A Friday I hope to rest! I am tired and in pain. My life is so out of control......sorry to complain.
For the last three months I have had my daughter wi us, she has had many problems with mental issues leading to substance abuse and legal issues. She finally has a desire to get help which is a good thing. But it is up to me to get all the appointments taken care of, added to my Mom's needs, recovering from cancer and fibromyalgia I am now overwhelmed. Her brother's try to take somewhere on weekends to give me a break but it is hard.
Her depression has gotten me down, but I must keep looking ahead as I tell her to do. We have made a lot of progress, but there is much to do. She is almost 35 but it is more like having a 17 year old. So pain level is out of control.
Good thing we are having a fancy desert nite tomorrow with all the my children as they were so supportive during my cancer treatment which ended 8/. I wanted to make them all dinner but they realized not good timimg so DL is making a dairy and gluten free cake and se will have a small family celebration.View Thread
Interesting to hear about the weather from everyone. It definitely affects fibro systems in many ways. I would just love to live somewhere where the humidity and temps. stayed at a constant. The ups and downs increase my pain levels. We have been warmer than usual this summer but now we dropped to the high 60's may be low 70's with cloud cover. My body is screaming as it changes.
Bucket of ice would be hard on me Linda not sure I could do it, but ALS is a horrible disease, I would rather just donate to have someone else do it!
Lou it is a good thing to help families with school supplies. I remember raising my four alone and how much I worked to get clothes and supplies. Worked to get clothes on clearance ahead of time and saved so I could get supplies on sale. When I look at what it costs now days not sure I could do it if I was in the same circumstances. Thank you for the work.
Good place to start! Have you checked out the tool box yet, good stuff.
Mimi will tell you about vitamin D and some of the best advice you can get according to my Dr. she keeps mine tested. Most people with fibro have low D and it is hard to keep it up.
Sounds like you have a spine in pain. I have some DDD, don't know how bad as something got in the way of tests and I need to get back on that. What do you do for it? The OA of my neck causes me the most issues. I so some mild yoga and Pilates stretches that help.
Hope you get the support you need, I find it easier here than leaving the house for a support group.
It has been a long time since posting but read at least twice a week or more.
Tow things got my attention
Mimi, check out Crystal deodorant that I get at a health food store is great and causes no harm. I was good before this last year with Cancer battle but really aggressive about what goes in and on the body, the more you research the more you worry. I have realized the more ingredients the more to worry about. Keep up the fight.
Not much hair yet but a lot of gray, check out some healthy colors but not sure I will spend the money. I do not like the gray so we will see once the hats and wigs come off for good.
Cece, rough year for you, I have tried to keep up but along with the cancer major issues with my Mom not here as often as I would like. One brother zero help. The other one does try to help with gifts and financial when needed. They both live so far away I realize it is up to me. I do know how you feel! I have just had to let go of it as too stressful for me. I also realize they missed out on a part of their Mom's life that I can cherish as well as feel no guilt.
6/2013 was DX and Mom was told she needed 24 hour care as she is a fall risk, it was the same week as I was DX with cancer. Been rough so as I read your posts I am only glad it is only my Mom. She has been in and out of hospital, then on to skilled nursing and back to assisted living so much in the last 8 weeks it is wearing her out and me. Congestive heart issue is new as well as other heart issues and now lung. Mostly it has been an electrolyte issue and sundowners dementia.
I wanted to bring her to my house after I was done with treatment, due to her decline it would be against medical advice.
Longer than I planned but need to jump in!
Oh the infusions of Herceptin I used for the Her2 cancer causes fibro like systems, no big deal I just stay in a flare. LOL I laugh cause can't cry.......or moan that I just want my hair back now. It has been a long year and two months.View Thread
I have always been very sensitive to meds, supplements and many foods.
One thing that helps is smaller a small dose rather than the normal dose, almost homeopathic. I seem to well with white pills LOL some people seem to think me crazy, but less dye. We use to have a compounding pharmacy across town as I have limited my meds drastically as well as supplements that cause trouble, I will be checking on that today.
I use to take cyclobenzaprine at night and started having problems. I realized from the 10mil to the 5mil and DH RX for same thing they were all different colors. The pharmacy did tell me same med different fillers?! I will look into that, thanksView Thread
Here in the NW tons of rain all night but right now it is dry with a little sun peaking through. Won't last but good for now! Weather has sure been crazy..
Just coming off a flare a fatigue. My friends could even hear it in my voice on the phone. Not sure why but sleep was a big issue. I have been taking gabapentin at night and that is helping........plus just staying in and resting taking time to focus on me for a few days.View Thread
That sounds somewhat familiar to me. Back in the early 90's my Dr. sent me to a Rheumatologist for official DX. He did spend more time with me, but in the end said if the meds do not work don't bother. Checked my blood work for RA and some other things and told me I had fibro and he does not treat it.
Where I live I have never found a Rheumy who will treat fibro. So it is my Chiropractor, PCP and Physc. As far as meds go less is best for me as I to am sensitive.......small dose of any med causes less side effects. I also need to shake things up and use different ones for a while to keep them working.
Hang in there the frustration of chronic pain and little help will increase the anxiety.
Remember when you see a Dr. you are hiring them not the other way around.