I sent this person an email and she wanted my telephone number to *tell me more*....the post above indicated she is not selling something....but she needs my telephone number to tell me what kind of *new multivitamin and other natural vitamin products* she took. Really?
Hello sue and welcome....Have you tried any joint supplements for your knee pain? I have major issues with both knees also. I take the pink label Osteo Bi Flex which helps me. I take 2 per day. I had an accident back in the early 80's at the Atlanta Airport on the people mover tram. I have had 4 knee surgeries.
Yes, I have also done PT....you should make sure you have someone who knows and understands FM though. So many people do NOT.
You might ask your doctor to check your Vitamin D level too.
Hello Lisa and welcome....sorry that you are having so many health issues. I think a lot of us FMers know and understand though exactly how you feel. It seems like multiple issues hit a lot of us. I think you would be making a wise decision by getting an appointment with a rheumatologist....as they seem to know a lot about FM and how to treat it. I hope you find a good doctor though you can trust and get some help.....which is most important.
As you probably already know, we are difficult patients to treat....what helps one may or may not help another. I think this is the reason doctors have problems with trying to help us.
I would suggest that you ask the doctor to check your Vitamin D level, if you have not already done so. Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well.
My body is also very sensitive to medicines and I now taking vitamins and supplements plus do other things that allows me to *control my pain*. I only did this when I could not find any other medicine that worked for me without causing other side effects. It took me a while though before I found the right combination of tools which works for me. I still have to tweak what I do now.
I am NOT painfree nor do I expect to be....but I am so much better than I was before. I did my own research and then did a trial and error to figure out what would/would not help me cope better. I also have chronic fatigue as well and still have not found anything which has helped this....but I continue to look for things to try.
You have found a good support group here. There is a lot of info also under *tips* and *resources* and be sure and review the *member toolbox* as well.
You should also remember that there are no quick fixes. A person should allow at least 6-8 weeks of doing whatever they decide to try before making a decision as to whether or not what they are doing is making a difference for them....(unless, of course, you are getting sicker than you were before you started).
Learning how to pace, pace and pace even more is a good place to start. Getting enough sleep is also really important. A lot of us FMers have issues with trying to sleep. Eating right and drinking plenty of water is also a good thing to do. If you are having problems with trying to figure out what is not agreeing with you....you might want to keep a journal of your activities, what you eat, your pain levels and the medicine you are taking. This might provide you and your doctor both with what is going on and making a difference.
I hope soon you will find what helps you. Hang in there and know that we do understand and know what you are dealing with right now. Things do get better once you have learned more about the wrath of the dragon, aka FM, and how to cope better.
Hello Mary. I would also encourage you to do some research on the P5P. I know that before I tried it I did some and it was interesting research. Carpal tunnel was something that can be a result of not being able to process the Vitamin B 6 that we need. You have to get it at some Vitamin store but it just might be worth trying. I have been on it since last April and I know just how much it has helped me.
I know just how much hand/wrist pain can affect us doing things. It is no fun at all.
Have you tried the hot wax therapy? I know that when I was having issues and doing physical therapy for mine they did it. I ended up getting a *bowl* at walmart and did my own at home. I did it several times a day when my wrists were hurting so. It just might be worth the time and effort for any one who is having issues.
Hello and welcome....MiMi in NC. Sorry that you are dealing with so much right now. It is true that this condition really changes a person's life. Things can get better though as you learn more about the wrath of the dragon, aka FM....and figure out what might help you cope better. Will you ever be painfree, probably not....but there are certainly *tools* that will help you cope better. I do hope you will check out the info here under *tips* and *resources* and be sure and review the *member toolbox* where you will find some good *tools* that just might make a difference for you.
Since you are 16 I am interested in knowing if you have any idea what *brought your FM to the surface*? Did you have any sickness or trauma which took place in the beginning? Did you just wake up one day and something was wrong?
I am sorry that you are so young and are facing the wrath of the dragon. I am assuming that your doctor has ruled out other illnesses as well.
Did your doctor check your Vitamin D level? If not, then I would encourage you to be sure and ask the doctor to do this. Low Vitamin D can cause additional pain for some people and it can also affect other illnesses as well. It is a simple blood test BUT you normally have to ask the doctor to run it.
Everything with this illness is a process....and it does take time and effort to figure out how to make it better. So hang in here and learn all you can about it. Try whatever you think might help you and allow at least 6 - 8 weeks of whatever you decide to try, unless, of course what you are doing is making you even sicker than you were.
Learning how to pace, pace and pace even more is a good thing to start with....try not to over do or cross the line. Taking a hot shower at night using lavender bath salts which help relax your body so that you can sleep better might also help you. We, FMers, need to get plenty of sleep....a lot of us don't and this can certainly make a difference in how we feel. Eating right and drinking plenty of water each day might also help you as well. Using a heating pad on the places which just refuse to quite hurting might also provide you with some relief. Using Stopain Spray (found at walmart) might help you as well. If you are having problems with getting comfortable when you sleep, you might also try a mattress topper.
These are just a few of the *tools* that you might try.
Hang in here and learn all you can about what others have found that has made a difference for them. Ask questions about things you might want to know. This is a good support group and we are here to share what info we can with others to help make a difference for them.
We do understand how you feel, as we have been there, done that.....so you are NOT ALONE.
Hello Julius and welcome. MiMi in NC....at one time I could not use my right arm/hand and had major pain in my shoulder area all the way down to my fingers....mine turned out to be several discs in the neck area. I did NOT have any neck pain though at the time. I went for a MRI and it revealed that I had major problems there. I ended up having cervical surgery to correct this. When I spoke to the neurosurgeon who did it I asked him how long it would take for my pain to go away and he told me that IF he did his job correctly, that I would get *instant relief*. When he said this I thought to myself....yes, I bet I will.....as I did NOT think this would happen. Well, I am hear to tell you that it did. When I woke up from the surgery, I was really very sick but I did not have any shoulder pain.
I have read horror stories about people who have surgery and come out worse than when they started. But on each and every surgery I have had, I had gotten better, little by little. I have had 7 hand surgeries, elbow surgery, parathyroid surgery, cervical (neck) surgery plus others.
I think it is really important to get the right kind of surgeon to do what needs to be fixed.
I hope you will soon find some relief as I have been through the same thing. I could not wash my hair or brush my teeth when I was having these issues....and I never thought mine might be with my neck....but it was.
I also want to add that I, too, had very bad headaches for several months before I had the surgery. I hardly ever have them now.
Take care and please update us on how things go for you.