Hi Judy, Hope all is well with you. My Dr just wrote a book on the dangers of acid reflux. It's called Killing Me Softly From Inside, by Dr J. Aviv. In his book it tells you that people don't know they have acid reflux. If some one has a cough or constant clearing of the throat that is a sign that they have acid reflux. Its called silent reflux. You can also google him and watch some of his videos, they are very informative. In his book it teaches you to use food as your medicine. People think they can just take the nexium and eat what ever they want. Not so! The PPI's should only be taken for a short period of time to help heal the esophages but you must be on an acid free diet as well. Hope you find the time to read the book and listen to some of his videos! CarolynView Thread
Hi Judy, thanks for replying. After almost 2 years of suffering I finally found a doctor who told me I have Glossopharyngeal Neuralgia (GPN) It involves the ninth crainal nerve. There is a vessel compressing that nerve that is causing me to have a sore throat and ear pain. I am taking anti seizure meds like Lyrcia and gabapentin to relax the nerve. There are side effects of the meds I don't like. I still have some throat pain but not as bad as it was. There is a surgery called MVD to take the pressure off the nerve. There is alot involved in that and you must find a surgeon that is very experienced with that type of surgery. For now I will take each day as it comes. Thanks for the info, perhaps it will help others that see it. Take care CarolynView Thread
The Dr also thought I had Gerd. I went for the 24 hr ph test, it came back negitive. My throat pain was getting worse After alot of reasearch I found an ENT Dr that knew excatlty why my throat was sore. I have nerve damage in my throat caused from a virus, I am taking Gabapentin and Nortriplyine to help calm down the nerve pain. Its been about 7 months on the meds plus a host of supplements to help quiet the nerve and its helping alot. I am finally seeing some light at the end of the tunnel.View Thread
I have a sore throat that will not go away. I have had this since last September. I was checked for gerd and lpr. I had the 24 hr ph test for acid reflux, that came back negative. After going from one dr to another I finally found an ENT in NYC that was on the dr OZ show. He kew what was wrong with me and told me I have Vagal Neuraliga, which is nerve damage in the nerve in my throat. It came from a cold and the virus settled in the nerve. I was shocked and elated at the same time. I have never heard of this before. I am currently on Gabapention to help with healing the nerve. I was told this will be a very long process and not everyone gets better. I must say with the meds and the supplements It feels much better. I do have days where I am in a lot of pain. It would be great if there was someone else out there that knows what I am going through.View Thread
Hi Helena, I have beenhaving a sore throat for well over 1 year...Drs thought I had Gerd, LPR I was treaded for both nothing helped my throat pain just kept getting worse. I went for the 24 hr PH test...that came back negative for GERD. After going to Dr to Dr. I finally found an Ent Dr. that specializes in hard cases. He told me I have nerve damage in my throat that came from a virus. I was in shock but happy at the same time that some one finally knew what was wrong with me. I am now on Gabapention. The dr said it will take a long time for the nerve to recover from the damage, and that I will have good and bad days. I am waiting for that light at the end of the tunnel.View Thread
Hi Diane, I hope you are feeling better... How was your 2nd test?? Did you have any pain or feel the tube?? I am getting a little nervous, I am going for the 24 hr test on Sept 10th, I had to stop all the meds this morning until the test is over. It is after 7pm here and already I am getting symptoms. I really do hope I can get by till next Tuesday when the test will be over. All meds had to be stopped 7 days before. At least like you say I'll be getting to the bottom of this and hopefully on my way to feeling better...I really don't know what more they can do for me as far as meds go. I really don't want surgery, I'll leave that as my last resort... I will write you and let you know about my experience after my test....Take care....Carolyn View Thread
I am now taking 20 mg of OMEPRAZOLE 2 times a day....before breakfast & dinner waiting 30 mins to a half hour before eating...Plus Pepcid AC 20 mg Over the counter at bedtime....I still do have a sore throat but not as bad....You must follow a low fat diet, no cold cuts, salad dressing No vinegar at all or anything that contains vinegar, no cakes , cookies, pastries. Try to eat things under 3 Grams of fat I was told..Plus Coffee and alcohol is the worst thing for you to have....Its a tuff diet to follow but it does help...It will take some time to go away...You should raise the head of your bed 5 to 7 inches as well..Try not to talk loud and yell and rest your voice when ever you can....Hope this info helps you!!View Thread
Hi Lisa, I am so sorry that your husband is suffering so bad...I remember when water would burn my throat as well. You have to try to find a dr that specializes in your husbands condition...I went thru so many drs and got so depressed until I found this ENT that is helping me. I wish you and your husband the best of luck...View Thread
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