Hello and welcome....no, you are not alone....there are actually millions of people who suffer from the wrath of the dragon, aka FM. This is a good support group where you can learn a lot about what may help you cope better.
I hope you will check out the info under *tips* and *resources*...be sure and review the *member toolbox* and Dr. P's discussions too. I am sure you will find lots of good *tools* which perhaps you have not thought of trying before.
Yes....I think wearing a bra is a big problem for a lot of us FMers....I know I have issues. I wear a bra only when I am going out of my house and it is the first thing that I take off when I return. I also have issues with any kind of tight clothes....I wear cuddl duds year round. They are soft and warm in the winter time (I can wear pants over them) and they keep me cool in the summer time. I have worn them now for several years. It seems though that the company changes them every year. Some are better than others. This year I found Walmart brand which was better than Sam's. I normally get mine from Sam's. I bought some this year from Sam's but did NOT like them at all. The material was different and they were made different as well.
There are different kinds and styles of Cuddl duds....as I learned a couple of years ago. Some wear better than others.
Have you had your Vitamin D level checked yet? IF not, then perhaps you should speak to your doctor on your next visit and ASK for this to be checked. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well.
Have you tried using a heating pad yet ? I use mine every day and use it on the back of my neck area....it eases any pain any where on my body.
I am one of the FMers here who has learned how to *control my FM pain by taking vitamins and supplements and using other tools too*.
We are all different and what works for one person may or may not help you....only you will know when you have found the *right combination of tools* which makes a difference for you.
I hope you will continue to post and ask questions....make comments and/or suggestions....tell us more about yourself and what you have tried.
OK*****I am guessing that the *extra info* is some sort of *secret code*....yep....I heard that there is another *snow storm brewing*.....I am so glad that I am NOT in the path of snow.
So much going on around the country. I actually hate anymore reading about the *news* which is more bad than good. Not even sure that there is anything *good* anymore which is worthy enough for the media to share. What a shame.
I do hope those of you who are dealing with the bad weather are keeping warm and staying safe. I also hope that it melts soon.
Lou I do hope you have a *stash of yarn*....just in case you need it. I wish I had some sort of *hobby* that I could do. I can no longer read....as my concentration is not good....I can no longer use my hands for a long time. I keep my GS and we have fun....I guess this is enough for me. I do love and spoil this little fellow....he just smiles and claps when I arrive....and he waves bye bye to his mommy and big brother as they leave. I think he knows that I am there to *play with him*....we have lots of fun every morning. He is beginning to say the animal sounds....so very funny. He does not talk much yet....but he knows what the animals say. He has also fell in love with elephants.....so very funny. We also have a Good Night Gorilla book that he loves me to read.
He has also found his mommy and daddy's wedding pictures that we have to view now. So very funny that he is 14 months old and what he likes to do.
Take care and I hope things get better for you all.
What day is it ? Do you know ? It is *hump day*....and the end of January is almost here. Can you believe this ? February is right around the corner and we are indeed getting closer to spring time. I am so ready for warmer weather. I am sure almost everyone is ready for this as well. So glad that the snow storm missed NC. I am ok seeing no snow.....although I am sure this will not be the case since there are many more days until springtime.
Here is hoping each of you had a good restful and peaceful night. We had a birthday celebration for my GS and had pizza last night. It was ok. Kind of busy with 3 boys though. They are always excited to see each other. We had a good time. I hate that my GD was not there.
Welcome to the new members who have joined our support group recently. I know it sure helps you know that you are not alone facing the wrath of the dragon, each and every day. It is important to reach out and learn all you can about this illness. I think the more you know the better you will figure out how to deal with it. As there is no cure for it....that is indeed the best we can do.....face it and deal with it each and every day. There is nothing easy about this either. So we FMers must keep on keeping on.
Vitamin D. Be sure and get this checked and also do your own research about this and just how important it can be to a lot of people these days, especially those who suffer from chronic illnesses.
So much going on around the world. Sometimes it is hard to read about what is taking place in some places. It is sad when no one can really be trusted. One never knows just what might happen. Modern day technology though is a good *tool* for a lot of issues these days. No one can hide from this. One would think that everyone should know this by now. There are cameras in lots of places these days which I think we all know a picture is worth a lot. People can be *tracked* without even knowing that they are. Sometimes this can be a good thing.
OK...that's my story and I'm sticking to it.
Stay warm and safe today.....find something to keep you busy IF you are stuck inside. I do know that this can be hard to do IF you are not use to it. Sometimes cabin fever can get the best of you.
Hello and welcome....MiMi in NC. 24 years with FM and you are able to manage your symptoms....so how exactly do you manage ? What have you found that has helped you the most ?
I am sure you will find lots of good info here and plenty of *tools* that perhaps you have not thought of trying yet. Be sure and read the *tips* and *resources*.....*member toolbox* and Dr. P's discussions.
Have you tried using a heating pad? I use mine often and every day.
I am one of the FMers here who have learned how to *control my FM pain by taking vitamins and supplements* and doing other things as well. No, I am NOT pain free nor do I expect to be....but I am so much better than when I first got sick. Learning how to pace, pace and pace even more has helped me. Learning to say NO to when I can NOT do something. We, FMers, have to *pick and choose* what we can do and when we can and forgot the rest. Limiting stress as much as possible is important.....getting enough sleep is also important. Lack of sleep and stress seems to increase my pain.
It is important to drink plenty of water every day....water does our body good. Water is 98% of what I drink. Watching what I eat is also important and sometimes hard to do.
Have you asked your doctor to check your Vitamin D level yet ? If not, then perhaps you should the next time you go in for a visit. Low Vitamin D is common for some people and it can cause additional pain for some. Low Vitamin D can also affect other illnesses as well.
Almost everything we, FMers, do requires a process.....which does take time and effort.
I hope you will find something soon that will help you cope better.
Hello and welcome. MiMi in NC. OMG****so your doctor has not even *discussed Fibromyalgia with you yet*....I find this interesting. One would think that the doctor would try to tell you what he thinks anyway.
You are not alone.....I can assure you of this. It is a mean and ugly illness to deal with. There is NO CURE....but there are *tools* that just might help you cope better. I do hope you will check out the info here under *tips* and *resources*....be sure and read the *member toolbox* and Dr. P's discussions....(he is no longer here with our support group but he left us a lot of good info - he not only treats patients, he, too, faces it every day as well. He truly understood what we go through.
I would like to comment about what your DH told you. You do indeed need to learn all you can about the illness.....as the more you know, the better you will find something that will help you. No, you are not going to feel worse by learning about it.
This is a good support group.....some of us have been here for *years*.....a lot of members have joined and then moved on for whatever reason. Those of us who stayed are very dedicated to this group. I think we all have learned a lot from one another and we are all in a better place now than when we first joined.
Did your doctor check your Vitamin D level? If not, then perhaps you should speak to the doctor about this on your next visit. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. I would also encourage you to do your own research about Vitamin D and just how important it is to a lot of people who suffer from chronic illnesses.
I do hope you will continue to post....ask questions....tell us more about what you have tried that has helped and what you tried which didn't. We try to share what we know with others...as you never know what just might help someone else.
Hello Nana B.....well, as you already know, I have been there done that with the elbow....and I can assure you that you will get in a *MESS* if you are not careful. You know I had several health issues when I was having problems with mine. It was a cervical issue which was causing so much pain. The neurosurgeon was thinking that perhaps some of my elbow pain was due to the cervical problems....something about where the nerves cross .....you might understand. I know I was quite confused when he was explaining it to me. But anyway when I went in and had several issues to fix....he asked me which *one* I wanted fixed first. I told him that I needed to be able to use my right arm....as I had gotten to where I had major pain and could not even brush my teeth or wash my hair. He thought that perhaps when my disc got fixed that maybe, just maybe, that would also help the rest of the issues I was dealing with. Well, it might have helped a *bit*.
Anyway I ended up having to wait a while....as he said it would probably be 6 months or better before he wanted to tackle the next problem. Actually I am thankful he did the cervical surgery first....as it took my elbow so long to heal (over 2 1/2 years)....I don't know that IF we had decided to do the elbow surgery first IF I would have been willing and ready to do the elbow and carpal tunnel in 6 months. (he did the 2 together).
OK....I guess I am curious to know IF they have checked your neck as well. I had no idea when I first started having *issues* that any of it could even be related to my neck area.....as my neck did NOT hurt at all.
I had pain from my shoulder down to my fingers though.
People on disability eventually get medicare....the same as when we retire. I think it takes 24 months though. (but this might have changed by now)
I do want to add that *pushing yourself to the limit does NOT help you to get better*....OMG....I am sure you already know this....but I did just want to remind you.
And you know that you will need to *allow* yourself to heal....which just might take a while like mine did. When I had the surgery I had no idea that it would take so long. When the neurosurgeon told me it would take probably 2 years for it to completely heal....I thought he was just saying this....but no, he knew I guess.
I still wonder just how all of this comes into *play with FM*....yes, I do think there is a connection....just don't know how.
Happy Birthday to my GS today....he is turning 8 years old. Where have the days gone ? It is hard to believe that 8 years have passed since he was born.
Morning FMily. MiMi in NC and it is chilly this morning 28*....but it is dry and going to get up around the high 40's today. I am thankful that the snow storm missed my part of the state and that it is only *cool*. Sounds like some places are buried. I hope this will soon be better. For those of you who are in the midst of it, I hope you will stay safe and warm.
At least we know that spring is next and hopefully will be here sooner than we think. It is odd that it seems sometimes the weather is never what we want it to be. Too hot, too cold, too much of this or too much of that. Wish there was a *perfect place* to enjoy the weather where it is just what we want. I think we all know though we do NOT live in a perfect world.
Welcome to the new members who have joined our support group recently. This is indeed a good support group to be a part of. Lots of good info here. I hope you will indeed check out our community and learn all you can about what others have tried and found that has made a difference in how they cope each and every day. You never know just what might help you either until you have tried it. Most of the time it does take a combination of *tools and tips* which make a difference.
Vitamin D. Again I want to include this. Be sure and ask your doctor to check your Vitamin D level. So very important for a lot of people these days. Low Vitamin D can cause some people additional pain and it can also affect other illnesses as well. Getting it back to *within the normal range* can take time and effort....keeping it there might also be another issue. And then we have to wonder just what is the best range for each of us. Low normal, middle normal or high normal. There is nothing easy about dealing with this illness. Sometimes it becomes a *guessing game*. It certainly requires a trial and error process.
As for me.....I take vitamins and supplements and use other tools as well. A heating pad is my best friend. Don't think I could function without one. For those of you who have not tried this....perhaps you should. Sometimes doctor will say using cold packs might be better and you can even alternate both as well. My body does NOT respond to cold though. Never has.
Stopain Spray is good stuff also. You never know until you try something just what it might do for you.
Have a good day and remember to pace, pace and pace even more. This does the body good.
Morning FMily. MiMi in NC....where it is now 40*. Seems like showers are headed this way....right now though it is dry. Very strange weather though that seems to be everywhere. I am just glad that we have not had the *S*.
It seems like it was a tough week-end for several here. I do hope each of you was able to get some needed rest and I hope this week will be a better week for all of us. I know it was for me but I rested for the most part yesterday, since I did NOT have a choice in the matter. Sometimes this illness is just a pain to deal with.
Can you believe one month is already here and almost gone? I am so ready for warmer weather....and as the time goes by, springtime is getting closer by the day. I am sure it will soon be too hot and just another difference issue to deal with. It is always something.
Welcome to the new members who have joined our support group recently. I am sure that you will find lots of good info here that just might make a difference in how you cope.
Whether you have tried different kinds of medicines and did NOT find anything to work, perhaps it is time to try other *tools* as well....which just might work. You never know until you have tried them. Everything is a process. We are all different and what works for one may or may not work for you.
I have found that a heating pad sure helps me.....I can place it on the back of my neck area and no matter where my pain is, it helps reduce it. I especially use this when nothing else seems to work.
Vitamin D. Have you gotten yours checked yet ? If not, then I do encourage you to speak to your doctor on your next visit. To me it is better to have it checked since we do have a long term illness to deal with. Low Vitamin D can cause some people to have additional pain. I know it sure did for me.
Have a great Monday and remember to pace, pace and pace even more. This does the body (and mind) good.....IF you remember to do it. Sometimes it is hard to do though regardless. (I on occasion know better but sometimes I too don't use this valuable tool.)
That's my story and I'm sticking to it.
For those of you who are having lots of cold and snow....be careful if you have to get out in it and try to stay warm.
Hello Pauley and welcome. MiMi in NC. I am sure you will find lots of *good tools* here that perhaps you have not thought of trying which just might help you cope better with the wrath of the dragon, aka FM. No....it is NOT an easy illness to deal with but there are things you can do which just might ease your pain. Has your doctor checked your Vitamin D level yet ? IF not, then perhaps you should speak to the doctor about getting this done. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. It is just a simple blood test BUT you must ASK the doctor to check this, as it is not included in the normal blood work that the doctors do.
You did not share what you have tried that has not worked for you. Some of us take medications, other do other things....I am one of the FMers here who tried different medicines in the beginning but did NOT find any which really helped without causing side effects. I now take vitamins and supplements and use other *tools* which sure make a difference for me.
Learning how to pace, pace and pace even more is a good start.....not an easy one, but really very important. Using a heating pad might also help, if you have not tried this. Stopain Spray is good stuff....you might want to try it as well.
Drinking plenty of water each and every day might also help....although this is a process, as most anything and everything is.....which does take time and effort to actually *feel a difference*...a person should allow at least 6-8 weeks of whatever they decide to try before deciding whether or not what they are doing is helping them cope better. It takes this long to actually get the full potential of what something might do.
Doing gentle stretches and/or exercising also helps as well. Watching what we eat and having a schedule of sorts also might make a big difference.
Sleeping is really important too. Some of us FMers have issues with getting enough of the right kind of sleep. Taking a hot shower at night using lavender bath salts might help your body to rest so that you can sleep better. Sleeping on a mattress topper might also help.
You are really lucky IF your DH (dear husband) is at least trying to understand your journey each and every day in dealing with this mean and ugly illness. I hope he continues to do this. Most people have no clue.
I hope you will continue to post....ask questions, make comments and know that we are here 24/7....there are some great people here who are here to do what we can to help.