I went to the site for which you provided a link, (thank you so much).
It specified that this was for pain caused by an injury to the muscle. I do not understand how this would apply to FMS? I frequently have pain but no injury. They said that the pain is relieved until/unless the area is re-injured. This makes sense if one is treating a sprain or a strain to an area, but this does not always apply to FMS.
Keep trying different things, you will find the combo that best helps you.
Always look for the number of participants in any study. This one had 17 with FMS and 17 without FMS, sorry but a study of a total of 34 patients is not enough for anything but further study. It is not enough to say anything is true or not true about FMS.
I like the site at http://www.myalgia.com , it has lots of interesting articles by professionals who know about FMS. Dr. Bennett, MD, a rheumatologist, says that he has found a subset of folks with FMS do respond to opioid therapy, if nothing else works, give it a try.
I don't believe that our FMS symptoms can be "cured", but they can certainly be managed so we have decent lives. I have had FMS for 18-20 years now, and I have found what works for me, and continue to use opioids along with other treatment modalities. I have been on basically the same treatment plan for about 15 years, with occasional tweaking with flares. I don't take large doses of any drugs, but I don't expect to be pain free either. There is no magic pill yet, maybe some day.
I really believe that by using several different tools to manage my FMS symptoms, my life is good.
The way I read it is the FDA had NOT approved it yet, but some committee they have recommended approving it.
It is just a combination of two older drugs, naltrexone and wellbutrin. I will wait and see how tt works, but frankly until it has been taken by lots of people for a long time, I will not volunteer to be a guinea pig.
I took Redux, and ended up stopping it just before they pulled it from the market due to side effects. I had to have multiple echocardiograms and it was a real mess. I gained back the weight I lost as soon as I stopped taking the drug anyway.
Now, I am losing again, but slowly and steadily like I should.
I don't find this to be true or helpful. It sounds like a list of every symptom everyone who responded to a poll said they had, regardless of what other health problems they may have had in addition to FMS.
I don't think many of these symptoms are even symptoms of FMS.
I would have an art day with all the grandkids and have them make you a "Do Not Disturb" sign. Explain to them just what that means, including what is a real emergency worthy of bothering you for. They can draw pictures on the sign to help them remember.
Tell them that in the future, you will not answer your door to a knock as long as the sign is up, and there is another big person in the house to look after them.
Next time you go for a time out, tell the other grown-up, put up the sign, lock your door, and do not answer it at all. The other adult can have a special knock to check on you if you feel that is necessary. It may take a time or two, but those grandkids will learn that you are entitled to some quiet time.
Xyrem is a date rape pill. I don't care how well it might work, I would not have that pill in my house.
I have read mixed reviews on the studies and the folks that posted on another board I used to visit who tried it said it wasn't a big help. No one said it was wonderful. No one opted to stay on it long term.
I personally feel that if anyone steals my meds to get high, that is their bad judgment and if they overdosed or had a bad reaction, it would be on them, I wouldn't feel all that bad about it. However, if someone stole the drug from me and gave it to some girl/woman and raped them, I would feel horrible. It still would not be my responsibility, but I would feel still horrible. Just my opinion, everyone has to make their own decision about these things.
If anyone does opt to try it, please keep it locked in a secure box with a real lock on it, and do not tell your friends and neighbors about it being at your house. Be discreet.