My wife, 46 yoa, has developed severe aortic stenosis(0.7-0.8 cm) and needs her aortic valve replaced. In addition, she has ascending aortic aneurysm(4.5cm) that needs attention. As a result of the severe aortic stenosis, she has also developed pulmonary hypertension. We've been through a lot the past 2 weeks. She spent 2weeks in our local community hospitals "heart center" which was wasted precious time. You see, the cardio thorasic surgeon who was assigned to us initially agreed to perform the surgery, however, after putting her through a magnitude of testing, procedures, he ultimately turned to us and said she needed to be in a tertiary center that could provide the care she needs. Ultimately he said he could not perform the surgery. Needless to say, we were devastated. We felt we were misled and we in addition to our medical insurance company were taken advantage of. Anyway, we were referred to shands hospital in Gainesville, fl. I have to say though, the patient care she received at our community hospital by the nurses/aides, was fabulous. Now that we are at shands, totally different, night and day, with the nursing care. The best way I can describe it, we went from 5- star hotel service to roach motel. When we arrived at shands, she was placed in a room that she had to share with another patient. My wife's side of the room was like literally being in a broom closet. The other patient had several young children and friends in the room causing a lot of noise. Very young, inexperienced nurses. I guess that's from being a teaching hospital. We went from nurses being very attentive, coming in and out of the room all day and night to only seeing the nurse at shands, maybe 3 times all day. I almost felt like the forgot about us. My wife told me she tested them by disconnecting several heart leads. Well, guess what? They didn't come to check her for 2 hours. Wow!! The only thing that's keeping me from yanking her out of there, is the surgeon that's attending to her. He has good credentials and seemed to be a caring, compassionate surgeon. I don't know how much more we can take and keep me from moving her again to another hospital. Before I do this, I would like to have some personal advice from someone who has had great success with a cardio thorasic surgeon and hospital in the Florida area. I need your help, please!!!!View Thread
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.