Go ahead and get it out.. you have every right to vent and being here will help you see you no longer need to hide your emotions.. Whew , that's a huge relief for us isn't it. Well fear no more -- glad you stumbled upon this site.. this entire group of people are very helpful and will try to answer what they can...
If they can't then we have the honor of having Dr. Pellegrino to whom you can address those questions no one else seems to have answers for and he understands what you go through because he also has FM.
Most of us were ble to multi task before bing struck with FM.. and that's why it takes so long to accept that we have to find a different comfort level when doing those same tasks. Maybe even having to let some go all together.
To get to that place i alway tell others to forgive themselves nd give themselves a break.. the frustration can only add to the pain. Live each day as best as you can -- doing what you can and then be o.k. with what ddn't get done.. trust me -- itwill be there tomorrow.
It's so important to find the right balance in doing those things.. and pacing too.
You know, we always seem to beat ourselves up when after awhile we can no longer stay strong and lose some fight. Don't-- this is part of being human and as long as you don't let depression or anger stay then you will bounce back up.
Come here as often as needed to share what works for you and to let the others help get your sprirt in a better place.. This is now your new FMily too..
Welcome and join in-- release those negative emotions and start to feel better about YOU..
Welcome to our thread. Thank you for wanting to learn about how we manage our lives with FM. I feel the more who can advocate the better. You may be able to help someone else and that's so important.
This board is very active indeed--that's because we live daily with some prety bad pain-- this group has a strong bond --we exchange information that we know helps us and offer it to others hoping it may help them.
Our nervous system is wried to the on switch in the pain department--some even have very sensitive sense where they are affetced by light--sounds--smells ect. and it never shuts off--so we get sick so often. And our pain increases.
Coming here has allowed us to have a safe place to talk it out and just get support. Alot of our friends and family can't "see" our illness so it's very difficult for them to understand it-- some try --others don't give a hoot.
I love this support system-- it's good for your inner spirit--we all need to stick together and find ways to manage this. So thank you for being interested eneough to check us out--hope you stick around .
I also wanted to let you know -- living with Diabetes is also difficult --so if you need hugs--we will gladly give them to you o.k.
I am also happy you have found us. Listen--i never want anyone to give up hope.. This can be so taxing on our emotional spirit --but please remember --this group of people know how you feel and understand it--so we are always here to help lift you from that depression.
We all have this common bond and lifes daily challanges can be better with that support. Come here--o.k.
When i first came on board--I had been DX'd for about 4 yrs. and had just gotten married -- i thought my life was over and i had nothing to offer. I was ready emotionally to end it all.
Somehow i stumbled upon this group !! OMG ,, they all gathered here to help me and brought me out of my despair. Not one person judged me--they did'nt even know me --but they all understood me.
I have never looked back and have developed some strong friendships here--because it is out of love and compassion for others that this works.
You have to be your own advocates in this fight--there is alot of information here to read under resources and tips ect. Paula --there are natural things that can help--Erin --(Magprincess) has already given you some sites to check out. You see --everyone wants to help.
I know we get so tired--i crashed myself last night-- this is not easy but we are strong and when one of us is feeling down we all try to jump in and bring that person up. You can do the same and it will help make you feel good to help others like yourself.
Be well friends-- and anytime you need or want us we are here for you.
Big Giant hugs for both of you and to all the new peope who come here for help.
I am glad you found your way here-- this illness is so very frustrating for all of us--but we all have hope that there will come a day--hopfully soon--when they find something that works for us.
In the meantime--learning all you can will help you. Getting emotional uplifting from us and family and friends can help you maintain that positive outlook.
We haveto strive everyday to stay positive--but when we just don't have that srength --we come here and just let it out. Every single one of us here understand what the other is feeling in trying to live as "normal" as possible--so keep coming here and let it do the same for you.
Never feel ashamed beause you have something you never asked for--we don't "look" sick--so it can be hard for others to believe--don't get down about that either.
It is part of life--and i often ask my self this same question to help when i may get upset about someone else not understanding me--
What was i like and how did i see someone who was sick but didn't look sick? Did i belive?
Hang in there and come visit as often as you need--we are here and will gladly help you.
I am glad you posted --it helps to know others have the same experiences as you--Do you know what compound the pharmacist makes in this ointment for the bruning skin--it may help other to know what combination they put together-- maybe if you ask they will tell you and you can share this with us who have that burning skin.
I am glad you are here to post to others who may need your ideas and who can help support you when you need it.
This is such a great FMily and we are always around if you need answers or just to talk about something on your mind.
Thank you in advance if you are able to get that compound the pharmacist makes.
I am glad you will participate in posting and responding here-- that is so very important for you and others here. By sharing what we all go through , it helps so many who feel alone to ease their sorrow.
So much to learn-- lots of research being done--so we are hopeful for better meds. to help FM.
This is a great group to be a part of-- now you are a very important part of this FMily-- nice to meet you.
Feel free to join in any discussion or start one yourself. There's always someone around to respond.