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HaylenView Thread
I'm grateful to have found this group. I'm going to provide some history so my present makes a little sense. I'm going to try to be brief. (Try is the key word...)
I'm a 34 year old single mom of 2. When I was 14 I was diagnosed with Hep C. It is possible that I contracted it from a blood transfusion at birth (I was a preemie- no one told me why a transfusion was needed, just that I had had one), or from sexual abuse. There are no other explanations- I've never been an IV drug user, nor do I have any tattoos. I didn't understand at age 14 what I was being told. I was a "ward of the state" at that point and was basically passed around from place to place until I was 18. By age then I had a serious drinking problem (I've been sober for 8 years now).
Over the years I've been sick. Fatigue, weakness, loss of appetite, and generally just feeling horrible. The only way I can describe it is it feels like the flu, without the fever.
I have genotype 1a. My former liver specialist (now retired) told me, after a ton of blood work and a liver biopsy that treatment was not a viable option- that there was only a 20% chance that it would work and that it would make me so sick that the benefit didn't outweigh the risk.
From what I understand, some other conditions that I have are a direct result of the chronic liver disease: a gallbladder full of stones and a splenic aneurysm.
Now I'll get to what brings me here... For the past 2 months I've been CONSTANTLY sick- not the kind that I'm used to that seems to come and go. It's not going away. I'm bloated, it feels like every part of my body is retaining fluid or swelling. It's so bad that my clothes are tight. I've been fainting- out of no where- sometimes several times a day. I can't take any kind of OTC medicine for ANYTHING without it making me dreadfully sick. Last week I took 2 Excedrin Migraine pills because I just couldn't take it anymore and shortly after I was vomiting, weak and ITCHY. I felt like I'd rolled in poison ivy but I couldn't satisfy the itch. My legs are shaky/weak- they feel as if they could "give out" whenever I stand. And I'm moody. Big time. Kind of like PMS but so much worse. I'm never like this. I don't understand? I can't concentrate (I'm a software engineer so this is BAD), I can't focus, heck I can barely get motivated to get out of bed.
I'm fortunate to have a few really good friends who are urging me to see a different/new doctor. I'll be honest. I'm terrified. I don't know what any of this means and I'm not sure I want to know. One woman from my church who went through a liver transplant 16 years ago told me that mentioned that what I've been experiencing could be from ammonia in my blood. Does this sound familiar to any of you?
I need someone to be honest with me, even if it's bad. I have two little kids to think about and no matter happens to me they need to be taken care of.
Thank you for taking the time to read this...View Thread
http://hepc-cured.com/View Thread
I am on my 5th week of the same treatments. Did this onece before 2 years ago non responder. I have been sick the first 3 days. i am doing wonderful. Can I give you some info that works for me. I eat 1/2 of my meals and in between split up my pills. I take my multi vitamin first eat 1/2 a bagel or what ever tahe my riberivon and eay the rest of my meal and take the 4 victrllis and 30 min or so later eat a fruit or yogurt. Havent been ill at all splitting up the pills/ drink lots of water. I hope this helps, I cant beleive how good I feel compared to the first round 2 years ago. Good Luck.View Thread
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ALL HCV SUPPORT GROUPS: We need YOUR HELP and so do the other 170 million people with HCV!
This past April 2012, results of a drug trial by Gilead Sciences and Bristol-Myers, combining GS-7977 daclatasvir (formerly BMS 790052), were released at the European Study for Liver Disease. This drug combination CURED 100% of genotype 1, and 91% of genotype 2/3"026.WITHOUT interferon OR ribavirin. (See attached screen shot of results.)
To the dismay of the HCV community and clinicians/doctors, Gilead Sciences (the company with GS-7977) announced they would not be going forward with Phase III trials due to "profit concerns".
Quoting Dr. Scott Friedman, chief of liver diseases at the Mount Sinai School of Medicine in New York: "The only appropriate motivation should be what is the best and fastest way to get cures, not what is best for the shareholders."
We have formed a grassroots efforts, the Texas HCV Coalition for The Cure, and have started a petition atChange.org "urging" Gilead Sciences to move forward immediately with trials for this life-saving drug combination of GS-7977 daclatasvir.
In essence, it is as follows:
Two Companies: Gilead Sciences and Bristol-Myers Squibb
Two Drugs: GS-7977 daclatasvir
One Cure: For Hepatitis C (without ribavirin or interferon)
We are reaching out to everyone in the HCV community groups, doctors and clinicians, the AASLD, ALF, U.S. Senator John Cornyn, and local media here in south Texas. We have created a Facebook page called Hepatitis C Can Be Cured and invite you to join it for continued updates about this extremely urgent and dire situation. Once you are at the website for the petition, you can view various links to TV, newspaper articles, youtube videos, etc. (link below).
You can help us in this URGENT matter by signing the petition at Change.org at the link provided below, and please ask anyone and everyone you know to sign as well. We currently have over 6000 signatures and are working hard to get as many as possible and as quickly as possible.
Please feel free to contact me at any time if you or your support group has any questions or needs additional information.
Sincerely,
Margaret Dudley
Texas HCV Coalition for The Cure
210-493-0304
mdudley@sbcglobal.net
Link to petition:
http://www.change.org/petitions/gilead-sciences-please-collaborate-with-bristol-myers-for-the-cure-for-hepatitis-c-now
3 Attached files| 899KBView Slideshow Download All [br>View Thread
sincerly
WalterView Thread
sincerly
WalterView Thread
1. Read all you can on this to get yourself informed.
2. Jot down notes of questions to ask your gastro doc.
3. Hang in there. This is doable. Keep praying.View Thread
I have 2 days left and I will have compelted the 24 weeks. I'm signing off of this site for now. Thanks for your emails and best of luck!View Thread
You are right, I will try this....I guess I'm finding it difficult right now, I feel better than I have in years, fitness is very good and I have 6 races booked for 2012....but!!!! I really do have to look at the big picture, believe me you have helped me with that!!
Thanks for your thoughts!
The very best to you!View Thread
If you have been diagnosed with Hepatitis C, you may be eligible to participate in an on-line market research study.
To qualify you must
• Be over 18 years of age
• Have been diagnosed with Hepatitis C
Participants will receive a $$ incentive for their participation
For more information, please call 1-800-277-7530 ext 246
or you can reply to this posting by email
Please include your name and telephone number when responding.
We look forward to hearing from you.View Thread
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