Morning FMily....MiMi in NC and I am glad that Monday has come and gone. It is still cold here and very damp....I had a couple of errands to run yesterday and came back home and found that I had no water. I checked the crawl space and found that a part of a pipe had broken off and water was gushing out everywhere. Called my DH and he was almost home. We cut the water off and I called a plumber. It was about 20 minutes until 5 pm. Did not know IF I could find someone to come out or not. The man who answered said he would be here in about 15 minutes or so. Well, it took longer for him to get here and they did not finish until after 7 last night. I was worried that perhaps they did not know how to repair it....as they left a couple of times to get parts. They broke the light bulb under there and DH had to put another one in so they would have light to do the work. I am just glad that this did NOT happened during the night and knock out my heat as well.
Over the years we had paid many plumbers to do repairs on this house. All of the copper lines have been replaced. This was just a small part of copper which did not get replaced for whatever reason. At least this is the first time, in a long time, that I have had problems with the plumbing. I hope it does not start a chain reaction though. Before something would be repaired putting strength on another *weak area* and start another problem. It is always something to deal with....a house, cars and children/grandchildren.
My DS had to have some electrical work done a couple of months ago. He had a stove finally hooked up and a fan installed in the bedroom. There was a gas stove in the house when he moved there but he did not want to cook on it. I found him a stove and he never had it hooked up.
It was a stressful Monday for me. I am glad we are moving on today. I hope your Monday was better than mine.
I have figured out that any sort of *issues* bring problems. which cause stress. And I think we all know how stress affects us FMers.
Welcome to the new members who have joined our support group recently. I am sure that you will find lots of good information here and support.
Vitamin D....be sure and ask your doctor to check this...if you have not already done this. Low Vitamin D can cause additional pain for some people and it can also affect other illnesses as well.
Try some Stopain Spray, a heating pad and drinking lots of water every day. Taking a hot shower using lavender bath salts right before bedtime might help you get a better night's sleep....just a couple of *tips* that might help new members cope better. You never know what might help you until you have tried them. If something does not work, try something else. Not everything will work for everyone....but you have to decide what does work for you.
That's my story and I'm sticking to it.
Have a great day and remember to pace, pace and pace even more....(another good tool to use).
Hello Kelly.....you can go to the American Fibromyalgia Association (under Resources here) and I think there is a tool which allows people to put their city and state in and get a list of doctors which are in their areas who treat FM. It is sometimes hard to find a good doctor who truly understands this illness and one who knows how to treat us.
I do hope she can find one soon who can provide her with some good care. In the meantime perhaps you should provide her with the link to this support group.....where she just might find a good combination of *tools and tips* that just might help her cope better.
This is indeed a good support group.....as we have people here who truly understand exactly what FMers go through. These people are also very willing to answer any questions and tips that they have learned in dealing with FM.
It is nice of you to care enough about your sil to help her.
Morning FMily....a good morning to each of you. I do hope everyone had a good restful and peaceful week-end and night as well. MiMi in NC where I woke up the first time around 2 am. OMG....I tried to go back to sleep but did not have a good time doing so. Eventually I think I got back to sleep as it was then time to get up. Not a good way to start my week at all....and it is now damp in NC. Just what the body does NOT need as well. It is what it is though. I am sure this too will pass. At least we did have a dry week-end although it was chilly. I am so ready for spring time and warmer weather.
I had thought about making some homemade chicken soup....but did not have a good easy recipe to do so....so we ended up with my DH grilling the chicken and had a salad and baked potato with it.....pretty tasty lunch. I had vegetables left over so I marinated them for later.
Welcome to the new members who have joined our support group recently. I am sure that you will find lots of good info here as well as support. Sometimes it is slow on the week-ends but picks up during the week. I am sure that you will find some good *tools and tips* here as well.
Vitamin D.....my favorite tip and learning how to pace, pace and pace even more is important too. Most anything and everything in dealing with the wrath of the dragon is a process though and it does take time and effort. You have to find what works for you. Not everything works the same for us all. Only you will know what makes a difference for you.
Morning FMily. MiMi in NC and it is cold this morning but again I am so thankful that it is dry still.....(a plus). I do hope each of you had a good peaceful and restful night and I hope today will be a good day for everyone with little to no pain.
My DS is having issues with his heating....not a good time for this at all. They have been in their house now for 8 years and I just found out that they have had problems now with the heating unit almost the entire time. (I did not know about this). I am thinking the unit was a lemon to begin with. Wish I had known about this a long time ago. DS has someone who is going to take a closer look at it Monday to see IF it can be fixed. With little children though it is a must that something gets done right away. It is always something to deal with when a person has a house, car and children. I am hoping it can be fixed until something else can be worked out on this. Nothing beats a Trane....it took us a long time to figure this out as well.
This past summer I had to have the inside of my unit replaced and my house has NEVER been as warm as it is now. I guess there were problems with mine as well and I just did not realize it. The parts were provided though on it and I had to pay for it being installed. (my unit was old).
Welcome to the new members who have joined our support group. I am sure that each of you will find lots of good info here. Be sure and check out the *tips* and *resources*....member toolbox and Dr. P's discussions as well.
This is a wonderful group of people who share what they know about dealing with the wrath of the dragon and what they have found that has made a difference for them. Of course you have to do your own *trial and error process* to figure out just what your combination of tools will be that will help you cope better. Not everything which helps one person will help someone else. Only you will know when you have found what works for you.
I do think though that the weather does affect all of us in one way or another. I know that damp and cold sure affects me a lot. I am so ready for spring time and I hope it arrives early this year. Getting out and soaking in some sunshine sure helps the body feel better. Vitamin D is indeed important to me. I only wish I could enjoy more of this in the winter time.
My daughter thinks that she benefits more with sunshine than she does with taking the supplements....which I am sure can be correct.
Have a great day and remember to pace, pace and pace even more.....your body will thank you for doing this.
Hello dawn and welcome....MiMi in NC. I hope you will check out the info here under *tips* and *resources*....be sure and also read *the member toolbox* and Dr. P's discussions....as there is a lot of good *tools and tips* provided. Some things are *simple*, others not as much.
We, FMers, must keep on keeping on....until we find the right combination of tools and tips that make a difference in how we feel. No, this is not always an easy task for any of us....but we have to figure it out in order to move on with our lives. You will have good days and not too good ones as well....but we have to remember that *this too will pass*....learning how to pace, pace and pace even more is a good start for most of us. Sounds easy, doesn't it? Well, it's not. We have to figure out just when to stop before we *cross our line*....so to speak. When you do this, you will surely pay for it, every time.
It is so easy to start a task and get so wrapped up in doing something, that we, too, forget that we need to stop and take a break. Most of the time we have to STOP...and sometimes it is too little, too late....we have passed the point of where we should have stopped by this time. And then we have put ourselves in a bad position as well. Not a good thing to do at all.
Eventually you will figure this out though, with time and effort. Listen to your body, it will tell you....but you must be in tune in order to know. So many times we forget that we are dealing with a very ugly and mean illness.
Vitamin D.....have you asked your doctor to check yours yet? IF not, then perhaps you should on your next visit. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. It requires just a simple blood test BUT you must ASK the doctor to check it, as it is NOT included in the *normal blood work that they do*....( I still do NOT understand WHY)....we have to keep tabs on things which can and does affect our health.
If you find you do have low Vitamin D, then I would suggest that you do some research on this as well. Some doctors still do NOT get how to instruct patients to get this back to within the normal range. This does take time and effort. I know that it took me over a year before mine got to the *low end of normal*.
OK....so you have 2 kinds of FM ? Can you please share more info about this with us ?
Hello JR....you are so right....one NEVER knows what may or may NOT help UNTIL they have tried it...and even then it might take a time or 2 for whatever you are trying for it to really make a difference.
I wanted to say I don't do baths either....I shower instead....I have 2 bad knees so taking a bath is NOT an option for me....so I just stop up the drain and put the salts under the faucet and they absorb into the water....and somehow it makes a HUGE difference for me. I don't exactly understand some of the *tools* that I use....but it really doesn't matter as long as it helps.
I did want to say that I did NOT think the creams would make a difference either....but for some reason, they do. I bought them when they were on sale, just to try....I now wish I had gotten more. One never knows though what will work or NOT. I will now be watching and waiting for another sale. The creams have eucalyptus spearmint in one and eucalyptus tea in the stress relief ones and lavender chamomile in the sleep one. The energy one has orange ginger in it. This was the first time that I tried them as well.
Thanks for sharing your experience with *Epsom salts though*....perhaps others will give it a try as well.
You are so right that sometimes we, FMers, failed to try the *simple remedies* that just might make a huge difference for us.
Morning FMily....MiMi in NC where it is still very cold. I am so thankful though that it is dry. I don't miss the *S* word at all. I do not like when it is damp along with being cold as well. It sure messes with my body in a bad way. This week I could feel the pain in my little finger that I broke last summer. Not a good thing at all.
I do hope each of you had a good restful and peaceful night though....and I hope today we will have a good day with little to no pain.
DH and I will go watch our GD play basketball this morning. She is quite a tomboy and loves sports. She rides skateboards and is really good at a lot of things that most girls don't have an interest in. I have to laugh sometimes.....she is my only GD and she is a tomboy. It is what it is though and I can do nothing to change this. My DD was just the opposite when she was growing up. She loved to dress up and she took dancing. She also attended a model class where she learned how to put on make up and fix her hair and be a very poised your woman. (this was perhaps the best money I spent)
Welcome to the new members who have joined our support group. I am sad that you have been forced to find a support group...but I am also very glad that you have found this site. I am sure you will find lots of good info here on this user friendly site and lots of good support from other FMers who do understand exactly what you are going through. Everything is a process though and it does take time and effort to find what might work and make a difference in the way you feel and cope with the wrath of the dragon, aka FM. Be sure and check out the info here under *tips* and *resources*.....the *member toolbox* and Dr. P's discussions.
You should also remember too that what helps one person may or may not make a difference for you....as it normally takes a *combination of tools* which will do some good. We are not here to say that you will be painfree....as I doubt you will....but you will indeed find lots of good info that perhaps will indeed make things better for you. You should NOT expect something to work overnight....as this too is a process and takes time for your body to adjust to whatever you are trying. Vitamins and supplements or prescriptions can take as long as 6-8 weeks to change the *chemical make up in your body* so that you can actually *feel a difference*....yes, this can be a long time, especially when you are in pain.
Using a heating pad is probably the best *quick method to get some relief*....I know that I have found that whatever is hurting I can use my heating pad on the back of my neck area and get some relief.
Taking a hot shower at night right before going to sleep can also make a difference in the way I feel....using lavender bath salts and/or Epsom salts might also help. Stopain Spray is something good to use as well. You can get some for around $10.
Having a good attitude is certainly a good thing as well....sometimes this is very hard as well though, especially when you do NOT feel your best. Distraction can be a good thing as well. Find something to do that you will enjoy....perhaps reading a good book or watching a good movie or listening to music....or just taking a walk. (get some of the natural Vitamin D that we need) Change of pace and scenery might also help. Do whatever it takes to take your mind off of the way you feel. Remember also that things will get better, with time. This too will pass. Tomorrow will be a better day, hopefully.
Drinking plenty of water might also help as well. Eating right and keeping some sort of schedule might also help. Learning how to pace, pace and pace even more is a good start for us all.
Remember too that everything is a process which does take time and effort to do.....there is nothing quick about dealing with the wrath of the dragon, aka FM. As Nana B would say....*you have to learn to dance with the dragon, instead of draggin the dragon*.
Hello and welcome. MiMi in NC. It is really hard to understand the wrath of the dragon, aka FM.....mostly because the majority of us, FMers, DO NOT LOOK SICK. Yes, for the most part, NO ONE understands what we go through, even the doctors have no clue....unless they are like Dr. P (who by the way is no longer here)....who faced this illness every day, like we do.
It is really a very mean and ugly illness. It is sad that those we love do not understand or have any idea just how our life changes once we get sick.
Have you tried seeing if your DH (husband) will go with you to the doctor ? Perhaps IF he hears what the doctor tells you, then perhaps he can understand better what is going on. Maybe, maybe not. Perhaps you should allow him to read some of our posts here and see that there are others here who are in the same boat....that this illness is REAL and that it is really hard on *millions* of people...yes, that is right....there are millions of us FMers who suffer every day from FM.
I hope you will check out the info here under *tips* and *resources*....be sure and read the *member toolbox* and Dr. P's discussions too.....you will find lots of *tools* to try and hopefully something will help you cope better. There is NO CURE for FM....but certainly a lot of tools which might make a difference in the way you feel.
Learning how to pace, pace and pace even more might be a good way to start. Sounds easy doesn't it ? Well, it isn't....BUT it is a good place to start. Everything we do is a process, which takes time and effort....it is a learning process in the beginning. Our lives are turned upside down and every thing else as well. No, there is nothing easy about dealing with the wrath of the dragon, aka FM.
Did your doctor check your Vitamin D level yet ? If NOT, then the next time you see the doctor....you probably want to get this simple blood test done.....it is so important to a lot of people these days. Low Vitamin D can cause some people to have additional pain and as you already know, we, FMers, do NOT need any more pain to deal with.
I am glad that you found something that has helped you. Sometimes, medicines will help for a while and then for whatever reason, they just stop. Don't be surprised if this happens. There are all kinds of *tools* though that you can use that just might make a difference in the way you feel.
I am one of the FMers here who has found that I can *control my FM pain by taking vitamins and supplements and doing other things as well*....I tried medicines in the beginning but did NOT find anything which really helped me without causing side effects and I did not need anything else to deal with. So I did my own research and figured out what my body needs that has helped me cope better. No, I am not painfree and I have NOT found anything that has helped the chronic fatigue....but I am so much better now than I was in the beginning.
A heating pad does *wonders* for my body. I have found that I can use one behind my neck area and whatever pain I am having, will settle down. I think this is due to the spinal area and the nerves there. You should try this as it is an easy tool to use.
Doing gentle stretches and/or exercises also help....gentle being the word here. When you feel as though you can NOT get up out of bed, you should get up any way....moving helps us not to get so stiff. Yes....I know sometimes this is hard but trust me, the more we move the better off we are.....no matter how you feel when doing this.
Getting right and getting enough sleep is also important too. Drinking lots of water also is important. We must learn to *pamper ourselves* especially when we are not feeling as good as we would like.
You might also try some Stopain Spray....as it is good stuff to use on places which will not stop hurting. I use this on my hips, wrists and knees mostly....and especially when the weather is not good.
TGIF****MiMi in NC and it is still very COLD....but warmer than it was yesterday. The high will be above freezing at 39*....I think on Monday we might get back in the 40's again. I am so ready for warmer weather....I guess most of us are indeed ready for spring.
Here is hoping everyone had a good peaceful and restful night. I slept ok but woke up too early....around 3 am. I was able to drift back to sleep but I am really very tired this morning. Not a good thing at all. I don't get enough sleep at one time for it to do my body good.
Welcome to the new members who have joined our support group. I am sure you will find lots of good information here that can possibly make a difference in the way you cope with the wrath of the dragon, aka FM.
I have discovered some good cream from Bath and Body....I purchased some *stress, sleep and energy* creams during the holidays. I got them on sale and thought I would give them a try just to see if they made a difference. I do wish I had bought several tubs to them. So far though I am pleased. Has anyone else tried these creams?
I do hope the new members will check out the info here under *tips* and *resources*....also review the *member toolbox* and Dr. P's discussions as well. (he is no longer with us but he left us with some good discussions on the wrath of the dragon, aka FM - he truly understands as he not only helps patients, he also faces this illness himself each and every day).
Vitamin D. Again I want to mention to anyone who has NOT yet asked their doctor to check this....to do so as soon as you can. Low Vitamin D seems to be a common issue for a lot of people and especially those who have chronic illnesses. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well.
Have a great Friday and remember to pace, pace and pace even more. Your body will certainly thank you for doing this.
Hello desertwind...MiMi in NC. I wanted to ask you if you have a tens unit....perhaps this might be something that you can speak to your therapist about using. I don't know what you have tried but also soaking in Epsom salts might also help you.
Have you tried the Stopain Spray yet? I tell you it is good stuff....as is a heating pad as well. I use mine almost every day....sometimes I use it more than once.
I do hope you can find something that will help you cope better tonight so that you can get the needed sleep that all FMers need. There are nights when I can NOT sleep either....but mine is not always related to pain. There are times when I think my body and my mind do NOT even belong together.