I've had back problems since childhood and began seeing a chiropractor at the age of 10. I have scoliosis and some degeneration in my neck. I am now only 28!
I also believe I have had FM since childhood. Since I have never had a physical or an emotional trauma I have to believe both conditions are genetic. I also believe that the back problems have contributed to the FM problems. Maybe those problems are really what confused my nervous system and made it interpret pain incorrectly. Since I had pain at such a young age, I didn't know much else and I didn't know maybe not to sit at a school desk or carry a heavy back pack all through pretty bad pain!View Thread
This question comes up semi-regularly here. Yes, ringing in the ears can come with FM. It can also be caused my medications.
It's often on the lists of less common symptoms of FM. It's one of those things that some have and some don't.
I don't know how to get rid of it, if you can at all. I have had it for so long that I don't notice it often other than it indirectly makes it harder for me to hear people in large crowds or if I can't see their mouths.View Thread
As just a fellow FMer, I can tell you that I take buproprion (wellbutrin) which affects dopamine and norepinephrine. While my pain levels have not been much affected, I noticed a jump in my ability to focus along with my energy levels. I do not get as "foggy". I have been learning another language for 3 years and I had a big leap in what I could retain after I had been on the buproprion for awhile. So, I guess the more dopamine availability has helped me with more of the cognitive issues associated with FM.
I have taken SNRI's, targeted at serontonin and norepinephrine but I will not take them again because I experienced a large weight gain. The benefits did not outweigh the side effects. I've tried 5-HTP for the serontonin but it made me extremely nauseous. I did not take those at the same time as the bupropion.
I know I'm not a doctor but that's my experience!View Thread
I've had decent success with melatonin. I usually take 9 mgs. If you're near a Costco, they sell a pretty large bottle for $5-$6, if I remember correctly. They come in 3mgs pills but it seemed to last me a couple months at least.View Thread
Hello- I have taken gabapentin in the past and did not have great results and it contributed, along with another medication, to a 30 pound weight gain. Gabapentin and Lyrica (pregabalin) are often prescribed but I've found that many people don't get relief from either of them. Of course, plenty of people do, but they are definitely not the end all, be all for all people. There are other meds to try, as others have mentioned. Don't let your doctor box you in with meds--if something doesn't work, it doesn't work.
Most of us have had to try many different combinations. It can be a very difficult process but it is worth it in the end!View Thread
This whole thread proves just how much we can and should advocate for ourselves at doctor's appointments! Often, PCP's know a little about a lot of illnesses. We all know a lot about one (or a couple) illnesses!
Now we can all prove to our doctors how informed we are. I have a great doctor who recognized that I was informed and knew what I was talking about. I think that is a large reason why she has given my the latitude to choose my own treatment, instead of choosing for me! I hope that didn't come across braggy--I just meant to say that being this up on things is what ultimately helps ourselves get the best treatment.View Thread
Although it sounds like you've had symptoms for awhile, it also sounds like you discovered your FM relatively quickly. Often, if people do not go years with untreated FM, they are more likely to be able to control their FM once they begin treatment. I am someone who's young (28) but have had pain and FM for most of my life. I didn't have any kind of treatment until just a couple years ago. Although I have some pain managment strategies, I always have pain and fatigue. However, I know quite a few people with FM that can go months or even years with less severe symptoms. Usually, it's because they were diagnosed quickly and received treatment early on.
I've definitely had to change some life plans because of the FM but I try to not let it stop me too much and I truly believe that if I had been treated earlier, I would not be so affected by it now. It's awesome you've decided to pursue schooling. With the right treatment and knowledge, I'm sure you'll do fine.
And I know most of us would love having a doctor that is as compassionate as you surely will be!View Thread
In my experience, with some doctors, is that what the drug companies tell them symptoms or side-effects of drugs are and what actually happens in real life is quite different.
I learned the hard way that a good approach (for me) is to research what other people go through on meds. Usually, if you just google the name of a drug, you'll get general descriptions (often the same information you'll get from the pharmancy). But if you google the name of the med, then something like "forum" you can get real experiences. Of course, not everyone is the same and all of us will react differently. But I think it gives a broader range of research.
I've also read that many people experience horrible side-effects from withdrawals from Tramadol. Think how valuable it is for drug companies to market a non-opiate "non addiAnd now you know that you have them personally!
I'm always a little nervous to post about meds, so I'll leave the following disclosure: I am not a medical professional and the above is purely personal experience.View Thread
I was on Tramadol but my body got too used to it and I didn't receive any benefit. I recently went off of it but I gradually withdrew and I did okay. I too 3 pills of 50 mgs per day. So I first subtracted just one quarter of one pill, then one quarter of two pills, so on. Then I started again taking only half, so on. In all, it took me a few weeks to go off it.
I would have had horrible withdrawals if I didn't do it this way and I'm relieved that it worked.View Thread
Perhaps keep a pain diary and let the doctor see it. If you keep bringing up your issues, he can't ignore it forever. Also, possibly research the kind of treatment you think you would like and ask him for it. Many of the meds that can help FM are commonly prescribed by doctors. Hope you get some help!View Thread