I am so sorry for the depression you are feeling. Please know you are not alone. I am right here with you. It is so miserable not to want to get out of bed. I have to pray asking Jesus to help me through it. I think like this. I am walking on the sand by the beach with Jesus. I look back and see only one set of footprints. I realize after praying that Jesus is carrying me through the tough times!View Thread
For me, a good day is a day without a headache or horrible all over pain. I am in a study and doing better for the first time in 16 years. My "past" life involved being a retail buyer. I could walk and work 12 hours a day and still be good to go out to dinner with people. I had fun! I worked and was involved in my church. My favorite outdoor sport was water skiing. We live on Lake Tuscaloosa, which is a large and beautiful lake.
I never dreamed my life would change so drastically. My daughter is a majorette in her high school band. I go and watch her, rain or shine. I go to church on Sunday morning and Bible study on Wednesday. Most of the other time, I am Home on the sofa. As another person said about getting anxious, that is me also. Home is my soft place to land....View Thread
I am Beth from Alabama and I understand the cold weather. I hurts me also. As for the falling, I have permanent scars from falling. Please do not listen to anyone telling you it is in your head. They need to do their homework and then they will not say it! I used to be on this site alot but now I come and go. Take care and keep warm!
Pain meds are not a necessary part of study. If a patient does not need them or against them, that is fine. I put that in so if anyone else should read this and they also need pain control, it was ok. The meds for FM are in different families of drugs. I will def send you a message if I am allowed to disclose. Also, in the beginning, I filled out numerous pages concerning my past history.View Thread
This study is the most hope I have ever had since this nightmare began. The first thing is a simple test to check your esophagus. Second is an invasive surgery to take a biopsy of your esophagus and stomach area. You have to agree to be in this study bc of surgery etc.. Start taking meds after surgery. I will check tomorrow to find out how much info I can disclose. There are 140 of us in study. The next study, nationwide, will not call for surgery etc, bc meds are working and they can continue. I think meds are not disclosed bc people desperate like us would try to get them. Dosage has to be specific for your body. If you are newly diagnosed, much easier to treat. For people like us, he says I will start seeing a minor change in 3 months and major change in 6 months. But guess what, I can already feel a change!!!!! Thank God!!! I only ask in a poll if people were interested bc I know how frustrating it is when we have tried over and over to find help. I would love to tell everything but I don't want to get in trouble and I def don't want to get kicked out of study!!! I can promise you when I was first ask by my doctor if I was interested I said ok I will try but I promise you I was not excited. This doctor did not go out looking for patients but was took patients only on the word of other doctors who had patients that seem to fit what he was looking for. He gives pain meds and you know I have said many times I can't make it without them. I did not mean to write a novel or beat around a bush. I will call and ask if I can disclose or have to wait until 2013 study begins. As you said, some will get placebo and some the real meds. Praying this
Will be the cure of this nightmare or whatever name each person has for it!!
Hi Annette, I have been on Klonopin for many years. It is the only medication that works for panic attacks. What do you mean by very long half life? I had to get off of it during a pregnancy and it was horrid. I probably needed medical intervention but it wasn't mentioned so I just suffered through it. Thanks for any info. BethView Thread