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Hep C Support Group

Trying to make a difference in the lives of those with Hepattitis C. If we ... more

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Dletmedown

Joined: 03/02/2010

My Story:

I am a male born 6-20-1953, diagnosed 2002 geno type 1A. I have not treated to date. We all have burning questions about hepatitis "C". I hope that this site can help with answers to those questions so that we can all better cope with this disease. It is not an automatic death sentence. So especially if you are newly diagnosed read everything you can find about it. Keep in mind if you look long enough you will find information that you would have rather not read. Some is true and there is a lot of false information out there. The doom and gloom get your things in order and wait to die stuff. You will more than likely live a long life and die from something else. Knowledge is power and power is knowledge. I hope we can share our faith & belief in God & be respectful of one another’s opinions & beliefs. We can all agree to disagree. God has given me a peace I have never had before I found out that I had Hep "C" So obviously I want you to have that same peace. God is the ultimate physician & has the final say. No co-pays & No deductibles, He is open for business 24 hours a day 7 days a week & He still makes house calls. I hope God will bless each & everyone who comes here & give you that same peace He has given me. Check out the Hep “C” links. There are wonderful sites out there with great information. I am not concerned about trying to be worldly & politically correct I'm just trying to share what God has done in my life with others who are looking for more than what doctors & medicine have to offer. I hope you will become a part of the SOLUTION!.
I have Hepatitis C articles & research that I have been posting since diagnosed with Hep C in 2002. I hope it can help make your journey with Hepatitis C an easier one than it has been for me. We ALL need to pay it forward & share what we can to help our brothers & sisters with Hep C.
Check out the links below for information:

Founder / Owner ( HEP "C" SUPPORT GROUP )
http://hepcsupportgroup.multiply.com/ http://www.myspace.com/hepcsupportgroup
drsletmedown@yahoo.com
( Get Tested )

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"NEW" Telaprevir TRIAL Starting In November 2010 (...

On 10-20-10 I went to see a Hepatologist / Gastroenteroligist for a checkup &...

Posted by Dletmedown

On 10-20-10
I went to see a Hepatologist / Gastroenteroligist for a checkup & hopefully some advise on my Hepatitis C. It was a total waste of my time & money. I had made an appointment three weeks in advance for 2:00pm — 10-20-10 & I finally left at 4:30pm. I was there for 2 &1/2 hours. I was seen by his female P.A. not him. I ask her questions & she ask me some & then she called another female in as a witness I suppose & did a rectal exam supposedly to look for blood. She said she found none but then again she was looking for stool & if you get none you have nothing to test. He finally came in the room after I sat in there alone for a long time & ask me if I had any questions. Well let's see I made an appointment with you not your P.A. so YES I have questions WHY do you think I came ? He seemed more concerned about letting me know that he was no longer going to accept Blue Cross insurance after 11-3-10 because his complete group of doctors were dropping Blue Cross because they were cutting what they pay the Dr's by 30%. My wife & I pay $750.00 a month for coverage & this is what you get from the doctors Blue Cross offers you to choose from? I tried asking him about treatment & options & their odds of success & he was talking about the protease inhibitors that would be out in a year or so & that I should wait for those since I am male & 57 & geno type 1A. All things that reduce your chances of treatment working. Basically he was just reading me back the information I had given him telling him the odds & acting like he was telling me something new that I did not already know. He said the new stuff when it came out would have about a 60% success rate. I ask him who the drug company was & what was the name of the drug he was talking about. He said he did not know the name he thought it was by Schering Plough. That is the company that has paid doctors $2,000.00 per patient to treat in the past with their poison in the past & it is widely known about. Read here:
http://www.signonsandiego.com/uniontrib/20060830/news_1b30schering.html
I ask him about a drug that has been through several trials & that has had great results as high as 88% success even in people that did not respond to the standard Schering Plough treatment that is available & widely used & that I know someone that was in the very first trial about 4 years ago & was almost instantly Hepatitis C free & three years later he still is. He said he did not know ? He is a Hepatologist / Gastroenterologist working at a liver wing of a major Dallas Tx hospital & he does ( NOT ) know about ( Vertex Pharmaceuticals ) experimental drug Telaprevir
http://vrtx.com/
formerly known as VX-950 that has been know about & in trials with great results for years now ? That's inexcusable & this Dr. is a BAD JOKE! A year ago in November 2009 they were talking to doctors about it being 80% successful. Read here:
http://www.boston.com/business/healthcare/articles/2009/11/02/vertex_pitches_hepatitis_drug_to_key_doctors/
A new study with Telaprevir is starting in November 2010. Read here: (DON'T MISS THIS )
http://investors.vrtx.com/releasedetail.cfm?ReleaseID=522614
It is ( NOT ) posted on the Clinical Trials .Gov website yet ?
http://www.clinicaltrials.gov/
I talked to Vertex the drug ( Telaprevir ) maker & they said just keep checking back at the http://www.clinicaltrials.gov/ website for details. If it starts in November it will fill up quick.
This trial is taking anyone & it does not matter if you have treated before or not & EVERYONE will get the Telaprevir not just one of 3 groups. Most studies there are 3 groups in the studies & you don't know which group of the 3 you are in until it is over. Usually only one of the three groups gets the Telaprevir.
Six days after going to the doctor I found out about this ? He knew NOTHING ?
Thank God for the internet as we "ALL" with this disease KNOW it is the BEST source for HONEST - NON BIASED information we have.View Thread

Posted byDletmedown

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Did You Know? May 26, '10 3:10 PM by Drsletmedown: for everyone ...

Posted by Dletmedown

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