Welcome to the Fmily and glad you are using the board for all it's value. As mimi said, look for the Members Toolbox in resources and check out tips as well. This takes time to tool just right and be better.
A few ah-ha moments i had when i joined 15 years ago and it has been a process as I go along still. I am as tuned as I can be but I know I can be in a better place if the human factor of me stops getting in the way!
I wish you well, stay and post and help us help you to be better*. We will be happy to help you on the road to better.
Yes it is tough and a monster, we call him a dragon....and he bites for sure.
Please look at the tips and resources to the right and in resources is the Members Tollbox. Look in there for many tricks we have learned. Most are on a muscle relaxant, a pain med (tramadol is common) and an antidepressant for brain chemistry...not that we are all depressed, well you get depressed from the pain but we are not depressives...we are low from the pain taking the life we knew.
OK.....stop nancy...just know that and supplements of Magnesium, B Complex and others are important. Mimi will tell you here that getting your Vit D level checked is important. We take Vit D to help as well.
Pacing activity as to not cross a line and then increase pain is big. Journal your days, that helps to find a triger and know what not to do together as it = pain.
I also ask people to buy a book called : FM and Chronic Myofascial Pain by Dr Devin Starlanyl and Copeland. It was 19.99 when I bought mine. It is an amazing survival manual to help you on a daily basis. Amazon.com has it. This doctor also has the disease.
Up to the right in discussion place Dr Pelligrino and see his gift to us while he was here. He too has the disease. Could you imagine going to a MD that knows exactly what you are saying. Also what to use that is the standard for now. Amazing gift.
I use a neurologist to care for me as I am CMP and not FM it is connected but not the same. I have no fog. I have trigger points and they are injected and I get up and running, but I have pain and I have muscle dysfunction and range of motion issues. I have been on the site for 15 years or so. Priceless to have a place to go and vent or talk about issues. Now a site to help another and show them some tools to be better.
Biggest change I made was with hydration with water and no crap in my mouth. I eat green veggies only, as they are packed with antioxidants and I am helping the body to heal. This is a tough disease because we are out of norm all differently. That even that it is Magnesium of how much for me as apposed to him....Vit D is at 12 Rx vit D for a bit and then how much will my body need to get to norm and maintain. The dosing is all different
WE ARE ALL DIFFERENT IN CHEMISTRY. That is what makes this so hard. I am so sorry you have joined the fmily but so happy you found us. You are going to learn and you can take control of so much of this. It is a disease that you have to be consistant and persistant with to get results. As of now this is all we have. Finding the physician champion you need is also a challenge but can be done. Don't go in with I hurt here, and here...you must go in with: OK I have found if I do this, it is better so I do that and then this makes it worse. I can't do this and I need help so I can do this. Make a journal of triggers and fixes to present to the doc. Show him what you are doing to HELP YOURSELF and where you need him to help.
It is not easy and remember WE ARE NEVER NOT IN PAIN. Our meds and therapy just lower it so we can have a life. You can do this. You can be a CHAMPION like some of us.
Yes, sad that steroids are so bad in the end and so good in the beginning.....they give you a taste of "superwoman" from the "fight or flight" angle they are involved in, in our bodies. We call a "feeling of wellnesss". Glad you have that feeling of wellness! I think at our age too, things are upset with us and it makes that quiet down and we feel 40* again! (not to say 40 was perfect) lol
I just spent a ridiculous amount of time to help the MA's take a certification exam. YIPPEE they ALL passed. Doing study groups has always been a winner.
I was in the ER with Emily Friday night, she has croup and the airway was so tight she was having breathing problems. They gave her epinephrine inhalation and steroids too. The swelling went down and better for now. But I know each night will be long and scary for them. I am leaving my phone open so they can call if they need me. I usually go silent because of facebook with everyone all over in timezones...it chimes alot!
My knee is still talking to me, but I am now thinking it is the dang CMP and I have a trigger point in the thigh muscle and it is pulling on the knee. This happened in the recent past. Have to inject it and see if it stops. Shots on Wednesday and I am asking!!
Everything else is going OK. Well IT SNOWED AGAIN*** all yesterday in fact but didn't stick til last night. OMG I AM DONE... It wasn't anything to accumulate as we had had some warmth prior and the roads melted it. YUCK
Today is Palm Sunday so we gather at my SIL's for the meal. It will be a crowd but not all of us. I have grown in size and have nothing to wear today, so I am not sure what I am doing. With our pacing in mind, I have all the laundry to do before I go including iron so not sure what I will have left for the group. Probably a chair in the corner and a nap! lol
I hear the spring birds outside......what lovely songs they have. Loud and full of life. It helps you know we are so close. My plants arrived from QVC for my planters and I can't put them anywhere....I have them in the colder garage to keep them dormant. They knew this zone is behind the time in season this year...they should have waited to send them .
OK, I haven't been on the board so I am going to look around see if I can help.
Cory, I closed my eyes and thought you were Mimi!! (Take your Vit D and look on the right....awesome!) It is such a compliment to have someone mimic you, you know. We all miss her.
Yes I also see the fmily is growing, this is good for them but sad that there are more being diagnosed with this issue.
They have to get this figured out. To aid the future generations.
I had so much go wrong yesterday that I couldn't get back to the computer I was "SHOT". At 4 a.m I got a text (via the office) that the exam for the MA's that I have been working on was closed for registration.....holy crap***mine didn't register, I was busy with something important and none of them would remember the Feb email that 7-8 days before, register. CRAP
Then the heat in the TV room wasn't working for 2 days and I thought I got the circulator working BUT no....it ended up being the thermostat and the boxey thing on the front of the boiler $$$$$$$$$$$$ (God only knows)
Then the tax man called to ask about an electric stock I had and what hapened to it? They were bought out and they bought us out. Where's the buy???? CRAP...I was so paniced in the a.m after my first posts that I was in pain so bad. The knee that I hurt during the week was screaming from doing the steps with the oil man......CRAP CRAP CRAP
By 3:30 pm I was free of all the problems, I got the test re-opened, the papers with a 2013 statement were found for the stock and the oil man had come twice because he thought he fixed it as I did too and then came to replace it all.....
At 3:30 I called DH with the update and said bring home dinner...I got on the couch, blanket to shoulders and head just fell back (slept til 5:30) when I heard...Ma?...Ma?.....
DS#2 came to get some of his stuff in the basement and garage. N I C E. But I was so asleep I couldn't function for a bit.
A lost day for anything.....Now DS#1 called last night, my Olivia is sick and they want to look at a house to buy, could I go over.....first I was typing no (I feel so wiped and knee is killing me) but then I erased and said yes. Olivia is 5 and needs little it is not for long and I will get back to here to do what I need to do....hoping I have a body that agrees.
I have a BIG week this week. Staying late for all to practice for the test and it is after work for them, which is really late for me. I start at 7 they start at 8:30. But I am taking Monday off following the exam. I have to be in to proctor on Saturday so it is alot of work.........I just hope they all pass, or they are out of a job. No MA can be in an EMR without certification, this is a federal law that is starting to be implimented.
It is good to know that the training an MA has is multifaceted, not just on the job from here on in. They also have continuing ED to accomplish. Good for them.
OK I sit here, the spring birds are chirping but the canadian wind is blowing in the woods. I have a fight of seasons going on....my knee is throbbing and I have to play catch up today. You can accomplish alot at times when under stress.....
Stress is my middle mname lately. I am a driven person and I MUST learn to back off a bit to save my health. I can get 2 things done in a day, not 8...I can take a walk in the office and look around and help another....this would be good medicine for me.
OK, I have shared alot...put alot to page. Bored you all to tears probably. I hope you all don't get hit with so many things at once that curl your hair. I kept taking deep breaths,but the exam problem gave me a meltdown. I emailed Kansas where they are and got it opened 1-2-3. who knew?
Happy Sunday and enjoy the good weather you have in your area....you might be the only one!
OMG it worked and I looked at the article again. I take 200mg of CoQ10 eachday. There is a man at the end (last article) he takes 1800-2000mg a day. OMG that is alot of money and alot of CoQ10....Hmm
So, I hope you might peek in at this I found it interesting the study was so small it doesn't count but it may open the door to a larger research group to look inot this further. This may be a breakthrough.
So glad you found us, and more that you posted. So many lurk and read and never say hello and ask for help.
To the right in resources you will find alot of information, in there too is the Members Toolbox. I started it years ago to have a place to find things we did to help the mess we are in. Look around in there.
Also up to the right is discussions. If you placeDr Pellegrino in the box you will see many of his responses to posts that he started to teach us or help us. P R I C E L E S S! He is not here now so don't respond to them. They really should be marked as READ ONLY. It gets confusing when a 5 years old post shows up with a coversation to him. .
I always suggest to look into the book FM and Chronic Myofascial Pain, a survival manual by Dr Devin Starlanyl. It has tools and tips and teaches anatomy to you so you can be more educated. I use it as a resource to massage or work the areas in trouble. Great book to have. It is the second edition I speak of. There is also the ADVOCATE and that is good for the family to "get it" the doctor "to get it" and the dentist "to get it". But the first survival manual is priceless a a resource.
My family didn't get it until my husband (DH) went to the docs with me and saw a TrP injection session. That was all he needed and then he was my champion to tell everyone.....my kids, his sisters our friends....OMG she is in trouble.
No one bothered me after or made comments. My kids were more helpful and I wasn't crying in the shower because someone just made fun of me....."Oh I have a spasm....oh leave me I hurt..." My sons were tough on me. But I was the do it all Mom...so when I couldn't they were pushing me.
It all worked out. They are grown as this is 15 years I am dealing with this and I have learned so much about my body to help it. I do cross my line though and pay....you always pay, but it is me crossing it, not that someone else is pushing me to cross it.
I like to suggest to that you make a journal of the triggers to pain (the things that make you hurt more), the things you do to relieve it and describe at the TIME you have pain, the pain you feel. We have a brain that forgets the true essence of pain (on purpose) but when you are in it, you can describe the depth....quality and amount on a scale of 1-10 if one is nothing and 10 is the worst ever. This helps the doc know where you are at. If therapy bring you to a 2 and you were an 8 that is good.
JUST KNOW WE ARE NEVER NOT IN PAIN...we look to lower it to have a life. Our dragon is always with us, it is a matter of draggin him or dancing with him. .
As you work toward getting your meds right, most but not all are on a muscle relaxant, a pain med (tramadol) and an antidepressant to elevate you inner seratonin (feel good chemical) Than the supplements of magnesium, Vit D and Vit B complex. My mix includes CoQ10. But this trial and error of meds can be daunting, but neccessary to find your mix.
We are all different in this with different body chemistry and different co-diseases that we deal with as well.
SPRING?? Where??? I have 3-4" of new snow on top of me....
The boiler circulator is a mess so the room with the TV has little heat...54* in there...I am running a space heater. NO SPRING HERE!
I have twisted my knee and the little banchee is yelling with every movement. God must have helped me with this, so i forget all the other things bothering me (like a paper cut) they take all your attention!! lol
Hoping for a good day and weekend. I am hurting so I don't know what I will accomplish. . Hugs to all, Nancy BView Thread