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CindyView Thread


I understand your frustration. I wasn't much of a drinker either, and had quit smoking years before.
I want you to know that I was on both drugs that you are taking. I was tapered off both of them slowly. And I have been in remission for about 5 years now. Just had my yearly blood work and my levels are normal.
I was taking Protonix to help settle my stomach while on the prednisone and Imuran.
The best advice I would give you is that you should rest when you can, keep a journal and get copies of all test results. We are here to answer any questions. Some have more experience with different meds and side affects.
Don't worry about the long term side effects for now. Getting you stable and this under control is more important.
CindyView Thread

I think the lack of energy is common for people with Auto Immune diseases. My husband and daughter both have Rheumatoid Arthritis and get fatigued easily.
CindyView Thread

I agree with you about being weaned off the prednisone. I remember that being something that my doctor wanted to do as quickly as possible...without rushing it. I wonder why he won't at least let you try 5mg to see how your body handles that dose?
CindyView Thread

I consider being tired just normal now. It would be great to have a burst of energy that would last for a few days.
CindyView Thread

I wish I could answer your questions. I didn't keep any records back when I was on medications. But I will tell you that it was many months...and not only 8 weeks like it has been for you. This is very good news for you James. I didn't have a biopsy because I was still having monthly blood work done. Keeping an eye on the bloodwork is so important. I know you will get tired of going for bloodwork, but do it. I only have mine done once a year now. And my last biopsy was in the fall of 2011.
I hope that helped you James.
CindyView Thread

My AIH came on Fast and Furious but once they diagnosed the AIH my healing started out good and strong.
They know so much more about AIH now than when I was diagnosed almost 9 years ago. I guess it is more common now...and that is not a good thing.
CindyView Thread

I have been on Ambien 10mg for about 5 years, but was started on 5mg a few years before that. Works great for me.
I take no tylenol products and will take Advil for pain if needed.
I am in remission, and on no medications for my liver at this time.View Thread

CindyView Thread
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