Actually it is *form of advertisements which are NOT allowed*....I don't think just *sharing* what you try is a problem....but using the info trying to sell something is and also we can NOT use Doctors names either...as referring them.
I think a lot of us still talk about Dr. P....who was on board with this group for a short time. Dr. P not only treats patients BUT he also lives with FM as well. He truly understood exactly what we, FMers, are faced with.
Thanks for letting us know what has helped you. I think I know what the Boost is....which is a sort of *energy drink* which has caffeine in it. The others I have not heard of. I am assuming the *shield* reduces the acid in the body...which I do think is a HUGE problem for a lot of people these days. I noticed it said alkaline formula. I am not sure what the peak is for but it says adaptogen....whatever this means.
I am glad though that you have found the *just right combination* of *tools* which has made a difference for you. I know that I have learned how to *control my FM pain* by taking vitamins and supplements and using other tools as well....but I have not found anything which has helped with my *chronic fatigue*....I don't do caffeine though..
Love my picture!!!!!! Yes, this is my little *stinker*....he is such a joy. So very sweet. MiMi in NC....and I had to put up a new picture of him. Here is hoping everyone had a good peaceful and restful night and I hope today will be a better day for us all.
So much happening everywhere. Or perhaps we just hear more about *issues* these days....due to our *modern day technology*. OMG....things sure have changed in the past few years and I have a feeling this will just continue. Now we have TVs which will *record* what is going on in our private residence. I have to wonder what else might be going on that we, the people, are not aware of. Who would have thought ?
Welcome to the new members who have joined our support group recently. Yes, this is a good place to learn about the wrath of the dragon, aka FM.....and what others have found that has made a difference in the way they cope each and every day.
We, FMers, must keep on keeping on....until we find what works for us as well.
I know that I am one here who relies on vitamins and supplements and other *tools* as well. And this has allowed me to *control my FM pain*.
Vitamin D. Yes.....this is really something that I include in most of my posts. So very important. Ask your doctor about getting this checked as soon as possible. You might be quite surprised. Low Vitamin D can cause additional pain and it can also affect other illnesses as well.
That's my story and I'm sticking to it.
Did you get a lottery ticket yet ? Someone is going to become rich. Can't win though UNLESS you have a ticket.
Have a great Wednesday and remember to pace, pace and pace even more. This does the body good.
Hello and welcome itsmyifeuk....and welcome. MiMi in NC. So you have found something, well several things, that has made a HUGE difference in your life. Even though you are in the UK which I am assuming the products might NOT be is the USA....can you *share* what you are taking with our support group ?
This is actually what we do here. We reach out and try to help people cope better. You indicate that it is ONLY marketed as a nutritional supplement. I am sure there are others here who would like to know what you tried that worked so well with you.
Again....I am so glad that you have found something. It does take time and effort, along with doing a trial and error process to find what combination works and actually makes a difference for them.
Good luck with this and I hope you can and will share your info.
Morning FMily. MiMi in NC. Well, it rained Monday here. I think it was actually a surprise to most. Damp weather is NOT a good thing for most. I wondered about this though as my DH took his truck and washed it Sunday afternoon. I asked him IF it was suppose to rain and he said no he did not think so. The truck needed washing as it had something on it but it did NOT get clean. So I guess that money was just wasted. DH thought it was something that was put on the roads due to bad weather. We have had slick spots off and on some but actually no snow in my area. I will NOT be disappointed if I don't see any of the white stuff at all.
So I kept my GS yesterday and he has a cough and a cold and was sneezing as well. Not a good thing at all. We had fun though and looked at lots of books. I think he knows that MiMi does whatever he wants to do. He is such a sweet book. So full of energy....always on the go. He will sit for seconds to look at his books and then he goes on to something else. He is trying to tell me he wants to look at *bubble guppies*....he has the *bubble*. He also throws me kisses. He got a BIG pairs of sunglasses and tried to put them on yesterday....so cute. They were bigger than he was. He is quite a mess.
Here is hoping each of you had a good night's rest.....and I hope today will be a good day for us all, with little to no pain.
Welcome to the new members. I continue to see a few new names....so sorry that you have been forced to find some support. It is so important though to learn all you can about how to deal with this illness. It does take time and effort though as there are no quick fixes. What helps one may or may not help another person. You have to find what works for you. Sometimes it is the little things that count the most though.
Be sure and do some research on Vitamin D and just how important it just might be for a lot of people these days. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. You never know if it just might make a difference for you. I do know that getting my level back to within the *normal level and keeping it there* has not been an easy thing for me. I can normally tell though especially when my fingernails start breaking.
It seems like some areas are getting even more snow again. I read where people's roofs are caving in with so much weight from the snow on it. It is interesting just how much snow can weigh and make a difference. I can NOT even imagine how hard this would be to deal with so much snow. I am sure there are people who are sick of it already.
I do hope these people can stay safe and warm.
Have a good Tuesday and remember to pace, pace and pace even more.
Morning FMily. MiMi in NC. We had a nice week-end in NC....for a wonderful change. The weather was really nice....almost springlike temps. I am so ready for this kind of weather. I know spring time is getting closer. I am sure soon it will be too hot.
My GS had a fun time with his family and friends at his laser party. It lasted 2 hours and they got to do the laser game several times. Even my youngest GS joined in to the action. My DH took him back so he could see what was going on.
I do hope each of you had a good week-end as well. I hope those of you who still have lots of snow to deal with and more on the way.....that things will get better soon. I am glad NC has not gotten much so far. It is strange just how the weather changes from winter to winter.
Not much going on here. I am back to keeping my sweet GS this week. He is cutting teeth again and has had some problems. I sure did miss him last week as I was trying to get myself better. Saturday I took Advil cold and sinus capsules which has helped me finally get better.....or maybe it just ran its course. I kept feeling so stopped up and had problems with trying to breathe through my nose. I am now so much better after taking several doses.
Welcome to the new members who have joined our support group recently. I am sure that you will find lots of good info here. There are no cures for FM.....only *tools* which will help one cope better. No matter what someone tells you....for now....we are stuck with trying to find what will make a difference for us each and every day of our journey with this illness. We, FMers, must keep on keeping on....until we find this.
Vitamin D. Be sure and ask your doctor to check this. It is just a simple blood test BUT you must ASK the doctor to check it. This can also take time and effort to get your level back to *within the normal range and keep it there*. It seems that some of us have problems trying to do this.
Have a good Monday and remember to pace, pace and pace even more.
Hello and welcome....sorry to hear that your daughter is dealing with FM. MiMi in NC. I would encourage you to have her talk to her doctor about getting her Vitamin D level checked. Low Vitamin D can cause some people to have *additional pain* and it can also affect other illnesses as well. I would also encourage her to do some research as to just how important Vitamin D is, especially for people who have chronic illnesses.
Some of the things that just might make a difference for her is drinking lots of water every day. Learning how to pace, pace and pace even more is really important as well. Using a heating pad might also provide your daughter with some relief. I have found that using one on the back of my neck helps ease my pain, no matter where it is.
Getting enough sleep at night is also important. Lack of sleep causes more pain for us. If she is not sleeping good at night, perhaps she should try to take a hot shower using lavender bath salts so that she can rest better. Some also get a foam mattress topper to put on her bed, which just might help her as well.
This are just a few *tools* that she might start with. Check out the info here under *tips* and *resources*....be sure and read the *member toolbox* and *Dr. P's discussions* as well. (he is no longer with us but he left some really good info for members to refer to)
I think it is really very thoughtful of you to try to find your daughter help. I would also encourage you to learn all you can about FM and just how others have found *tools* which might help. Most people have no clue how this mean and ugly illness can affect their lives. Even doctors do not understand it.
It does take time and effort to find the *right combination of tools* which will make a difference for her. She must decide and should allow herself time for whatever she tries for it to work. It normally takes at least 6-8 weeks for whatever she is trying for her to actually *feel* a difference.
I hope you will also encourage her to check out this support group....we have some really good people here who will give her some good advice on lots of things.
Morning FMily. MiMi in NC and it is going to be in the 60's today. I am so glad to see this warmer weather. I am happy since my GS is having his party today. They are all going to meet at the laser place. I got him a birthday cake for the occasion and I think they are having pizza there. They will have lots of fun as he also did this last year.
I hope each of you had a good restful and peaceful night and I hope today will be a good day for us all.
I saw this morning that the New England area is getting ready for more snow....and there is no where for it to go. OMG. I can not even imagine. I am sure these people are looking forward to having warmer weather. I can not even imagine how people can deal with so much snow....with no breaks from it at all. I think I would be trying to find another warmer place to move to.
Welcome to the new members who have joined our support group recently. This is a good place to learn more about FM and how other people cope. Please check out the info here under *tips* and *resources*....*member toolbox* and *Dr. P's discussions* too. (he is no longer here but left some good info)
It seems that the board has been very slow for a while now. I hope that this means those who have not posted are feeling ok and doing other things. I do hope those of you who are having difficult times are doing better too. It does seem that at times new members join and then disappear for a while. I do think everyone needs a break at times.
For new members I do encourage you to ask your doctor to check your Vitamin D level which just might make a difference in the way you feel. Low Vitamin D can cause additional pain and it can also affect other illnesses as well. This seems to be a common issue for lots of people these days. I am thinking people just don't get out in the sunshine enough to absorb the natural Vitamin D that the body needs. Perhaps there is a reason that we can not get enough of this important hormone. Yes, Vitamin D is actually a hormone.
Have a good Sunday and remember to pace, pace and pace even more.
Hello jansok and welcome. MiMi in NC. Have you asked your doctor to check your Vitamin D level yet ? IF not, then I would encourage you to do this as soon as possible. Low Vitamin D can cause some people to have additional pain and this can also affect other illnesses too.
I have been dealing with this illness in the worse way since 2004.....I also had other health issues as well....but my doctor thought that I was just depressed. I tried different kinds of medications in the beginning but NOTHING really helped me. I would take something and have side effects from taking it. I ended up having words with my doctor and we finally got down to addressing the other health issues and eventually my pain eased. It took time and effort though and me figuring out just what my body needed for me to get to this level. Am I painfree....no and I do not expect to be either. But I am so much better now than I was when we first started. This was NOT easy either. You have to do your own *trial and error process* and find the *just right combination of tools* which will work for you.
For me, it is vitamins and supplements, along with doing other things as well.....one of the most important things is learning how to pace, pace and pace even more....and learning to say *NO*....when you are not able to do something. Sounds easy....well it is another process that does take time and effort to learn....as most everything with this illness does.
Drinking plenty of water every day is also helpful.....I drink 98% water each and every day. I also try to watch what I eat and I try to keep myself on a schedule of sorts....getting up and going to bed around the same time every day and night....Sleep is so very important for us FMers....keeping your stress level as low as possible....(this is one I struggle with, probably one of the hardest things to deal with). Stress and pain go hand in hand with me. It creates a vicious cycle.....throw in less sleep and OMG******it can get bad.
Do you have lower back pain, by chance ? You said you have been checked for kidney stones so I am thinking you might have lower back pain....I did also....for a long time. I have kidney stones in both kidneys and I thought that was my problem as well....I now take a P5P which now takes care of the lower back pain I have. P5P is just a Vitamin b 6 processed form so that our body does not have to try to process it. You can find this at a vitamin store. I was told that IF I took one bottle and it did NOT help me then I did not need to waste my money on getting another bottle of it. You can get it for around $11. Do your own research on this.
I also take a multi vitamin with extra Vitamin D, Omegas, Magnesium Malic (found at the vitamin store as well) and a joint supplement. I think these are the ones which help my FM pain. I do take other vitamins as well for other health issues.
I also use a heating pad daily....I have found that using it on the back of my neck area can ease almost any pain any where on my body. I guess this has something to do with the spinal area. You should try this, if you have not already done so.
Taking a hot shower at night, using lavender bath salts or Epsom salts might also help you relax so that you can sleep better, it you have problems sleeping.
I hope you will check out the info here under *tips* and *resources*.....be sure and read the *member toolbox* and *Dr. P's discussions* as well. (he is no longer here but he left us with some really good info). I am sure you will find some other good tools that perhaps you can try.
Morning FMily. It is another cold day in NC. MiMi in NC. Tomorrow though it is supposed to be in the 60's-weird weather to say the very least. In the 50's today... I hope the weather changes do not make people sick. I am still trying to recover from whatever I picked up. I have really been sick this time. I guess my luck ran out. I do think stress had a part to play in me catching whatever I happened to pick up.
Here is hoping each of you had a peaceful and restful night and I hope today will be a good day for us all.
My GS is having his 8th birthday party tomorrow. This will be fun for the children. They are doing a laser party. He also did this last year. Yesterday morning I ordered his birthday cake. I had tried to order it the day before but no one was at the bakery. I guess they were short handed.
I am so ready for warmer weather. I know spring time is getting closer and I am sure it will be hot before we know it and the hot weather is not a good thing either. It is always something to deal with.
Welcome to the new members. I am sure that you will find some good info here that perhaps will allow you to cope better. I think this is what we are all striving to have....less pain and more energy. I have to question though whether the more energy issue is even possible. And being sick does not help this at all either. At least I have taken medicine at night and have slept ok.....which is a blessing.
Vitamin D. Be sure and ask your doctor to check this. I continue to include this in most of my posts as I think it is one of the most important issues that all FMers should address. Low Vitamin D can cause some additional pain for some people and it can also affect other illnesses as well.
Have a great day and I hope those of you who are still dealing with lots of snow that things will get better for you soon. I can not even imagine having to deal with snow for a while. I am glad my area has not had any. I don't miss this part of wintertime at all.