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Fibromyalgia Community

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Reply: Fatigue and Fibromyalgia

Hi Joan, My doctor told me to take Melatonin to help me sleep, but sometimes even it...

Posted by sbncmo

166 Replies | Reply | Watch This DiscussionReport This| Share this:Fatigue and Fibromyalgia Hi Joan, My doctor told me to take Melatonin to help me sleep, but sometimes even it...

Includes Expert Content

Reply: Fatigue and Fibromyalgia

Fatigue is having no energy, feeling like I am strapped down with weights all over my body...

Posted by sbncmo

166 Replies | Reply | Watch This DiscussionReport This| Share this:Fatigue and Fibromyalgia Fatigue is having no energy, feeling like I am strapped down with weights all over my body...

Reply: I can't believe I've never heard of this!

Autymn, I too have gone without a bra sometimes. And sometimes I will go around the house...

Posted by sbncmo

5 Replies | Reply | Watch This DiscussionReport This| Share this:I can't believe I've never heard of this! Autymn, I too have gone without a bra sometimes. And sometimes I will go around the house...

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FMS/CFIDS/MPS - Lung disease

I have been treated off & on for a number of years for asthma. Now I've just been told...

Posted by sbncmo

5 Replies | Reply | Watch This DiscussionReport This| Share this:FMS/CFIDS/MPS - Lung disease I have been treated off & on for a number of years for asthma. Now I've just been told...

FMS, CFIDS, MPS, Back Injury - med resistant - HEL...

Hi All. This is my 4th attempt to post this. For some reason, when I get most of the way...

Posted by sbncmo

Hi All. This is my 4th attempt to post this. For some reason, when I get most of the way thru my post, an icon appears on the bottom saying there is an error & it won't let me post. So here goes again.

I'm 46, married 27 years, one son - 25. I've posted on other discussions - bi-polar, PTSD, epilepsy, back pain, etc. I have a lot to deal with.

As a teenager, my dr. thought I had JRA, but ended up not having it. I've always had a high pain tolerance. When in labor with my son, I barely felt any contractions. Then things changed - either my pain tolerance lowered or my pain level intensified.

When my son was 1, my feet slipped out from under me while I was carrying him down concrete steps. I went to a chiro, had xrays, was told I'd compressed my lower back, had some adjustments & was released. A couple of years later, I would be walking/swimming & my back & hips locked up, I couldn't move for several minutes - very painful. I didn't think about my fall.

A couple years later, seeing a new dr., being treated for depression & pain. One day, my dr had just returned from a seminar about FMS & other muscular diseases. He quickly diagnosed me with FMS & was confirmed by 3 rheumatologists. Later he added the diagnoses of MPS and CFS (now CFIDS), explaining the differences. I didn't respond to medication. He moved & I started seeing a new dr.

My dr. sent me to PT. At first it helped, but then the pain increased. I demanded tests. Xrays & MRIs were done of my hips & I was told I have "sloppy hips" - easily put out of joint. PT didn't help, so I quit. The back pain & muscle pain got worse. I demanded a xray of my back, was told I have arthritis, bulging disc & bone spurs, but not given any treatment - "deal with it." My dr. then sent me to a pain clinic in conjunction with PT. The paing clinic gave me shots, then I went directly to PT. The therapists were stunned - everywhere I received a shot, I had a huge knot & they couldn't work it out. Turns out the shots had lidocaine - I'm allergic to it. The pain increased with the shots/PT, so I quit.

I've seen my dr. several times when the FMS has been severe - severe pain at any touch, skin feeling like it was being burned when touched, etc. She has tried every med & shot possible with no help. Just over a week ago, I saw her again. I pointed out that I know some of the pain is FMS, some from the back injury, but I think there is something more here. But she just focused on the FMS & gave me savella. I can't say I've seen any improvement yet.

FMS is a muscle disease. But I am having severe pain in all my joints. Wouldn't that be caused by something else? How do I get my dr. to look into something else?

I try to stay active. I'm up & down all the time because when I get up to do something, I can only be on my feet for a few minutes & then have to sit down. I have a few hobbies & my cats to try to focus on other things. I've done everything I can think of to deal with this. Am I dealing with more than the muscle diseases & back injury?

I'd appreciate anyone's comments.

SheliaView Thread

Posted bysbncmo

2 Replies | Reply | Watch This DiscussionReport This| Share this:FMS, CFIDS, MPS, Back Injury - med resistant - HELP Hi All. This is my 4th attempt to post this. For some reason, when I get most of the way...

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