I was diagnosed with IPF in October of 2012. I am 52 years old. I had a heart attack at 38 years old. Heart issues run in my family. My father died in his early 40's from a heart attack. I have 5 stents in my heart. Well anyway, I had my first cardiologist appointment last week in a long time. On Tuesday I went back for a Vascular test, stress test and a Echocardiogram. My doctor went over all the results with me before I left and I didn't understand some of what he was talking about so I asked him to write down the things that would be helpful for me to Google and research online.
He wrote down..
Congestive Heart Failure Left Ventricular Ejection Fraction 25-30% I am candidate for an AICD (defibulator)
Before I left I asked him if there was going to be any medicine he was going to prescribe and he said not right now.
In my research, I found that alot of the symptoms are the same with IPF. It listed some types of medicine usually prescribed.
So did he not prescribe anything because the ejection fraction is so low and I have IPF? Now I am wondering if he didn't prescribe anything or give me many instructions at all because between the IPF and the Congestive Heart Failure and the Ejection Fraction because I am pretty much screwed.
I am ok with it if I am. I already know I am screwed because I have IPF None of that scares me. When I was telling my kids about the IPF, I even threw a joke in and said "at least I will get a handicap sticker for my car". They laughed but got mad at me after. They are 21 and 23.
Did I mention I am diabetic also?
So should I assume that I am screwed because there was no prescription or instructions? He may be in a position where there is nothing he can do and it comes down to a quality of life thing. He may have been trying to tell me that and I wasn't getting it.
The vascular test showed I have 90% narrowing/blockage in my left leg on the underside of my knee on the back of my leg. He does want me to see a vascular surgeon on that part of it.
Other than that, all he said was come back on August 13th. So right now I need the truth. If I am going to be very limited in the not to distant future, I need to get things in order.
Has anyone else been in this situation with the multiple things wrong? What do I expect from all of this? The truth is all I want right now.
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