My doctor told me to take Melatonin to help me sleep, but sometimes even it doesn't help. And Yes, my husband & our cat snore terribly. I have to wait a couple of hours before I can go to bed. It is usually after midnight before I get to bed & like you said, it isn't restorative sleep - I wake up every 30 mins., so it really isn't 12 hours of sleep. Along with the Fibro, I have CMP, asthma, arthritis & epilepsy with 10 types of seizures. All of it wakes me up a lot.
I've read more of others comments & can relate to them so well. Oh how I hate shopping - such a painful, exhausting experience. And cleaning, cooking, etc. My husband will vacuum, but I have to manage the rest. If the cats puke, he can't even look at it. I used to feel that others thought I'm lazy, especially my husband, but he's seen how much pain I'm in & how I can only work in short spells, so I'm slowly getting over that feeling of myself.
I have always loved doing puzzle books to keep my mind sharp, but as time is passing, I'm losing that ability (more the epilepsy than anything else I'd say). I hate that, so I'm moving on to reading books - if I don't remember it & read it again, it's all new!
There is a lot to deal with in all of this. I'd just like to know what specialist should we see when we have a combination like I have, with the arthritis, FMS, CMP, etc. I'm tired of being tired & being in pain.
Fatigue is having no energy, feeling like I am strapped down with weights all over my body so that any movement just exhausts me, like I'm constantly being pulled down. I try to stand & smile for others, or do what others do, but I just don't have the energy. I'm totally sapped. The weird thing is, I can go to bed & you would think I would fall asleep immediately, but I don't. Pain perhaps. There is tired & there is fatigue. Fatigue goes beyond tired, so far that it is hard to sleep sometimes. And once I do get to sleep, I find myself sleeping 12 hours or more. It is a monster that consumes my days & nights.
I too have gone without a bra sometimes. And sometimes I will go around the house with a very loose nightgown because clothing hurts my skin. Burns my skin would be a more accurate description. I have many days when waistbands from underwear or pants, my bra, or even sleeves will cause such a burning sensation. Or being touched. As far as a comfortable bra, I buy a cheapy from WalMart - Vassarette style 70-177. It is soft & stretchy. Probably not a good bra since it is not a support bra, but it comes pretty close to a natural feel. It isn't padded, no wire supports, nothing fancy or uncomfortable. I will probably get a lot of replies about this being a bad bra, but it is one I can wear most comfortably.
I have been treated off & on for a number of years for asthma. Now I've just been told that I have a muscle disease associated with my lungs. I have FMS, CFIDS, & MPS, along with a multitude of other health issues. My family doc said she doesn't know anything about the lung muscle disease & I will be seeing a pulmonologist in January. But I was wondering if FMS or CFIDS could affect the lungs in a way similar to asthma. Any ideas?
Hi All. This is my 4th attempt to post this. For some reason, when I get most of the way thru my post, an icon appears on the bottom saying there is an error & it won't let me post. So here goes again.
I'm 46, married 27 years, one son - 25. I've posted on other discussions - bi-polar, PTSD, epilepsy, back pain, etc. I have a lot to deal with.
As a teenager, my dr. thought I had JRA, but ended up not having it. I've always had a high pain tolerance. When in labor with my son, I barely felt any contractions. Then things changed - either my pain tolerance lowered or my pain level intensified.
When my son was 1, my feet slipped out from under me while I was carrying him down concrete steps. I went to a chiro, had xrays, was told I'd compressed my lower back, had some adjustments & was released. A couple of years later, I would be walking/swimming & my back & hips locked up, I couldn't move for several minutes - very painful. I didn't think about my fall.
A couple years later, seeing a new dr., being treated for depression & pain. One day, my dr had just returned from a seminar about FMS & other muscular diseases. He quickly diagnosed me with FMS & was confirmed by 3 rheumatologists. Later he added the diagnoses of MPS and CFS (now CFIDS), explaining the differences. I didn't respond to medication. He moved & I started seeing a new dr.
My dr. sent me to PT. At first it helped, but then the pain increased. I demanded tests. Xrays & MRIs were done of my hips & I was told I have "sloppy hips" - easily put out of joint. PT didn't help, so I quit. The back pain & muscle pain got worse. I demanded a xray of my back, was told I have arthritis, bulging disc & bone spurs, but not given any treatment - "deal with it." My dr. then sent me to a pain clinic in conjunction with PT. The paing clinic gave me shots, then I went directly to PT. The therapists were stunned - everywhere I received a shot, I had a huge knot & they couldn't work it out. Turns out the shots had lidocaine - I'm allergic to it. The pain increased with the shots/PT, so I quit.
I've seen my dr. several times when the FMS has been severe - severe pain at any touch, skin feeling like it was being burned when touched, etc. She has tried every med & shot possible with no help. Just over a week ago, I saw her again. I pointed out that I know some of the pain is FMS, some from the back injury, but I think there is something more here. But she just focused on the FMS & gave me savella. I can't say I've seen any improvement yet.
FMS is a muscle disease. But I am having severe pain in all my joints. Wouldn't that be caused by something else? How do I get my dr. to look into something else?
I try to stay active. I'm up & down all the time because when I get up to do something, I can only be on my feet for a few minutes & then have to sit down. I have a few hobbies & my cats to try to focus on other things. I've done everything I can think of to deal with this. Am I dealing with more than the muscle diseases & back injury?