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On one hand it was discouraging because everything he had recommended the last visit back fired for me.
The recumbent bike brought on Costochondritis and awful rib pain issues.
The G2 brought back my relux issues.
The med were to expensive to try and even called drug company and they said no.
So now he is making a call to Toledo in Hopes that the specialist there would get me in sooner as I am already on list at a years wait.
My doc was thinking he would have better luck at getting me meds to try?
So now he wants me to attempt walking for 5 minutes and stop and do this everyday for a week.
I walked with mom lastnight just over to my park by my house and it had been so long since I had that HR rose like a quick trigger to 120 at barely do anything and was so dizzy I had to sit down on a bench and regroup but made it back home okay.
This doe smake me see how important exercise is because the longer I had stopped, The harder it is to restart again but I am a fighter and will!
Chronic illness is a pain in the a$$ people, Whether it is FM or Dysautonomia or whatever.
We always have to find ways to keep our spirits up and going forward!
Take Care,
Penny
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You have found a great place to make new friends who just get it!
Feel free to vent when need and seek advice as well.
This can be a frustrating condition at best and I am also dealing with cognitive issues and it can drive ya batty at times!
NO you our not alone and that does help a lot!
Take Care,
Penny
View Thread
These conditions can go hand in hand indeed!View Thread

Was also given Darvocet 100 mg but have not tryed it yet and family doc cautioned me because number one side effect is dizzyness and with Pots, That can be a issue.
I belive when I reach a level of over 10, I feel okay reaching for Vicodin but do not want to use it daily and still need to function.
To get by day to day, I rely on my evening bath and soak!!
Use icy hot cream and also patches on areas where needed and Tyenol as others upsets GI tract.View Thread

My pulse increases upon standing and b/p drops!
I have Fibro and Pots and that is a form of Dysautonomia.
Maybe you should ask your cardio about Dysautonomia because it effects people differently?View Thread

It is not so much a specialist but a doc who listens and understand you!
My family doc is better than any specialist and belive me, I have been to to many!View Thread


As time goes by I think Fibro will go under its umbrella shall we say!
Check it out!View Thread
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