Time is the word. Even if you hold it at bay...that is a good thing. Chronic pain is the worst to adjust to. It also changes your body chemistry. Be sure the doc has you on something for your Seratonin and norepinephrine levels. an SNRI.
Grieving the old me took some time. I worked 3 jobs. In the ICU, Hospice Admissions and triage and in the office in the nuclear department. THAT nurse was gone. I had to downsize...actually to a stop, then decide what could I do. What could I function within. It was a battle.
Looking good but being broken, was hard for the staff to get. I am a fast worker so more was more to them. It was hard times.
I am the Supervisor in the office now.
I carry no grudge to those who took advantage of me, yoy have to forgive to heal. They really didn't know what they were doing to me. But maybe in the workload i had I was healing my muscles at the same time. I made it my job to watch the posture, what muscles I used and what I was doing to me eachday.
Learning to heal me, take care of me and then others was a trip. But I am in a better place now, it worked. Whatever I did (and I did and tried many things) I got to a better place. It can be done.
I wish for everyone to capture the positive attitude, the sense of fight for yourself from this, and the learning of your body. So you too can be better.
Those stages of acceptance......I hang out in tears for longer than most, then shoot through the others. I can't say I accept this still but "I dance with our dragon now".
I posted it was "Boxing with the dragon" to Draggin the dragon" when I knew he was there and pulled him along as I pushed to have a life. And to now that I dance with him as I know his steps and what I cannot do and what I can. He's not as strong and powerful over me anymore.
I wish you all the best in getting through this. You will. it is time and some effort to get educated and some trial and error of things that worked for some and might work for you.
Lora, there used to be 24/7 activity here. The good news is they have moved on. A large group started a private support and friendship site. But it also was that they got to a better place and the need was gone.
I stay to help another. There is little out there for the FM pt. and I have had a long road and a huge learning curve. Pain is a great motivator......it pulls you in, makes you fight, ro swallows you up!
I am here to be the cheer leader, to help the fight.......
There are many, many lurk than post, but they are here... I myself am here on weekends. I work 5 daysa week now and it is alot to get on the board too.
When this started I work 5 days in 2 weeks....now 10 days in two weeks. Winning the fight. Wish oyu all the best to get this better. And you will.
You are right, I talked to my DH about it all the time, what I felt for the day, what I couldn't do....the worry I had of what is wrong with me.... I found the support board here and it eased up a bit for him. But I had the diagnosis....then I was reading books to him that fit my issues....OMG. The staff at work heard me after injections every 2 weeks when I cried. Said I can't do this "forever"...this is forever...
Did you ever hear that NOTHING IS FOREVER. Well , this may be part of me forever but it is not the same intensisty or dysfunctional level forever.
Working like a banchi everyday to assess the muscle yelling and how I was standing, what I was eating and drinking and the supplements changing as I learned on this board. I have found a better place. It takes time to adjust to this mess.
I stated I was fighting with this dragon EVERYDAY...boxing gloves on, no more of me will he take! Then I was Draggin the dragon....he was always with me and behind me to BE GOOD..as I changed my life around for him...feeling him bite me each morning and pushing through it to move.... Then I was at a point I said...I think I am Dancing with this dragon.
How long you ask....>10years.
I have been gluten free (needed that) drinking water, eating green, stretching every morning in the sheets before I rise. Massage, shower massage and meds.....forever!
But the wellness window has occured and I have a good 8-10 hours now. It started with being unable to comb my hair...couch bound and couldn't cook. Laundry was a family help at a laudromat so it got done 1-2-3. I was of little help. So much has gotten better. My team of massage girl and neurologist doing Trigger point Injections and maybe just plan voracity of not giving another inch, paid off.
It took years to get in such disrepair, so give it time to get back to a bit of yourself. Just be persistant in GOOD FOR YOU.
Good muscle hygeine (don't cross you line) Good hydration daily, good green antioxidants...Good Karma...don't let the negative thoughts get in your head. Everyone is special and important in the world and you need to work at you right now.
In a year, I bet you are in a better place.
I journaled to follow the rights and wrongs I was doing. Also some important pearls of wisdom I picked up. Like changing shoes eachday to use different muscles. Each shoe pitches the leg different.
You can do this.
You can absolutely get to a better place. A doc once said to me....DON'T GET SAD...GET MAD. That is useful energy here. Box your way through right now, do the right thngs and damn him who is hurting you........as you do right, it will get better.
Now I know that works for one may not work for another but this is good healthy lifestyle stuff. We abused ourselves and thought it would be Ok forever. Try this. Look at FM and Chronic Myofascial Pain (a survival manual) by Dr Devin Starlanyl 19.99. Priceless guide for the library.
Morning teena......sounds good that you did some stretching. The fact that it all went back.....that is good info too. Your muscles are persistant buggars...you have to train them to do the right thing.
Some muscles weaken over time and give in to the stronger and that "pulls you out". In PT they teach strengthening the core and getting that weaker one up to speed. For me it was just persistent stretching that finally broke the spastic pattern I was in.
This problem we have is forever and in forever the best thing you can do for you is be persistant in doing good things for yourself.
I know that eating right and drinking water and taking my supplements, stretching every morning and watching all my triggers and pacing myself has paid off for me.
Remembering we are all different, you need to get a plan and do good things like hydrating and stretching eachday. When you have a bad back, add a good doc in there to help with the plan. It is like FM=5 points and then the bad back 2 and arthritis 2 and overweight 2 and varicose veins 2........when you add up the FM plus the other things you may deal with, it is alot to work on. Chip at it piece by piece.
Good luck, when my back is upset I am a mess, so I feel for you. Get your doc in on the team: YOUR TEAM. Nancy BView Thread
Another beauty out there today! I am defenitely getting SUN on me. I went in the pool for a bit to clean it, and then sat in the sun yesterday, but we had to go out for Fathers day. Today I finish it. My "D" for the week......
Plan to take little Emily for her first walking shoes tomorrow. Want Olivia and Madelyn with her. We'll go out for lunch after and make it special.....
I am hurting a bit today, trying to figure wat i did....but then again, it may have not been me. It just is.
The birds outside are amazing in song. I miss being home so much at times. It is noce to be off. I have an encrypted lap top here to check in at work and shadow this doc I am training. But I think I will trust the a.m. a bit. I'll check at lunch. Need to see* before billing is sent in.
OK, I hope the sun is out at your house and not too hot. Though we all remeber winters moans......
Enjoy the day. Get distracted..........Nancy BView Thread
Most of my issues in the beginning were from my neck. In saying that I would get a fullness to the head including the ears...like bionic ears at times. All from my neck muscles. I would get awful headaches too.
I went for massages and Chiropractic adjustments but it wasn't until I started with the neurologist who did Trigger Point injections that I found most of my relief.
We use heat as out best friend(nost of us) there area handful for ice. So I bought a collar hot pad from QVC that I love. I turn it on, magnet it around my neck and lean back in bliss as it softens and loosens the neck muscles.
Shawna there have been so many flukey symptoms this presented, in saying that you become numb almost to them as years and years go by. Like last night I was watching TV and the last 2 toes on my left foot started burning....crap.... No reason....
I just moved my foot around, got up and walked...then I just waited until it went away. It is crazy stuff....sometimes a finger, sometimes my leg, at times the muscle by the diaphragm and I get a catch in breathing.....so I wiggle and stretch it out if I can.
I am always sure to take the Vit D, Magnesium, Calcium and CoQ10. I think of them as much as my medical meds hold me together.
Good luck, I hope you don't panic anymore....this is a crazy "dragon" and he can do so many things to upset your day. We all fight him with many different tools and tricks. Glad you found the site so you can learn of many of them.
Look to the right in Resources for the Members Toolbox, started many years back to help a newbie learn the tools the other people here used.
The problem with this condition is YOU DONT KNOW.... I try tricks of relief and if it gets it, I win. Then if not, I look to the doctors to figure it out. Most of the time it is this, making a mess with me. I have had other medical problems show up and I wasted time blaming the FM and trying to get it better on my own.
You'll see as time goes by for you that this dang condition can present itself in so many different ways and in different areas.
It' s crazy...that is why they think we are crazy...
Good luck with this. It sounds like me in the afternoon, after work. I couldn't walk out of the car. The muscles were just a mess. My feet burn or a toe and it can change around.
Crazy stuff with this mess we are in.
Maybe finding a quiet place to stretch your back. Even a pelvic tilt might help releave the discomfort and problem at the time.
Good luck, the learning curve on this condition is often a long one. Nancy BView Thread
This post is 4 years old. It is better to start a new post of your own to get the fmily to see you. Top button to the post area. POST. It then asks a discussion or other ways to post. This is the discussion format.
I had answered this and it it would be the same answer now. Reading my post, I am very consistant.
I still have ULNAR nerve entrapement issues. It is the ring fonger and pinky. Annoying. I have it on awakening. It is from my neck or shoulder girdle of mucles. I get injections to release, but you can use massage.
Thanks tp YOU I have a Vit D at 60! My recheck since all the hooha (12) , and I take 2,000 a day to have that!. Thank you Thank you!
I am so happy with my lab reports. Somehow I have an HDL of 62...>50 is good. I told the MD it is all the running I do in the office! As it is genetics or exercise that aids in this......Hmm
Happy Fathers Day to all the wonderful Dads out there.
It is a beautiful day here in NY. I htinkin the 60's now and going to the 80's later...no humidity.
A glorious day to do something. I have laundry....but a book and the sun are calling me. Later we go to my SIL and party with the men...the great Dads in our lives.
I am still battling the capsacian reaction! CRAP...prednisone and then medrol pak and I am still festered on the right flank. It itches so badly at times.... The things you have learn more than once in your life......check the dates on the products we use..... stupid!
I took off M-T-W this week and no one is bothering me. Last week for the birthday I had to go in, as there was no rlelief for what I do. So this week I feel safer leaving the attending I am working with. What a great guy, and doctor. He is a sharp as a tac....but a new program and a new set of challenges can get anyone in a funk.
Hopeful for the fmily this weekend to have some joy in their lives. To push our problem to the side a bit and move and get out in life. I know ...easy to say. I spent many a day on the couch with the pad and meds. Many a movie or a book...
The transitional path to better is often long and like a two steps forward one step back......but the near finish line can be seen.
Friday I had my shots and we only did my neck as the back scared her....I am ugly... But I have to say, though I needed them, I feel worse since the shots. Alot of bruising this time and I was with the girls (you know what that means Mimi)...
That is why Laundry and sit today......I sat yesterday too, except for a run to Macy's for that sale and they were great..if my cooupon didn't work..they used one of theirs!! So I got all thngs in at a better price. You need that (psycologically..right?)
OK, I opened the window here by me and the birds are sharing their songs in my ears.....a great start to the day. I got up at 6 but I went back and so glad I went back to sleep....nice dream (I was a size 10) lol..ha! Like I said it was a good dream.
Have a good day all. May something special come to you. Cory, a great Fathers day for you. For those without children...whoever you nuture (dog, cat, neighbor) you are included too.
Oh, I want to ad.....my sister calls every Saturday. Nan the home pharmacy changed my Vytorin to another generic as they said it saves 500.00 a month. But the pill is so BIG.... OMG...they took 20mg of simvastatin and 10mg of Zetia (Vytorin) and they gave her 80mg of Atorvastatin!!!! That is evivelent to 150mg of simvastatin. A MED ERROR IF I EVER HEARD ONE. The conversion is half the dose...she should have been given 10mg atorvastatin...but they blew it. EIGHT times the dose!
I told her to get her doctor...someone in that office had to OK it and I bet it was the MA who doesn't know... She actually brought it to him, and he said..(cursed) that isn't even close to what I want. He called it back in to them and gave her samples.....to get back on it. She had been taking a major mistake for over a week. I made her promise if medical things change with her to run them past me.
OMG....I can't believe she didn't have a reaction to it. Her liver was really being played with. Her cholesterol is only 123 on Vytorin....it's probably 50 now. Ha.
Pay attention to changes people make with you. lesson.