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We should write a book

How does How To Have a Good Day When You're in Chronic Pain sound? We are the experts after all. Look at all...

Posted by BetteK

0 Replies | Reply | Watch This Discussion Report This | Share this:We should write a book How does How To Have a Good Day When You're in Chronic Pain sound? We are the experts after all. Look at all...

Reply: Frustrated with physicians

Amy, Have you asked your neighbors to recommend a PC practicioner? I assume your son has a doctor at your new...

Posted by BetteK

7 Replies | Reply | Watch This Discussion Report This | Share this:Frustrated with physicians Amy, Have you asked your neighbors to recommend a PC practicioner? I assume your son has a doctor at your new...

Link with FM and lyme disease *****

http://www.envita.com/lyme-disease/the-surprising-link-between-fibromyalgia-and-lyme-disease/

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

0 Replies | Reply | Watch This Discussion Report This | Share this:Link with FM and lyme disease ***** http://www.envita.com/lyme-disease/the-surprising-link-between-fibromyalgia-and-lyme-disease/

Reply: When your doctor won't prescribe narcotics: Tips f...

http://www.health.com/health/condition-article/0,,2018939...

Hello.....for those of you who have posted to Dr P....he is no longer on this website...actually he has not...

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

60 Replies | Reply Report This | Share this:When your doctor won't prescribe narcotics: Tips for getting the pain relief you need Hello.....for those of you who have posted to Dr P....he is no longer on this website...actually he has not...

Reply: TGIF*****ROLL CALL*****5/24/2013*****Memorial Holi...

Hi all! Hope you all get your vitamin D this weekend straight from sunshine. I"ve been tearing into some of...

Posted by missist

2 Replies | Reply | Watch This Discussion Report This | Share this:TGIF*****ROLL CALL*****5/24/2013*****Memorial Holiday**** Hi all! Hope you all get your vitamin D this weekend straight from sunshine. I"ve been tearing into some of...

Reply: New here and recently diagnosed with Fibro

It is sad, true. I often think that compassion is a dying thing these days. I was thinking of a phrase this...

Posted by missist

9 Replies | Reply | Watch This Discussion Report This | Share this:New here and recently diagnosed with Fibro It is sad, true. I often think that compassion is a dying thing these days. I was thinking of a phrase this...

Reply: Mono and FM link

My childhood was much like what foreversore describes --except that I had mono an many bouts of strep throat...

Posted by missist

5 Replies | Reply | Watch This Discussion Report This | Share this:Mono and FM link My childhood was much like what foreversore describes --except that I had mono an many bouts of strep throat...

Reply: Celexa SSRI Withdrawal..

Well.. It could. But--inspite of my pretty theory there, I took the gabapentin last night and woke to that same...

Posted by missist

2 Replies | Reply | Watch This Discussion Report This | Share this:Celexa SSRI Withdrawal.. Well.. It could. But--inspite of my pretty theory there, I took the gabapentin last night and woke to that same...

Reply: Hello New to Group

Hi Rena, Sorry to hear of so many challenges for you. I haven't found any Fibro meds that I can take, mostly...

Posted by RosieLou

2 Replies | Reply | Watch This Discussion Report This | Share this:Hello New to Group Hi Rena, Sorry to hear of so many challenges for you. I haven't found any Fibro meds that I can take, mostly...

Reply: Thursday ****5/23/2013****

Cory, Spring is a time of rapidly changing weather patterns. It seems that we just can't take these atmospheric...

Posted by BetteK

9 Replies | Reply | Watch This Discussion Report This | Share this:Thursday ****5/23/2013**** Cory, Spring is a time of rapidly changing weather patterns. It seems that we just can't take these atmospheric...

Reply: newly diagnosed

Hello and welcome....MiMi in NC...no, you are not losing your mind....FM is a very mean and ugly illness and...

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

Hello and welcome....MiMi in NC...no, you are not losing your mind....FM is a very mean and ugly illness and some doctors have no idea how to treat people who have it. Anything and everything in dealing with the wrath of the dragon, aka FM, is a process which does take time and effort. What works for one may or may not work for you....but I am sure that soon you will be able to find the right combination of *tools and tips* that will help you cope better.

I hope you will check out the info here under *tips* and *resources*....I am sure you will find some good info.
The more you learn about *it* the better off you will be.

You should learn how to pace, pace and pace even more. Getting enough sleep is also really important for us FMers....it seems like we have something to deal with all the time though....it is a vicious cycle.

I do not understand why the doctor does not think the tests are right, since you tested positive for lupus. Did he say? There are no definite tests to determine if you have FM. Did your doctor check your *pressure points*?

Yes, you can indeed have all sorts of pain....all over your body. It might jump around or stay in several places. There is no rhyme or reason to most things which are associated with this illness. A lot of questions and no even answers. I think this is why doctors have such a hard time in knowing what to do for us.

Vitamin D....did your test show that you were low in it? Low Vitamin D can cause additional pain for a lot of people and it can also affect other illnesses as well. Are you taking any vitamins and supplements?

You might try taking a hot shower at night using lavender bath salts so that you can relax your body and sleep better.

Eating right and drinking plenty of water is also something which is really important.

Being stressed does NOT help the situation at all. Try to keep you stress level as low as you possibly can. Stress only makes your pain worse.

I wish I could tell you that there is a *magic pill* which will take away all of your pain....but IF there is, then someone needs to share this info with all of us as I am sure we would all like to know what it is.

We have to learn to cope....and this does take time and effort....hang in there and good luck.

MiMi
View Thread

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

1 Reply | Reply | Watch This Discussion Report This | Share this:newly diagnosed Hello and welcome....MiMi in NC...no, you are not losing your mind....FM is a very mean and ugly illness and...

Celexa SSRI Withdrawal..

I had thought that the weird nightly episodes I was having were due to gabapentin--but... I think it may have...

Posted by missist

0 Replies | Reply | Watch This Discussion Report This | Share this:Celexa SSRI Withdrawal.. I had thought that the weird nightly episodes I was having were due to gabapentin--but... I think it may have...

Includes Expert Content

Reply: Throat pain, hoarseness with fibromyalgia

Wow, these posts are a year old but I hope someone still follows it. I came across this by googling "hoarse...

Posted by mnfun2bme

7 Replies | Reply | Watch This Discussion Report This | Share this:Throat pain, hoarseness with fibromyalgia Wow, these posts are a year old but I hope someone still follows it. I came across this by googling "hoarse...

Reply: Medical Rabbit Trail Mood Swings

BetteK- thank you. what you said was great to read. One thing that amazes me--Ive been 'sick' I guess for...

Posted by missist

4 Replies | Reply | Watch This Discussion Report This | Share this:Medical Rabbit Trail Mood Swings BetteK- thank you. what you said was great to read. One thing that amazes me--Ive been 'sick' I guess for...

Reply: cactusflower1963

Thank you for the welcome back MiMi. I have 8 grandchildren now! Nate will be in high school next...

Posted by cactusflower1963

1 Reply | Reply | Watch This Discussion Report This | Share this:cactusflower1963 Thank you for the welcome back MiMi. I have 8 grandchildren now! Nate will be in high school next...

Reply: Bra troubles

Unfortunately if you are big busted there's not a lot you can do. Around home I wear a stretchy sports...

Posted by cactusflower1963

9 Replies | Reply | Watch This Discussion Report This | Share this:Bra troubles Unfortunately if you are big busted there's not a lot you can do. Around home I wear a stretchy sports...

Reply: Back after an absence

Thank you so much for that info Nancy! I will definitely do that since we all know that we FMers don't need...

Posted by foreversore

6 Replies | Reply | Watch This Discussion Report This | Share this:Back after an absence Thank you so much for that info Nancy! I will definitely do that since we all know that we FMers don't need...

Reply: ICE, ICE, ICE!!

Ice never worked for me. I've always been intolerant to the cold. It actually makes me hurt. Last year...

Posted by cactusflower1963

2 Replies | Reply Report This | Share this:ICE, ICE, ICE!! Ice never worked for me. I've always been intolerant to the cold. It actually makes me hurt. Last year...

Reply: What a day

Hello.....MiMi in NC....yes...I do think we all know just how much stress affect us FMers....sounds like you...

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

1 Reply | Reply | Watch This Discussion Report This | Share this:What a day Hello.....MiMi in NC....yes...I do think we all know just how much stress affect us FMers....sounds like you...

Reply: Hump Day ****5/22/2013 ****

Good evening everyone, quick check in tonight. Sunday night we had very fierce winds gusting up to 50mph I...

Posted by MNJeepguy

3 Replies | Reply | Watch This Discussion Report This | Share this:Hump Day ****5/22/2013 **** Good evening everyone, quick check in tonight. Sunday night we had very fierce winds gusting up to 50mph I...

Reply: I am new here

Hi An, I walked like a penguin, they called me happy feet, lol. I have spinal stenosis c1-3 and had c4...

Posted by Hillbillieswife

9 Replies | Reply | Watch This Discussion Report This | Share this:I am new here Hi An, I walked like a penguin, they called me happy feet, lol. I have spinal stenosis c1-3 and had c4...

Reply: Hair loss

Fran, I don't know if any of your meds could contribute to hair loss, but I do know that right around the...

Posted by BetteK

1 Reply | Reply | Watch This Discussion Report This | Share this:Hair loss Fran, I don't know if any of your meds could contribute to hair loss, but I do know that right around the...

Reply: Hair loss

I lost a lot of my hair the past 10 years or so.. but.. I don't think it is due to fibro. I have seem women in...

Posted by missist

2 Replies | Reply | Watch This Discussion Report This | Share this:Hair loss I lost a lot of my hair the past 10 years or so.. but.. I don't think it is due to fibro. I have seem women in...

Reply: Who wears Makeup & How Often?

Hi Missist, I just turned 68 years old and have never worn make-up. When I was young I was quite the...

Life is a shipwreck but we must not forget to sing in the lifeboats - Voltaire

Posted by maggiethedoglover

5 Replies | Reply | Watch This Discussion Report This | Share this:Who wears Makeup & How Often? Hi Missist, I just turned 68 years old and have never worn make-up. When I was young I was quite the...

Reply: Hair loss

Hello Fran.... glad to see your post...MiMi in NC....I have had hair loss issues for a very long...

IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

Posted by Dollbug

1 Reply | Reply | Watch This Discussion Report This | Share this:Hair loss Hello Fran.... glad to see your post...MiMi in NC....I have had hair loss issues for a very long...

Reply: Fibro and other life hazards

What an exciting time for you! How wonderful. I'm with MiMi on this though. It is so very easy to forget that...

Posted by BetteK

2 Replies | Reply | Watch This Discussion Report This | Share this:Fibro and other life hazards What an exciting time for you! How wonderful. I'm with MiMi on this though. It is so very easy to forget that...

Reply: Young and Active!

Do try to keep as active as you can. All the "experts" tell us that exercise will break at least some of the...

Posted by BetteK

Do try to keep as active as you can. All the "experts" tell us that exercise will break at least some of the pain cycle.

Unfortunately, I was not able to continue roller skating with my fibromyalgia because it began during my second pregnancy at a time when early marriage (learning how to cook, clean, and manage both a home and my husband's business) and early motherhood (the boys are only 14 months apart) left me with no time, no energy, and no money to skate 3 times a week.

I still believe that 10 years of skating at least 9 hours a week built up strong leg, hip, and back muscles that helped limit FM's effects on my body for the next 25 years. (Those skates are HEAVY.) Whether you are dancing, doing figures, or just skating around the rink, you lift your weighted legs a lot of times each session. And it is fun.

Everyone needs fun. Whether you're young or old, single, or attached, you need connections with others who share your interests. Sharing in a sport--even if it's just a walk around the neighborhood--is a great way to continue your active life and to expand your circle of caring people.

One of the the things that can happen is that we limit our contact with others as we DO less and less. If the time comes that you must limit some of your activities, try to keep the people who shared those activities with you within your circle of friends. If this is impossible, expand your circle to those who are active in your new, gentler persuits. (Think a water aerobics class instead of a spinning class.)

Some of the changes in your life will be because of new life circumstances (a new job in another city or marriage or parenthood), some will be a product of natural maturing of your body and your mind (an interest in community affairs, the PTA, or a new hobby that engrosses you), and some will probably be because of your fibromyalgia (bike riding is just too painful, so you walk).

Fibro is a challenge. Like all challenges, how they effect us is often a matter of how we affect them. Life can still be beautiful--but only if we let it.

We'll still gripe here, though!

BetteKView Thread

Posted by BetteK

3 Replies | Reply | Watch This Discussion Report This | Share this:Young and Active! Do try to keep as active as you can. All the "experts" tell us that exercise will break at least some of the...

Reply: abdominal swelling

I get a lot of bloating after eating and have recently been diagnosed with GERD. I am have an endocopy in a...

Posted by Gracefilled

4 Replies | Reply | Watch This Discussion Report This | Share this:abdominal swelling I get a lot of bloating after eating and have recently been diagnosed with GERD. I am have an endocopy in a...

Reply: Not Handling this fibro well

Hi jillylin Just thought I would share a little know secret with you as far as medicine bottles. Most of...

Posted by Debrichard

12 Replies | Reply | Watch This Discussion Report This | Share this:Not Handling this fibro well Hi jillylin Just thought I would share a little know secret with you as far as medicine bottles. Most of...

Reply: Arm,shoulder pain, something that feels like a"Cha...

I'm going to agree with Dollbug on the Vitamin D. Whenever my body seemed to get extremely worse bouts of...

Posted by Emm3119

2 Replies | Reply | Watch This Discussion Report This | Share this:Arm,shoulder pain, something that feels like a"Charlie Horse) in thigh I'm going to agree with Dollbug on the Vitamin D. Whenever my body seemed to get extremely worse bouts of...

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