A PT I worked with once said when she went into someone's home to start them off, she would ask them to make two trips to the bathroom every time they needed to use it. Then she gradually increased the walking.
Like you said go very slowly, my old PM doctor also said that he would be content if all his patients walked 30 minutes a day, most days. He even said we could break it up into segments, three times a day, 10 minutes each. He suggested starting with three minute segments, three times a day, and adding one minute a day, once a week. He said if one had a flare or got ill, not to take to their bed, but rather, simply start over, but down a couple of levels.
He said to find something that you really like and will keep on doing. I belly dance in front of the TV set to DVDs for an hour a day now. I have lost over 50 pounds now. Slowly but surely.
I certainly agree with all of your activities, but me and my grandson have been doing the tent thing for years. I sit on the couch, and he goes in the tent. He even has special blankets in his closet for when Tutu comes to visit, to build with.
I also bought him a little computer thingy for Xmas last year, he can add games and educational software to it whenever he wants to.
Also a rug with roads and stuff woven into it. He plays with his hot wheels for ages on this. I can lay on the floor or sit on a chair for this one.
If you are in a lot of pain the day after exercising, you are probably doing too much. Really slow it down. Try 2-3 minutes several times a day at first, work up to 30 minutes a day, most days. Only increase your exercise by a minute or two per session once a week. My PM doc years ago told me he was fine with people doing their 30 minutes in several intervals a day. Ten minutes, three times a day sounds possible. He suggested starting off with walking. I have read this over and over since then.
I have lost 50 pounds over 2-3 years, it has worked fine for me. It has not helped with FMS pain, but I do feel generally better. I definitely look better. My knees are in great shape, thank goodness. I cut out 100 calories (a cookie or two, or a piece of bread) per day, and increased my physical activity by an hour a day (over quite a long time).
Do what you can, and don't worry about what you cannot do.
Are you comparing FMS to myofascial pain syndrome??? It is my understanding that FMS is a more generalized body condition and MPS is usually limited to a specific part (quadrant) of the body. I have never had MPS, so I could be wrong, besides I am only guessing that is what you are talking about.