It is really important that you take your meds to help control those flareups. We all hate having to take medications. Even though I don't take meds for AIH anymore, I am on other medications. When I look at those pills in my hand every morning, it is like I'm being told "you aren't healthy like other people". That is when I realize that I am very lucky to live in the 21st Century, because how would my life be without these medications? No the doctors don't have all the answers, and many don't know much about AIH. Finding this support group has helped me feel better, because it's nice to have others here to share our disease and their knowledge and experiences.View Thread
This turned into a bad experience with my gall bladder. They over loaded me with liquids and I ended up with a raging urninary tract infection. Had to cath me 5 times and I've been on anitibiotics for 3 weeks. Spent a couple of days in CCU. I feel much better now...except for a nasty head cold. I need my luck to change quickly. Thank you for the prayers Ann.View Thread
I remember hearing that a lot of the name brand perscription patents were due to expire this fall. And that means that many of them will now be available in generic form. I hope that will apply to the more expensive ones, that are needed. CindyView Thread
Hi Ann, The week following the gall bladder problem, I ended up back in the hospital with a raging unrinary infection for a few days. I hope I am on the mend now.
It's bad enough that we have to live with our AIH, and worry about doing the best we can to stay as healthy as we can. But when something happens that is suppose to be "simple gall bladder surgery" and it turns into a "big deal" then it affects our physical, emotional and mental conditon. The extra stress is not needed. Staying positive becomes something I have to fight to do.
I'm glad I'm not alone in this battle. We all have to face this everyday. This is where having faith gives us that strength we need to get past these set backs. And having a strong support group gets us through this journey a lot easier. Thank you for the prayers Ann. They were answered. CindyView Thread
I take no medications for my liver. But that probably has a lot to do with diagnosing my AIH early...in just a few months.
I had my gallbladder taken out last week and the surgeon did a biopsy on my liver. He said it looks good. I will talk with you more when I feel a little better. Instead of being an "out patient" I ended up in the hospital all week. So I have a lot of things to sort thru. We can talk soon. CindyView Thread
Hello, I know how you feel...I was so happy to find others with AIH. It's so much easier to deal with the disease when you have a support group to answer your questions, and share their experiences. Glad you found us. How did the doctors find out you had AIH? CindyView Thread
Hi Rita, I was told I would be on the Imuran for the rest of my life. So when I was able to go off it completely I was surprised. And I expected to be put back on it in the near future...but that hasn't happened.
I don't think the 9 pts increase is a big problem. As long as you are in the range that your doctor is happy with.
You have to remember that each of us are different with our treatments and conditions Rita. Do you want to worry about the long term side effects, or get things under control now? I am not judging you. But I want you to find some way to look at all of this in a positive way. Your body, mind and soul needs positive and healthy energy to be strong.
I don't know enough people that have lived on Imuran for many years to answer your question. Only my mom...and she ended up with Cancer 20 years later. CindyView Thread
My mom was on Imuran and prednisone for over 20 years because of her Crohn's disease. She did end up with colon cancer. We all have a choice to make when taking drugs for any disease or illness. Do I want quality of life now? Do I want a chance to survive? Am I willing to pay the price down the road?
So far I don't have any other autoimmune diseases, but I remember the doctor saying something about my mom having Crohn's disease, had something to do with my AIH. I won't be surprised if I get another one someday. My daughter already has 2 and she is only in her 30's. CindyView Thread