My dx was 10 years ago, and I know exactly how you feel and think. I didn't want to be defined by FM, but it seriously affects some parts of my life. I refer to it as I want to, so not everyone who knows me knows my FM. Some are surprised, others aren't.
You said you've tried lot of meds. Has your doc recommended PT sessions? I found the stretching aspects really helpful. I don't ride motorcycles, but we like to travel in our truck, and regular stops and stretching helps keep spasms away. I use a good painkiller from time to time, and the two together really help.
WELCOME BACK MIMI! I hope all your woes are soon over.
It's Friday - can you say SNOW? Yup, it's coming down again where I live. Spring starts at 6:45, but it was snowing at 4:30. We're supposed to get a dusting to 3", we live in that blurry area. A week ago I was dancing around without a coat, just a cardigan"026 those were good times. Enough snow has melted and my snowdrops are up; usually I see them in Feb. *sigh*
I've had a week of steady work, and I'm happy for that. My BFF and I will have "Girl's Day" Mon, then back to work fof me Tuesday. The car was supposed to go to the body shop Wed, but they called to ask if I could drive it a little while longer damaged - they're swamped with work! Good and bad, I guess. They want to make people who have nothing to drive a priority, and I can go another month without any stress over it. The owner said they have cars that have been damaged by tree limbs.
By the end of April DH should have another car to drive. His little commuting car is kicking the bucket, and he's looking for something else. Even with gas process low, driving the pickup is getting old and relatively expensive.
My oldest brother is getting married in three months, and I have that long to lose 8 lbs and tone up. The Bride asked me and my youngest brother's wife to her her maids, and I'm tickled blue -the color of the dresses. They're knee length and pretty enough to wear to something dressy afterwards. We're all getting together for a late lunch tomorrow, I'm looking forward to it.
That's enough of my blathering. I wish you all the best day - and the best weekend - you can possibly have! LouView Thread
Hello FMily, I hope you're all well. It's been warm and cold here today, started warm then came the snow... Will this winter ever end??
I was dying to cook corned beef and cabbage (I'm half Irish), so DH and I got the fixin's and went to his mother's house. She's been kinda trapped in the house since the snow started. We've been doing her grocery shopping (she doesn't need much), and I thought she'd like to have some company and a nice dinner. We had a lot of fun, and left her a nice meal of leftovers.
Mel, I hope you ca get an appointment and the meds you need. I have refills called in, but one needs to be renewed. I think I cane make it another day before they can call the doc. I find Melatonin helpful for sleep, but I tend to over sleep. I hope it can help you in the meantime.
Cory, that knee sounds painful. Have you tried an elastic compression thing? I hurt my knee many years atom and the doc got me one. Nothing fancy, it's elastic banged with a hole for the kneecap. I hope this can help you, too.
Spring, Linda? Really?? I've come to terms that my snowdrops never bloomed; they usually poke their heads out in Jan or Feb. And my crocuses have probably croaked under the snow, too. Our 4 ft of snow has compressed to 2 ft with the warmth and rain. And I did hear lots of "chirping" out side today...
I'm working again this week, so I'll be scarce here. I wish you all the best week you can possibly have! Lou
PS: Mimi we do miss you. Se you soon, I hope!View Thread
TGIF! I took a day off to get some things done, it's 3:45 and I'm just checking in.
Chilly here, 35 and that's as bout it. The rain this past week melted a good amount of snow, we can see the grass in places. There's supposed to be more rain this coming week. I'll be glad when I can back out of my own driveway again. I've been backing in so I can nose out, 'cuz I can't see through the giant snow piles at the neighbors' houses! As the snow melts we're finding all the jetsam people toss out their car windows - styro coffee cups, Eeeew! I wonder what their houses look like!!
I worked this week, and they booked me for all of next week. I have to schedule some "me" time in there. I'm trying to stress less over what I can't control, and it looks like I'll make another appt with the person I saw last summer. I had such a difficult time dealing with losing Dad and the kitchen, and not working; I didn't realize how sick I was getting. "One step at a time" is great to say, but in practice"026
That's about al for now. I wish you all the best weekend you can possible have! LouView Thread
You don't need to be embarrassed around us - we are FMily. People just don't get it. I have a friend whose wife is a doc, and she told him she "doesn't believe in FM." Like it's the tooth fairy?
Are you on meds? Since they're not helping I think another doc visit is in order, and find out what else he/she can give you. What works for one of us doesn't necessarily work for others, and sometimes it takes awhile.
Keep a journal (Mimi's suggestion to everyone; you'll meet Mimi at some point), where your pain is on a 1-10 scale with 1 = none to 10 = the worst, what you're doing, what you're eating, etc etc. It will help both you and the doc to see if there are any relationships between your pain and your actions.
In addition to the great tips and resources on the right, I have this one: http://www.butyoudontlooksick.com It's a great read, and look at The Spoon Theory. It's a good way to let people know exactly how you feel. Some days we get fewer spoons. This usually helps spouses & SOs, grown children and friends understand it.
We'll talk again, I'm sure. I wish you the best day - and the bestir weekend - you can possibly have, LouView Thread
It was a warm day,. topped out at 42, but back to the cold tonight. They're talking about a "weather event" for Tuesday, whatever that means. It looks like warm weather has returned during the day40s and 50s this week, and I'm ready for it!
I wanted to check in and see if Mimi was back. Wherever she is, I hope it's restful and she gets back soon.
I realized that yesterday was the 10th anniversary of my diagnosis. I had been in a car crash in early October 2013, and never really recovered from it. After 17 months of pain, X-rays, scans, physical therapy, blood work, stretching, etc etc etc, the doc said, "you have fibromyalgia." I didn't know whether to cry or kiss him. Now that It had a name, I could figure out what to do. The meds helped quickly, so well that three weeks later I booked a trip to London, where a friend was living.
I've been seeing him and his PA 3-4 times a year since. I have a good relationship with them both, and I feel comfortable asking for help, whether it's higher doses of meds, or trigger point injections. I know that not everyone has this good relationship, but I pray everyone gets one!
Nancy, all my docs send prescriptions electronically. IDK whether it's a law, but it beats "forgetting" to drop it off. It's bad enough I forget to pick up my 'scrips sometimes. They have fax numbers or email addresses for the pharmacies, and I don't have to do anything.
I hope you had a good St Patrick's parade. There are a few near us - Providence, Pawtucket, and South Boston, to name three - but we've never gone. I'm going too attempt to make Nana's Irish Soda Bread this year. I hope it comes out right!
Mel, I'm jealous of your 70s. I saw a patch of something through the snow melt, and asked DH what he thought it was. After careful consideration, he said, "I think it's the lawn!" Wow!!!!! We still have a couple feet of snow, and this was along a path he shoveled. There's talk of local baseball not starting "on time" because the fields are still covered in snow.
I'll be working for a day or two, so you might not hear from me for awhile. I wish you all the best days YOU can possibly have! LouView Thread
It's very cold here, 17 but sunny. Ice has been melting from the south-facing side of the house, and it still makes me jump when I hear it fall to the ground. We had a HUGE icicle on the north side that broke off Wed night. I wanted to watch it go, but DH and I were out.
Last Sunday morning my sister called; DH knew something was wrong when he called up the stairs that the phone was for me. My beautiful aunt/godmother/namesake died. She was 91 and had a fun and rich life. Her big concern since my uncle died was: do you think he has a girlfriend in heaven? And when I'd say no, she'd counter with: but he's as cute as hell! And he was, but I know he loved her SO much, I'll bet he was waiting just inside the Pearly Gates for her. She was actually my Mom's aunt; when my g-grandmother remarried she kept having kids; Mom has an uncle who's a year younger than she is!
I have been working, full-time last week, two days this week, and a couple days booked next week. The didn't need me after Tuesday which gave me the time with my family.
I've been knitting a lot, finally finished one hat for my BFF, and have two more to make. No sales through my Etsy store for awhile, I'm going to have to mix things up.
I hope Mimi can look in and see all the all wishes for her. I'm still fighting something myself. Get your rest and come back well!
Mel, it must be nice that you can enjoy a GS cookie. I still have Thin Mints in my freezer, they might be 2 or 3 years old. I have a lot of nieces wearing the green uniform! I also have some nephews who wear blue or olive green. Boy Scout Popcorn is awesome, and I know I still have 2 or 3 boxes that haven't been opened.
Linda, I've given up on the snow. They were saying more Monday, and changed their minds. I'll make sure I have an emergency bag in the car, I don't want to get stuck somewhere again!
cece, choosing a caregiver is so hard. My Mom was a fall issue, and they got a "merry walker" for her. It's made of PVC pipe and fabric so if she lost her footing and fell, she'd be guided into a seat. it's quite a contraption, to see one google "PVC Adult Walker".
Cory, I hope you continue to feel well. I stopped having massages when I was waiting for the FM diagnosis, it was just too painful. I'm glad you feel the benefit.
I'm trying to get a little cleaning done. We had allowed a lot of flotsam collect on the dining room table, and I've got half of it cleaned off. DH will find a pile of stuff when he gets home. I'll crack the whip and tell him no supper til it's done. ROFL!
I wish you all the best weekend you can possibly have! LoiuView Thread
I'm sorry you're struggling, but your doc really doesn't seem to be helping. My sister's husband was dx'ed with MS at 21. Before I was dx'ed with FM, my doc did lots of blood tests, scans, PT, etc etc. If your doc hasn't, he's not doing you any favors.
I think we've all been there. For me, I'm struggling with a sudden glut of work (I'm a self-deployed designer), advocating for my Mom (she has Alzheimer's disease), and the deaths of some dear relatives, including my godmother.
Let me share one great resource: http://www.butyoudontlooksick.com It's a great read, and look at The Spoon Theory. It's a good way to let people know exactly how you feel. Some days we get fewer spoons.
We'll talk again, I'm sure. I wish you the best day you can possibly have, LouView Thread
It's been cold with some snow flurries here this week. I've been working at a client's office. I like having the freedom to leave if I have to, unpaid of course. Being self-employed, I miss the camaraderie of regular co-workers, but this office has some real characters. There's a the yeller, the whisperer, and the one who chews gum loudly all day long. UGH!
Being out of my home office, I don't get to do some things, like check the headlines and check in here. I try to read the post, but I'm not always successful.
Mel, HUGE congrats to you! You've workers hard, and it paid off. I hope you and DH get to have a little celebration.
Mimi, my sister's granddaughter will be four next week. When did that happen? She's a great little kid, wise beyond her years. and funny as all get out. Story: I found a bubble tumbler when unpacking kitchen boxes, and my sister said GD didn't have one. I brought it to her, along with a jar of bubbles. Two weeks later, I brought my sister a few VHS tapes, and GD says to me, "what did you bring me today?" I told her I wasn't going to bring anything for her every time I saw her. She seemed to accept that explanation. LOL
Linda, did you ever think 27° was "balmy"?
Cory, I hope you're having a better day with less pain. I noticed that with the cold came the pain. UGH again!!
I'll be working next week too, and will check in when I can. I wish you all the best weekend you can possible have! LouView Thread