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Fibromyalgia Community

Reply: Do I have Fibro???

Hello and sorry for what you're going through. It sounds like you had to have an...

Posted by jroseland

5 Replies | Reply | Watch This DiscussionReport This| Share this:Do I have Fibro??? Hello and sorry for what you're going through. It sounds like you had to have an...

Reply: Need help

The fact that you're here asking this question puts you ahead of many other parnters. One...

Posted by jroseland

15 Replies | Reply | Watch This DiscussionReport This| Share this:Need help The fact that you're here asking this question puts you ahead of many other parnters. One...

Reply: Chest Pain with Fibro?

It could have something to do with the bra. There is a multi-year, hundreds of comments...

Posted by jroseland

4 Replies | Reply | Watch This DiscussionReport This| Share this:Chest Pain with Fibro? It could have something to do with the bra. There is a multi-year, hundreds of comments...

Reply: advice for dr. appt.

I've used a combination of melatonin (9mgs), GABA, and valerian root to fall asleep, on...

Posted by jroseland

8 Replies | Reply | Watch This DiscussionReport This| Share this:advice for dr. appt. I've used a combination of melatonin (9mgs), GABA, and valerian root to fall asleep, on...

Includes Expert Content

Reply: What was your best Doctor advice?

My doctor made the point that sometimes (or a lot of the time) I will have pain no matter...

Posted by jroseland

50 Replies | Reply | Watch This DiscussionReport This| Share this:What was your best Doctor advice? My doctor made the point that sometimes (or a lot of the time) I will have pain no matter...

Reply: Fibromyalgia is a throw away diganosis

Wow, you're opening up a big bag of worms here. I think you think you have good...

Posted by jroseland

Wow, you're opening up a big bag of worms here. I think you think you have good intentions.

Look into studies done where people with FM (or supposed FM) had functional mri's, along with people without FM. When a small pain stimulous was given, the people with FM had areas of the brain that process pain light up (or react, I don't know the technical terms) in a larger degree than the non FMer's.

You're going to get a lot of people's personal stories but I'm going to lay out mine in a non emotional way. I have had pain daily for most of my life (I'm 29). I had a great childhood that included no trauma, physical or emotional. I was active and an above average student with a good social life. I have had many tests that have ruled out other conditions that can cause pain. To this day, I exercise 4-5 days per week doing spinning and indoor rock climbing. I eat very healthy. I have a job and am in a stable relationship. So what's your answer for me?

I am not angry at your post. You obviously work with people in pain and that must be difficult. I don't care when people don't believe that I have FM, all I care about is that I have chronic pain, you can call it what you want. You will find that people on this site are some of the most informed and educated people regarding their health. I have had doctor's visits where I informed my doctor of the differences in antidepressants and what chemicals they effect. And I believe that is the norm for many people with FM.

I may be dumb for actually responding to your comment, others here have probably dismissed it as a joke and not worth their time, as FM is a recognized "condition" within medicine. But you asked for a clinical study--look into the one I described. If I can find a link describing it, I will post it. Again, my reply to you is not given in anger or emotion. I think you have some valid points about overmedicating and doctors not giving patients' time and effort. But that is a problem in the medical community, not with patients.View Thread

Posted byjroseland

5 Replies | Reply | Watch This DiscussionReport This| Share this:Fibromyalgia is a throw away diganosis Wow, you're opening up a big bag of worms here. I think you think you have good...

Reply: Fibromyalgia is a throw away diganosis

Wow, you're opening up a big bag of worms here. I think you think you have good...

Posted by jroseland

Posted byjroseland

5 Replies | Reply | Watch This DiscussionReport This| Share this:Fibromyalgia is a throw away diganosis Wow, you're opening up a big bag of worms here. I think you think you have good...

Reply: upset about weight

You definitely are not alone. Many of us with FM struggle with weight. I gained weight...

Posted by jroseland

21 Replies | Reply | Watch This DiscussionReport This| Share this:upset about weight You definitely are not alone. Many of us with FM struggle with weight. I gained weight...

Reply: Hitting a wall of fatigue

You may already be exercising but I have found that to be helpful with my fatigue and...

Posted by jroseland

3 Replies | Reply | Watch This DiscussionReport This| Share this:Hitting a wall of fatigue You may already be exercising but I have found that to be helpful with my fatigue and...

Reply: Weight Gain

I am part of the frustrated throngs of FM patients struggling with weight. I feel like...

Posted by jroseland

I am part of the frustrated throngs of FM patients struggling with weight. I feel like Cece--I exercise, eat healthy, but still struggle.

I have had FM most of my life and looking back on my teen years, I see that I probably was already having the affects of the problem with weight. Admittedly, I am built a little larger--I have large wrists, hips, ankles, etc. I was always in a healthy weight range but at the top. When I was about 16 I decided to really try to lose weight. Of course, it was the 90's (yes, I'm only 29) and so the craze was to eat low fat. I think I'm still suffering the consequences of that diet! I did lose some weight, but now I believe mostly through exercise.

I then stayed about the same weight for 6 or 7 years, within 10 pounds or so. I ate moderately and exercised some, though not as much as I should have. Then, I started taking meds for FM that made me gain 30 pounds in a 6-8 week time period. Since then, I have struggled to lose weight.

My point is that this whole time I've been holding on to the way I used to be able to eat: moderately and sensibly. I tried to eat lean meats, lots of veggies, and high fiber grains. But still to no avail.

Lately, I've done some research and modified my diet some. I'm actually eating some higher fat proteins and have mostly cut out grains/carbs. Dr. Pellegrino has additional information to the words that Caprice quoted above. Here's the link: http://www.prohealth.com/library/showarticle.cfm?libid=12301

He recommends always eating at least a little bit of protein first. I've put this into practice and I have to say that I have seen a difference. And doing that really helps curb cravings for sugar.

I've had to change my mindset and not necessarily listen to what other people say is healthy. Yes, I believe that whole grains and things like quinoa are good, but not necessarily good for me. I would have a worse weight problem if I was a vegetarian, yet that is seemingly universally touted as the healthiest lifestyle. I have to be careful about how much fruit I eat, too, and now I always eat some cashews before an apple or some cheese before an orange.

I really keep track of how I feel, especially blood sugar wise, and go from there. I have stopped tracking calories and go by how I feel. I think I have already lost a couple of pounds and I'm hoping to lose more. But I have to say that I have felt better during the day, mostly because my blood sugars are staying better regulated.

I guess my point is that I think I'm actually listening to my body and it seems to be working. But, of course, everyone is different and everyone needs to figure out what their bodies need and don't need.

I think there needs to be more awareness in the medical community about this problem. Maybe doctors should not be so quick to prescribe meds that are known to cause weight gain--or at least be able to inform their patients. And as yet there doesn't seem to be much in the way of solutions for this problem, although it sounds like we're getting closer to the reasons.View Thread

Posted byjroseland

10 Replies | Reply | Watch This DiscussionReport This| Share this:Weight Gain I am part of the frustrated throngs of FM patients struggling with weight. I feel like...

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