I was here on the boards that existed pre WEBMD for about 4-5 years and then i have been here since WebMD bought the place and has redone it multiple times over the years,if memory serves right i have been coming to this place since 1994-95 so this is like 18 years i have been coming like a moth to a flame to this site.View Thread
I do not have fibro but between my diseases and my Med's i have no memory at all My Personal Care Aide can tell me something today and by Friday it will be "News" to me and he is always wondering is it the Med's or is it the disease and i tell him leave it alone i really don't want to know.
If it's the Disease well that sucks but its part of it and people will just have to adjust.if it's my Med's thats to bad for people they will just have to repeat themselves because i am on great Med's my pain is controlled i never run out of breakthrough med's and my quality of life ,i am basically happy with and i am not willing to have my life come crashing down like a house of cards by messing with my meds trying to fix my memory it's just not worth it,at least to me.
And All my Doctors know that by just a tiny movement in one of my med's will send my life cart wheeling out of control, because when my PCP left town here who was prescribing my pain med's and none of my other "doctors" would it took four months to find a Doctor 350 miles away who could not understand why they would not prescribe them and became my Doc but in those four months i went to the edge of "pulling the pin" at least 30 times due to the uncontrolled pain i told several of my close people i was going to be a martyr for all pain patients who where denied Medication from Doctors and they where not doctors that i had just started seeing these where doctors who i had been with for between 4 & 9 years and it was with their records that the Pain Specialist 350 miles away and an exam of me could not understand why they did not do it.
anyway this has kinda turned into a rant sorry about that
The FDA has added to the Watch list two other products that are occasionally prescribed in pain conditions. Forest Pharmaceutical's milnacipran (Savella), used in the management of fibromyalgia, has been identified as a drug that needs to be monitored for the potential of incurring homicidal ideation. Pfizer's gabapentin (Neurontin) has been reportedly linked to an increase in blood creatine phosphokinase levels and rhabdomyolysis. The FDA will continue to monitor these drugs through the Adverse Event Reporting System (AERS) before determining if they are truly associated with a health risk.View Thread
My God they let Fibrous patients loose with opiate agonists wow here where i am the would not give them even vicodin or percocetunless they had surgery or something it's kinda of the norm nothing above Toradol and Flexeril for fibrous due to addiction and diversion risk and i just assumed that was everywhere, and do not beat up on Trazadone it is a very good anti -deppressant and for some its a good little push to sleepy time, Me i use either Dalmane 30mg or Restoril 15mg as needed and have done so for the last 16 years ( Yes they are benzo's and yes i take opiates but we are very carefull and i don't see michael jacksons Doctor)
Well first thing you need to find out is if you have enough quarters for Social Security.
Then The next Hurdle which is a giant one is to find out if the Doctors who have been treating you Agree on one diagnosis and are in favor of you getting disability, if you have a bunch of different unrelated diagnosis from different Doctors your case is going to be the Titanic,Unless all of these diseases they diagnose are commonly diagnosed in error for your condition then your case has traction, so long as these past doctors are in favor of disability and there records show your inability to attain or keep a position commensurate with your level of education due to your medical condition.
Also be prepared 95 out of 100 people are denied on original application, don't seat it just file an appeal and hire an Attorney and not one that advertises on TV, find a local firm who you can meet with face to face rather than a voice on the phone who is different every time and reads canned messages off of a computer screen.
But stick to your gun's and remember all the time they waste denying you is money in your pocket in back pay and when you do get your disability award if it took them 18 months to approve you not only is that 18 months of back pay but more importantly you then only have 6 months to wait before your Medicare goes active, and having Medicare Insurance opens a lot of doors that where previously closed,I kid you not.View Thread
Caprice you speak of "decreased ability to exercise" as being a reason for being overweight.
I can NOT in any way exercise , because if i exercise i lose my muscles faster than by not using them and what muscle i have turns into fatty fibrous bands instead of normal healthy muscle tissue-So why am i not overweight i am in my mid 40 male my metabolism has slowed down ,why am i not gaining weight??
And i take a whole bunch of Med's with the same side effect profiles that cause midnight starring contests between you and the refrigerator.
Why is it that all the Pain Patients i see going to my Doctor look more like me. And the patients going to the other Doctors and PT/OT look like the average "joe" or "jane" that you would encounter getting on a bus or airplane or going to a movie and seem to be having a good time being there,whereas the quiet ones who don't draw attention to themselves and did not bring an entourage of children and family and friends with them are the ones who are usually there for my Doctor,and they would rather be well somewhere else doing something else and when you are that sick friends and family tend to disappear from your life and you find out who your real friends are!View Thread
I can't speak for anyone else but i have a Psychiatrist and a Psychotherapist that i see regularly, the "Shrink" every three months and the therapist 1 a week or 1 every 2 weeks, I myself was so abused as a child i developed PTSD and to make sure that is not affecting my pain in any way i see a shrink,and when i went for my first appointment with my Pain Manager i had to pass her "shrink" before i would ever get to see her PT,OT Physiatrist , Psychiatrist, Psychologist, all have to evaluate you and decide that !. You are not a scammer 2. That you do not have a Mental Illness that is responsible for your pain 3.That you are not a candidate for P/O -T . this effectively lessons the actual candidate pool for the Doctor to see from 100 to like 7 because all the rest have been diverted to what is more appropriate for their condition. So speaking for myself yes i do see one, and they are good to have on your team when you a serious degenerative Disease that all your doctors have told you "There is no treatment ,there is no cure ,you will die from this ,all we can do is keep you comfortable" a man my age should have a life expectancy of 35 more years ,my doctors tell me 12-15 if your lucky,and day after day i have to adjust to something else not working like it had yesterday ,it's truly degenerative i watch my body being destroyed, you fibrous complain of not being able to do things when you have a "flare" how would you cope with a disease that is like musical chairs when the disease stops you don't know where the last time was my right arm and hand it stopped and i lost all felling and use except for pain in it and when it was like that it destroyed the muscles and when i have severe pain in that arm and hand if you take its temperature it can be as much as 12 degrees colder than the left and nobody can figure out why so when you are out in your car or going somewhere nice always look and see if there is s ramp for a wheelchair and in rest aunts that have these trendy hi tables and low booths think where do the wheelchair people go, and when your out at the store and you see an idiot in a compact car using a handicapped Van spot tell S/he to move. And when you think you'd like to look disabled think about the disabled who look disabled who would really like to look like you!View Thread