Morning FMily. MiMi in NC. It looks like we are going to have a nice day....actually yesterday turned out to be quite nice too, although this was NOT what was predicted....Seems like there are a lot of *issues* which do not turn out like everyone expects them to...perhaps some people just expect too much these days....I sometimes wonder exactly who is in charge of what....not sure that anyone knows any more.
Here is hoping each of you had a good peaceful and restful night and I hope we all will have a good Thursday with little to no pain.
I had hoped by now that I would get use to keeping my GS. He is such a sweet little person. But he is very active and it takes a lot of energy to keep up with him. I am so very thankful that he takes a nap every morning. But sometimes they are quite short.
So much going on with different FMers here. I hope things soon improve for each of you. I know just how tough it can be when we have extra stress to deal with. I have been there and done that and know exactly what this is like. Just remember that this too will pass.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find something that will help you cope better. Be sure and check out the info under *tips* and *resources* and read the *member toolbox and check out Dr. P's discussions. (he is no longer with us but he left some good info)
Vitamin D. Again I want to stress that everyone should get their Vitamin D level checked. Low Vitamin D might cause additional pain for some people and it can also affect other illnesses as well. You will never know until you have it checked.
That's my story and I'm sticking to it. Have a good Thursday and remember to drink lots of water and pace, pace and pace even more....your body will thank you.
Happy Hump Day and middle of the month too. MiMi in NC and the weather changed its mind, I guess...since the predictions were kind of scary. Perhaps it went another way....I have no idea. I know last night they were talking about people would probably wake up in the middle of the night due to the storms....well, I did NOT wake up and normally either I wake up or my furbabies wake me up due to any sort of bad weather. They hate the noise. It is raining but it is a quiet rain.
Here is hoping each of you had a good, peaceful and restful night....and I do hope each of us will have a good day, with little to no pain....(hope it is not raining in your corner of the world). I know just how much dampness affects me though.
So many concerns about the Ebola and how it works. I am not really sure they even know enough to tell the public what should and should NOT happen. I do hope some how someone can get it under control before it gets really bad. Still a lot of questions.
Welcome to the new members who have joined our support group. I am sure each of you will soon find something that will help you cope better. It does take a trial and error process to do whatever we find that might help. What works for one may or may not help you. But you never know what it will do until you have tried something.
There are no quick fixes or anything that I am aware which works overnight.....except a heating pad....which works good for me. Normally it takes at least 6-8 weeks of *feeling the full potential* of what one is trying. (especially if you are trying a new prescription or taking vitamins and supplements)
Vitamin D. Be sure and ask your doctor to check this for you. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. I would also suggest that you do your own research about Vitamin D.....as there is a lot of info on this.
Eating right and drinking plenty of water each day is also important. Doing some sort of *gentle exercising and / or stretching also might help. We, FMers. must keep on moving, even if it is slow. Laying around only makes our pain worse.
That's my story and I'm sticking to it.
Remember to pace, pace and pace even more....(another good tip)
Hello ....sorry you are not feeling better today....MiMi in NC and I am not feeling good either....it is damp here with more rain expected. Not exactly the type of weather that is good for me.
Getting disability is NOT an easy thing to do.....or so I have read about many people having problems. I do think our system is badly broken. It is should NOT be this way....for people who have worked and is no longer able to do so. You do not say how long you have worked or what you do. I think one has to have so many years to actually qualify for SSD. 10 years maybe or 40 quarters maybe....I am not sure about this though. It would be in your favor if your doctor supports the decision. I don't know if you have any sort of disability benefits....short term and/or long term disability. Some companies provide this and some do not. You do not say how much your illness has caused you to miss work. So there are lots of *things* to consider.
Most people apply and a lot of them are denied....this is the *normal process* though or so it seems. Of course, they do not want to allow people to draw disability....so they would, or course, deny most. My DH had cancer and the doctors did NOT think he would survive and explained to me that I needed to look into helping him with his paperwork. He was denied as well. He eventually got approved and used it for a short time. He is a cancer survivor and was able to return to work. (thanks to GOD for this miracle and to the wonderful doctors and nurses who cared for him).
You can get some good info online about getting disability. I have read that it is easier for people who are at least 50 years old. Not sure though that it is. I was past this age when I applied and it took me several years before I was approved. I also had long term disability insurance which I was cheated out of.....I paid for this through my employer.
I hope this answers some of the questions that you might have about this. I also know that if something happens there use to be a *window of time* to get disability....from the time you are no longer able to work it use to be 5 years. I don't know if this is still in place or not. I also know that when people who are on disability get to retirement age, nothing changes with their benefits....for the most part.
Nothing is easy these days and especially for those who have health issues.
Hello Nana B. Thoughts and prayers being sent to both you and your DH. I hope and pray that all goes well with this procedure and that his recovery will be quick and easy....(if this is possible). I do hope you will also be comforted during this time. I can not even imagine how stressful this might be on you.
We hae to always prepare for the worse and hope for the best. I guess this is what most people always do. So much at stake when any sort of surgery is involved....no matter what kind. There are times when we just have to turn things over to GOD and let it be....since it is out of our control anyway. This is not always an easy thing to do though.
Please post when you can and let us know how things went.
Morning FMily. MiMi in NC and it is raining again..... storms are predicted in some places. Not a good thing at all. My furbabies do NOT like any sort of bad weather either. I think it is the noise that bothers them the most. I sure hope things do not get as bad as they say it might.
Here is hoping everyone had a peaceful and restful night and I hope we will all have a good day with little to no pain.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find something that will help you cope better. It does take a trial and error process to be able to find the *just right combination of tools* which will make a difference in how you feel. So continue to learn all you can about what others have tried and found that has made a difference for them. You never know what might make a difference for you unless you try it too.
Vitamin D. My favorite tip here. Be sure and ask your doctor to check this. Low Vitamin D can make a difference for a lot of people and it can also affect other illnesses as well
Keeping a journal of sorts might also help new members who are having lots of issues to address....keep up with your pain level, what you eat and drink and the activities you do,....taking any kinds of vitamins and supplements or prescriptions. This is a good way to track a pattern of what might be something that you can change and make a huge difference in the way you feel. Drinking lots of water each day is something simple for anyone to do....doing gentle exercises or stretching might also help you as well....*gentle* being the word to keep in mind.
That's my story and I'm sticking to it. Remember to pace, pace and pace even more....(another good tool)
Morning FMily and a Good Monday to each of you...Well I had issues with my computer yesterday and was not able to do a lot of anything. We had showers off and on Saturday. I am hoping it will be nice today but it is predicted that more rain is on the way. Sometime about the rain that my body does not like.
Saturday DH decided to take me for a *pork chop sandwich*.....we go even now and then to Snappy's to get one. We arrived and the town was over run with people everywhere. We had no idea that it was a fall festival.....thousands of people and all sorts of vendors trying to sell whatever.....this was NOT exactly my cup of tea. I can just imagine all of the *germs* everywhere. Anyway....we did get our sandwich and actually did a little bit looking as we made it back to where we parked. It was a nice trip even though we had showers there as well.
I found a deal on some *summer hats* and a camera bag as well. I am glad that I found these things and at a deal too.
Sunday was a quiet day for me. Not a lot going on and I only had 2 of my children here since one was out of town. We had a nice lunch of chicken, potatoes and snap peas...it was simple and good.
Here is hoping each of you had a good week-end as well and I hope you had a nice peaceful and restful night as well....I hope we will all have a good Monday with little to no pain.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find something or a combination of tools which will make a difference in how you feel. There are NO magic pills or quick fixes that I am aware of but there are lots of good tools you can try that just might work to allow you to manage your pain better. This does take a trial and error process which does take time and effort.....you have to try different tools to know whether or not they will work. Some work and some don't.
Vitamin D. Be sure and ask your doctor to check this for you. Low Vitamin D seems to be a common issue that a lot of people have these days and most don't even know about it. Low Vitamin D can cause some of us to have additional pain and it can also affect other illnesses as well. This is also such a quick and easy fix and quite cheap too. It can take a long time though to get your level back to within the *normal range and keep it there*.
That's my story and I'm sticking to it.
Have a good Monday and remember to pace, pace and pace even more. Your body will thank you for doing this.
Hello and welcome. MiMi in NC. So the other 2 doctors that you saw *hinted* that they did not think you have fibro....so what are their thoughts then? Did they tell you?
You know from all of the doctors you have seen and tests they have done.....you could have gotten the FM test ....which is a blood test that would verify whether or not it is Fibro. It is expensive and insurance companies do not pay of it yet.....but it does provide patients with results.
I will say though that I had many of the same symptoms that you had. With time and finding other tools which help....mine got better.....I have learned how to *control my FM pain* but have found nothing to help the fatigue. I am still looking. In the beginning I tried different kinds of medicines but did not find anything which really helped me without causing side effects. Everything is a process with us FMers though...what works for one may or may not work for someone else. Only you will know when you have found something that works for you.
Actually I am quite surprised that you have been provided with pain pills....as research indicates doctor do not like to give pain pills to people who have this illness....as pain pills are for people with short term illnesses....not chronic ones.
Some of us also have multiple health issues as well....so perhaps you are dealing with more than just fibro.
I hope you will check out the info here under *tips* and *resources* and be sure and review the *member toolbox* and Dr. P's discussions....there are lots of good *tools* which perhaps you have not thought of trying yet.
Getting enough sleep at night is really important....and keeping our stress levels low is also important. It does take time to find what might work for someone though....so continue to learn all you can about what others have found that has made a difference for them. You never know what may or may not work for you until you have tried different tools. It normally takes at least 6-8 weeks for our bodies to actually *feel* a difference.
Hello Cory....you might also get your doctor to check with your insurance to make sure the shots will be covered. I know that they did for me. I only had to pay the co pay on them. When I took them I had to get 3 - 7 days apart...but now I have read that these have been reduced to just one....but I think it is a larger dosage.
They have also improved the joint supplements as well. It took me trying several different kinds before I found one that helped me as well. I take the Osteo Bi Flex...I use to take the pink label but they have just recently changed the boxes again....so now I take the orange....which is close to what the pink label had.
I am glad Buster is better. I know I had a scare when my dog had surgery as well....but he pulled through just fine....I was on vacation and thought it would be ok....perhaps I will NOT do this again.....since things could have gotten worse. I was not thinking at the time. Buster got his Vitamin D today then.....I guess, if there was sunshine.....which is probably good for them too.
Hello Cory....sorry that you are getting stressed....which I think we all know what stress does to us FMers....Stress is NOT our friend at all. I do hope things get better soon.
Yes, I think a lot of us know exactly how you feel. I had plans to do things differently in my life too....I think we all want better things....but then without knowing what is waiting for us around the corner....one never knows what may or may not happen. If only we could predict what we might be faced with. I know that I would have, could have and should have changed many things in my life....but it is all water under the dam now. Too little, too late.
I do know that having *peace of mind* means a lot, especially when you get older.....with the economy the way it is, one never knows these days. A person can NOT really count on anything these days....which is hard for a lot of people to understand. I happen to know how quick things can change.....as they have in the past few years or so.
Back in the 70's things were so much better in some ways and not so much in other ways....but as time passed, things got worse. I do not think anything will bounce back to what it was like....with knowing that a person can always depend on certain things.
I think we all wish we had a chance to go back and do things in a different way sometimes. I am thankful that my 3 children were good kids, graduated, went and graduated from college and married. I had hope that things would work out with all of the things that an adult faces.....but that did not happen. Nothing I could do would change it anyway. We can just hope and pray for the best and then let GOD take care of the rest.
Having good health is so important....and when you don't then there can be a lot of things to consider.
Have you tried the synvisc shots yets for your knees? I know that they have worked wonders for me in the past. I also take joint supplements as well.
Take care and I hope your dog is recovering nicely.
Hello satel....MiMi in NC. I wanted to share something with you. I do NOT know where you are located or IF you are close to a Sams or even a member to them. But I did want to say that they have (or had) some gel cushions.....I looked at them first and they are not expensive ($20) and finally I decided to get one. They are quite comfortable in the vehicle. I have been using a *chair cushion and a pillow (for my back) anyway...but these gel cushions seemed to be better. I am glad that I decided to get one. My DH drives a truck to work and we do most of our running around in it as well. So if you have a Sams you might want to check the cushions out. ( or you might be able to go online and order one>?)
I am sure you will soon find some good *tools* to cope better. As for telling you employer....my opinion is NO, not until you think you have no other choice.
Ask your doctor to check your Vitamin D level as soon as possible. You might have low Vitamin D which seems to be a *common issue for a lot of people these days*. This is just a simple blood test BUT you must ASK them to run it, as it is not included in the *normal blood work* that the doctors do.....(I still do NOT understand this since Vitamin D is so important)....who makes the rules anyway for what to include ?
You might also try the Stopain Spray as well. (you can get it at walmart or most any drug store - for just under $10 - you might also find a coupon for it online as well)...it is good stuff.
Take care and I hope you will continue to post and let us know how things are going with you.