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How often do you do them? And have you experienced a benefit?View Thread
One question might be, if your ovaries are removed, and you have no menopausal symptoms, do you still have non-menopausal blood levels of estradiol. Typically a menopausal blood estradiol would be less than 20-30 picograms. As you likely have read, the body can convert other hormones (eg androgens) into weak estrogens. Once ovaries are gone the principal source of androgens are the adrenal glands. Given that you are under the care of a GYN oncologist, I would bet that they have ruled an estrogen or androgen secreting tumor.
I could not find any randomized trials of Lupron for ovarian remnant syndrome, but Lupron has been shown to be very effective in suppression of endometriosis in any body site. It sounds like your MD is also trying to avoid another surgery by trying a hormonal suppression approach. As you know, if a woman had improved pelvic pain with Lupron, that can help confirm endometriosis as the culprit.
It is dreadful that you have had to endure so much at such a young age--and with two young children to care for. My advice would be to consider your MD's suggestion as a trial for the pain. You can always bail after the initial injection. Hopefully the mass will shrink and the pain abate.
If you elect to try the Lupron, would you be willing to send us an update on your decision and condition? Because of the rarity of your case, another woman with a similar issue may be able to benefit from your experience and insights.
In Support,
JaneView Thread
That part about close your eyes and spin around is really kind of odd--unless there was a complaint of neurological/balance issues. Yet even in that case it seems like it should have been done with at least an exam gown on, not nude.
Bottom line, you were not comfortable with his behavior. That says it all. You could choose to leave a report with your state's Board of Medicine (may also be known as Board of Medical Examiners). Here is a link to more information about filing a report. You can also just ask if that MD has had any other complaints made about his exams:
http://www.nbme.org/clinicians/information.html
Thanks for taking the time to write about this difficult topic.
Yours,
JaneView Thread
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After going through my symptoms and relevant health history, the PA went over how the UFE would work, necessary tests beforehand (MRI to see if I'm a good candidate), anesthesia (not general but deeper conscious sedation than when you have a colonoscopy -- they use propofol), how long it takes (1-2 hours), hospital stay (overnight, and someone would have to drive me home). They do use an anesthesiologist who would be made aware of my asthma (although I said it's very well controlled).
He also did mention that sometimes the ovarian arteries also need to be embolized, which would result in menopause. (I forgot to ask under what circumstances that would be necessary -- so I'll call him & ask.)
Also for pain relief they use a hypogastric nerve block to the uterus which the PA said lessens post-procedure pain quite a bit (from a 9 to a 3-4, he said). He said that I could resume normal activities between 3 days and a week afterwards. I would be sent home with pain meds and antibiotics. I questioned when I could start strenuous exercise since I have two longer bike events coming up in June (one 50 miles, one 42 miles), and the PA said probably within a week or two after the procedure.
I asked when I would experience symptom relief. The PA said that bleeding would reduce probably right away, and that the fibroids would shrink 50% within 3-6 months. He also said that he has not seen any fibroids that have been embolized recur.
I asked about the risk of the plastic pellets migrating to other areas of the body. The PA said that the I.R. threads the catheter down to the smallest artery to the fibroid, placing the pellets in the closest possible proximity, and if he can't get down that far he doesn't place the pellets. He said it doesn't really happen that they migrate.
Thus I'm proceeding with the MRI, which will take about a week to preauthorize with the health insurance company. Then after the I.R. reviews the MRI I'll be given the green light (or red light). And then I'll either schedule the UFE or figure out what else I want to do, if I'm not a good UFE candidate.
So there's the scoop. Let me know if there's anything that I didn't ask, since I have to go back to the PA anyway and follow up on that one question above. JudyView Thread
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Any suggestions??Thanks..View Thread
Those were all natural but I am also on provera 10mg when I need it.
I have PCOS, so my cycle can be a bit funny. I am due for a period anyday and have had the normal pelvic, belly cramps for about a week now. I took a pregnancy test on 5/14/12 and it was negative.. Also it was mid day after 2 or 3 cups of coffee :}. The night of 5/14 I had really bad stomach cramps and diarea. 5/15/12 I was queasy all day with alot of excess saliva, crampy, tired and vomited phlem twice, tender swollen high, kinda soft cervix, white tacky cervical mucus. my breast are only a bit sore most likey due to pms. I am using the restroom more but Im sure that is due to my morning coffee intake. Today my cervix is not tender, Still high as I can barely reach it and cervical mucous is the same. Still excess saliva and queasy. My question is since im sure that my chances of being pregnant are slim to none due to the pcos and I do not ovulate much.. Should I test again before I jump start my period... If in fact I decide to jump start my period.. Sry for the long post, I just wanted to give a little back history. Thanks and have a wonderful day.View Thread
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Poll Results
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Take another test100% (1)
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Maybe its a virus0% (0)
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Its your period coming0% (0)
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Dont test0% (0)
GailView Thread
2. No, although, as the article states, there can be more breakthrough bleeding with the lower dose.
3. None
4. Yes; many women take these pills for a lot longer than 10 years without porblems.
5. No, although once one goes off of these it can take a while for normal menstruation to return; several months isn't unusual and is rare cases, up to a year.
6. Generally, one is protected after being on these for at least 7 days.
GailView Thread
In addition you have the problem of the urine leakage (? urinary stress incontinence?) which puts irritating urine moisture into the mix.
What to do? If you are already using an estrogen cream go back to the GYN and let them know it isn't working. If you are not using a prescription estrogen product, ask your GYN if that would help. In terms of the urine leakage that may have to be fixed surgically if it is stress incontinence. You can also see if Kegal exercises will help stop the leakage. Your problem is not insignificant. If your current GYN does not seem interested, you might want to get a second opinion from a urologist.
In Support,
JaneView Thread
I really do think you should seek a primary care MD about the blood pressure differential. They can also do some simple liver and kidney blood tests just to ally your fears. It is important to be honest with them about your alcohol use. They can do the CAGE questionnaire if they want to run a standardized test. I suspect any MD will be impressed by your honesty; most patients do not mention drinking (or cigarettes or drugs or multiple unprotected sex exchanges) if they think it might be a problem.
Yours,
Jane
PS: BIG thanks to Anon_5366 for excellent, and supportive, adviceView Thread
Once pregnancy is ruled out (because you know that you are able to conceive), the most common reason for a menstrual pattern like you have described is not having an ovulation every month. In a normal cycle, estrogen is produced all month. Estrogen is responsible for building up the lining of your uterus so you have something to shed each month.
In a normal cycle, progesterone production increases following ovulation and release of an egg.. Progesterone "stabilizes" the uterine lining in preparation for a possible implantation of a new pregnancy. If you are not pregnant that month the levels of estrogen and progesterone fall, triggering the release of the uterine lining—your period.
So, if you do not ovulate, the estrogen build up of the lining continues, but without the usual ovulation associated progesterone. Thus, the hormone levels don't decline, and the lining stays up inside the uterus—your missed/late period. Sometimes, when there is not an ovulation to trigger a complete shed of the lining, just parts of the top layer will shed. This produces flows which can be either too light or prolonged erratic bleeding.
As you may have read, there can be MANY causes for not ovulating: low thyroid, pituitary problems, ovarian cysts, physical stressors (eg sudden increases in exercise, crash dieting), emotional stressors (problems with money, partners, kids), increased body weight, anorexia, rotating shifts at work, etc. It is also possible that your body has not yet returned to super regular ovulations since the miscarriage.
Bottom line, rule out a current pregnancy with a reliable pregnancy test. If the test is negative you can elect to self monitor for another month to see if your prior cycle patterns return. If not you can see your GYN or local family planning clinic. They should be able to evaluate you for any causes of late/missed ovulations.
Yours,
JaneView Thread
Lastly, I am even more convinced about the competence of your GYN if she had a chart made up to discuss the pluses and minuses of all the options for heavy bleeding. It would be of benefit if we could know which was going to be the best for that individual patient. The Mayo Clinic study I quoted was an attempt to isolate any predictive factors. Yet, like all statistical studies, the variables used may not apply to a specific, individual woman. I laud your GYN for taking the effort to present all the options not just push for hysterectomy at the outset.
Yours,
JaneView Thread
good luck!!View Thread
GailView Thread
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