I do have some scarring. My liver is fine. I was probably on medication for 3 years. U of Michigan felt I should be weaned off prednisone first, but my doctor and I felt the Imuran would be best to wean off first.
When I finally was off both meds I started pushing my bloodwork back by a few weeks, and then a couple of months until I was only going a few times a year. Finally I am going only once a year for bloodwork...with my doctor's approval.View Thread
I have not been on any medications in many years. So there is hope for you too. I think your scores are coming down real good. The speed which they come down is not important...
Has your doctor talked about a biopsy? Was a CT or MRI done? Maybe they don't do them now.
I don't know how to lower your LFT scores Victoria. The only thing I remember being told was not to eat asparagrass...but that could have been because of the meds and not anything to do with the liver.
Keep me posted. And if I can answer any more questions I am here.View Thread
Hello Victoria, My knowledge of AIH is 10 years old so I don't have any current information I can give you. I have been in remission almost 7 years. I didn't keep any records after being released from the hospital...not many cases of AIH back then. When I was released from the hospital I was on 20mg of Prednisone and 50mg of Purinethol [6-MP> My AST was 125 and AFT 145. I had an allergic reaction to the 6-MP and was put on Imuran...wish I could tell you the dose but I can't. All my records were sent to U of Michigan, except for the return stay at the hospital when I had the allergic reaction. My most recent biopsy of the liver was done 2 years ago while I was in the hospital to have my gall bladder removed...no changes. It has been a journey from being made ready to be put on a transplant list, to being in remission...but with AIH anything can happen.
So tell me about yourself Victoria. How did the doctor find your AIH? Did they do a biopsy on you? Has your dose of prednisone or azathioprine been lowered? Have your AST and ALT scores been coming down?
Wait a minute, you said your LFT scores. Are you talking about your lungs?
That is true...but both my husband and I only have one autoimmune disease while our daughter has 3. And all of us were diagnosed 10 years ago. Will keep my fingers crossed...AIH is enough to live with. CindyView Thread
Hello, Just knowing she has had the biopsy and it didn't show any cirrhosis is very good news. They have probably started her on prednisone and either Imuran or another drug.
When I was diagnosed I was in the hospital for about 10 days.
Can you tell us how long she has been in the hospital? Her age? Do you know what drugs they have put her on? And how long has she had the symptoms?
I would tell her about some of us on this web site. Every case is different but it sounds to me that the AIH was caught in the early stages, and that is great news.
They know a lot more today than they did 10 years ago. Let her know that remission does happen, so tell her to stay positive. And if she has questions, someone here will have answers for her. Knowing as much as you/she can about this disease will keep her informed about symptoms, new medications and allergic reactions. When she feels up to it, have her join this site. We will be happy to help her understand more about living with AIH.
They can and should have medicated you for the biopsy. I have heard others say how painful it was so you aren't alone. I was loopy and well medicated when mine was done. There was NO PAIN or discomfort.View Thread
The prednisone is the one that gives the ...umm, ugly side affects. BUT not all people get them...and they don't last forever. When I was on it I got the round moon face,[ add facial hair to that circle face>, I also got the buffalo hump on the back of my shoulder/neck area. Not to mention the none stop eating and weight gain. I understand your frustration. I wasn't much of a drinker either, and had quit smoking years before. I want you to know that I was on both drugs that you are taking. I was tapered off both of them slowly. And I have been in remission for about 5 years now. Just had my yearly blood work and my levels are normal. I was taking Protonix to help settle my stomach while on the prednisone and Imuran. The best advice I would give you is that you should rest when you can, keep a journal and get copies of all test results. We are here to answer any questions. Some have more experience with different meds and side affects. Don't worry about the long term side effects for now. Getting you stable and this under control is more important.
Hi James, I agree with you about being weaned off the prednisone. I remember that being something that my doctor wanted to do as quickly as possible...without rushing it. I wonder why he won't at least let you try 5mg to see how your body handles that dose? CindyView Thread