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I have 2 days left and I will have compelted the 24 weeks. I'm signing off of this site for now. Thanks for your emails and best of luck!View Thread

In researcingh and reading of the side effects I read that getting cancer is a possiblility. Did you read that?
Sometimes I think we are guinea pigs and just being used to make money by pharma and the doctors. I asked my doctor how much this treatment cost and he said $75 thousand. Twelve years ago when I did the Infra/Riba for a year I was told the medicine was $1200. a month.
On a side note from a comment you made from another posting regarding getting HEP C from sex...I totally agree, I think that is where I got it some 34 years ago.View Thread

My hepatologist (who put the C in Hep C) says there are other drugs coming up in the next couple of years.
He predicts the side effects of this triple therapy (I think just the Incevik alone) is so unPleasant that doctors won't offer to treat patients and wait for the next set of drugs
Have u started treatment yet?View Thread

The anal itching burning can be intense. Thank god for the suppositories Itching can be bad too. Ice packs helPed meView Thread

August 2011 I started the course of 3 medication - Ribavarin, Pegelated-interferon (1 shot a week rather than daily as I had to 12 years ago) and new drug Incivek,. I'm thrilled to report that at my first blood test the virus was non-detected and has remained so. AND tonight will be my last dose of Incivek ( a 12 week course) I will continue with the Ribavarin and Interferon for another 12 weeks and then that should be it. This is because I am a responder/replaser. For those that have never been treated the time frame is one year.
Everyone is different regarding the side-effects. My Hepatologist says I have the least side effect or they are mild compared to his other patients. Attitude and the mind is a big thing in this. And while the side effects are not pleasant, the possibility of clearing the virus is a no-brainer for me. and it looks like I will succeed. To wait until my liver is so damaged to have to be on a liver transplant list and then if I got one before I died, to have to then take all those anti-rejection drugs? No thanks.
hope this has been helpful.View Thread

The side effects of the Telprevir that effect me most are: rashes, burning/itching anus, nausea. My doctor found suppositories made with hydrocortisone and lainicane that can be purchased and help alot.
the Ribavarin main side effect is fatigue - but to the extreme. 12 years ago when I did the ribavarin and Interferon I worked through it, missing only one day a week. This time with the addition of the teleprevir and because i could afford it, I've chosen to be off work the hole time. The doctor has said that i have the least side affects of all on this regime. I've been able to swim half a mile about 3 times a week and play disc golf, ride bikes, walk...but sometimes the side affects just keep me in bed.
The good news is the virus was non-detected on the very first PCR blood test and remains so! So it looks like I will clear the virus this time! How can you not give this regime a chance! It's better than waiting for the liver to be so damaged via cerrosis or cancer that you need a liver transplant!
Best to you!View Thread

I was diagnosed when it was called non-A/non-B and went several years with no problems. It's only when my liver enzymes became slightly elevated that I went to a Gastoentenlogist (sic). The process, 12 years ago was to first get blood tested for the viral load count (PCR Quantative) and geneotyped - I'm 1A which used to be the most common in the USA and the least resistant to treatment. I also had a liver biopsy. I did a years treatment of Interferon/Ribavarin and am considered a responder/relapser. I've been fine with no liver damage. I will be starting August 1st, a course of treatment with the Ribavarin, Interferon and the 3rd new drug that the FDA just approved. The good news is that I may only be on it for 6 months and not a full year.
I was around your age with a 5 year old at the time of my diagnosis - it is scary, but treatment now is better than everView Thread

Is there still a place here where there is a running conversation in real time?View Thread
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