TGIF****a good morning to each of you... MiMi in NC where the weather has sure been weird. It drizzled all day yesterday but the temp was in the 60*s....no sunshine so it was a bad day....this kind of weather makes my bones ache and I felt bad all day....not good for the mind or the body. I had to go to check in to see if I was going to be in this FM trial study. I guess I am in...at least for now. I got a tablet to input daily info and I will be taking 2 pills every morning. I took my first 2 at the clinic and had to stay there for an hour. I think they were making sure I did not react to it.
I will be monitored during this trial. All sorts of bloodwork and tests so this is a good thing, at no cost to me. I also get compensated for participating in the study as well....as I have to monitor things each and every day and report this info back to them on a computer... $50 a visit. This will pay for the extra gas of me going plus some extra to have. I hope I can continue. Time will tell. I hope this will indeed help someone somewhere on finding something that will help us in the future perhaps.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find the *right combination of tools which will improve your pain*. It does take a trial and error process which does take time and effort. There are no magic pills for everyone, that I am aware of. What works for one may or may not help another. Continue to try different tools though and things should improve. Sometimes it is only *baby steps* of improvements but a little at the time is better than going in the opposite direction.
Learning how to pace, pace and pace even more it one of the best things to start with. Having a good doctor who knows just how the wrath of the dragon can affect our daily lives is a must. There are still some doctors who do not *believe in FM*.....but I do think I can understand why. After all, the majority of us *do NOT look sick*....and this illness does NOT affect each and every one of us the same way. Some doctors have no idea how to help us. It pays for us to educate ourselves on every thing we can find about living with the wrath of the dragon. We, FMers, must keep on keeping on.
Drinking lots of water is also a good thing for our muscles....WATER. Doing gentle stretches and/or exercises each and every day is a must. We do not want to *allow our muscles to get stiff*....move, no matter if it is SLOW...you will definitely feel better for doing so.
For me, vitamins and supplements have made a difference. I first tried different kinds of medicines that my doctor thought might help. The muscle relaxer does help but it also causes me to feel very *slow and confused*. I cut the tablet in half most of the time and then half it again...when I feel a need to take something.
Vitamin D....so very important to a lot of people these days. Low Vitamin D can cause some people to have additional pain. Low Vitamin D can also affect other illnesses as well. Speak to your doctor about getting your Vitamin D level checked.....do your own research about Vitamin D. You might be quite surprised at what the medical researchers have discovered about Vitamin D and just how important it is to us.
As Nana B says....we, FMers, must learn how to *dance with the dragon instead of draggin the dragon*......there is a way to do this....which may not be easy....but there is a way.
Kasie, I think it is great that you are even able to go to school and take your courses. I just wanted to say this that anything and everything with dealing with the wrath of the dragon, aka FM, takes a process...which does take time and effort...You have to figure out what to take and what to do to learn to *dance with the dragon, instead of draggin the dragon....(as our dear Nana B states)....I think that with time, things will indeed get better for you....but I do not think that you will ever be completely like your old self again. Nana B is also a nurse and she faces the wrath of the dragon each and every day also.
Good luck to all of the FMers who can still function well enough to hold down a job and dance with this dragon every day. I hope things will continue to get better for all of you.
Certainly learning how to pace, pace and pace even more can be a very good start, IF this is an option.
Hello Meg and thanks a million for letting others know that Vitamin D can and did make a difference for you too. Way back when I first posted about Vitamin D....I know some of the FMers here thought I had lost it....but I know what a difference it made for me. My level was 12 when the doctor finally checked mine. My daughter's was 2. She had chronic pain at the time after having a bad automobile accident which resulted in major foot pain for her. She was having all sorts of problems in trying to deal with this. I am sure the very low level of Vitamin D did not help her either.
I continue to include just how important Vitamin D is....hoping that the new members will see my post and decide to have their Vitamin D level checked. I think that Dr. P probably makes sure he now checks his patients Vitamin D level. (I sure miss him being here)....I think that he was also surprised that Vitamin D could indeed make a difference.
It is good to know that you have shared this with others. I can only hope that someone will see your post and decide to have theirs checked as well. I wish that I had a way to *tell the world, especially those who have any sort of chronic pain....to have the Vitamin D level checked. I had hoped that insurance companies would eventually *catch on* to this and include it in the *normal bloodwork that the doctors do* but I do not think this has happened (yet).
Take care. I hope you will continue to feel better.
Morning FMily. MiMi in NC where it is supposed to be 68* today...can you believe this and in the 70*s tomorrow...but then the temps are going to turn around. They were talking about a 40 degree difference out west and I guess this is headed our way. What weird weather. So much going on around the country.
Here is hoping each of you had a good night's rest and I hope today will be a good day for us all, with little to no pain.
I have some errands to do today so I hope I can get them done. There are so many times that I attempt to do things and have to back down due to the energy level that I have. Not a good thing at all for the mind or the body as well.
Welcome to the new members who have joined our support group recently. I am sure that you will find some good info here. Please check under *tips* and *resources* and be sure to review the *member toolbox* as you will find some good *tools* that just might make a difference in your level of pain. What works for one may or may not help you though since we are all different. You will never know what might help until you try things. Normally it takes a *combination of tools* which can make a difference.
I hope each of you will be able to enjoy some sunshine today as well.
That's all. Remember to pace, pace and pace even more.
Hello, she should talk to the doctor about this. There is so much going on right now with different issues and people's healthcare. I am sure someone can address this issue and get it straightened out for your cousin.
I hope you will tell your cousin about this support group as I am sure she could benefit from joining.
Hello Kasie....go to the post which is titled *2 little brothers*. Someone made a beautiful picture of both of my GS at the hospital.
There is another post about my GS being born as well.
Thanks for asking. Thanks for the prayers and thoughts on my GS as well. We continue to hope and pray that he will be ok. He goes to a specialist in January, unless he has problems earlier about his kidneys.
Hello Mary...actually no, some people benefit from using ice...I never did and for whatever reason my body always responded to heat. I guess this is one of those things that we have to figure out what works for us.
Or you could alternate between the heat and ice...15 minutes each.
Whatever you feel works for you is what you need to use.
Hello Mary....a heating pad on the area might just help you. I know that there are times when my neck gets stiff. I also have had a bump about the size of a half dollar which hurts to touch...when it does this I get out the heating pad for a few nights and soon it is better.
Hello Lou....so glad that you are back from your vacation and so glad that you had a good trip. Sorry about your spasm...I hope you will get some relief soon on it as well.
I know you are glad to be back. 10 days is a very long time to be gone. We went out west for 9 days and also went to Hawaii for 9 days way back when. It is good to have a nice vacation but it is good to return home safe as well.
Take care and try to rest some. Seems like this is when I need to rest when I get pain that I normally do not have.
Hello Nana B. Cade has kidney issues...some sort of retention. I think it is serious but not urgent at this time...as they told my DS and DIL that had it been urgent they would have transferred him when he was born. They did an ultrasound and some other test before he left the hospital. He is now on antibiotics now to prevent any UTI'S at this time. (I am a bit worried about this-but I do understand that they must be careful about this) The doctors provided a CD for them to take to the specialist that he will be seeing in January, if not before. I think everyone is communicating about what the problem is. The doctor told them to just treat him like they would any other normal baby and just watch him for now.
He is such a handsome little fellow....and such a blessing to all of us. I continue to just hope and pray that all goes well with this. You know that back when we were having our children, the medical technology was not like it is now. I have to wonder just how much was missed with things then.
I hope you will have a good day today and remember to pace, pace and pace even more.
I had to share the picture here....I love it....as 2 little brothers bonding for life. Noah loves his little brother and shows him a lot. I only hope this will last.