Hey Blue before you get so angry at me because you think i'm belittling your pain and demean your lives. I don't compare disease or pain or dysfunction with people ,However i do get a little jealous of people that can slide into home(the grave ) looking good, i have had to grow a long beard to cover the fact that i used to be a large physically fit FireFighter who wore an 18 1/2 sleeve and a 19 1/2 neck,currently my neck is a 13. and without the beard people ask what the hell happened to you?? if they recognize me, but most people don't even look at who is in the Power wheelchair they just try and get out of the way because those things are heavy and hurt when they clip you.
And try clicking my avatar and reading what my life has been i know Emotional deformities, some people have what they claim are new or just found memories from naughty things done when they where children,try living with flashbacks and stuffing all those memories inside your whole life until one day you can't anymore and the nice men with the canvas jacket come for you and bring you to the rubber room, been there done that "if you need the t shirt i'll send you one" . no one can, will, or should judge how much another person suffers this is unquantifiable item a 10 for one person could be a 5 for another its not something to easily put a face on (and that was using the pain face scale) what factors would we need to add together to contemplate suffering i am sure we could get 20 people in a room and we would come away with at least 15 things we need to contemplate to measure suffering (basically to much information for a person to come up with a number quickly) and as soon as 1 thing changes it changes the whole thing.
Actually it is a shame that you allowed this illness to progress to the point of needing to go to the E.D. instead of taking steps to avoid a crisis and contacting your PCP long before you needed 10 hours in the E.D. it is people who allow themselves to get to a crisis and then present at an e.D that causes overcrowding ,Long Wait times,.and raises costs on the hospital which in turn is passed along to everyone in the form of 7.00 $ aspirin's and things like that.No matter what your illness, disorder or dysfunction abuse of the Emergency Department is rampant in society. And people must learn to use their own skills and calling there PCP's as needed rather than forcing a crisis and going to the E.D.View Thread
dfw_mom Abuse and trauma involvement in women with Fibro has been noted in almost all Patients and that is why Doctors are no looking at Fibro as a Somatifrm disorder meaning It is a severe form of mental illness rather then an actual physical disorder and all of the Fatigue, forgetfulness , pain syndromes and such of Fibro are physical signs of a mental illness created by your mind.
For example a man being attacked by another with a gun will often be shot and no know until its over because the brain does not need to signal him with pain to let him know he has been shot,rather the brain keeps working on how to evade the lunatic with the gun.
on the other hand if the gunman is unseen and the threat is not obvious when the Man is shot he will instantly recoil in pain his body signaling do something, your are in trouble.
so thats an example of how the mind can or can not signal the body to do things (it's actually also part of a true story of a man unhappy with his attorney) or to feel things.
LincolnGal2 certainly made a very valid point that few FM Patients realize Just how lucky they are having the FM syndrome, It causes no permanent disfigurement , scaring , loss of function , or any physical manifestations detachable in your body alive or dead on autopsy , There are very few other disease's or disorders that you can have for many years and still leave a nice corpse. Strictly speaking of my own case on autopsy mine would be like on one table you have a 40 pound turkey you think easy job and then you get to me and its like an Anorexic Cornish game hen and the coroner wonders how and where do i start ?? because signs of my Disease are all over my body there is not a single thing about me that remains like it was prior to this disease on the outside and any smooth muscle on my interior like arteries , diaphragm , heart, they also show it. So be thankful for FM syndrome and panic attacks and depression because the "cross" that others bear may be larger than your own and may leave you wondering" could i carry that with as much grace as they do"