You're not alone in looking for help to understand this crazy affliction. The "fibromyalgia" word is scary enough, and the fact that no two people have the same symptoms make is scarier.
Since everyone is different, it's hard to say whether your wife (we abbreviate to DW - Dear Wife) has a "common" fog. Saying it's a monthly occurrence, it could be hormonal. My fogs come and go, and seem to be stress related.
Has DW been referred to a doc (not a PCP) who handles FM? Most of us here seem to see rheumatologists or neurologists. Has she been through a lot of tests? My doc did bloodwork to rule out things like lupus or MS, and sent me to PT to see if it was just a muscular issue. Then there are the X-rays to eliminate bone/joint issues. After that, there are the meds; her doc should have told her the side effects of whatever she's taking. If it's the meds, DW should call the doc so he/she can see what's happening to her. There are a lot of meds that are available, and it could be an interaction.
Cruise this site for good information, especially in the right-hand column. In addition to the great tips and resources, I have this one: http://www.butyoudontlooksick.com It's a great read, and look at The Spoon Theory. It's a good way to let people know exactly how DW feels. Some days we get fewer spoons.
We'll talk again, I'm sure. I wish you the best day you can possibly have, Lou
It's cool here 63° right now and chilly. The sun is out and it's supposed to go into the low 70s. The past couple days with heat and humidity almost killed me. I like today better! It also rained overnight, and it rinsed the pollen off my car. Yes, she came home last Friday and looks as good as when she was new! Now the driveway is green. LOL
I'm looking for work - again. *sigh* There's nothing out there for someone like me - over 35 years of experience. I almost applied for a paid internship position. I could do the work, but probably wouldn't like the pay. I saw another job I know I could do, but it required experience with expensive software I have never head of. I have the feeling they know exactly who they're going to hire, and put that in to eliminate the rest of us.
Hello to the newcomers. Listen to Mimi, she is very wise and has great ideas! If you have any questions, just ask.
Mimi, the stolen credit card number is awful! I was caught up in the Target thing, and got a new card, before anything could happen to mine. The bank should be actively helping you, not doing the "Hokey Pokey" with your money!! Were any of the purchases have been made on-line? That could be why the cc number was 'punched in.' Most stores have cameras recording who is making the transactions. IMHO, I think you should get the police involved.
Mel, that treatment sounds interesting. I looked up 'toning beds' and it said they even help the elderly who cannot stand to do exercises. I keep forcing myself to get out and do something good for me, and I'm lucky I can.
I wish everyone the best day you can possibly have, LouView Thread
I'm glad you found us, and I hope you'll be glad, too. The FM word is scary, and the fact that no two people have the same symptoms make is scarier. I actually had a friend's wife (she's a doc) say, "I don't believe in FM," like it's the tooth fairy!
I was dx'ed at 45, and have been working with my doc over the past 10 years to make sure I have what I need. It makes me mad when I hear that a member of our FMily doesn't have a good relationship with her or his doc. There are a lot of good tips and resources to the right, and I encourage you to check them out.
There are lots of meds that are available and OKd for FM treatment, so don't give up yet. Sometimes it takes a few tries. You should develop a good relationship with your doc, keep a pain journal (Mimi will stop by later and tell you how to journal well), and share it with him. It will give him a good idea what your going through, and if there were any underlying stresses.
As for worsening, some people do feel worse as time goes on; some of us can manage our pain level with meds and activity. I walk and do yoga, the stretching is good for me. My yoga instructor knows about my FM, and will help with alternative poses if she see I'm not able to get into a pose. Some weeks I can do it, some weeks I can't.
In addition to the great tips and resources on the right, I have this one: http://www.butyoudontlooksick.com It's a great read, and look at The Spoon Theory. It's a good way to let people know exactly how you feel. Some days we get fewer spoons.
Keep in mind that each of us has her/his own personal version of this illness, and what works for me might not work for you. We'll talk again, I'm sure. I wish you the best day you can possibly have,
Hi Mimi: At the place Mom is living anyone can get in by pressing a plate next to the door. To leave, someone has to type in a code to let you out. Somedays, when they're busy and nobody can take the time to let me out, I wish they'd let us family members know what the code -of-the-month is!
I was actually pretty impressed that she managed to get the door open. There has been only one other resident that I'm aware of who has opened a door, and he's a short stocky guy, and I believe he did! LouView Thread
Cool and waiting for rain here, they say it'll be in the 80s later. HAH! I'll believe that when I feel it.There is rain on the weather map, and we've been under a fire warning for days. it's been very dry here, I think they said we've had 1/4" of rain in the past month. Where did the snowmelt go?
Nice to see you again, Mimi! I always say that while it's nice to get away it's also good to come back to your own shower. Interesting tibit about acupuncture, and how funny that he lecturer "blew you off". There's another post on the board claiming the writer was "cured" (her word) of her FM by acupuncture. If she no longer has pain, I think she never had it.
Linda, the fire laws have everything to do with how buildings are built. There is a keypad at the door that goes into the rest of the nursing home, but in an emergency staff can't be punching in codes to get residents out of the building. This woman did push a heavy door open, the alarm went off to alert the staff, and I'm SO glad I was there before she went too far and got hurt.
DH has the day off, just arrived home from the dentist. Breakfast was promised, so I'm off. I with you all the best day you can possibly have, LouView Thread
Mom stopped walking last fall, now she's in a wheel-around recliner. There are no grounds to take her around. There is an open area in the middle of the buildings, but it's bricked and it would jostle her around too much. LouView Thread
Hi Lisa: Have you bee tested for Vitamin D deficiency? My doc (said and Mimi always says) that those of us in the northern hemisphere are deficient in D - the only vitamin the body can make. We don't get that much sunlight, and that's what the body needs to make it. After I was tested, my doc had me on a prescription dose for a month or two, and now I take 1,000IU daily.
I remember before the D I was tired and sore all the time. Being in win makes you tired! (but you know that"026) LouView Thread
Sunny and warm here, 83° and it'll cool off later. Tomorrow will be in the 60s. I took a few t-shirts out of the cedar chest, I know I'll have to dive in and get more soon.
I saw my Mom Saturday, and she was in a good mood. They had her by an open window, and she would close her eyes and lean back to take in the fresh air. I wish there was some[place where we could visit outside, since she stopped walking she's not a flight risk. when I arrived at the nursing home another patient had opened a door and was heading for the parking lot! I stopped her and a nurse came running. Exciting to say the least!!
Mel, when do your kids start school? Around here (southeastern New England), they start either the last week of Aug or Labor Day week. They'll get out of school, at the end of June, we had SO many snowstorms here last winter. I know the kids would love to get out now, but they'd hate going back to school earlier than they do.
Wishing you all the best day you can possibly have! LouView Thread
The weather has really been splendid here, low to mid 70s for the most part. I hit 80 in Providence yesterday, and might again today. At 10:30am it's already 73°! I'm a bit weather obsessed, and I worry for everyone caught in those awful tornadoes. I hope my FMily members who are in the way stay safe.
We heard 'through the grapevine' that our town has a watering ban, an odd-even breakdown. They say we do have enough water, but the ban is in case something happens later in the year. I'll bet they're going to try selling it to other towns who are running low. I heard that the businesses that rely on water - the garden shops and gold courses - already have plans to keep their businesses alive.
I finally broke down and joined ancestry.com, and I'm having a field day finding info on my ancestors! One bad thing - if you want info from any other country, they charge extra. Of course, that's most the info I'm missing. Grrrrr! I'm a real stickler for info, and make sure I have copies of the official (government) documents, which makes your research very valuable. Work of mouth doesn't cut it when you hand over the info to someone else to see.
I still don't have the car back, I was told "maybe" today. I want to get rid of this darned tiny car!! Grrrrr!
Mel, thanks for keeping us reined in every day.
Linda, enjoy your trip. DH and I will be getting away later this month.
cece, congrats on the addition to your family! And I'm sorry about your Dad, they put the elderly on all kinds of drugs to fight all kind of things, but they don't always remember what else they're on. Praying they figure it out and he's off the meds he doesn't need soon!
badwolf5, I love my plants, and I never thought they could clean the air. I guess I need to get more of the ones you listed! I have an aloe from my grandmother's yard, plus a ton of spider plants and a couple Christmas cacti.
Cory, what a ripoff! To quadruple in price is crazy!! Can you get in touch with your doc and your prescription plan? to find out why the hike A quick Google search told me it has 'recently experienced shortages and may not be available at your pharmacy." Maybe you should shop around.
I wish you all the best day - and the best weekend - YOU can possibly have! LouView Thread