Hello Mary....I so agree with you. I think most doctors just do NOT get it though. They DO NOT take us seriously since they have not have to face it each and every day. I think Dr. P is the only doctor who truly understands this and it is because he has to face it every day just like we do. It is sad that more doctors do not have the knowledge of how to help us FMers. I will say this that my doctor did NOT take me seriously until we have confrontation about the parathyroid. From that day forward he has changed how he tries to help me now. I do not like going to doctors in the first place and only go when there is a need. Perhaps this is not good on my part but it is how I have become, whether or not it is best.
I think all of us FMers need a good doctor though as it mays it so much better IF you have someone on your side.
Hello okaynu and welcome. Good info that you shared with us. Yes....sometimes it is indeed possible to *control* when you have to do things. I know though when I was having to go into court with my son I had no choice in the matter and it was at least an hour and a half driving time to one county and over 2 hours to another....which did not help my situation either. It seemed like the closer the date was I got really nervous about the trip. (I hate driving on the interstate anyway, especially so far).
Once I arrived there and so many times I was there for just a very short time....(less than an hour for the most part)....I then had to get back onto the interstate for the drive back.
Once I arrived home I was not in good shape for several days then. Stress does horrible things to us FMers.
You are correct though....we should all remember our spirits....no matter what.
Hello and welcome....MiMi in NC....I have tried ice before also but did not find that it helped me at all. I had my first knee surgery back in the 80's when I got hurt at the Atlanta Airport. I dislocated my knee cap and so far have had 4 knee surgeries on the knee. Back then they encouraged me to use the ice for swelling but I found that ice does not help me at all. I have also heard that using both heat and ice is good as well.
I do know though that what works for one person may or may not work for another.....we are all different so we have to try different tools and figure out what works best for us. It is a good feeling when you have tried something and found just how good it works.
Have you tried Stopain Spray also? This is good stuff and sure does work well for me. I use it after I take a hot shower.
Have you also gotten your Vitamin D level checked? Low Vitamin D can cause additional pain for some of us FMers...and it can also affect other illnesses as well.
Hello Foghorn and welcome.....MiMi in NC.....I am so sorry that you are having to deal with so many issues right now. I do know that pain affects people in different ways.....I have been there done that. Since 2004, I have had knee surgery, 7 hand surgeries, elbow surgery, cervical (neck) surgery and parathyroid surgery. There was a time in my life that I also did not think I would or could ever be better.....but as time passed I did get better.....I was in constant pain for a while and I was unable to use my right hand too. (I am right handed)....I fell twice outside (at different times) and broke each wrist. I wondered what in the world was going to happen to me next. But I will say that falling and breaking my wrist was a blessing in disguise. I ended up having plates and pins to fix the damage that I did to them and so some reason each time my wrist pain from carpal tunnel problems finally *settled down*.....I do not understand exactly how or why but I continued to get better. I never regained my strength in my hands but my pain improved greatly.
Chronic pain can make life really difficult for a lot of people. I know that for a while it did me. When I first got sick my doctor was treating me for depression.....he thought that was all that was wrong with me. I do not quite understand why doctors think most of the time we, women, are just depressed. Anyway..... I tried several different medicines in the beginning but none of them really helped me without causing side effects....and to be quite honest with you....I did not need anything else to deal with.
So I eventually did my own research and figured out what I could take and help myself. It took me a long time but I finally figured out the right combination for me to cope better. No....I am not painfree nor do I expect to be....but I am indeed better than I have been. I now control my FM pain by taking vitamins and supplements and doing other things as well.
In the past few months I have also been dealing with lower back pain. I continue to think that kidney stones is causing the pain since I know that I have them in both kidneys....but the doctor does not seem to think they are the reason of my pain. I can get relief by putting a heating pad on them for a while.....but the pain does return.
I am quite surprised that your doctor decided that you no longer needed your medicine. I do know though that I have done a lot of research on FM and most doctors do prescribe pain pills for any health issue that is chronic. Most pain pills are for short term issues.
I would like to encourage you to be sure and talk to your doctor about getting your Vitamin D level checked....which is important to a lot of people these days. Low Vitamin D can cause additional pain and it can also affect other illnesses as well.
Have you tried taking any vitamins and supplements? This might be an option for you. It does takes at least 6-8 weeks of taking whatever you decide to try before you should make a decision as to whether or not what you are doing is actually helping you cope better.
I do not think any of the 3 options are good ones and I hope that you will find something else that will help you. Life is too short as it is.
Hello ejsti and welcome....MiMi in NC....I am glad that you have decided to post and share what you have found that has helped you cope better. As you might know I am one of the FMers here who believes in Vitamin D and just how important it is to people. It was funny as I was the one who happened to mention it years ago and continued to talk about it. I am sure there were a lot of people who thought I had lost my mind, talking so much about Vitamin D and just how it had helped me. I continued though and actually still remind new members that getting the Vitamin D level is really important.
I do want to share with you that when my Vitamin D was 42 my doctor said mine was still on the *low side* of the normal range. I am not even sure though that doctors agree on what the *average range should be*. I know that I continue to see new articles on the internet about something else that they have discovered about Vitamin D that they were not aware of. I also consider it to be a *miracle pill* as well....as I know just how much it helped my pain.
I have also had bursitis in both hips and had to get injections which helped my pain. I also have bad knees and had to get the synvisc injections several times in both knees. I now take a joint supplement and Omegas, as well and I have not had many problems recently with either. I think both of these have helped the hips and the knees.
I am glad that you posted and shared your findings with all of us. It is good when people post what they have found to work for them. Perhaps someone else will see yours which might also help them decide to do the same thing as well.
I know years ago when I mention on this site the Vitamin D issue and just how important it is.....I think a lot of them thought that I was crazy talking so much about Vitamin D....but I still include it in most of my post years later. This is how important I think that it is. I do know that finally some of the members decided to talk to their doctor about it and were actually surprised when they got their numbers back as well. I have read that 85% of people who gets the Vitamin D level checked, it is low and some are extremely low.
I do hope that you will continue to post and let us hear more about you.
Hello.....MiMi in NC....at night right before bedtime I can take a *hot shower* using lavender bath salts and this eases the pain and allows my muscles to relax too so that I sleep better at night....I am one of the FMers here who sleeps in a recliner....actually it has been since 2005....(not by choice though)...this is one of the *tools* that I have found to help my FM pain...I have a catnapper recliner which I love...it is very comfortable but I also sleep with pillows....so I am sleeping on very soft materials...
You might also try the Stopain Spray.....good stuff, found at Walmart for less than $8....I use this as needed...