Hello Sammie and welcome. Sometimes doctors do have issues with try to figure out what is wrong with people, especially those of us who deal with FM. I am so sorry that your doctor has not gotten to the root of your problem....which I think is really important to all of us.
How on earth did he treat you, IF he did not know. Did anything actually help you or was it just a *band aid effect*....(not really addressing what is going on)
I do hope you will check out the info here under *tips* and *resources*.....read *member toolbox* and *Dr. P's discussions*....I think you will find lots of good *tools and tips* that will perhaps answer some of your questions.
I do hope your doctor checked your Vitamin D level....which is really important for a lot of people these days. Low Vitamin D can cause additional pain for some people and it can also affect other illnesses as well. I do hope you will also do your own research about Vitamin D.
I hope you will try some of the *tools* that you find others have tried that has made a difference for them.
I am one of the FMers here who has learned how to *control my FM pain* by taking vitamins and supplements and doing other things as well. This too takes time and effort to find what really works. Everything is a process with us FMers.
Take care and I hope you will ask questions, make comments and/or suggestions.....this is a good group of people here and you will get some good info.
Hello Mel.....MiMi in NC. I had a rough night....woke up around 1 am and tried to get back to sleep....woke up again around 5 am since my furbabies needed to go out.....I was NOT happy at all and felt like I had not slept any all night. I again tried to drift off to sleep again.....then it was around 9:45 am when I woke up yet again. I was tired but I knew that I had things to do so I got up. I had some errands to run and I got those done. Well, I just got home a few minutes ago.
You are correct.....I did not post at all. I guess I just had too much going on.....or was too tired to even think about posting. Not a good sign for me at all.
I am still trying to recover from my MIA *we* time. It is really hard when I go some place and return days later with so much to do. I think I will never catch up. I am sure things will get better.....or at least I hope they will.
It is hot again today. It seems that we go from too COOL to too HOT. Weird weather around the country I guess.
Thanks for getting today's post going. It seems that the board is quite slow today. I hope this means that people are doing other things and have not gotten around to signing on. Week-ends tend to be slow anyway.
Welcome to the new members who have joined our support group. I am sure that you will soon find all kinds of good *tools and tips here* that perhaps will make a difference in the way you feel. You have to remember to keep on keeping on until you find something which works. No....it is not an easy task to do.....as we all seem to be quite different....what helps one may or may not help you....but trust me....you will know when you have found something which makes a difference.
Vitamin D. I hope each of you will speak to your doctor about getting this checked. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. So very IMPORTANT.
It is also important to learn how to pace, pace and pace even more....even the little things that we have to do each and every day. This is not something which is easy to remember to do all the time.....BUT it is certainly important.
TGIF*****can you believe it is Friday and already the middle of May as well? OMG ****the time just flies by any more. I often wonder just where it goes. We will soon be in summer and it already feels some like it has arrived. It was cooler yesterday. Weird weather though.
MiMi in NC and I do hope everyone had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain. I drifted off to sleep and then woke up but was able to go back to sleep again. I woke up too darn early though this morning when the furbabies needed to go out. I have learned that a person can never catch up with their sleep no matter how much sleep is gotten. I sometimes think I could sleep for days and still be quite tired. It is a no win situation.
Finally the bank credited my account back with the $ which were snitched from my account. What is strange is that had I not gone into the bank, I guess it would still be outstanding....as the paperwork which I was suppose to get has NOT been received yet. I decided when I had to *verify my address* that this was going to be a problem. I have yet to report this to law enforcement. It actually happened in another town close to me. So it means I would have to take time and go there to do it. So glad this part is done though.
Welcome to the new members who have joined our support group. I am sure that you will soon find something that will help you cope better. This does take time and effort as I think we all know we are all different and what might help one person may or may not make a difference for someone else. It is a process of elimination to find what will work for each individual. Learn all you can though about what might make a difference and then do your own trial and error process to see how it work for you. It can take up to 6-8 weeks though of whatever you decide to do....this is especially if you take medicines and / or vitamins and supplements. (the time might be shorter or even longer).....allow yourself to get the full potential of whatever you are doing (unless you are getting worse).
Learning as much as you possibly can about FM can and will make a difference. I do think a person's life completely and I guess forever changes when the wrath of the dragon, aka FM, arrives. Nothing ever is the same as we knew it before.
Learning how to cope with it is required. Learning what reduces the pain is so important. I do think it can and does get better and easier IF and WHEN you try to find what makes a difference for you.
Some things are easy to do, others not so much. Drinking plenty of water sounds easy but it does take some time to get use to doing this. Changing one's diet can also be important as well. Doing gentle exercises and/or stretching every day might also help. Do whatever it takes to make your life easier. We, FMers, must keep on keeping on.
Vitamin D. Magnesium. Yes....this just might make a difference. Be sure and do some research about vitamins and supplements and how they just might make a difference. Talk to your doctor as well.
Learning how to pace, pace and pace even more is a good thing as well. This sounds easy but it is not as easy as it seems to be.
Hello peachesnbloom and welcome. MiMi in NC. I am a grandmother and have been dealing with this mean and ugly illness for at least 11 years....(maybe more). I can not even imagine being a teenager and trying to deal with this. I can not even imagine having children who are trying to deal with it either. I raised 3 children and worked both a part time job and a full time job.....I also took care of my dear aunt for over 15 years and my dad for a very long time.
I would like to suggest though that you ask your daughter's doctor to check her Vitamin D level. This is so very important for a lot of people these days. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. It is a simple blood test BUT you must ASK the doctor to check it...as it is not included in the normal blood work that the doctors do.
I would also suggest that she try to keep her stress level as low as possible. Getting enough sleep is so very important....lack of sleep will surely increase her pain level.
You should also encourage her to keep a daily journal for a while....chart her activities and what her pain levels are and what she consumes as well. She might eventually figure out a *pattern of sorts* which she can change or at least do some sort of adjustment.
She should also eat right and drink plenty of water. She might try nothing but water for a while....(perhaps add some lemon juice to it)
She might also try to use a heating pad on the areas of her worse pain. At night she might also take a hot shower using lavender bath salts in a stopped up drain....(IF she is unable to take a bath). She should do this right before going to bed.
Some of our members have purchased a foam mattress to sleep on....this might also help her as well.
OK....there are lots of good *tools and tips*....be sure and check them out.
Your daughter should also learn how to pace, pace and pace even more.....this really does help....as long as you follow it.
Take care and I hope you will continue to post and let us know how things are going.
Hello Lisa. MiMi in NC. I think that perhaps there is some sort of connection of what people consume (food wise) which is supposed to have Vitamin D in it, but for whatever reason, it doesn't. I also think that the percentage of people with low Vitamin D is much higher than it has been reported.....due to the fact that they only report on the people who have actually had their levels checked. I thought that by now, the Vitamin D level test would be required and included in the *normal blood work* that the doctors do. (it hasn't been though that I am aware of - and my doctor (who retired in Dec did NOT like me asking him to check it) ....I have to find a new doctor soon as I am behind on getting checked out. I hope I can find someone who does not have issues with keeping tabs on the required tests that are needed.
When my daughter had her Vitamin D level checked...the doctor just looked at her and said she had a problem with it. It came back and her level was 2. She now takes the prescription dose as well. She had gained a lot of weight and had tried to lose it, but could not. She has always been a *small size*....once she started on the Vitamin D, she was able to lose the weight that, for whatever reason, she had gained.
Medical researchers continue to do research on Vitamin D.....I don't know though if they will ever *connect all of the dots* to figure it all out. I can only hope so.
Hello Lisa....I think it is interesting that I was told twice that most older people who go to nursing homes are on a lot of medicine. My dad was NOT on anything except some vitamins and supplements and my aunt, who was diabetic was on insulin and one medicine. They lived to be 85 and 89 years old. The nursing home actually tried to say that my dad was diabetic and started him on insulin....until I spoke up to tell them that no, he was NOT diabetic and that they needed to test him again. Interesting enough was that when the test was done, it did NOT reveal that he was diabetic....so I wonder just how many residents get put on medicine that they do NOT need.
I checked on him daily and at least every other day, if I missed a day for whatever reason. They never knew when I was going to show up. I made sure that I was NEVER on a schedule. It was not predictable time for me. I do think this is the only way to make sure of the *care* that nursing home residents are getting. I also become friends with the nurses as well. It is so sad what goes on in nursing homes. I saw a lot.
Animals are such good company....aren't they? I love my furbabies. They are both staying close this week....as they do NOT like being boarded. I am sure it was a very long time for us to return.....or so it seemed to them. CoCo decided as soon as I arrived that he did NOT want to be left. He does not like change at all. They are both quite spoiled.
Morning FMily. A happy Thursday to each of you. MiMi in NC where it has cooled down a bit. Yesterday is was a nice day.....not as hot as it has been. I do dread the hot and probably dry summer months ahead of us. I had hoped for a nice long spring time that we could enjoy before the hot temps hit. With the weather though no one really ever knows what exactly it might be.
My DH's sister is sick and in the hospital. She decided that she no longer needed to take her medicine. I do not know what she was thinking as she is a diabetic. She went down fast and now she does not know what is going on around her. She is 82 years old. It is sad when people get to this point and really do not understand what is going on with them. We visited her and there were papers there with a list of nursing homes. I hope she can recover from this but it does not look good.
My GS is now wanting to watch Elmo a lot. They had a DVD and OMG....he fusses to watch this all the time. This took place while I was gone. We had been tuning into Bubble Guppies and Mickey Mouse and Olivia....which gave us some variety. I am not use to the DVD either which makes it hard for me to get the cartoon going. My DIL told me to tell my GS that Elmo was sleeping. (well, it worked yesterday). So funny. Little ones can indeed demand things even though they are little.
Welcome to the new members who have joined our support group recently. I am sure that soon each of you will also find something that will improve the way you feel. This does take time and effort to do though as I think we all know we are all different and what works for one may or may not help someone else. The wrath of the dragon is quite different for people which is so odd. I have to think that our body chemistry must be involved.
I do hope new members will indeed check out the info here under *tips* and *resources*....be sure also to read the *member toolbox* and *Dr. P's discussions* where you will find all sorts of good info.
Some of the best *tips* might be *keeping a journal of sorts* to figure out what exactly is going on with us. By keeping track of your activities, pain levels and what you consume each day, (the food and liquid and any vitamins and supplements or prescriptions) might just shed some light on your situation.
I do think that sometimes we, FMers, have no idea what can make or break how we feel. Perhaps you do not drink enough water....which is important for a lot of us. Perhaps it might be something you are eating which triggers certain things. You never know but eventually you will get some sort of pattern when you track what you do.
Have you tried using a heating pad yet? I can tell you this that I use mine daily...and sometimes more than just once.
I also try to keep a *schedule of sorts* which helps as well.
Learning how to pace, pace and pace even more might also make a big difference in the way you feel.
We have to keep on keeping on until we have figured out what works for each of us. We also hope that when you do this that you will share your findings with the FMily here. You never know what might help someone else.
Vitamin D. Be sure and get this checked....as low Vitamin D can cause additional pain for some people and it can also affect other illnesses as well.
That's my story and I'm sticking to it.
My furbabies are fussing at me....they are ready to eat.
Happy Hump Day FMily. MiMi in NC. I know that most of us are aware of just how much *stress* can affect us. Well, my stress level is not good at all. I have contacted my bank several times now about the 8 charges which were made on my account while I was away. It seems though that they need to take their sweet time to put the money back into my account. The odd thing is that the money was put back and then withdrawn again. Don't understand this at all. Not many people these days can afford to have money taken out of their account that is not accounted for. I spoke to someone at wally world who told me that they do NOT check people's id every time a purchase is made with a credit or debit card. So I guess anyone can do about anything these days with someone else's info. What is odd that there were 2 stores involved - 7 charges at one and 1 charge at another store. I was also told that sometimes an account number is punched into the register *without the card*. I had no idea this was allowed. So now wally world will be out double the amount of money taken from my account since it seems that the money was used for some sort of other merchandise card....(food or gas, ect) It is sad when people *abuse* things these days. I was also told that they could go back to when the transaction was done and pick out the person(s) who committed the crime. I guess I will learn more about just how things are addressed when something like this takes place.
OK...enough on my soapbox this morning. I do hope each of you had a good, peaceful and restful night's sleep. I also hope that today will be a good day for us all. NC has had some hot weather recently....it seemed like we were skipping over spring time and moving right into summer. We seem to go from one extreme to another.....with nothing in between.
Welcome to the new members who have joined our support group. I am sure that each of you will soon find something that will help you cope better. Feel free to ask questions, make comments and/or suggestions and I am sure someone will get back to you with some good answers. As I think we are all aware that there is *no cure* for this mean and ugly illness that we face each and every day.....but there are things that we can do that will help us cope better....we just have to figure out the right combination of tools and tips which will do this.
Vitamins and supplements sure make a difference for me, along with using other tools as well. A heating pad is one thing that I use daily. I don't quite understand what heat does but it sure helps my pain ease.
Vitamin D. Again I want to add that IF you have not gotten your Vitamin D level checked....then perhaps on your next visit to your doctor you should request this test. It is just a simple blood test BUT you must ASK the doctor to run it. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. I must also add that it does take time and effort to get your Vitamin D level back to within the *normal range and keep it there*.....which is important.
There are still some doctors who do not understand the process of how important this can be.....but I do think word is getting around about this.
Have a great Wednesday and remember to pace, pace and pace some more.......your body will surely thank you for doing this.
Hello Lou.....yes, I also thought it was strange that the man stated he could tell what was wrong with someone just by looking at them.....and then his *excuse* for me was that I had on too much makeup. My DH said when he said this, he knew it was TIME for us to leave. (lol) I think he was hoping I would NOT have a response. (he should have know better though). I think we all know that there is NO CURE....for the wrath of the dragon....IF there was, I guess we would all be cured.
I also wanted to comment about the nursing homes. I always had to be *buzzed* in when I went in after hours....otherwise, they had a *security person* at the door. (I am assuming this was to make sure non of the residents made their way out the door. I know that when my dad came to live with me I ended up having to order new doors so he could not wander off. My children were in HS at the time but they did not watch him all the time. He stayed in his room most of the time anyway but I did NOT want him going outside and getting *lost*.
Morning FMily. OMG*****I think summer has arrived in NC. It was hot yesterday and it is going to be hot again today. High of 87* today.... I am thinking we just might have a hot dry summer. It is weird and strange weather for this time of the year. I don't know what happened to spring time.
I am still trying to recover from being away from home. I woke up too early last night and could not get back to sleep like I wanted to. Lack of sleep is not a good thing for me at all. I had hope the 5HTP would help but I don't think it has made any difference at all.
I am glad to say though that the ginger has indeed made a difference for my stomach issues. I don't understand exactly why this works but I am ok with whatever it does.
I do want to share some info that I thought was interesting. My DH and I attended a seminar to learn more about Chinese Acupuncture. The person who was doing this was actually a man who also teaches it. He was saying that he could look at a person and know what was wrong with them before he even treated them. He also stated that this method of treatment only takes about 4-5 sessions. There was a question session allowed and another person had asked him if he could tell her what was going on with her. He proceeded to tell this woman that she had bags under her eyes which indicated she had kidney problems. He then continued to tell her what else was going on with her. When he finished I decided to ask him about myself. He looked at me and told me that I wore too much make up for him to know. Now this is the odd thing. I have NOT worn any make up for 10 years. I was quite surprised when he said this and I then told him that I did not wear make up. He proceeded then to move on to another topic. I think I surprised him by what I said. I thought this was quite interesting. I guess he had no idea what was going on with me.
I do know that there are several people who have mention this in this group. I was wondering if anyone else has actually tried this method of treatment and what you have experienced too, if you care to share it with us.
Welcome to the new members who have joined our support group. I am sure that each of you will soon find something that will help you cope better. It does take time and effort to figure out what might work. So hang in here with us and let us know what has helped you. We should remember that what works for one may or may not work for another.
Vitamin D. Magnesium. I want to remind everyone that these 2 items just might make a BIG difference in the way you face this illness every day. Again it does take time and effort though for it to make a difference.
That's my story and I'm sticking to it. Have a great day and remember to pace, pace and pace even more. Your body will thank you for doing this.