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I've been lucky in that I could tolerate the meds and my husbands insurance covered them. Our marriage is horrid -- I'm in it only for the coverage. It's one of the many choices I've had to make.
The Fibro has taken a back seat the last two years to a severe endocrine situation. Have you ever had your cortisol tested? After years of fatigue that was unresolved, we added a cortisol test and learned it wasn't CFS after all but an as-yet-cause-unknown inability for me to produce cortisol. This is the one that is life threatening for me, after a ten-year span of hearing nothing but "it's a nuiscance, and may be painful, but it won't kill you" as each auto-immune diagnosis was added.
So Fibro is a huge part of my life because of the pain I'm in, the meds I take to avoid that pain and the side effects I endure as a result, and the life choices I've had to make because of it but there's a new focus for me.
So if my Fibro worse? Hard to say. My life certainly is. But in other ways it's better. I'm not a Type-A any more. I see my daughter 10 hours a day instead of 2-3. I've come to terms with my marriage and my family life and can't say that I'm angry at anyone anymore. The things I enjoy doing (coloring, crafts, bloging) I get to do every day if I want without having to worry about work, laundry, dishes, etc. -- because I don't let myself worry about anything anymore. The new me is so laid back, my place is a mess, and I don't care!
Good luck to all the rest of you. My heart is with all of you, as are my prayers. Social Security is possible -- I'm one of the lucky ones -- so don't give up hope!View Thread


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Yes, But I never thought of that until now11% (3)
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Yes, But I never thought of that until now11% (3)
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Yes, I've felt this way for a while22% (6)
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No, are you crazy!67% (18)



And to the person who asked, is there any benefit to having FM, I say unequivocally YES! I have slowed down more, learned more about myself and learned to say NO for the first time in my life! I never much liked who I was in my 20's and 30's -- an aggressive, hungry almost mean personality. Now, I laugh, relax and really enjoy life. If it weren't for FM, I could never say that about myself. I'm glad my daughter remembers the near bed-ridden me versus the high-powered, rarely present, cold, Type A Mom from her life as a toddler.View Thread

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