Morning FMily....can you believe another month is near its end? OMG...the months are flying by. Summer will soon be here and gone before we know it. MiMi in NC.....and it is going to be another hot day....in high 80's is predicted.
My GS graduated from preschool last night. He is so cute in his pictures. You know these days they go all out for the little ones who are getting ready to go to school. I think he is ready for sure....not sure though that the school is ready for him.
Schools do not end for another couple of weeks. It is later than normal due to make up days from the winter months.
Here is hoping each of you had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain.
Welcome to the new members who have joined our support group. I am sure you will find lots of good info and support here. Be sure and check out the *tips* and *resources*....*member toolbox* and *Dr. P's discussions* too. Ask questions and I am sure you will get some sort of answers for most of them. We have a good group of people here who are willing to share what they have found to make a difference.
Vitamin D. Magnesium. I do encourage new members to be sure and do your own research on these 2 things. I have found them to make a difference in the way I feel.
Have a great day and remember to pace, pace and pace even more. (another good tip)
Hello Lisa.....thoughts and prayers go out to you and your family on the death of your loved one. MiMi in NC. I know just how very stressful this can be. Sometimes we realize that older people who are ill are going to die but I think regardless....we are never truly prepared when the time arrives. I hope she had a good life and I hope that you will recover soon....although I do not think a person ever really gets over this, especially if you were really close. With time though I do know it does get better....but the memories that we have are what we have left to cherish.
I hope you will indeed take some *me time* and allow yourself to recover.
Hello Jennie and welcome. Has your doctor checked your Vitamin D level yet? If not, then perhaps you should speak to him about doing this. MiMi in NC. Low Vitamin D is common for lots of people these days and it can cause some people to have additional pain and it can also affect other illnesses as well.
I do hope you will check out the info here under *tips* and *resources*....be sure and read the *member toolbox* and *Dr. P's discussions* too. I am sure you will finds lots of good *tools and tips* that perhaps you have not thought of trying.
I am one of the FMers here who has figured out what vitamins and supplements I need to control my FM pain. No, I am not painfree, but I am so much better now than I was when I first got sick. I tried several different kinds of medicines in the beginning.....Cymbalta being one of them and I could not take them for the side effects that came with them. It was not easy for me to figure out what my body needed but I continued to do my own research and found what made a difference.
I take Magnesium Malate (found at a vitamin store)....and I also take Omegas (I take the Salmon capsules) along with a joint supplement too. (I have bad knees and hips). I also take P5P (which has helped my lower back pain)...it is also found at a vitamin store.
Drinking plenty of water each day and trying to keep my stress level as low as possible....we, FMers, should try to keep a positive outlook every day. Getting enough sleep is also really very important....I still struggle in finding ways to do this though.
I do think that we have to give ourselves time to figure out what we need that might help us cope better. This is not an easy process. It takes at least 6-8 weeks for just about anything that we try to actually tell if it is making a difference. So hang in there and learn all you can about what others have found that has helped them cope better.
Happy Hump Day FMily....MiMi in NC and it is going to be a hot day....my GS will graduate from pre school tonight. I am excited for him. I hope he will like school. I think though it is going to be a change for him. There are some days that he did not want to go to preschool and as we all know school is much longer. The school that he will attend has *lego time*. Can you believe this? He is excited about this since he loves putting things together. (his dad did also). Children grow up so fast these days.
Yesterday was not a good day for me at all. I did not sleep well at all and then woke up late as well. I am ready to take another break....there is a lot going on.
I do hope each of you had a good peaceful and restful night....and I hope today will be a good day with little to no pain.
Welcome to the new members who have joined our support group....I am sure you will find lots of good info here. I do think that the more you learn about how to deal with this illness, the better it gets. There are no cures for this, like so many other illnesses....but there are *tools and tips* that just might make it bearable.
Vitamin D and Magnesium. I do think these are 2 tools that can help most people cope better. Low Vitamin D can cause additional pain and it can also affect other illnesses as well. Be sure and speak to your doctor about getting your Vitamin D level checked.
I also think that the *ginger capsules* have helped my stomach issues. It is quite interesting to learn that there are things we can do that just might make a difference in the way we feel.
Have a great Wednesday and remember to pace, pace and pace even more.
Hello Jeanne. MiMi in NC. I wanted to comment on the Synvisc One injections. I have had the (old) injections which required 3 injections every 7 days. They did indeed help me. In fact, the person who did mine was quite surprised that mine lasted so long. Normally they only last around 6-12 months. Mine lasted over 2 1/2 years. I have not had the one injection though.
As I think we all know though what helps one person may or may not help another. I also take the joint supplements which has helped my knees as well.
I have had 4 right knee surgeries from an accident I had back in the 80's. My left knee is also not good due to the right knee giving me so many problems. I have a staple holding things together in the right knee which does limit me on certain things I can do. I can not squat or get down on the floor at all. Over the years though I have adjusted with what I can or can NOT do.
I do hope you will indeed get some relief from the injections.
Have you tried the Tens Unit as well? It might help some too.
Take care and good luck. I hope things get better for you soon.
Happy Memorial Day and please remember the reason for this holiday. Thanks to all of those who have served and especially those who lost their lives to protect and save our country. Death is final and we owe so much to those who have done so much for all of us for so little. Thanks to all of the families of these also....as one knows that families are deeply involved as well.
I am glad last week is over. It was a very stressful week for our family and so much *drama*. I don't think I can stand any more of this. It is sad when there are so many who find so much that they can not forgive a relative for. Stress will kill you and I happen to know this from what took place last week. So very sad. Much too young to lose a life over things which are no longer important, no matter how one views them.
I do hope each of you will have a good day and continue throughout the week. My GS will graduate preschool on Wednesday. He starts to school next fall. (I hope the school is ready for him).
Most schools here will not get out until the middle of June, due to so many bad weather days...both snow and ice. They will have a shorter summer vacation.
We had our cook out yesterday for lunch. My DH decided he wanted hamburgers and hot dogs. We also had watermelon and cantaloupe which was good. It was an easy fix for me since I had to do everything but the meats. DH cooks on the grill. I don't.
Welcome to the new members who have joined our support group. I am sure that each of you will finds lots of good information here that perhaps you can find something that you have not thought of trying which just might help you cope better. Vitamin D. So important. Be sure and ask your doctor to check your level. Low Vitamin D can cause additional pain and it can also affect other illnesses as well.
I would suggest that new members do lots of research on what others have found that has made a difference. You never know what might help you either until you have tried it. Feeling a difference can take up to 6 or 8 weeks though....there are no quick fixes. Give whatever you decide to try time for your body to get the *full potential* of what it might do. I often wonder if some people stop before the body has had a chance to absorb what it needs to make a difference.
Nana B....I sure hope your surgery goes well. Take care and recover quickly. By the way...you know you can start the daily post any time.....as long as you post it doesn't matter whether you are first or last. I try to go back and read all of them.
Cece....I would enjoy hearing about the new addition and how things are going with your mom and dad...what do they think about the new baby?
Cory I do hope your job goes well.
Linda I am hoping you and your DH have a good trip. Sorry that so much is going on right now. Enjoy spending time with those whom you might not see again. (I know this can be tough)
Mel I do hope things are getting better for you.
I hope I have not left anyone out. I don't like *forgetting anyone*.
Enjoy your holiday and remember to pace, pace and pace even more.
A good Sunday Morning to each of you. MiMi in NC....where it is been cooler than normal....but then again what exactly is *normal* anymore. I am not sure anyone truly knows.
I do hope each of you has had a good week-end so far. We should all remember those who have served our country in one way or another. Some times we, the people, do not appreciate those who go to war and fight for our country....and I am not even sure that anyone truly understands just how important these men and women and their families are and what they go through to protect us.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find something that will improve the way you feel. It does take time and effort as there are no magic pills that will make a HUGE difference...but there are all sorts of good tools and tips that just might help. You never know what just might do this until you have tried something that you have read about. So continue to learn all you can about what others have found that has worked for them.
For me, it is vitamins and supplements along with other tools that I use. I am not pain free but I am doing so much better than I use to. Learning how to pace and what can increase my pain has been a wonderful tool for me. I also try to accept the things that do not always get done on time or when I would like them to be. My DH's cancer doctor told him many years ago *not to sweat the little stuff*.....which is a good piece of advice for everyone. Life is short and as we get older this seems to set in just how short it is. If you have a bad day today just hope that tomorrow will be better. Take one day at a time and do what you can or feel up to. I am sure that whatever you do not accomplish, it will be there when you decide to do it. We, FMers, must learn to take care of ourselves.
Vitamin D.....so important. And Magnesium Malate too. I have found that both of these are important to me. I have also figured out that Ginger helps my stomach issues. So some things do help if you stick to them long enough.
I hope each of you will have a good day with little to no pain. Enjoy your long week-end and again remember the reason for this holiday.
Hello and welcome......MiMi in NC. It is hard to deal with the wrath of the dragon, in the beginning.....but you can figure out ways to avoid some of the stress that is causing you a lot of pain. It does take time and effort but I do think the more you learn about FM and what others do to help lower the pain the better you will know what to do as well.
Have you had your Vitamin D level checked yet? If not, then I would suggest that on your next visit to the doctor that you request that your Vitamin D level be checked. Low Vitamin D seems to be a *common issue* for a lot of people which can cause some to have additional pain and it can also affect other illnesses as well.
Learning how to pace is a good start too. It sounds simple but it does take time and effort to find ways to do this. Keeping your stress level as low as possible is also a good tool. You are so right.....as most people can NOT or do NOT understand what we, FMers, face each and every day. I hope you will check out the info here under *tips* and *resources*....review the *member toolbox and read up on *Dr. P's discussions*.
It is important to figure out just what is making your pain increase. Sometimes this is hard to do. You can keep a journal of sorts for a while which just might point to some of the things which might be causing you more pain. It could be your diet, the weather, your activity to name a few. It could also be that you are not allowing your body to rest enough, perhaps not getting enough sleep at night....or perhaps you are worrying too much about other issues. Keep a journal and hopefully you will see a *pattern* which will tell you what is going on. In this you will chart your pain level and all of your activities for the day. Be sure to include what you eat and the vitamins and supplements that you take, along with any and all medicines.
Drinking lots of water might also help you as well. Yes, so many people do NOT drink enough water. This can indeed add to what is going on. Perhaps soda pop or something else might be causing your body to have more pain.
Have you tried *stopain spray* ? This is good stuff and I use it often on pain that just will not ease. You can find it at walmart and there is probably a coupon on line that you can use as well. It is really good for joint pain...knees or hips or ankles...if you have this.
I am one of the FMers here who has learned how to *control my pain with vitamins and supplements and using other tools too*....I am not pain free but I am so much better than I use to be.
Have you tried a mattress foam topper? Some of the FMers here use this to help them sleep better. I have to sleep in a recliner myself. I did try using one of them though...it just did not help me enough.
You never know what might help you cope better until you have tried it.
Hello marie and welcome. MiMi in NC. You do not say how old you are (not that this is important)....but I do know that *supposedly the government provides special rules to those who are 50 plus....not sure this is actually the case though. I do know that you must work a certain amount of years to be considered....I think it use to be 40 quarters/10 years...(this might have changed though). As you might already know the system is broken...and actually has been for some time. I would suggest to you that you speak to your doctor about your decision to apply and hopefully he/she will indeed agree that you should apply. It is good to have the doctor on your side....as the doctors do have to provide any and all info about your health.
I also know that applying for and getting approved is a process (some might say a hassle)....but IF you are unable to work and you have this benefit, then you should indeed apply for it. Expect to get denied.....but I think this is the *normal* for the system. Just make sure that you are willing to *appeal the decision and keep on keeping on until you get approved*...I wish I could say it is *easy* to do, but that is not the case. I do not exactly understand this since those who actually *need disability* have enough issues and a lot of stress to deal with to begin with and then you become unable to work and then have to continue the path of *fighting for what is a benefit that you have worked for*.
OK....by no means do I want to discourage you from applying.....but I did want to answer your question.
It took me a while before I got approved and I do think there is a *window of getting approved*....which I think use to be 5 years within the time you have worked last. (again I do not know if this has since changed though).
You can actually apply on line and you can also get some good info on line as well.
I hope this answers some of the questions you might have.
I will say this that for anyone who has worked and contributed to the family income for years and then all of a sudden you have *no money of your own*....when you finally get approved, it is a HUGE relief. It gave me a *sense of relief*....after all I had worked over 14 years at the last company that I worked for....(worked before this at other places as well)....I started working at 14 and did have a period when I was a stay at home mother while raising my children when they were little.
Good luck and if you have any other questions I will try to look in again and reply to them....if I can.
Morning FMily. MiMi in NC. OK....can someone please explain this strange and weird weather to me? I just don't get it at all. It is just bouncing all over the place. I woke up too early this morning and it was truly chilly. I could not even believe this.
I do hope each of you had a good peaceful and restful night's sleep and I hope today will be a good day for us all with little to no pain.
It was a very stressful week for me and I am glad it is over. My GS decided to get out of his bed and scare 10 years off of my life. I was there watching him on the monitor and he was moving around, which is normal. I look away for a moment and then heard a thump....don't know if he climbed, jumped or fell over but he was on the floor and crying. OMG...so now he knows how to get out of bed. Not a good thing at all. I will now have to be on my toes trying to figure out what this little one is going to do. The same thing happened to one of my children too. I remembered it scared me then as well. I do understand that things happen....but too much has happened this week already.
You know sometimes when things start, they come in 3's. Well, I certainly hope not but I will not be surprised at all. I am not looking forward to going through this kind of thing at all....but I also know that there is nothing I can do about what happens in life. It is what it is.
Welcome to the new members who have joined our support group recently. I am sure that you will find a lot of good information here on how other FMers cope. We do have to remember that there is no cure for it, but lots of good ways that just might soothe our pain at least for a while.
Vitamin D. Be sure and ask your doctor to check this....as low Vitamin D seems to be quite common for lots of people these days. This can cause additional pain for some and it can also affect other illnesses as well.
That's my story and I'm sticking to it.
Have a great day and remember to pace, pace and pace even more.