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You Sound like you are in a remarkably different place both with acceptance of your "new life" with an always changing illness,
and
Now you have been honest with Family and Friends and are allowing them to help support you as well as empower you thru understanding ,compassion & love
Fatigue is part of your "new" life pace yourself ,your activities ,and your obligations so that they are realistic and you never have to feel like you let anyone or anything down.
PeaceView Thread

If it's the Disease well that sucks but its part of it and people will just have to adjust.if it's my Med's thats to bad for people they will just have to repeat themselves because i am on great Med's my pain is controlled i never run out of breakthrough med's and my quality of life ,i am basically happy with and i am not willing to have my life come crashing down like a house of cards by messing with my meds trying to fix my memory it's just not worth it,at least to me.
And All my Doctors know that by just a tiny movement in one of my med's will send my life cart wheeling out of control, because when my PCP left town here who was prescribing my pain med's and none of my other "doctors" would it took four months to find a Doctor 350 miles away who could not understand why they would not prescribe them and became my Doc but in those four months i went to the edge of "pulling the pin" at least 30 times due to the uncontrolled pain i told several of my close people i was going to be a martyr for all pain patients who where denied Medication from Doctors and they where not doctors that i had just started seeing these where doctors who i had been with for between 4 & 9 years and it was with their records that the Pain Specialist 350 miles away and an exam of me could not understand why they did not do it.
anyway this has kinda turned into a rant sorry about that
PeaceView Thread


is that what happens after a long night of drinking and try spicy mexican food?
Is it the same as "praying to the porcelain god" like when you cant stop barfing"
is it Ecoli 000a:157 poising from spinach caused by nature because we are feeding cattle a corn diet to fatten them up and they are not meant to eat corn.
what is it i am clueless???View Thread

PeaceView Thread

Then The next Hurdle which is a giant one is to find out if the Doctors who have been treating you Agree on one diagnosis and are in favor of you getting disability, if you have a bunch of different unrelated diagnosis from different Doctors your case is going to be the Titanic,Unless all of these diseases they diagnose are commonly diagnosed in error for your condition then your case has traction, so long as these past doctors are in favor of disability and there records show your inability to attain or keep a position commensurate with your level of education due to your medical condition.
Also be prepared 95 out of 100 people are denied on original application, don't seat it just file an appeal and hire an Attorney and not one that advertises on TV, find a local firm who you can meet with face to face rather than a voice on the phone who is different every time and reads canned messages off of a computer screen.
But stick to your gun's and remember all the time they waste denying you is money in your pocket in back pay and when you do get your disability award if it took them 18 months to approve you not only is that 18 months of back pay but more importantly you then only have 6 months to wait before your Medicare goes active, and having Medicare Insurance opens a lot of doors that where previously closed,I kid you not.View Thread

I can NOT in any way exercise , because if i exercise i lose my muscles faster than by not using them and what muscle i have turns into fatty fibrous bands instead of normal healthy muscle tissue-So why am i not overweight i am in my mid 40 male my metabolism has slowed down ,why am i not gaining weight??
And i take a whole bunch of Med's with the same side effect profiles that cause midnight starring contests between you and the refrigerator.
Why is it that all the Pain Patients i see going to my Doctor look more like me. And the patients going to the other Doctors and PT/OT look like the average "joe" or "jane" that you would encounter getting on a bus or airplane or going to a movie and seem to be having a good time being there,whereas the quiet ones who don't draw attention to themselves and did not bring an entourage of children and family and friends with them are the ones who are usually there for my Doctor,and they would rather be well somewhere else doing something else and when you are that sick friends and family tend to disappear from your life and you find out who your real friends are!View Thread

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