Thank you. I hope everyone stays as healthy as possible while I am away. Once your thyroid meds are under control you should start to feel a little better. Don't we all wish we had read, and knew about AIH before we got it...or during the time we were being diagnosed. See you next month. CindyView Thread
The earlier the diagnosis the better the chance of keeping it controlled. We know about being so tired you just want to lay your head on the pillow and sleep forever. Rest as much as you can...your body is trying to heal. It also will help mentally, and emotionally. I'm glad you decided to join in our converstations. Getting support when everyone around you is asking "what is autoimmune hepatitis" is a nice feeling. Knowing you are not alone, and there are people who understand what you are going through. CindyView Thread
How is your mom doing? As bad as I felt after my surgery, it was no way as bad as what your mom went through at her age.I pray that she is healing well.
No one mentioned that my liver could be affected by this trauma to my body. I sure hope it doesn't, because I know that I don't need my liver to act up, or another autoimmune disease to flare up because of the trauma. I won't have blood work done until January, so time will tell.
Wouldn't it be nice if a doctor actually had answers to our questions!View Thread
Hi Ann, I wish I had kept copies of my ALT score when I first got AIH. I I can't say what they were before the prednisone and Imuran. There wasn't the support group or websites around 7 years ago, so I didn't know that some day I would want to have this information. I have been off prednisone for about 3-4 years now. I don't know what the report read on my first biopsy. At one time I had my hospital records but I took them to U of Michigan and of course they kept them. If I had only known enough to make copies first...duh. My latest biopsy report read "mild chronic hepatitis". It would be nice to know if that wording changed from the first biopsy. I hope your blood work has better scores later this month. Did you spoil the grandkids rotten? I hope so. Take care Ann, CindyView Thread
It was a long month but I am back to normal. A little rocky in the emotion department, but with time that will get back to normal too. We all know how those little set backs can really mess with our heads. [That's where those prayers really help.>
The report of my biopsy reads "mild chronic hepatitis". So that was very good news.
I'll be heading north to deer hunt next week and won't be back until the end of the month. Looking forward to watching birds, reading and relaxing in my deer blind...and shooting a deer if the chance comes along.
I will be thinking and praying for everyone in our group while I am away.View Thread
It is really important that you take your meds to help control those flareups. We all hate having to take medications. Even though I don't take meds for AIH anymore, I am on other medications. When I look at those pills in my hand every morning, it is like I'm being told "you aren't healthy like other people". That is when I realize that I am very lucky to live in the 21st Century, because how would my life be without these medications? No the doctors don't have all the answers, and many don't know much about AIH. Finding this support group has helped me feel better, because it's nice to have others here to share our disease and their knowledge and experiences.View Thread
This turned into a bad experience with my gall bladder. They over loaded me with liquids and I ended up with a raging urninary tract infection. Had to cath me 5 times and I've been on anitibiotics for 3 weeks. Spent a couple of days in CCU. I feel much better now...except for a nasty head cold. I need my luck to change quickly. Thank you for the prayers Ann.View Thread
I remember hearing that a lot of the name brand perscription patents were due to expire this fall. And that means that many of them will now be available in generic form. I hope that will apply to the more expensive ones, that are needed. CindyView Thread
Hi Ann, The week following the gall bladder problem, I ended up back in the hospital with a raging unrinary infection for a few days. I hope I am on the mend now.
It's bad enough that we have to live with our AIH, and worry about doing the best we can to stay as healthy as we can. But when something happens that is suppose to be "simple gall bladder surgery" and it turns into a "big deal" then it affects our physical, emotional and mental conditon. The extra stress is not needed. Staying positive becomes something I have to fight to do.
I'm glad I'm not alone in this battle. We all have to face this everyday. This is where having faith gives us that strength we need to get past these set backs. And having a strong support group gets us through this journey a lot easier. Thank you for the prayers Ann. They were answered. CindyView Thread
I take no medications for my liver. But that probably has a lot to do with diagnosing my AIH early...in just a few months.
I had my gallbladder taken out last week and the surgeon did a biopsy on my liver. He said it looks good. I will talk with you more when I feel a little better. Instead of being an "out patient" I ended up in the hospital all week. So I have a lot of things to sort thru. We can talk soon. CindyView Thread
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