Very glad to see you here --not happy you have FM--but glad you found our group. I too have osteoarthritis so we have a double whamy with he pain don't we--but so many others have lots of health issue along with FM --it appears that this is common.
The burning of the skin can be terrible now --i too have had this and it has put me down--- i end up in bed because nothing will help it--My Rheumy says it part of FM and othershere have also experienced it.
You are not alone--and by being her and having other know what you feel and say and understand you is good fo the spirit.
I am glad we are here for you and i know you will be able to help new people who come on board. This is what we are all about--to just be here and offer support with what ever is needed --so jump in and join in any of the postings or post yourself. Vent , cry -- talk about things you want to lift off of your shoulders here-- there is always some one around to answer mots days.
I want you to understand how important it is to be o.k. with coming here to lift your spirits and release your anger--grief in what was--feelings of isolation, pain and disappointments.
Then understand that you can learn from others here who are just like you and get support without being judged. You ill not be devalued here for what you feel is real and as important as anyone elses pain.
This is where you can learn how others manage their life wth FM. Understand that this is not something that you can die from, but something that you will need to learn to LIVE with. What you bring to this FMily is your experiences in living with with FM and in the process you will be helping others.
It is a win-win situation. You learn and give and receive so much more in return. We open our hearts to all who want to embrace our support--comfort--compassion and understanding. You don't need to feel like you have to hide what you go through--because we know.
With that being said, I want you all to know that your loved ones don't know --nor can they understand what you go through because they can't. What you can expect from them is "acceptance" of what limitations you may now have.
YOU also need to accept your own limitations.
This is hard for us-- so expect it to be harder for them. For they do not live in the pain we do. Including tem in your new journey may help-- but if they don't want to try--then do it for yourselves. We all do the best we can to cope and learn all we can to help with our own pain levels.
Teaching each other is so important--that is what this support group has to offer. There are always new things to try that you can learn from someone else and may not have had that information.
We all have good and bad days-- but what helps is having that positve attitude that pushes us forward and gives us inner strength. We will not let FM take over our lives and we can help you stay strong.
There are supplements andmeds available--each one of us is different--so having patience is vital in your search to find what helps you.
I have lived with FM for a short time --yet by being here have fund the support i needed and the strength to move forward in my search. I have learned so much--you will too.
It is up to each one of us to be our own advocate--whether it is tofind the RIGHT doctor or the right combnation of meds. --but WE must stand and make it known.
You have choices-- in how you handle stress or negative responses from those around .
We can hold your hand and walk this journey together--it is a union of sorts-- a bonding that works.
Be FREE of fear and isolation -- come to this FMily.
We offer you hugs and Welocme each and everyone of you.