You are right. The research I have done indicates that FM does not cause inflammation....but I do NOT buy this at all. Perhaps it is true. When I first got sick I was having issues with my right hand. I worked in a loan servicing company and was doing lots of computer work. I had test after test, took medicine, went to PT and nothing was helping me. It ended up waking me up at night with my arm to my shoulder being heavy, like it was asleep. They sent me for EMGs and I had carpal tunnel issues. I could not find anything which helped me. I ended up having my first carpal tunnel surgery in July 2004. One thing lead to another. I suffered from multiple health issues although my doctor tried to tell me it was depression. I have had 7 hand surgeries, (2 of which was to repair my wrists where I fell outside and broke them, at different times, thank GOD), right elbow surgery, cervical (neck) surgery, parathyroid surgery and my 4th knee surgery (this was from an accident I had back in the early 80's @ the Atlanta Airport).
I woke up one morning when I was recovering from my first left hand carpal tunnel surgery and thought I was getting the flu. My body ached all over. This never cleared up completely.
When I had my elbow surgery the neurosurgeon told me that my elbow was red, swollen and inflamed....he had never seem anything like it. It took me over 2 years for this to completely heal. I had gotten to the point where my pain was so bad I could not use my right arm at all....I am right handed and I could not lift my arm up at all to do anything. The doctor had no clue what happened to it. I thought at one time the same thing was going to happen to my left elbow...but it cleared up.
I am now though better than I use to be. I have learned how to *control my FM pain by taking vitamins and supplements and using other tools as well*....I have not found anything though that has helped my *chronic fatigue*.....the doctor says there is nothing that will change this. Some days are better than others.
I hope you can find something that will *cure* your body. When and if you do, I hope you will *share the miracle which does this*.
I now sleep in a recliner on pillows.....(not because I like this because this limits my overall pain, especially in my back)....I have had to do this since 2005.
I do know that my Vitamin D level was 12 when the surgeon thought that all of my pain was due to this. (It wasn't as he soon discovered when he did an ultrasound on my parathyroid)
I would continue to learn all you can about this and what others have found that has made a difference for them.
Hello and welcome. MiMi in NC. I read your post and then did some reading on the Polmyalgia which has a lot of symptoms of FM. So did the doctor tell you the difference? I do know that there is a blood test, which is new, that can prove whether or not it is FM...but I have read that it is quite expensive ($700 plus) and the insurance companies will NOT cover it. I think I also read that the doctors do NOT have a way to make sure you have Polmyalgia. (is this correct?)
I do hope though that you will check out the info here under *tips* and *resources* and be sure and read the *member toolbox* too....I am sure you will find something that might help you cope better.
Did the doctor check your Vitamin D level yet? I hope you will ask him to do this, if you have not had it done yet. Low Vitamin D can cause some people additional pain and it can also affect other illnesses as well.
I do know that I have read the steroids help reduce pain levels....but I think this happens with a lot of things.
I hope you will keep us updated on how things are going for you.
Morning FMily. MiMi in NC where it is a bit cooler this morning than it has been and it is suppose to be even cooler this week. It seems like something is up with the weather again. I welcome some cooler temps though.....as it has been quite hot in NC recently.
I hope each of you had a good night's rest and I hope we will all have a good day with little to no pain. I am still having issues with my allergies....which mostly affect my eyes. The Allegra D seems to take care of this though for the most part. It is quite expensive though. I have tried different OTC medicines but they don't work so I end up going back to it.
We are headed to the middle of July....and Hallmark Channel is sharing Christmas programs and there are some places who are having sales as well indicating *Christmas in July sales*. It will be here soon enough for me. Christmas is my favorite time of the year but is sure seems to get here sooner than what I remember when I was younger. I guess it is true that time does pass by quicker as we get older.
Welcome to the new members who have joined our FM support group recently. I am sure that each of you will soon find some good info which will help you cope better. Just knowing there are people who truly understand how you feel and what you are facing each day sometimes helps. Only those of us who deal with this and face the wrath of the dragon knows just how this affects our daily journey.
Vitamin D. I continue to share my favorite tip with this site. I often find new information on Vitamin D and just how important it is to a lot of people these days. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. So please speak to the doctor the next time you are in the office about this. Request that the test be done so you will know just what your level is. And then keep tabs on this at least yearly, more if it is too low.
I have been using *vinegar* recently on places on my body where I have been getting some sores. White vinegar is something that can be used a lot. I also use this on my floors as well. It seems to be something that will work and have no side effects as well. It is good to clean sinks and bathrooms as well. It is a good thing to rinse clothes as well. So many good uses for this.
That my story and I'm sticking to it.
Have a good Saturday and remember to pace, pace and pace some more.
Hello and welcome. MiMi in NC. Have you tried this link? http://www.fmaware.org You need to find a doctor who treats FM. Try the link above and see if they have any listed in or close to where you live.
Having a good doctor who knows how to treat you is really important. Will the doctor have all of the answers? Probably not.
I would also encourage you to ask the doctor to check your Vitamin D level which is important to a lot of people these days. Low Vitamin D can cause additional pain for some people and it can also affect other illnesses as well.
Continue to check out the info here under *tips* and *resources* and be sure and read the *member toolbox* too. I am sure you will find some good *tools and tips* that might help you cope better. We are all different and what works for one may or may not work for another. Only you will know when you have found something that works for you. It does take time and effort to find the *right combination* ....so hang in there and continue to try different things. It normally takes at least 6-9 weeks before you get the full potential of whatever you decide to try. (unless of course what you are doing is making you sicker than you were)
When I first got sick I also thought I was getting the flu. My symptoms of aches never completely went away. I have since found *vitamins and supplements which help control my FM pain but I have not found anything yet which has helped the chronic fatigue*.
You will have some days which are better than others.
TGIF*****yes, it is Friday again. Roll Call for anyone who wants to post. MiMi in NC and I am up too early again this morning. I am dog sitting this week-end for my son's *big* dog....she is good though and behaves well. She has not been here for a while and I wondered if I would have problems with her....but so far so good. I was the one who house trained her when she was small....so I guess she remembers me and we do have a *bond*. When she arrives she *protects* me. She likes to show her teeth to my DH. Funny thing though she belongs to my son. And I know she understands words too. When my little furbabies have to go out, I tell her that the little boy and girl needs to go and she will get up and go outside. She goes out one door and they go out another. I do not keep them together....as she wants to *play*. Her play though it too much for them.
Dogs are great comfort....as well as good company.
Here is hoping each of you had a good night's rest and I hope today will be a good day for us all with little to no pain. I think it is going to be hot and humid here today.
Welcome to the new members who have joined our support group recently. I am sure that each of you will soon find something that will help you cope better.
Vitamin D*****be sure and speak to your doctor about getting this checked...as it just might add pain IF your level is low....Low Vitamin D can also affect other illnesses as well. I would suggest any and all who have not had this done to do some research on Vitamin D and just how important it is to a lot of people these days.
Any and all processes take time and effort to work....so that you actually *feel a difference*...there is no magic pill which works overnight that I am aware of. It normally takes at least 6-9 weeks for our bodies to make a complete change when we start doing something different....this is true with prescriptions and vitamins and supplements too. So hang in there if what you are doing is NOT making you sicker than you were. Time might just make a BIG difference. And IF one thing does not work, then try something else. I know from experience that even vitamins and supplements are not the same. (at least for me)
Have a great day and remember to try to stay cool, drink plenty of water and pace, pace and pace even more....your body will thank you.
Hello Kee and welcome. There must be *something* that you have not tried yet. I do understand and know just how you feel. I think a lot of us FMers here have been there, done that. Actually, I do know what it is like to try to *function* on 2 hours of sleep..as this was exactly what I did for about a year. My doctor was treating me for *depression*. Said this was all that was wrong with me. I continued to try different kinds of medicine which did nothing to help me..most of them allowed me to deal with more than I bargained for (side effects).
I ended up doing my own research and finally figured out some very *important health issues* which my doctor missed. (By the way a lot of doctors do NOT like patients using the internet for this)
I discovered I had parathyroid issues..although my doctor was so positive that I didn't. I ended up telling him one day that I wanted the scan done to *prove* to me that I didn't. Well, to make a long story short, I ended up having parathyroid surgery and my blood calcium level on the day it was done was 88..yes, it should have been 9.2 so it was almost 10 times above what is considered to be *normal*.
I have also had other health issues too. Ended up having Cervical (neck) surgery about 6 months after I had the parathyroid surgery. (something else that I had been dealing with for some time that was *missed*.
OK...so I would like to know IF your doctor has checked your Vitamin D level? Low Vitamin D is common for a lot of people these days and it seems to cause some people to have additional pain and can also affect other illnesses as well.
There is a lot of good *tools and tips* on this site that perhaps you have not tried. A heating pad is one. A hot shower right before bedtime using lavender bath salts is another. Perhaps trying a foam mattress topper for you bed..or if you are like me and have a lot of back problems..then perhaps you might try sleeping in a recliner. I have been since 2005. Do I like this? No, but my body sure does..as I actually sleep on pillows as well.
I had bad lower back pain for over a year..went to several specialists trying to get some answers..no one had any..By a miracle, my daughter heard a local doctor talking about lower back pain and what she had learned at a recent medical seminar..P5P..I did my own research on it and then decided to try it..OMG...within 2 weeks my lower back pain was all but gone. This was last April a year ago. I am still taking this..one capsule every 24 hours. My back *reminds me if I miss a dose*. My doctor asked me if I still had the lower back pain and I told him no, I had found something that took care of it. Told him about taking P5P and he wanted to know what this was. It is sad that sometimes we go to doctor after doctor seeking help and they have no clue what to do for us.
I think it is left up to us to find things which make a difference for us.
We put our thoughts and experiences together and share what we have found that has made a difference for us. What works for some may not work for others. You will never know though until you try.
I am one of the FMers here who has learned how to *control my FM pain* by taking vitamins and supplements and using other tools which make a difference. I am not painfree and never expect to be. There were times when I had no hope..but with time and effort and lots of research and then trial and error processes..I helped make a difference in how I felt.
Drinking lots of water is just a simple thing to do. You might also try this.
Keeping a daily journal for a while might help you track your pain levels and you might figure what you do or don't that makes a difference in your pain level. This is a pain to do but if you have not tried it, then I would suggest you try it for a month or 6 weeks.
We, FMers, have to take charge of our health issues. Only you know how you feel. Even our doctors do NOT always have answers for how to help.
Morning FMily. MiMi in NC...where we finally got some rain yesterday and last night. It rains hard off and on for a while. Don't know that this kind of rain is what we really needed....but it is what we got...sometimes one has no choice in some matters. I guess getting some it better than none. More showers off and on are expected today as well. I got caught out in it and had to drive in the rain which is not one of my favorite things to do. I am glad I was headed home when it started. I thought the rain might help the temps a bit....but don't think it made a lot of difference.
Here is hoping each of you had a good night's rest and I hope we will all have a good day with little to no pain.
Welcome to those of you who have found our support group. I am sure that each of you will soon find something that will allow you to face the wrath of the dragon better each day. It does take time and effort to figure out the *just right combination* that will make a difference....so continue to learn all you can about this illness and what others have found that has helped them cope better.
Vitamin D. I continue to speak out on this, as I consider this to be one of my *better* tips. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. Be sure and speak to your doctor about getting this checked. You should also remember that this just might take a while to get your level back to *within the normal range and keep it where it needs to be*....I know it took me over a year. I continue to think that this is something that our body does not absorb easily and therefore, we have to continue to monitor this.
There is a lot of *good tools and tips* here....be sure and check out all of the information and learn all you can about this illness.
Have a good day and remember to pace, pace and pace some more.
Happy Hump Day - yes, it is here again....the middle of the week. July is passing by quickly. I am looking forward to cooler weather myself. Some days are hotter than others. It is also very dry here as well. We do have thunderstorms some but not much rain...just a little here and there. We need the slow rain for a while...so it will do some good. DH said people who are trying to have a garden really need this.
Yesterday as I was on my computer when it stopped working. I do not know what happened but I tried all that I knew how to do and could not fix it. So I ended up contacting my DD and she walked me through a couple of things which still did nothing. She ended up coming over and got it back up. She did not understand or know what had happened.
Welcome to the new members who have joined our support group. I am sure that you will find some useful info here on how to cope better. It does take a trial and error process though for us to figure out just what will improve the way we feel. This normally takes at least 6-9 weeks of doing whatever you decide to try. Only you will know when you have found the *combination of tools* that works for you.
Vitamin D. Again I do encourage each of you to speak to your doctor about getting this checked, which is important for a lot of people these days. Low Vitamin can cause some people to have additional pain and it can also affect other illnesses as well. If your Vitamin D is indeed low, it will take time also to get this back to within the *normal range* of what it needs to be and keep it there. I think some people must have issues with our bodies being able to absorb what it needs.
I hope each of you had a good night's rest and I hope we all have a good Wednesday, with little to no pain.
Remember to pace, pace and pace some more and try to keep as cool as you can.
Happy Tuesday FMily....and Happy Birthday to my sweet *G*, who is 10 years old. It is hard to believe she is entering the double digit age. (from this time on it will be quite interesting I am sure, to say the very least).
I hope each of you had a good night's rest and I hope we will all have a good day, with little to no pain.
I think summer is back....going to be in the 90's today. It is dry and they are saying we really need some rain. It looks like we just might get some starting tomorrow. But the week-end should be nice again.
I started using my *hot wax* yesterday and it sure has made a big difference in my hand. I can use it better already. I will continue to do this and soaking it as well. I hope it will soon be that I can use it like normal. It is hard to do anything much with one hand.
Welcome to the new members who have joined our support group here. I am sure that each of you will indeed find something soon. It does takes time and effort to find the *just right combination of tools* which will make a difference. We are all different and what works for one may or may not work for you. So just continue to learn all you can about the wrath of the dragon and keep on keeping on until you figure out what helps you cope better. I think we all now know that we, FMers, will never be completely free of pain though. Learning how to stay one foot in front of the *it* though can make things so much better.
Vitamin D....again be sure and speak to your doctor about getting this checked. Low Vitamin D can cause additional pain for a lot of people these days and it can also affect other illnesses as well.
That's my story and I'm sticking to it.
Remember to pace, pace and pace even more. Your body will thank you for doing so.
Morning FMily, MiMi in NC where after a couple of nice days of cooler weather, summer has returned. It will be back in the 90's again today. The cooler weather gave NC a break though. I am looking forward to fall, when hopefully it will be better weather.
I hope everyone had a good long holiday week-end. So many ugly things happened around the country. People sometimes get caught up doing things and perhaps do stupid things. It is sad when this can cause bad things to happen.....when perhaps paying more attention might have prevented a tragedy.
Things happen though that might be out of anyone's control. I guess we are just more aware of so much thanks to our modern day technology.
Here is hoping each of you had a good night's rest and I hope today is a good day for us all with little to no pain.
Tomorrow is my GD'S 10th birthday. She will now be in the stage before the teenage years. I remember this stage with my own children. Times have changed big time though. I am glad I no longer have children at this age to raise and take care of. I do worry still though about my GC.
Welcome to the new members who have joined our support group recently. I have found that the more a person learns about the wrath of the dragon, aka FM, the better we will cope. So I do encourage everyone to learn all you can about this illness.
Vitamin D. Be sure and ask your doctor to check this. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. I continue to include this in most of my posts, as I think it is so very important. We, FMers, should do whatever we can to reduce the pain we have as much as possible.
Have a great Monday and remember to pace, pace and pace even more.