM to use our tools for your group. Good luck, be a light in the world for them....and share about us for them to join as well. I am always grateful in August for Canada ( you send the cool breeze I need in NY then!) (I am not so nice in the winter when I dip at 0 and below!!!!) lol. .
OK, good day and hope I gave oyu things to think about. Nancy BView Thread
Be sure this is not real CP from the heart which can also give you shortness of breath first and then, at times we are often in trouble with an issue called "costrchondritis" it is inflamation to the cartilage of the ribs. It hurts to take a deep breath and you can pinpoint the area of pain well and reproduce it by pushing on it.
All pts with FM get triger points which are tender points in a muscle with congestion, once this trigger point is in place it robs energy from the host as it takes alot of energy to maintain the contraction of the muscle, it also pulls on the attachment ligaments or tendons and then the joint cartilage gets affected.
The answer...find the spot for sure, apply heat, use massage and advil or motrin can help as an antiinflammatory. If bad enough the physician can use steroids to assist.
BUT YOU HAVE TO GET THE RIGHT DIAGNOSIS.
Have you been seen by the MD? Many here have experienced this but the ruling out of a serious problem is so important. See the doc and get the diagnosis first.
I am so out of synch with you all. UP early to get laundry done before getting nails done..... I just posted to the newbie nurse and I am so glad I thought to copy before I hit the post button (I wasn't signed in for some reason) I would have lost the whole magilla..... Ahhhh done and done!!
Well, I have caught the "croup "of Emily. Looking back I should have asked for a mask in the ER instead of exposing myself to her. I have a cough from that area in the trachea and I can feel it is her issue in an adult. CRAP again.
I will remember the mask for the grands from now on. I cannot afford to be sick or want to feel sick on top of what we deal with. Prevention is everything. As I gave her the epi treatment she was coughing and crying right in my face...emotions were high and I wasn't thinking. Not doing that twice.....I learn quick.
Rough day at work yesterday as I was the RN and not supervisor but I am always supervisor so I was all over the place yesterday and we had a emergency come in as well. I was so beat. NOT DOING THAT AGAIN. The RNs have to cover eachother I cannot play anymore, though I loved being with the patients. I didn't get lunch until 2pm. No good for me....and meds for me were 2 hours late when I was feeling I was having trouble walking*** helloooooo?
Today is a down day. Easter hunt is at SIL's and dinner too so I bring all the stuff with me. I have such cute stuff. I know they will have a good time.
Foggy out right now and last night as it is warmer...in the 50's right now! WOOHOO....still have snow on the grass but it will DIE soon. Love hearing the spring songs from the birds. I have hope it is so near.
OK, off to laundry and I wish all a good day of distraction and surprises. Find joy in something today and in that less pain will follow, right?
Good morning Nicole, I hesitated to put my two cents in as the advice above is pretty much as I would say, but I want to share my story as I am a nurse and we evaluate and assess constantly as nurses.
I started with this over 15 years ago and it was insidious in onset, just my hands were talking and my neck then followed with pain and spasm. Stiffness and I always worked nights in the ICU so sleep was never right. It took 9 doctors and some ridiculous answers for my dilemma before I met my physician champion. I am followed by neurology and receive trigger point injections.
I was gluten intolerant and many times as well, didn't make it to the bathroom. Maybe you should take this on again. Just you and don't cheat on it even a bit. In 3 weeks you should be better. I found too that Cashews and I don't get along either. Having a bowel issue as dramatic as we both sound, opened up the door to a level of dehydration that I didn't realize I had either. I spent alot of money on a physiarist to have him tell me no crap.....water and plenty of it. It takes 60-90 days to change your body chemistry so I want you eating green antioxidant veggies and no junk and water...water ...water.
Now, at this time in the disease I was in so much pain and dysfunction I was suicidal. I had tried so hard and got no where, I used my very sharp mind to be better and read Travelle and Simmons from cover to cover with highlighting it! This is the neuro book the doctor used in explaining me to me**.(bought the book when I got home the first day)
So I have to say in 60 days I was* doing better and moving better almost as though the oil to a mechanical thing if missing would have been, that is how I felt I had repleted my oil. The IBS and reflux was near gone from no gluten (and gluten is in everything so read well all the labels) The hydration which as a nurse you know we are in a osmolality constant so you only replete a little each day and the kidney drops so much so it takes time to replete at the cell level over time.
This helped more than anything else I have done besides my meds. Speaking of meds. A muscle relaxant (I chose carisopradol and then tramadol for the pain. Lastly I added 12.5 of savella for the brain chemistry issues) supplement of Magnesium to help the muscles, Vitamin D and then CoQ10 for the mitochondria. B complex for the nerve entrapment I get when the muscle impinges on them and Calcium as I am old* lol. My med box is full, along with that comes the meds of distraction and sense of humor. I try to take thes eachday as well.
They helped me more than the pills I swallow. I would drive to the office (I did have to leave the ICU) and be "ams in lap driving" and in a bad place and then when I got in the door, schedule in hand and patients arriving....this dang thing went to the back of my mind and I was better.
Always waking up 90 y/o and then getting younger as the morning moved on and then back to 90 by evening to rest.
All I can offer is, care for yourself carefully. Give your body the best you can offer. Pace yourself (learn the spoon theory on www.butyoudontlooksick.com ) priceless. Journal your triggers and good days and bad and analyse it, use it as a tool for better. I found alot of things I did that precipitated worse and found to spred that activity way apart from eachother. I found to, that staying at work and moving has helped me hold on to so much of me, though few at work know the fight I have, I will not let this dragon take anymore of me. Hoping you find a balance in this.
As Mimi said look in the toolbox and up in discussion for Dr Pellegrino he was great when he was here. He has this disease too as does Dr Starlanyl ( FM and Chronic Myofascial Pain, a survival manual)
Getting educated in this is your best defense. I got empowered after near killing myself and meeting the physiatrist who helped me move forward. H O P E was given me. There is no cure though. We are chemically a mess over years time. Good luck, NanView Thread