Hi Juju I went to the cardio doc yesterday but he got called out during my appt. for an emergency. I was told they still are not sure what is going on - he believes it is exercise induced PH based on my test.
I have to have another Pulmonary function test to see what my lung volumes are because my report says I have chest restriction. It was a very confusing report - I'll need to see the cardio doc after the PFT to go over all this again he said.
If you visit the site I gave you, you will find out some people don't find out that they have PH for years - you have found out right away which is good - treatments can start soon for you.
I had my blood clots in 2007 and now I am told I have PH. The tests are normal for this disease. Try to not worry about it - keep getting the tests then the treatment. I have had 3 right heart caths the last one 2008 and my PA pressure was only 30 borderline PH, so they did nothing except say I don't have it - now I do.
If you stay here on the heart board - I'll post my update on my results on Tues. Good Luck with your tests I'll be praying for you. JulieView Thread
I am still in the testing phase - been to 3 regular pulmonary doctors who told me nothing was wrong even though I now have clubbed fingers and toes. I can't breathe while walking, can't do a flight of stairs and never passed a pulmonary function test.
I went to Mayo Clinic for a second opinion, I have bronchiectasis with bronchial wall thickening, pulmonary fibrosis and now PH. I have had blood clots in both lungs when this all started in 2007. On top of all this I have an autonomic dysfunction with neuromuscular weakness of the diaphragm.
Just recently on a normal chest X-ray for surgery they found I had an enlarged heart - my cardiologist said it's not my heart but my lungs so he sent me to have a Cardiopulmonary Stress Test - I get those results on April 16th. My next step is the right heart cath to see how high my pressures are then I can go see the PH pulmonary Dr. for treatment. JulieView Thread
Hi I did post a reply a couple day ago, I will copy and paste it here: I have PH (pulmonary hypertension), here is a good site to go to so you can learn more about it. Also if you were told you have PH you will need to see a special pulmonary Dr. who deals with PH. On the site there is a place where you can "find a doctor" in your location.
The Gold Standard test for PH is a right heart catherization (sp) to see what the artery pressure is - we are told that the echo only gives an estimate of what is going on with the pulmonary arteries. My echo showed 48, my cardiologist will be doing another right heart cath after my next visit on the 16th.
It is treatable with meds. But first you need to have your tests done, see the cardiologist then make an appt. see a PH specialist. If you look down at your previous post you will see that CardioStar also responded. I went to "pulmonary Drs. but they do not treat PH" that is why I stress seeing a PH specialist. The PH website will tell you a lot about PH. Please visit the site. JulieView Thread
Hi Pulmonary Hypertension is not the same as hypertension.
Pulmonary Hypertension is high blood pressure in the pulmonary arteries. Hypertension is high blood pressure via the arm.
I have PH (pulmonary hypertension), here is a good site to go to so you can learn more about it. Also if you were told you have PH you will need to see a special pulmonary Dr. who deals with PH. On the site there is a place where you can "find a doctor" in your location.
The Gold Standard test for PH is a right heart catherization (sp) to see what the artery pressure is - we are told that the echo only gives an estimate of what is going on with the pulmonary arteries. My echo showed 48, my cardiologist will be doing another right heart cath after my next visit on the 16th.View Thread
Hi I had a cardio stress test the other day and of course they don't say any thing - but my bp always runs low (95/60) but 5 mins into the treadmill test my bp shot up to 189/110. Is it suppose to do that?
I couldn't breathe at all through the mask I wanted to quit they kept telling me just one more minute I did quit at 7 mins I had enough.View Thread
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